| Advocacy |
Louisiana Citizens for Action Now
http://www.lacanadvocates.org
Provides a wealth of self advocacy information. Linda recommends individuals check out the "Legislative Activities" section for an outline of a sample letter to Legislators and a "How-To" testify before a legislative body. |
PADDA
813 Forrest Drive, Suite 3
Newport News, VA 23606
1-888-337-2332
http://www.padda.org
|
Virginia Office for Protection and Advocacy
1910 Byrd Ave, Suite 5
Richmond, VA 23230
(V/TTY) 1-800-552-3962
(804) 225-2042
(804) 662-7057 (Fax)
http://www.vopa.state.va.us
|
|
| Agencies/Assistance Programs - Government |
Children with Special Health Care Needs Program
Virginia Department of Health 109 Governor Street
Richmond, VA 23219
(804) 864-7706
http://www.vahealth.org/specialchildren
|
Department of Health - Division of Dental Health
109 Governor St., 9th Floor
Richmond, VA 23219
(804) 864-7775
(804) 864-7783 (Fax)
http://www.vahealth.org/dental
* Provides oral health information specific to children with special health care needs. In addition, an online dentist directory is provided to help children and adults with special health care needs locate a dentist in Virginia. Educational materials are also available. |
GovBenefits.Gov
http://www.govbenefits.gov
Provides information regarding government assistance programs nationwide. Includes a state-by-state program search. |
Virginia Department of Social Services Medicaid Program
(Toll Free) (800) 552-3431
http://www.dss.virginia.gov/benefit/me_famis/in...
email: citizen.services@dss.virginia.gov |
Virginia Medicaid Eligibility Information Helpline
(800) 884-9730
|
|
| Agencies/Assistance Programs - Private |
Cover the Uninsured ~ A Project of the Robert Wood Johnson Foundation
(202) 572-2928
http://covertheuninsured.org
E-mail: info@covertheuninsured.org
*State by state listings of various insurance programs for individuals and families who have difficulty obtaining medical insurance. |
Registry of Interpreters for the Deaf
333 Commerce Street
Alexandria, VA 22314
703) 838-0030
TTY: (703) 838-0459
(703) 838-0454 (Fax)
http://www.rid.org/
|
| Assistive Technologies |
National Assistive Technology Assistance Partnership (NATTAP)
1700 North Moore St., Suite 1540
Arlington, VA 22209-1903
(703) 524-6686
TTY (703) 524-6639
(703) 524-6630 (Fax)
http://www.resna.org
*Listings by state. |
Virginia Assistive Technology System (VATS)
8004 Franklin Farms Drive
Richmond, VA 23229
(800) 435-8490
(804) 662-9990
(804) 662-9478 (Fax)
http://www.vats.org/
|
| Charities and Foundations |
United Way
701 N. Fairfax St.
Alexandria, VA 22314
http://national.unitedway.org
Non-profit charitable organization offering a variety of services including camps, respite, grants, etc. Find your local chapter here. |
|
| Child Care Resource Listings |
Care Connection for Children Resource Directory (VA)
1-866-596-9367
http://www.vahealth.org/specialchildren/directo...
*See list of Care Centers in your area.
** Provides search by service, program, location and disability. |
Child Care Aware
3101 Wilson Blvd. Suite 350
Arlington, VA 22201
1-800-424-2246
TTY:1-866-278-9428
(703) 341-4101 (Fax)
http://www.childcareaware.org
Child Care Aware is a cooperative program of the National Association of Child Care Resource and Referral Agencies. Funded through the Office of Family Assistance, Administration for Children and Families, U.S. Department of Health and Human Services.
**SNRP does NOT endorse this site. Listed for reference only. Use responsible caution when investigating ALL care providers. |
| Disability Specific Organizations |
American Diabetes Association
1701 North Beauregard Street
Alexandria, VA 22311
(1-800-342-2383).
http://www.diabetes.org/home.jsp
Email: AskADA@diabetes.org.
*See registry for local chapter near you. |
Brain Injury Association of America
8201 Greensboro Drive
McLean, VA 22102
1-800-444-6443 Information Only
(703) 761-0750
http://www.biausa.org/
*Contains listings by state from the home page. |
Commonwealth Autism Service
2201 W. Broad Street, Suite 107
Richmond, VA 23220
(800) 649-8481
(804) 355-0300
(804) 355-0932 (Fax)
http://www.autismva.org
email: information@autismva.org |
Epilepsy Therapy Development Project
11921 Freedom Drive, Suite 730
Reston, VA 20190
http://www.epilepsytdp.org/
|
Epilepsy.com/ Epilepsy Therapy Development Project
http://www.epilepsy.com/
|
Mental Health America
2000 N. Beauregard Street, 6th Floor
Alexandria, VA 22311
(800) 969-6642
TTY: (800) 433-5959
(703) 684-5968 (Fax)
http://www.nmha.org/
|
National Alliance for the Mentally Ill (NAMI)
Colonial Place Three 2107 Wilson Blvd., Suite 300
Arlington, VA 22201-3042
(703) 524-7600
Member Services:(888) 999-6264
(703) 524-9094 (Fax)
http://www.nami.org/
*See home page for State and local contacts. |
|
| Early Intervention |
Infant and Toddler Connection of Virginia
Child and Family Services P.O. Box 1797
Richmond, VA 23218
(800) 234-1448 (Central Director
(804) 786-3710
http://www.infantva.org
|
Southern Early Childhood Association
P.O. Box 55930
Little Rock, AR 5930
(800) 305-7322
(501) 227-5297 (Fax)
http://www.southernearlychildhood.org/
*Contacts listed by state. |
| Education |
Mid-South Regional Resource Center (MSRRC) University of Kentucky
Human Development Institute 126 Mineral Industries Building
Lexington, KY 40506-0051
(859) 257-4921
TTY (859) 257-2903
http://www.rrfcnetwork.org/msrrc
E-mail: msrrc@ihdi.uky.edu |
National Coalition for Parent Involvement in Education (NCPIE)
3929 Old Lee Highway, Suite 91-A
Fairfax, VA 22030-2401
(703) 359-8973
(703) 359-0972 (Fax)
http://www.ncpie.org
|
National Indian Education Association
700 North Fairfax Street, Suite 210
Alexandria, VA 22314
http://www.niea.org
National Tribal Education Directory. Listings by Tribe/Nation. |
The Auburn School
13525 Dulles Technology Drive, Suite 101
Herndon, VA 20171
(703) 793-9353
(703) 793-9355 (Fax)
http://www.theauburnschool.org
* Focuses on students who fall on the high- end of the Autism spectrum (Aspergers Syndrome)Serves grades PK-8. New schools announced for Maryland 2010. |
The Council for Exceptional Children
1110 No. Glebe Rd., Suite 300
Arlington, VA 22201-5704
(888) 232-7733
(703) 620-5660
(703) 264-9494 (Fax)
http://www.cec.sped.org
|
Virginia Department of Education Early Childhood Special Education
P.O. Box 2120
Richmond, VA 23218-2120
(804) 225-2675
http://www.pen.k12.va.us/VDOE/sped/earlychildho...
|
Virginia Department of Education-Division of Special Education & Student Services
James Monroe Building 101 N. 14th Street
Richmond, VA 23219
1-800-292-3820
http://www.pen.k12.va.us/VDOE/sess/
|
Virginia Division of Special Education & Student Services
P.O. Box 2120
Richmond, VA 23218
1-800-292-3820
http://www.pen.k12.va.us/VDOE/sess/
|
Virginia Public Schools and Children of the Military
http://www.doe.virginia.gov/VDOE/military/
Great informational source for military families. |
|
| Housing Programs - Government |
DisabilityInfo.gov ~ Housing
http://www.disabilityinfo.gov
*Provides a comprehensive listing of Federal and State housing programs and up to date program information. |
Granting Freedom~Virginia's Military Home Modification Grant Program
http://www.vhda.com/vhda_com/template_a.asp?vhd...
*Granting Freedom is a grant program that pays for modifications to make living spaces more accessible for servicemen or women who sustained injury during service in a combat theatre of operations. See site for contacts and details. |
Paralyzed Veterans of America
801 18th Street NW
Washington, DC 20006-3517
1-800-424-8200
http://www.pva.org
*Not just for paralyzed Veterans, not just for paralysis. Ask for their Architecture Program!
**SNRP recommends their publication "Accessible Home Design". |
Virginia Housing Development Authority
601 S. Belvidere Street
Richmond, VA 23220
(877) 843-2123
http://www.vhda.com/vhda_com/front_page/default...
*See Accessibility Grants Programs |
| Housing Programs - Private |
Access Virginia
http://www.accessva.org
*On-line housing registry to assist Virginia residents in finding accessible homes. Includes an index of accessible housing resources. |
Center For Universal Design North Carolina State University
P.O. Box 8613
Raleigh, NC 27695-8613
(800) 647-6777
V/TTY:(919) 515-3082
(919) 515-3023 (Fax)
http://www.design.ncsu.edu\cud
|
Institute for Human Centered Design (Adaptive Environments)
180-200 Portland Street, Suite 1
Boston, MA 02114
(617) 695-1225
(617) 482-8099 (Fax)
http://www.adaptenv.org
E-mail: info@HumanCenteredDesign.org |
|
| Independent Living Organizations |
IRLU Directory of Centers and SILCs
Listings For The State of Virginia
Washington, DC
http://www.ilru.org/html/publications/directory...
National Directory listed by state. |
|
| Information |
2-1-1 Virginia
211
http://www3.irissoft.com/rich/
|
Disability Information.Gov
http://www.disabilityinfo.gov
*Large Federal database providing easy access to comprehensive information about disability programs, services, laws and benefits. To find disability resources in your state just click on the Find State and Local Resources map located in each of the subject areas listed in their menu. |
Girls Health.gov
8270 Willow Oaks Corporate Drive, Suite 301
Fairfax, VA 22031
http://4girls.gov
*See "Illness and Disability" tab. Excellent information resource. |
LD Online - WETA Public Television
2775 So. Quincy Street
Arlington, VA 22206
(703) 998-2060 (Fax)
http://www.ldonline.org
*Learning Disability/Autism Spectrum Information |
MedicareSolutions
http://www.medicaresolutions.com/disability-res...
*A comprehensive page on disabilities providing informative links in several areas of interest including Disability Rights, support groups, government resources and organizations and others. |
National Organization on Disability
910 Sixteenth Street, N.W., Suite 600
Washington, DC 20006
(202) 293-5960
TTY: (202) 293-5968
(202) 293-7999 (Fax)
http://www.nod.org
E-mail: ability@nod.org |
United Spinal Association
75-20 Astoria Boulevard
Jackson Heights, NY 11370
800-404-2898
(718) 803-3782
(718) 803-0414 (Fax)
http://www.unitedspinal.org/disability-publicat...
*Linda's favorite down-loadable informational resource. Linda recommends the following booklets: Disability Etiquette (PDF), Taking Action (PDF), Adaptive Automotive Equipment (PDF), The Americans with Disabilities Act (PDF),The Fair Housing Amendments Acts (PDF) and Accessing Local Government (PDF). Please see the menu page for other publications you may be interested in. |
|
| Legal Advocacy/Information |
National Help Law Program (NHeLP) Washington, D.C. Office
1101 14th Street, NW Suite 405
Washington, DC 20005
(202) 289-7661
(202) 289-7724 (Fax)
http://www.healthlaw.org
Email: nhelpdc@healthlaw.org
* NHeLP serves legal services programs, community-based organizations, the private bar, providers and individuals who work to preserve a health care safety net for the millions of uninsured or underinsured low-income people. |
Wright's Law
http://www.wrightslaw.com
|
| Medical Centers/Hospitals/Clinics |
Children's Hospital-Richmond
2924 Brook Road
Richmond, VA 23220-1298
(804) 321-7474
(804) 228-5818 (Fax)
http://www.childrenshosp-richmond.org/
|
University of Virginia Children's Hospital
1215 Lee Street
Charlottesville, VA 22908
(434) 982-4453
http://www.healthsystem.virginia.edu/internet/p...
|
Virginia Commonwealth University VCU Department of Pediatrics
Children's Pavilion 1001 Ea. Marshall St.
Richmond, VA 23298-0264
(804) 828-7035
(804) 828-8559 (Fax)
http://www.vcu.edu/pediatrics/overview/index.html
|
|
| Other |
Disability Studies, Temple University Blog
http://disstud.blogspot.com
*Based at Temple University but with nationwide contributors. Has a LARGE list of disability related blogs. |
Driving While Disabled/State of Virginia
http://www.fairfaxcounty.gov/dsb/drivingdisable...
*Excellent resource list of driver training programs,equipment resources and basic driving information for disabled drivers. |
| Parent Support Programs |
Exceptional Children's Assistance Center (ECAC) Region 2 & 3
907 Barra Row, Suite 102/103
Davidson , NC 28036
(800) 962-6817
(704) 892-1321
http://www.ecac-parentcenter.org/
email: ecacta@ecacmail.org |
Parent Educational Advocacy Training Center
6320 Augusta Drive, suite 1200
Springville, VA 22150
(800) 869-6782
(703) 923-0010
(703) 923-0030 (Fax)
http://www.peatc.org
email: partners@peatc.org |
| Patient Assistance Programs |
American Dental Association ~ Give Kids A Smile Program
http://www.givekidsasmile.ada.org/findGKAS.asp
*This is a yearly clinic in most communities. Click on the Clinic locator to find a clinic in your area. |
Cover the Uninsured
http://covertheuninsured.org
Email: info@covertheuninsured.org
* Provides a State by State guide to finding healthcare insurance coverage in your state. |
Merck Patient Assistance Programs
P.O. Box 100
Whitehouse Station, NJ 08889-0100
908-423-1000
http://www.merck.com/responsibility/pap-informa...
Merck offers a family of programs providing free and discounted medicines to patients who cannot afford their prescribed medicines. |
NeedyMeds
P.O. Box 219
Gloucester, MA 01931
http://www.needymeds.org
NeedyMeds is a 501(c)(3) national non profit, has information on programs that help people who can't afford their medications and health care costs. Provides data regarding approximately 2400 programs and nearly 11,000 free/low-cost/sliding-scale clinics. |
Partnership for Prescription Assistance
1-888-477-2669
http://www.pparx.org
The Partnership for Prescription Assistance offers a single point of access to more than 475 public and private patient assistance programs, including more than 180 programs offered by pharmaceutical companies. More than 2,500 brand-name and generic medicines are covered. |
Partnership for Prescription Assistance Kids
1-877-369-1477
http://kids.pparx.org
The Partnership for Prescription Assistance offers a single point of access to more than 475 public and private patient assistance programs, including more than 180 programs offered by pharmaceutical companies. More than 2,500 brand-name and generic medicines are covered. |
Pfizer Helpful Answers
1-866-706-2400
http://www.pfizerhelpfulanswers.com
Pfizer Helpful Answers is a family of assistance programs for uninsured and underinsured patients who need help getting their Pfizer medicines.
These programs provide:
•Pfizer medicines for free or at a savings to patients who qualify
•Some programs also offer reimbursement support services
Call for more information. |
RxAssist
111 Brewster Street
Pawtucket, RI 02860
401-729-3284
401-729-2955 (Fax)
http://www.rxassist.org
Email: info@rxassist.org
Patient Assistance Program Center ~ Offers a comprehensive database of programs and information. |
| Recreation |
Ability Station
278 South 880 West
Spanish Fork, UT 84660
800-520-1222
http://www.abilitystation.com
Ability Station offers toys for special needs children needing sensory, fine motor and gross motor,and cognitive development. Toys are reviewed by an Occupational, Physical or Speech Therapist. |
American Therapeutic Recreation Association
1414 Prince Street, Suite 204
Alexandria, VA 22314
(703) 683-9420
(703) 683-9431 (Fax)
http://atra-online.com
|
Best Buddies Virginia
1650 Tysons Boulevard, Suite 140
McLean, VA 22102
(703) 734-6423
(703) 734-8975 (Fax)
http://www.bestbuddiesvirginia.org
|
National Alliance for Accessible Golf
12100 Sunset Hills Road, Suite 130
Reston, VA 20190
(703) 234-4136
(703) 435-4390 (Fax)
http://www.accessgolf.org
Email: info@accessgolf.org
|
National Center on Physical Activity and Disability
1640 W. Roosevelt Road
Chicago, IL 60608-6904
1-800-900-8086
1-312-355-4058 (Fax)
http://www.ncpad.org/
Email: ncpad@uic.edu.
*Maintains a State-by-state listing of camps and recreational facilities. |
National Parks Pass
http://www.nps.gov/fees_passes.htm
*Updated information regarding free access passes to National Parks for U.S. citizens or permanent residents with permanent disabilities. |
Victory Junction Gang Camp
4500 Adam's Way
Randleman, NC 27317
1-877-254-2267
(336) 498-9055
http://www.victoryjunction.org
*Contact the camp office for more information. |
|
| Service Dogs/Canine Programs |
Saint Francis Of Assisi Service Dog Foundation
PO Box 19538 8232 Enon Drive
Roanoke, VA 24019
(540) 342-3647
http://www.saintfrancisdogs.org/
Email: info@saintfrancisdogs.org |
Canine Companions for Independence (CCI)/National Center
P.O. Box
Oceanside, CA 92052
(800) 572-2275
(760) 901-4300
(760) 901-4551 (Fax)
http://www.caninecompanions.org
*Contact for regional training centers and Veteran's Programs. |
The Psychiatric Service Dog Society (PSDS)
P.O. Box 754
Arlington, VA 22216
(571) 216-1589
http://www.psychdog.org/index.html
|
|
| Transition/Post Secondary Schooling |
Going To College: A Resource For Teens With Disabilities
(804) 828-1851
TTY: (804) 828-2494
(804) 828-2193 (Fax)
http://www.going-to-college.org/index.html
*This web site is designed for college bound high school students with disabilities. |
Virginia College Quest
George Mason University
, VA
http://www.vacollegequest.org/index.shtml
E-mail: info@vacollegequest.org
*An excellent Post-High School education resource. |
| Transportation Information |
National Mobility Equipment Dealers Association
3327 W. Bearss Ave.
Tampa, FL 33618
(800) 833-0427
(813) 264-2697
(813) 962-8970 (Fax)
http://www.nmeda.org/
Email: nmeda@aol.com
*Provides a state-by-state listing of NMEDA QAP certified dealerships. Start here when looking for mobility equipment (lifts, vehicles, steering systems, etc.) information. |
School Transportation News
P.O. Box 789
Redondo Beach, CA 90277
(310) 792-2226
http://www.stnonline.com/stn/
*See Special Needs Transportation |
