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Getting Started
Get Diagnosed
Gathering Important Information
Organizing Your Information
The Educated Parent
Early Intervention
What To Do First
What is Early Intervention?
Research
Introduction
Keeping an IEP Notebook
Preparing for an IEP Meeting
Conducting an IEP Meeting
Individuals With Disabilities Act
IDEA ACT - A Quick Reference
IDEA Legal Text
Family Finances
Recommended Resources
Housing
Introduction to Universal Housing Design
Housing options
Building a New House ~ That Works!
Introduction to Universal Housing Design
Entrances and Thresholds
Single Family Home Resources
Remodeled Bathroom
Ceiling Lifts
Problem Spaces
Adding a Ramp
Good Restroom
Not So Good Restrooms
Great Space Adaptions
Not So Great Adaptations
Ramp Design
Ramp Design (Part 2)
Commercial Ramps
Public Access Ramps
Adding a Ramp
Retrofit Door Sill Ramp
Insurance
Medical Bills
Filing an Appeal
Medical Expenses and Income Taxes
Finding Help for the Uninsured or Underinsured
Free or Discounted Prescription Programs
Medicaid Waivers
Legal Adults - Introduction
When to Start the Transition Process
Begin Transition - Age 14-16
Exploring Possibilities and Guardianship Issues - Age 17
Guardianship and Declaration of Incapacitation
Establishing Guardianship and Obtaining a Declaration of Incapacitation
Age 18
After High School Graduation - Age 19-22
Post High School Education Options
Future Housing Options
Dependency Determination (Military)
Specialized Medical Equipment
Wheelchair Evaluation
Wheelchair Safety
Introduction: Special Needs and the Military Family
DEERS & ID Cards
Dependency Determination
TriCare Introduction
TriCare Program Options
Exceptional Family Member Program (EFMP)
Individual Case Management
TriCare Extended Care Health Option (ECHO)
Early Intervention
Housing Options
Family Support Services
Community Contacts
Letters of Medical Sufficiency
Wheelchair Accessible Vans
Van Conversion: A good Example
Fund Raising - The Flamingo Air Project
 

VERMONT

Advocacy
Louisiana Citizens for Action Now
http://www.lacanadvocates.org
Provides a wealth of self advocacy information. Linda recommends individuals check out the "Legislative Activities" section for an outline of a sample letter to Legislators and a "How-To" testify before a legislative body.
Vermont Protection & Advocacy
21 E. State St., Suite 101
Montpelier, VT 05602
(802) 229-1355
http://www.vtpa.org
Agencies/Assistance Programs - Government
Developmental Disability Services
802-786-5081
http://ddas.vermont.gov/ddas-programs/programs-...
GovBenefits.Gov
http://www.govbenefits.gov
Provides information regarding government assistance programs nationwide. Includes a state-by-state program search.
Programs For Children With Special Health Care Needs - Dept. Of Health
108 Cherry Street P.O. Box 70
Burlington, VT 05402
(802)863-7338
http://www.state.vt.us/health/hi/cshn/fitp/fitp...
State of Vermont ~ Autism Supports Program
103 So. Main St.
Waterbury, VT 05676
802-241-2863
http://ddas.vermont.gov/ddas-programs/programs-...
The Children's Partnership ~ Expresslane Program
2000 P Street, NW, Suite 330
Washington, DC 20036
(202) 429-0033
(202) 429-0974 (Fax)
http://www.expresslaneinfo.org/AM/Template.cfm?...
E-mail:frontdoordc @childrenspartnership.org *Click on "Program Examples" then "Program Location" for programs in your state.
Vermont Agency of Human Services
103 S. Main St.
Waterbury, VT 05671-0201
(802) 241-2220
http://www.ahs.state.vt.us/
Vermont Developmental Disabilities Council
103 S. Main St.
Waterbury, VT 05671-0206
(802) 241-2612
(888) 317-2006
(802) 241-2989 (Fax)
http://www.ahs.state.vt.us/vtddc
 
Agencies/Assistance Programs - Private
Cover the Uninsured ~ A Project of the Robert Wood Johnson Foundation
(202) 572-2928
http://covertheuninsured.org
E-mail: info@covertheuninsured.org *State by state listings of various insurance programs for individuals and families who have difficulty obtaining medical insurance.
 
Assistive Technologies
Vermont Assistive Technology Program
103 South Main Street, Weeks Building
Waterbury, VT 05671-2305
800-750-6355
TTY: 802-241-1464
802-241-2174 (Fax)
http://www.dad.state.vt.us/atp/default.htm
E-mail: ATinfo@dail.state.vt.us
 
Child Care Resource Listings
Child Care Aware
3101 Wilson Blvd. Suite 350
Arlington, VA 22201
1-800-424-2246
TTY:1-866-278-9428
(703) 341-4101 (Fax)
http://www.childcareaware.org
Child Care Aware is a cooperative program of the National Association of Child Care Resource and Referral Agencies. Funded through the Office of Family Assistance, Administration for Children and Families, U.S. Department of Health and Human Services. **SNRP does NOT endorse this site. Listed for reference only. Use responsible caution when investigating ALL care providers.
 
Disability Specific Organizations
Asperger's Association of New England
85 Main Street, Suite 101
Waterton, MA 02472
(617) 393-3824
(866) 597-2263
http://www.aane.org
E-mail: info@aane.org
Autism Society of Vermont
PO Box 978
White River Junction, VT 05001
1-800-559-7398
http://www.autism-info.org
Madi's Fund (Hydrocephalus Information)
3 Emeritus Street
Rutland, VT 05701
(802) 773-6186
http://www.med.uvm.edu/madisfund/hydro_faq/hydr...
E-mail: madifund@aol.com
The Children's Tumor Foundation (New England Regional Office)
275 Grove Street, Suite 200-4
Newton, MA 02467
(617) 663-5711
(617) 663-4801 (Fax)
http://www.ctf.org/
E-Mail: info@ctf.org
Early Intervention
Family, Infant and Toddlers Project- Ages Birth through 2
P.O. Box 70
Burlington, VT 05402
(802) 651-1786
http://www.state.vt.us/health/hi/cshn/fitp/fitp...
Kids Are Priority One
p.O. Box 62
South Newfane, VT 05351
(802) 348-9879
(802) 348-7294 (Fax)
http://www.vtkap1.org/index.html
Programs for Children with Disabilities: Ages 3 through 5 (Special Education Unit) Dept. Of Education
120 State st.
Montpelier, VT 05620-2501
(802) 828-5115
http://www.state.vt.us/educ
 
Education
Northeast Regional Resource Center(NERRC)
Learning Innovations 20 Winter Sport Lane
Williston, VT 05495
(802) 951-8226
TTY (802) 951-8213
http://www.rrfcnetwork.org/nerrc
E-mail: nerrc@aol.com
Vermont Dept. Of Education
120 State St.
Montpelier, VT 05620
(820) 828-5106
(802) 828-3140 (Fax)
http://www.state.vt.us/educ/
Vermont Dept. of Education Special Education Support Services
(802) 828-2755
http://education.vermont.gov/new/html/pgm_sped....
 
Equipment
Ability Hub/Assistive Technology Solutions
c/o The Gilman Group, L.L.C. P.O. Box 6356
Rutland, VT 05702-6356
(802) 775 1993
http://www.abilityhub.com/links/computer.htm
Email: info@abilityhub.com *Information regarding computer assistive technologies.
Get AT Stuff/Assistive Technology Exchange in New England
http://www.getatstuff.com/
*An equipment exchange program in New England.
Housing Programs - Government
DisabilityInfo.gov ~ Housing
http://www.disabilityinfo.gov
*Provides a comprehensive listing of Federal and State housing programs and up to date program information.
Paralyzed Veterans of America
801 18th Street NW
Washington, DC 20006-3517
1-800-424-8200
http://www.pva.org
*Not just for paralyzed Veterans, not just for paralysis. Ask for their Architecture Program! **SNRP recommends their publication "Accessible Home Design".
Housing Programs - Private
Center For Universal Design North Carolina State University
P.O. Box 8613
Raleigh, NC 27695-8613
(800) 647-6777
V/TTY:(919) 515-3082
(919) 515-3023 (Fax)
http://www.design.ncsu.edu\cud
Institute for Human Centered Design (Adaptive Environments)
180-200 Portland Street, Suite 1
Boston, MA 02114
(617) 695-1225
(617) 482-8099 (Fax)
http://www.adaptenv.org
E-mail: info@HumanCenteredDesign.org
Vermont Housing Finance Agency
164 St. Paul St.
Burlington, VT
(802) 864-5743
(800) 339-5866
http://www.vhfa.org
 
Independent Living Organizations
New England ADA Center
180-200 Portland Street, Suite 1
Boston , MA 02114
V/TTY 1-800-949-4232
V/TTY 1-617-695-0085
http://adaptiveenvironments.org/neada/site/home
Vermont Center for Independant Living
11 East State St.
Montpelier, VT 05602
(802) 229-0501 (V/TTY)
(800) 229-0503 (Fax)
http://www.vcil.org
email: vcil@vcil.org *See web site for satellite office locations and information.
Indian Health Services
Nashville Area Office Indian Health Services
711 Stewarts Ferry Pike
Nashville, TN 37214-2634
(615) 467-1500
(615) 467-1501 (Fax)
http://www.ihs.gov/FacilitiesServices/AreaOffic...
*Covers the Southern and Eastern United States.
 
Information
Chronic Conditions Information Network of Vermont and New Hampshire (CCIN)
P.O. Box 3
Cavendish, VT 05124
(802) 226-7807
http://www.cc-info.net
email: info@cc-info.net
Disability Information.Gov
http://www.disabilityinfo.gov
*Large Federal database providing easy access to comprehensive information about disability programs, services, laws and benefits. To find disability resources in your state just click on the Find State and Local Resources map located in each of the subject areas listed in their menu.
Girls Health.gov
8270 Willow Oaks Corporate Drive, Suite 301
Fairfax, VA 22031
http://4girls.gov
*See "Illness and Disability" tab. Excellent information resource.
MedicareSolutions
http://www.medicaresolutions.com/disability-res...
*A comprehensive page on disabilities providing informative links in several areas of interest including Disability Rights, support groups, government resources and organizations and others.
National Organization on Disability
910 Sixteenth Street, N.W., Suite 600
Washington, DC 20006
(202) 293-5960
TTY: (202) 293-5968
(202) 293-7999 (Fax)
http://www.nod.org
E-mail: ability@nod.org
United Spinal Association
75-20 Astoria Boulevard
Jackson Heights, NY 11370
800-404-2898
(718) 803-3782
(718) 803-0414 (Fax)
http://www.unitedspinal.org/disability-publicat...
*Linda's favorite down-loadable informational resource. Linda recommends the following booklets: Disability Etiquette (PDF), Taking Action (PDF), Adaptive Automotive Equipment (PDF), The Americans with Disabilities Act (PDF),The Fair Housing Amendments Acts (PDF) and Accessing Local Government (PDF). Please see the menu page for other publications you may be interested in.
Vermont 2-1-1 Information
211
http://www.vermont211.org
 
Legal Advocacy/Information
National Help Law Program (NHeLP) Washington, D.C. Office
1101 14th Street, NW Suite 405
Washington, DC 20005
(202) 289-7661
(202) 289-7724 (Fax)
http://www.healthlaw.org
Email: nhelpdc@healthlaw.org * NHeLP serves legal services programs, community-based organizations, the private bar, providers and individuals who work to preserve a health care safety net for the millions of uninsured or underinsured low-income people.
Wright's Law
http://www.wrightslaw.com
Medical Centers/Hospitals/Clinics
Vermont Children's Hospital
1 South Prospect Street
Burlington, VT 05401
(802) 847-0000
http://www.fahc.org/childrens_Hospital/index.html
 
Other
Disability Studies, Temple University Blog
http://disstud.blogspot.com
*Based at Temple University but with nationwide contributors. Has a LARGE list of disability related blogs.
 
Parent Support Programs
Parent to Parent ~ Vermont
600 Blair Park Road, Suite #240
Williston, VT 05495-7549
1-800-800-4005
(802)764-5290
http://www.partoparvt.org
E-mail: info@vtfn.org
Statewide Parent Advocacy Network (SPAN) Region 1
35 Halsey Street, 4th Floor
Newark, NJ 07102
(973) 642-8100
(973) 642-8080 (Fax)
http://www.spannj.org
email: span@spannj.org
Vermont Parent Information Center
600 Blair Park Road, Suite 301
Williston, VT 05495
(802) 867-5315
(802) 658-5395 (Fax)
http://www.vtpic.com
 
Patient Assistance Programs
American Dental Association ~ Give Kids A Smile Program
http://www.givekidsasmile.ada.org/findGKAS.asp
*This is a yearly clinic in most communities. Click on the Clinic locator to find a clinic in your area.
Cover the Uninsured
http://covertheuninsured.org
Email: info@covertheuninsured.org * Provides a State by State guide to finding healthcare insurance coverage in your state.
Merck Patient Assistance Programs
P.O. Box 100
Whitehouse Station, NJ 08889-0100
908-423-1000
http://www.merck.com/responsibility/pap-informa...
Merck offers a family of programs providing free and discounted medicines to patients who cannot afford their prescribed medicines.
NeedyMeds
P.O. Box 219
Gloucester, MA 01931
http://www.needymeds.org
NeedyMeds is a 501(c)(3) national non profit, has information on programs that help people who can't afford their medications and health care costs. Provides data regarding approximately 2400 programs and nearly 11,000 free/low-cost/sliding-scale clinics.
Partnership for Prescription Assistance
1-888-477-2669
http://www.pparx.org
The Partnership for Prescription Assistance offers a single point of access to more than 475 public and private patient assistance programs, including more than 180 programs offered by pharmaceutical companies. More than 2,500 brand-name and generic medicines are covered.
Partnership for Prescription Assistance Kids
1-877-369-1477
http://kids.pparx.org
The Partnership for Prescription Assistance offers a single point of access to more than 475 public and private patient assistance programs, including more than 180 programs offered by pharmaceutical companies. More than 2,500 brand-name and generic medicines are covered.
Pfizer Helpful Answers
1-866-706-2400
http://www.pfizerhelpfulanswers.com
Pfizer Helpful Answers is a family of assistance programs for uninsured and underinsured patients who need help getting their Pfizer medicines. These programs provide: •Pfizer medicines for free or at a savings to patients who qualify •Some programs also offer reimbursement support services Call for more information.
RxAssist
111 Brewster Street
Pawtucket, RI 02860
401-729-3284
401-729-2955 (Fax)
http://www.rxassist.org
Email: info@rxassist.org Patient Assistance Program Center ~ Offers a comprehensive database of programs and information.
Recreation
Ability Station
278 South 880 West
Spanish Fork, UT 84660
800-520-1222
http://www.abilitystation.com
Ability Station offers toys for special needs children needing sensory, fine motor and gross motor,and cognitive development. Toys are reviewed by an Occupational, Physical or Speech Therapist.
National Center on Physical Activity and Disability
1640 W. Roosevelt Road
Chicago, IL 60608-6904
1-800-900-8086
1-312-355-4058 (Fax)
http://www.ncpad.org/
Email: ncpad@uic.edu. *Maintains a State-by-state listing of camps and recreational facilities.
National Parks Pass
http://www.nps.gov/fees_passes.htm
*Updated information regarding free access passes to National Parks for U.S. citizens or permanent residents with permanent disabilities.
New England Handicapped Sports Association
PO Box 2135
Newbury, NH 03255-2135
(603) 763-2356
(603) 763-4400 (Fax)
http://www.nehsa.org/
Email: info@nehsa.org
Partners in Adventure Day Camp
P.O. Box 867
Shelburne, VT 05482
(802) 425-2638
http://www.partnersinadventure.org
E-mail: dlamden@gmavt.net
 
Service Dogs/Canine Programs
Canine Companions for Independence (CCI)/National Center
P.O. Box
Oceanside, CA 92052
(800) 572-2275
(760) 901-4300
(760) 901-4551 (Fax)
http://www.caninecompanions.org
*Contact for regional training centers and Veteran's Programs.
National Education of Assistance Dog Services, Inc/N.E.A.D.S.
P.O. Box 213
West Boylston, MA 01583
(978) 422-9064 V/TDD
(978) 422-3255 (Fax)
http://www.neads.org/index.shtml
E-Mail: info@neads.org *Contact for Regional contact information
Transition/Post Secondary Schooling
Virginia College Quest
George Mason University
, VA
http://www.vacollegequest.org/index.shtml
E-mail: info@vacollegequest.org *An excellent Post-High School education resource.
 
Transportation Information
National Mobility Equipment Dealers Association
3327 W. Bearss Ave.
Tampa, FL 33618
(800) 833-0427
(813) 264-2697
(813) 962-8970 (Fax)
http://www.nmeda.org/
Email: nmeda@aol.com *Provides a state-by-state listing of NMEDA QAP certified dealerships. Start here when looking for mobility equipment (lifts, vehicles, steering systems, etc.) information.
School Transportation News
P.O. Box 789
Redondo Beach, CA 90277
(310) 792-2226
http://www.stnonline.com/stn/
*See Special Needs Transportation