| Advocacy |
Louisiana Citizens for Action Now
http://www.lacanadvocates.org
Provides a wealth of self advocacy information. Linda recommends individuals check out the "Legislative Activities" section for an outline of a sample letter to Legislators and a "How-To" testify before a legislative body. |
|
| Agencies/Assistance Programs - Government |
GovBenefits.Gov
http://www.govbenefits.gov
Provides information regarding government assistance programs nationwide. Includes a state-by-state program search. |
Hawaii Children with Special Health Needs Branch
741 Sunset Avenue
Honolulu, HI 96816
V/TTY (808)733-9055
http://www.hawaii.gov/health/family-child-healt...
|
Hawaii Department of Health - Disability Services
1250 Punch Bowl Street
Honolulu, HI 96813
(808) 586-4400
(808) 586-4444 (Fax)
http://hawaii.gov/health/disability-services/
|
Hawaii State Council on Developmental Disabilities
919 Ala Moana Blvd., Suite 113
Honolulu, HI 96814
(808) 586-8100
(808) 586-7543 (Fax)
http://www.hiddc.org
|
Hawaii State Department of Health
1250 Punch Bowl Street
Honolulu, HI 96813
(808) 586-4400
(808) 586-444 (Fax)
http://www.state.hi.us/doh/
|
RSAs On The Move
Pacific Outreach Initiative
Honolulu, HI
(808) 956-4281
http://www.rsa.hawaii.edu/default.htm
*Related Services Assistants - Therapy services in the Pacific Islands. |
STRIDE Hawaii - Pacific Rim Rehabilitation & Research Training Center
1268 Young Street, Suite 204
Honolulu, HI 96814
(808) 592-5900
TTY (808) 592-5906
(808) 592-5909 (Fax)
http://www.hawaii.edu/stride/
*Training and Mentoring Programs |
|
| Agencies/Assistance Programs - Private |
Cover the Uninsured ~ A Project of the Robert Wood Johnson Foundation
(202) 572-2928
http://covertheuninsured.org
E-mail: info@covertheuninsured.org
*State by state listings of various insurance programs for individuals and families who have difficulty obtaining medical insurance. |
|
| Assistive Technologies |
Assistive Technology Resource Centers of Hawaii
414 Kuwili Street, Suite 104
Honolulu, HI 96817
800-645-3007 (Neighbor Islands)
V/TTY: (808) 532-7110
(808) 532-7120 (Fax)
http://www.atrc.org/home/
Email: atrc-info@atrc.org |
|
| Child Care Resource Listings |
Child Care Aware
3101 Wilson Blvd. Suite 350
Arlington, VA 22201
1-800-424-2246
TTY:1-866-278-9428
(703) 341-4101 (Fax)
http://www.childcareaware.org
Child Care Aware is a cooperative program of the National Association of Child Care Resource and Referral Agencies. Funded through the Office of Family Assistance, Administration for Children and Families, U.S. Department of Health and Human Services.
**SNRP does NOT endorse this site. Listed for reference only. Use responsible caution when investigating ALL care providers. |
|
| Early Intervention |
Hawaii Early Intervention Services
1600 Kapiolani Blvd., Suite 1401
Honolulu, HI 96814
(808) 973-9650
http://www.hawaii.gov/health/family-child-healt...
|
|
| Education |
Hawaii Department of Education
1390 Miller St.
Honolulu, HI 96813
(808) 586-3349
(808) 586-3433 (Fax)
http://doe.k12.hi.us
|
Hawaii Special Education Services Branch
637 18th Avenue, Bldg. C, Room 201
Honolulu, HI 96816
(808) 733-4400
http://doe.k12.hi.us/specialeducation/
|
Learning Disabilities Association of Hawaii
200 N. Vineyard Blvd., Suite 310
Honolulu, HI 96817
1-800-533-9684
(808) 536-9684
http://www.ldahawaii.org
|
Western Regional Resource Center (WRRC)
1268 University of Oregon
Eugene, OR 97403-1268
(541) 346-5641
TTY (541) 346-0367
http://www.rrfcnetwork.org/wrrc
E-mail: wrrc@oregon.uoregon.edu |
| Housing Programs - Government |
DisabilityInfo.gov ~ Housing
http://www.disabilityinfo.gov
*Provides a comprehensive listing of Federal and State housing programs and up to date program information. |
Hawaii Housing Finance & Development Corporation
677 Queen Street
Honolulu, HI 96813
(808) 587-0597
http://hawaii.gov/dbedt/hhfdc
|
Paralyzed Veterans of America
801 18th Street NW
Washington, DC 20006-3517
1-800-424-8200
http://www.pva.org
*Not just for paralyzed Veterans, not just for paralysis. Ask for their Architecture Program!
**SNRP recommends their publication "Accessible Home Design". |
|
| Housing Programs - Private |
Center For Universal Design North Carolina State University
P.O. Box 8613
Raleigh, NC 27695-8613
(800) 647-6777
V/TTY:(919) 515-3082
(919) 515-3023 (Fax)
http://www.design.ncsu.edu\cud
|
Institute for Human Centered Design (Adaptive Environments)
180-200 Portland Street, Suite 1
Boston, MA 02114
(617) 695-1225
(617) 482-8099 (Fax)
http://www.adaptenv.org
E-mail: info@HumanCenteredDesign.org |
| Independent Living Organizations |
Hawaii Centers for Independent Living
414 Kuwili Street, Suite 102
Honolulu, HI 96817
(808) 522-5400
(808) 522-5427 (Fax)
*Contact to locate the HCIL nearest you. |
|
| Indian Health Services |
California Area Indian Health Service
650 Capitol Mall Suite 7-100
Sacremento, CA 95814
(916) 930-3927
(916) 930-3952 (Fax)
http://www.ihs.gov/FacilitiesServices/AreaOffic...
|
|
| Information |
Disability Information.Gov
http://www.disabilityinfo.gov
*Large Federal database providing easy access to comprehensive information about disability programs, services, laws and benefits. To find disability resources in your state just click on the Find State and Local Resources map located in each of the subject areas listed in their menu. |
Girls Health.gov
8270 Willow Oaks Corporate Drive, Suite 301
Fairfax, VA 22031
http://4girls.gov
*See "Illness and Disability" tab. Excellent information resource. |
MedicareSolutions
http://www.medicaresolutions.com/disability-res...
*A comprehensive page on disabilities providing informative links in several areas of interest including Disability Rights, support groups, government resources and organizations and others. |
National Organization on Disability
910 Sixteenth Street, N.W., Suite 600
Washington, DC 20006
(202) 293-5960
TTY: (202) 293-5968
(202) 293-7999 (Fax)
http://www.nod.org
E-mail: ability@nod.org |
United Spinal Association
75-20 Astoria Boulevard
Jackson Heights, NY 11370
800-404-2898
(718) 803-3782
(718) 803-0414 (Fax)
http://www.unitedspinal.org/disability-publicat...
*Linda's favorite down-loadable informational resource. Linda recommends the following booklets: Disability Etiquette (PDF), Taking Action (PDF), Adaptive Automotive Equipment (PDF), The Americans with Disabilities Act (PDF),The Fair Housing Amendments Acts (PDF) and Accessing Local Government (PDF). Please see the menu page for other publications you may be interested in. |
University of Hawaii Center on Disability Studies
1776 University Ave., UA 4-6
Honolulu, HI 96522
(808) 956-9199
(808) 956-5713 (Fax)
http://www.cds.hawaii.edu
*Large listing of services. |
| Legal Advocacy/Information |
Hawaii Disability Rights Center
900 Fort Street Mall, Suite 1040
Honolulu, HI 96813
1-800-882-1057
(808) 949-2922
(808) 949-2928 (Fax)
http://www.hawaiidisabilityrights.org
email:info@hawaiidisabilityrights.org |
National Health Law Program (NHelp) Main Office
2639 South La Cienega Blvd
Los Angeles, CA 90034-2675
(310) 204-6010
(310) 204-0891 (Fax)
http://www.healthlaw.org
Email: nhelp@healthlaw.org
* NHeLP serves legal services programs, community-based organizations, the private bar, providers and individuals who work to preserve a health care safety net for the millions of uninsured or underinsured low-income people. |
Wright's Law
http://www.wrightslaw.com
|
|
| Medical Centers/Hospitals/Clinics |
Children's Hospital and Regional Medical Center Seattle
4800 Sand Point Way NE
Seattle, WA 98105
(866) 987-2000
http://www.seattlechildrens.org/
|
Kapi`olani Medical Center for Women and Children
1319 Punahou St.
Honolulu, HI 96826
(808) 983-6000
http://www.kapiolani.org/c.asp?aID=10&bID=70&pI...
|
Legacy Emmanuel Children's Hospital
2801 N. Grantenbein Avenue
Portland, OR 97227
(503) 413-2200
http://www.legacyhealth.org/body.cfm?id=34&oTop...
|
Northern California Shriners Hospital
2425 Stockton Blvd.
Sacramento, CA 95817
(916) 453-2000
(916) 453-2352
(916) 453-2352 (Fax)
*Specialty facility. Specializes in burns, spinal cord injuries and orthopedics. |
Shriners Hospital - Honolulu (Orthopedic)
1310 Punahoa St.
Honolulu, HI 96826-1099
(808) 941-4466
http://www.shrinershq.org/Hospitals/Honolulu/
|
|
| Other |
Disability Studies, Temple University Blog
http://disstud.blogspot.com
*Based at Temple University but with nationwide contributors. Has a LARGE list of disability related blogs. |
|
| Parent Support Programs |
Hawaii Families As Allies
99-209 Moanalua Rd. #305
Aiea, HI 96701
1-866-361-8825 (Neighbor Islands
(808) 487-8785
http://www.hfaa.net
|
Matrix Parent Network and Resource Center Region 6
94 Galli Drive, Suite C
Novato, CA 94949
(800) 578-2592
(415) 884-3535
(415) 884-2592 (Fax)
http://www.matrixparents.org
email: region6@matrixparents.org |
Special Parent Information Network (SPIN)
919 Ala Moana Blvd., Room 101
Honolulu, HI 96814
(808) 586-8126
http://www.spinhawaii.org
|
|
| Patient Assistance Programs |
American Dental Association ~ Give Kids A Smile Program
http://www.givekidsasmile.ada.org/findGKAS.asp
*This is a yearly clinic in most communities. Click on the Clinic locator to find a clinic in your area. |
Cover the Uninsured
http://covertheuninsured.org
Email: info@covertheuninsured.org
* Provides a State by State guide to finding healthcare insurance coverage in your state. |
Merck Patient Assistance Programs
P.O. Box 100
Whitehouse Station, NJ 08889-0100
908-423-1000
http://www.merck.com/responsibility/pap-informa...
Merck offers a family of programs providing free and discounted medicines to patients who cannot afford their prescribed medicines. |
NeedyMeds
P.O. Box 219
Gloucester, MA 01931
http://www.needymeds.org
NeedyMeds is a 501(c)(3) national non profit, has information on programs that help people who can't afford their medications and health care costs. Provides data regarding approximately 2400 programs and nearly 11,000 free/low-cost/sliding-scale clinics. |
Partnership for Prescription Assistance
1-888-477-2669
http://www.pparx.org
The Partnership for Prescription Assistance offers a single point of access to more than 475 public and private patient assistance programs, including more than 180 programs offered by pharmaceutical companies. More than 2,500 brand-name and generic medicines are covered. |
Partnership for Prescription Assistance Kids
1-877-369-1477
http://kids.pparx.org
The Partnership for Prescription Assistance offers a single point of access to more than 475 public and private patient assistance programs, including more than 180 programs offered by pharmaceutical companies. More than 2,500 brand-name and generic medicines are covered. |
Pfizer Helpful Answers
1-866-706-2400
http://www.pfizerhelpfulanswers.com
Pfizer Helpful Answers is a family of assistance programs for uninsured and underinsured patients who need help getting their Pfizer medicines.
These programs provide:
•Pfizer medicines for free or at a savings to patients who qualify
•Some programs also offer reimbursement support services
Call for more information. |
RxAssist
111 Brewster Street
Pawtucket, RI 02860
401-729-3284
401-729-2955 (Fax)
http://www.rxassist.org
Email: info@rxassist.org
Patient Assistance Program Center ~ Offers a comprehensive database of programs and information. |
| Recreation |
Ability Station
278 South 880 West
Spanish Fork, UT 84660
800-520-1222
http://www.abilitystation.com
Ability Station offers toys for special needs children needing sensory, fine motor and gross motor,and cognitive development. Toys are reviewed by an Occupational, Physical or Speech Therapist. |
Manawale`a Riding Center
41-170A Waikupanaha St.
Waimanalo, HI 96795
(808) 352-1523
http://www.manawalea.org/
E-mail: manawalea2000@yahoo.com |
National Center on Physical Activity and Disability
1640 W. Roosevelt Road
Chicago, IL 60608-6904
1-800-900-8086
1-312-355-4058 (Fax)
http://www.ncpad.org/
Email: ncpad@uic.edu.
*Maintains a State-by-state listing of camps and recreational facilities. |
National Parks Pass
http://www.nps.gov/fees_passes.htm
*Updated information regarding free access passes to National Parks for U.S. citizens or permanent residents with permanent disabilities. |
Therapeutic Horsemanship of Hawaii
P.O. Box 138
Waimanalo, HI 96795
(808) 259-7107
(808) 342-9036
http://www.thhwaimanalo.org/
|
VSA Arts of Hawaii Pacific/ Hawaii Artsplace
2201 Waimano Home Rd.
Pearl City, HI 96782
(808) 781-7579
http://www.vsartshawaiipacific.org
|
| Service Dogs/Canine Programs |
Canine Companions for Independence (CCI)/National Center
P.O. Box
Oceanside, CA 92052
(800) 572-2275
(760) 901-4300
(760) 901-4551 (Fax)
http://www.caninecompanions.org
*Contact for regional training centers and Veteran's Programs. |
Hawaii Canines For Independence
P.O. Box 790626
Paia, HI 96779
(808) 250-5799
http://www.hawaiicanines.com/
Email: mo@HawaiiCanines.com |
Hawaii Fi-Do
PO Box 757
Kahuku, HI 96731
(808) 638-0200
http://www.hawaiifido.org/offer.htm
Email: hifido@hawaii.rr.com |
Positive Partners Assistance Dogs, Inc.
P.O. Box 2088
Hailey, ID 83333
(208) 721-1309
* Trains wheelchair assistance, hearing assistance, guide dogs and mobility assistance dogs. Will train dogs for anyone in the United States. |
| Transition/Post Secondary Schooling |
Virginia College Quest
George Mason University
, VA
http://www.vacollegequest.org/index.shtml
E-mail: info@vacollegequest.org
*An excellent Post-High School education resource. |
|
| Transportation Information |
National Mobility Equipment Dealers Association
3327 W. Bearss Ave.
Tampa, FL 33618
(800) 833-0427
(813) 264-2697
(813) 962-8970 (Fax)
http://www.nmeda.org/
Email: nmeda@aol.com
*Provides a state-by-state listing of NMEDA QAP certified dealerships. Start here when looking for mobility equipment (lifts, vehicles, steering systems, etc.) information. |
School Transportation News
P.O. Box 789
Redondo Beach, CA 90277
(310) 792-2226
http://www.stnonline.com/stn/
*See Special Needs Transportation |
