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Getting Started
Get Diagnosed
Gathering Important Information
Organizing Your Information
The Educated Parent
Early Intervention
What To Do First
What is Early Intervention?
Research
Introduction
Keeping an IEP Notebook
Preparing for an IEP Meeting
Conducting an IEP Meeting
Individuals With Disabilities Act
IDEA ACT - A Quick Reference
IDEA Legal Text
Family Finances
Recommended Resources
Housing
Introduction to Universal Housing Design
Housing options
Building a New House ~ That Works!
Introduction to Universal Housing Design
Entrances and Thresholds
Single Family Home Resources
Remodeled Bathroom
Ceiling Lifts
Problem Spaces
Adding a Ramp
Good Restroom
Not So Good Restrooms
Great Space Adaptions
Not So Great Adaptations
Ramp Design
Ramp Design (Part 2)
Commercial Ramps
Public Access Ramps
Adding a Ramp
Retrofit Door Sill Ramp
Insurance
Medical Bills
Filing an Appeal
Medical Expenses and Income Taxes
Finding Help for the Uninsured or Underinsured
Free or Discounted Prescription Programs
Medicaid Waivers
Legal Adults - Introduction
Guardianship and Declaration of Incapacitation
Establishing Guardianship and Obtaining a Declaration of Incapacitation
Dependency Determination (Military)
When to Start the Transition Process
Begin Transition - Age 14-16
Exploring Possibilities and Guardianship Issues - Age 17
Age 18
After High School Graduation - Age 19-22
Post High School Education Options
Future Housing Options
Specialized Medical Equipment
Wheelchair Evaluation
Wheelchair Safety
Introduction: Special Needs and the Military Family
DEERS & ID Cards
Dependency Determination
TriCare Introduction
TriCare Program Options
Exceptional Family Member Program (EFMP)
Individual Case Management
TriCare Extended Care Health Option (ECHO)
Early Intervention
Housing Options
Family Support Services
Community Contacts
Letters of Medical Sufficiency
Wheelchair Accessible Vans
Van Conversion: A good Example
Fund Raising - The Flamingo Air Project
Utah DSPD Complaint List Winter 2011
 

Nevada

Military Quick Links (National Guard, Reserve, Active Duty)
ABA Military Pro Bono Project
321 N. Clark St.
Chicago, IL 60654
312-988-5783
http://www.militaryprobono.org
*The ABA Military Pro Bono Project accepts case referrals from military attorneys on behalf of junior-enlisted, active-duty military personnel and their families with civil legal problems, and it places these cases with pro bono attorneys where the legal assistance is needed. The Project is also the platform for Operation Stand-By, through which military attorneys may seek attorney-to-attorney advice to further assist their service member clients.
American Bar Association/Military Lawyers
http://www.americanbar.org/portals/military_law...
*Scroll down the home page to the very bottom for Military and Veteran Bar Association listings.
DoD Forms Management Program
http://www.esd.whs.mil/Directives/forms/dd0001_...
*Find Dependency Determination Forms here. Scroll down to the DD 137-5 Dependency Statement - Incapacitated Child Over Age 21 and click on the form number. This form can be filled out on line.
Easter Seals National Headquarters
230 W. Monroe St., Suite 1800
Chicago, IL 60606
(800) 221-6827
TTY 312-726-4258
(312) 726-1494 (Fax)
http://www.easterseals.com
*Contact for the chapter closest to you. Ask your local chapter for camps, grants, respite services and other services available in your area.
EFMP & Me: Exceptional Family Member Program (EFMP)
https://efmpandme.militaryonesource.mil
*Use this tool to maneuver through the Defense Department's network of services and supports for families with special needs. No sign-up is required for service members and family members, but you can choose to create an account to save your progress and preferences.
Exceptional Family Member Program/All Branches/Mobile
https://www.militaryonesource.mil/family-relati...
Contains contact information, Base program locators and enrollment/justification forms for ALL Branches of service.
Kids' Waivers/Medicaid Waiver Programs
http://www.kidswaivers.org
Medicaid waivers for children are unfortunately quite confusing. Not only that, but it is impossible to find information about them. This project State-by-State is intended to simplify the process as much as possible.
Medicaid Waiver dot Org
http://medicaidwaiver.org
*A state-by-state Medicaid Waiver program listing. Please note: Medicaid programs do not transfer. If you're planning a move you'll want to do some homework. Start here then go to the official page of the state you are considering.
Military One Source
800-342-9647
https://www.militaryonesource.mil/special-needs/
* A DoD supported site. Military OneSource has policy and programmatic information, helpful resources, products, articles and tips on numerous topics related to military life. Confidential services are available 24 hours a day by telephone and online. In addition to the website support, Military OneSource offers confidential call center and online support for consultations on a number of issues such as spouse education and career opportunities, issues specific to families with a member with special needs, health coaching, financial support, and resources.
Military Parent Technical Assistance Center
6316 S 12th St
Tacoma, WA 98465
(253) 565-2266
(800) 572-7368
https://branchta.org
E-mail: thebranch@wapave.org * Provides Base EFMP and Special Needs contact information for all regions, all branches of service.
National Military Family Association
3601 Eisenhower Avenue, Suite 425
Alexandria, VA 22304
http://www.militaryfamily.org
E-mail: infor@militaryfamily.org *Click on Info & Resources links for EFMP=Special Needs information.
Nevada Medicaid
1100 East William Street, Suite 101
Carson City , NV 89701
(775) 684-3676
(775) 687-3893 (Fax)
https://dhcfp.nv.gov/index.htm
Social Security Administration Information for Parents
National Info. 1-800-772-1213
http://www.ssa.gov/pgm/links_ssi.htm
*Benefits information and local office addresses with contact information available by state and city.
State & Local Government on the Net
http://statelocalgov.net/50states-military-vete...
*State listings for Military and Veterans sites within the 50 United States.
The National Guard Family Program
https://www.jointservicessupport.org/fp/
*Click on Contacts & Resources to find your state program.
The National Resource Directory
http://www.nationalresourcedirectory.gov
The National Resource Directory (NRD) provides access to services and resources at the national, state and local levels that support recovery, rehabilitation and community reintegration.
The Special Needs Alliance
http://www.specialneedsalliance.org
*Provides a national list of lawyers specializing in special needs trusts and other resources by state. Check here for help with Guardianship, incapacitation, trusts and other pertinent topics.
United Cerebral Palsy (UCP)
1660 L Street, NW, Suite 700
Washington, DC 20036
(800) 872-5827
TTY (202) 973-7197
(202) 776-0414 (Fax)
http://www.ucp.org
*Contact for your local chapter. Excellent state-by-state resource guide.
United Way
701 N. Fairfax St.
Alexandria, VA 22314
https://www.unitedway.org/local/united-states
*Non-profit charitable organization offering a variety of services including camps, respite, grants, etc. Find your local chapter here.
 
Advocacy
ADAPT
201 S. Cherokee
Denver, CO 80223
303-733-9324
http://www.adapt.org
E-mail: adapt@adapt.org *See Contact List for a chapter in your state.
ANCOR Foundation
1101 King Street, Suite 380
Alexandria, VA 22314
703-535-7850
http://www.ancorfoundation.org/
Email: ancor@ancor.org *The ANCOR Foundation is a 501(c)3 organization created to support the development of innovative programs and disseminate information that will improve the quality of life for people with disabilities.
Family Voices, Inc.
2340 Alamo SE, Suite 102
Albuquerque, NM 87106
(888) 835-5669
(505) 872-4774
(505) 872-4780 (Fax)
http://www.familyvoices.org
Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. To find a chapter in your state, scroll down to the map on the home page and click on your state.
Kids Included Together (KIT)
2013 H Street NW, Ste 620
Washington, DC 20006
(858) 225-5680
(619) 758-0949 (Fax)
https://www.kit.org
*Kids Included Together (KIT) specializes in providing best practices training for military and civilian community–based organizations committed to including children with and without disabilities into their recreational, child development and youth development programs.
Louisiana Developmental Disabilities Council
626 Main Street, Suite A
Baton Rouge, LA 70821-3455
(225) 342-6804
(800) 450-8108
(225) 342-1970 (Fax)
https://laddc.org
Provides a wealth of self advocacy information. Linda recommends individuals check out the "Advocacy 101" section under "LACAN" then "How To" for an outline of a sample letter to Legislators and a "How-To" testify before a legislative body along with other great legislative advocacy information.
National Gateway to Self-Determination Web Portal
http://www.ngsd.org
*This site provides a single access for self-advocates, professionals, policy-makers and the general public on the current best practices and evidence-based activities in enhancing self-determination in the lives of people with developmental and intellectual disabilities, as well as any individual.
Nevada Advocacy and Law Center, Inc.
6039 Eldora Avenue, Ste C-3
Las Vegas, NV 89146
(888) 349-3843
TTY: (702) 257-8160
(702) 257-8170 (Fax)
http://www.ndalc.org
*See site for contact information Reno office.
Office for Civil Rights Headquarters U.S. Department of Health & Human Services
200 Independence Avenue, S.W.
Washington, DC 20201
Call Center: 1-800-368-1019
TTD: 1-800-537-7697
https://www.hhs.gov/civil-rights/index.html
Civil Rights for Individuals and Advocates. Enforces laws against discrimination based on race, color, national origin, disability, age, sex, and religion by certain health care and human services.
Patient Advocate Foundation
421 Butler Farm Road
Hampton, VA 23666
(800) 532-5274
(757) 873-8999 (Fax)
http://patientadvocate.org
E-Mail: help@patientadvocate.org *Provides patients with arbitration, mediation and negotiation to settle issues with access to care, medical debt, and job retention related to their illness.
Self Advocates Becoming Empowered
255 E. Osborn Rd, Suite 103
Phoenix, AZ 85012
https://www.sabeusa.org
E-mail: Admin@sabeusa.org *To ensure that people with disabilities are treated as equals and that they are given the same decisions, choices, rights, responsibilities, and chances to speak up to empower themselves; opportunities to make new friends, and to learn from their mistakes. We are a national board of regional representatives and members from every state in the US.
State Councils on Developmental Disabilities/Administration for Community Living
330 C St SW
Washington, DC 20201
(202) 401-4634
https://acl.gov/programs/aging-and-disability-n...
*Click on Program Contacts for your state's contact information. **State Councils on Developmental Disabilities (Councils) are federally funded, self-governing organizations charged with identifying the most pressing needs of people with developmental disabilities in their state or territory. The 56 Councils across the United States and its territories work to address identified needs by conducting advocacy, systems change, and capacity building efforts that promote self-determination, integration, and inclusion. Key activities include conducting outreach, providing training and technical assistance, removing barriers, developing coalitions, encouraging citizen participation, and keeping policymakers informed about disability issues.
The American Association of People with Disabilities (AAPD)
2013 H Street, NW, 5th Floor
Washington, DC 20006
800-840-8844 (V/TTY)
202-457-0046 (V/TTY)
866-536-4461 (Fax)
http://www.aapd.com
*The American Association of People with Disabilities is the nation's largest disability rights organization. We promote equal opportunity, economic power, independent living, and political participation for people with disabilities. Our members, including people with disabilities and our family, friends, and supporters, represent a powerful force for change.
The Bazelon Center for Mental Health Law
1090 Vermont Avenue, NW, Suite 220
Washington, DC 20005
202-467-5730
http://www.bazelon.org
Email: communications@bazelon.org *Our work in education is mostly based around protecting the rights of students in public schools under the ADA (Americans with Disabilities Act) and IDEA (Individuals with Disabilities Education Act).
The Center for Self-Determination
35425 Michigan Ave.W.
Wayne, MI 48184
(734) 722-7092
(734) 467-7639 (Fax)
http://www.self-determination.com
Email: bnagi@comlivserv.com *The Center for Self-Determination is a non-profit organization, established in 2000, operating as the primary clearinghouse, training and technical assistance source on Self-Determination in the United States and other countries. The Center is devoted to working within the public and private sector to move power and authority over resources directly to individuals with disabilities, families and allies.
Agencies/Assistance Programs - Government
American Indian and Alaska Native Benefits dot com
https://www.benefits.gov/categories/American%20...
* A lengthy list of special needs and education benefit programs and services available for Native American and Alaska Natives. Click on the appropriate link for more information.
Bureau of Family Health Services
3427 Goni Road, Suite 108
Carson City, NV 89706
(775) 684-4285
http://dhhs.nv.gov/
Children With Special Health Care Needs
3427 Goni Road, Suite 108
Carson City, NV 89706
(775) 684-4285
http://aging.state.nv.us/index.htm
GovBenefits.Gov
http://www.Benefits.gov
Provides information regarding government assistance programs nationwide. Includes a state-by-state program search.
Kids' Waivers/Medicaid Waiver Programs
http://www.kidswaivers.org
Medicaid waivers for children are unfortunately quite confusing. Not only that, but it is impossible to find information about them. This project State-by-State is intended to simplify the process as much as possible.
Medicaid Waiver dot Org Disability Services & Waivers all 50 States
http://medicaidwaiver.org
*A state-by-state Medicaid Waiver program listing. Please note: Medicaid programs do not transfer. If you're planning a move you'll want to do some homework. Start here then go to the official page of the state you are considering.
Nevada Governor’s Council on Developmental Disabilities (NGCDD)
896 W. Nye Lane,Suite 202
Carson City, NV 89703
775-684-8619
775-684-8626 (Fax)
http://www.nevadaddcouncil.org
*The Council engages in advocacy, capacity building, and systemic change activities that contribute to a coordinated, consumer and family centered/consumer and family directed, comprehensive system of community services, individualized supports, and other forms of assistance that enable individuals with developmental disabilities to exercise self-determination, be independent, be productive, and be integrated and included in all facets of community life.
Nevada Medicaid
1100 East William Street, Suite 101
Carson City, NV 89701
(775) 684-3676
(775) 687-3893 (Fax)
https://dhcfp.nv.gov/index.htm
Project ASSIST- Nevada’s Central Directory for Early Intervention
1-800-522-0066
http://dhhs.nv.gov/Programs/IDEA/ProjectASSIST/
E-mail: ProjectAssist@dhhs.nv.gov *For anyone seeking information about organizations, programs or agencies that may provide services and supports for children and young adults up to 21 years with disabilities, and their families.
US Department of Indian Health Services
801 Thompson Avenue, Ste. 400
Rockville, MD 20852-1627
(See Contact Listing)
http://www.ihs.gov
* Complete program and regional office listings for IHS Services
Utah Department of Health/MEDICAID
Customer Information Line:
1-800-662-9651
http://health.utah.gov/medicaid/provhtml/contac...
*Customer Information Line also serves Idaho, Wyoming, Colorado, New Mexico, Arizona and Nevada. **General Medicaid information. A listing of free health care clinics as well as programs to apply for in your area. You MUST contact them in person by phone. Under FAQ's click "Where can I find out about Medical Assistance Programs" for local information and additional web links.
 
Agencies/Assistance Programs - Private
ABILITY Corps
https://abilitycorps.org
*Our purpose is to create a world of inclusion and awareness for people with disabilities – through art, media, housing, employment, and volunteer opportunities.
Good Rx
online
Santa Monica, CA
https://www.goodrx.com
Email: ada@goodrx.com *An online savings program. GoodRx gathers current prices and discounts to help you find the lowest cost pharmacy for your prescriptions. GoodRx is 100% free. No personal information required.
Kiwanis International
3636 Woodview Trace
Indianapolis, IN 46268-3196
1-800-549-2647
Cell 1-317-875-8755
http://www.kiwanis.org
*Service is at the heart of every Kiwanis club, no matter where in the world it’s located. Members stage nearly 150,000 service projects and raise nearly US$100 million every year for communities, families and projects. By working together, members achieve what one person cannot accomplish alone. Click on Clubs to find a community club near you.
National School Foundation Association
509 Aurora Ave, Ste 406
Naperville, IL 60540
(866) 824-8513
http://www.schoolfoundations.org
* Provides a Listing of Foundations by State (click on menu in left-hand menu). Excellent resource for those needing foundation information in each state. Click on Foundations at the top of the page.
Single Mothers Grants dot Org
http://helpwithpayingbills.org
*Lists of companies and organizations that will help individuals pay the essentials of basic needs, such as rent or energy bills. Click on your state and review the list of companies and agencies available.
The Ability Experience
PO Box 241368
Charlotte, NC 28224
(980) 318-5385
(704) 504-2400 ext. 5385
(980) 318-5296 (Fax)
http://www.abilityexperience.org
E-mail: chapterservices@abiltyexperience.org *Members of Pi Kappa Phi support their local communities through the construction of wheelchair ramps for families and individuals that would not otherwise be able to afford it.If you are an individual or family in need of a wheelchair ramp or know of someone who is in need of one to help provide better access to your home, we will gladly get a local chapter organized to assist with the construction.
UnitedHealthcare Children's Foundation
PO Box 41
Minneapolis, MN 55440-0041
1-855-698-4223
http://www.uhccf.org
*UHCCF grants provide financial help/assistance for families with children that have medical needs not covered or not fully covered by their commercial health insurance plan. The Foundation aims to fill the gap between what medical services/items a child needs and what their commercial health benefit plan will pay for.
 
Army National Guard/Reserve
The National Guard Family Program
https://www.jointservicessupport.org/fp/
*Click on Contacts & Resources to find your state program.
 
Assistive Technologies
Nevada Assistive Technology Resource Center
1664 N. Virginia Street, Mailstop 285
Reno, NV 89557
(775) 682-9070
(800) 216-7988
https://www.unr.edu/nced/projects/nced-natrc
Email: natrc@unr.edu *Provides a person and family centered approach to AT evaluations, installations, training, on-going support, and access to Nevada's Assistive Technology Exchange Program.
Ablenet
2625 Patton Road
Roseville, MN 55113
800-322-0956
http://www.ablenetinc.com
E-mail: customerservice@ablenetinc.com *Creating assistive technology products that transform lives in simple, tangible, and powerful ways. We believe that all people deserve the tools to help them learn about, interact with, and participate in the world around them. Whether that's a child in the classroom, an adult recovering from an injury, a veteran with a permanent disability, or a senior who wants to remain at home, AbleNet is there to provide an "easy tech, easy value" approach to helping people improve their lives.
Cerner Charitable Foundation
2800 Rockcreek Parkway
Kansas City, MO 64117
816-201-1569
https://www.cernercharitablefoundation.org
E-mail: cernercharitablefoundation@cerner.com Case Grants Questions Email:casegrants@cerner.com *A funding resource for Assistive Technology. Cerner Charitable Foundation provides funding for children whose families cannot afford medical care, equipment, vehicle modifications, or displacement related to care. Review the assistance criteria and financial guidelines to determine if your child qualifies for funding.
National Library Service for the Blind and Physically Handicapped (NLS)
1291 Taylor Street, NW
Washington, DC 20011
(202) 707-5100
TDD: (202) 707-0744
(202) 707-0712 (Fax)
http://www.loc.gov/nls
E-mail/General Info: nls@loc.gov *Through a national network of cooperating libraries, NLS administers a free library program of braille and audio materials circulated to eligible borrowers in the United States by postage-free mail.
Section 508.gov (IT Accessibility & Workforce Division (ITAW))
Office of Government wide Policy 1800 F Street NW, Room G211
Washington, DC 20405
(Help) 202-208-7420
202-501-2010 (TTY)
202-501-6269 (Fax)
http://www.section508.gov/
GSA’s IT Accessibility and Workforce (ITAW) provides assistive technology solutions to eliminate barriers for people with disabilities. ITAW is the government's principal advocate and coordinator for Section 508 implementation that requires agencies to make information technology accessible for people with disabilities.
United States Access Board
1331 F Street NW, Suite 1000
Washington, DC 20004-1111
(800) 872-2253
(800) 993-2822 (TTY)
(202) 272-0081 (Fax)
https://www.access-board.gov
*The U.S. Access Board is a federal agency that promotes equality for people with disabilities through leadership in accessible design and the development of accessibility guidelines and standards for the built environment, transportation, communication, medical diagnostic equipment, and information technology.
Charities and Foundations
Autism Care Today
18685 Main Street, #101-375
Huntington Beach, CA 92648
818-340-4010
https://www.act-today.org
Email: info@act-today.org *Autism Care Today provides funding assistance to families throughout the United States on a quarterly basis. These grants are designed to provide access to individuals and families affected by Autism Spectrum Disorders. Since 2005, Autism Care Today has helped more than 1,562 families and provided more than $1.85 million in grants.
Cerner Charitable Foundation
2800 Rockcreek Parkway
Kansa City, MO 64117
816-201-1569
https://www.cernercharitablefoundation.org
E-mail: cernercharitablefoundation@cerner.com Case Grants Questions Email:casegrants@cerner.com *A funding resource for Assistive Technology. Cerner Charitable Foundation provides funding for children whose families cannot afford medical care, equipment, vehicle modifications, or displacement related to care. Review the assistance criteria and financial guidelines to determine if your child qualifies for funding.
Christopher & Dana Reeve Foundation
636 Morris Turnpike, Suite 3A
Short Hills, NJ 07078
1-800-225-0292
http://www.christopherreeve.org
*Spinal Cord injuries and paralysis. Specific military treatment program available.
Food Pantries dot Org
http://www.foodpantries.org
*A state-by-state directory of Food Banks, Soup Kitchens, and non-profit organizations committed to fighting hunger.
iTaalk Foundation (Interactive Technology Assisting Autistic Little Kids)
105 Lawrence Ave., Suite 101
Toledo, OH 43606
567-377-5710
https://www.itaalk.org
Email: info@itaalk.org *iTaalk offers grants as financial resources become available. However, we are constantly searching for resources, grants, and other funding sources for our families. View our Grants & Funding page to search our grant resource list or to see if we are currently in a giving cycle.
Lions Clubs International
300 W. 22nd Street
Oak Brook, IL 60523-8842
http://www.lionsclubs.org/EN/index.php
*A national service organization with clubs in all 50 states. Eye glasses, ramp programs, other services which vary by location. Click on their Club Locator to find a club near you.
United Way
701 N. Fairfax St.
Alexandria, VA 22314
https://www.unitedway.org
*National Office. Non-profit charitable organization offering a variety of services including camps, respite, grants, home modification assistance, etc. Find your local chapter here.
 
Child Care Resource Listings
Family Caregiver Alliance
785 Market Street, Suite 750
San Francisco, CA 94103
(800) 445-8106
(415) 434-3388
http://www.caregiver.org
E-mail: info@caregiver.org *Check out the Family Care Navigator for services in your state. http://www.caregiver.org/caregiver/jsp/fcn_content_node.jsp?nodeid=2083
Child Care Aware
3101 Wilson Blvd. Suite 350
Arlington, VA 22201
1-800-424-2246
TTY:1-866-278-9428
(703) 341-4101 (Fax)
http://www.childcareaware.org
Child Care Aware is a cooperative program of the National Association of Child Care Resource and Referral Agencies. Funded through the Office of Family Assistance, Administration for Children and Families, U.S. Department of Health and Human Services. **SNRP does NOT endorse this site. Listed for reference only. Use responsible caution when investigating ALL care providers.
National Respite Locator Service
800 Easttowne Drive, Suite 105
Chapel Hill, NC 27514
(800) 473-1727 ext. 222
http://archrespite.org
List of Respite provider links nationwide. Focuses on respite care for families of special needs children.
 
Disability Specific Organizations
Allergy & Asthma Network
8229 Boone Boulevard, Suite 260
Vienna, VA 22182
800-878-4403
703-288-5271 (Fax)
https://www.allergyasthmanetwork.org/patients/
From diagnosis to control, Allergy & Asthma Network is a one-stop source for information on asthma and allergies.
American Academy of Child and Adolescent Psychiatry/Autism Resource Center
3615 Wisconsin Avenue, N.W.
Washington, DC 20016-3007
1-202-966-7300
1-202-464-0131 (Fax)
https://www.aacap.org/AACAP/Families_and_Youth/...
* Provides mental health information for a wide variety of mental health topics, including Autism.
American Diabetes Association
1701 North Beauregard Street
Alexandria, VA 22311
(1-800-342-2383).
http://www.diabetes.org
Email: AskADA@diabetes.org. *See registry for local chapter near you.
American Speech-Language-Hearing Association
2200 Research Boulevard
Rockville, MD 20850-3289
800-638-8255
TTY:301-296-5650
301-296-8580 (Fax)
https://www.asha.org/
*The American Speech-Language-Hearing Association (ASHA) is the national professional, scientific, and credentialing association for 211,000 members and affiliates who are audiologists; speech-language pathologists; speech, language, and hearing scientists; audiology and speech-language pathology support personnel; and students.
Amputee Coalition
900 East Hill Avenue, Suite 205
Knoxville, TN 37915-2566
888-267-5669
TTY:865-525-4512
http://www.amputee-coalition.org
Apraxia Kids
1501 Reedsdale Street, Suite 202
Pittsburgh, PA 15233
412-785-7072
https://www.apraxia-kids.org
Email: info@apraxia-kids.org *Childhood apraxia of speech (CAS) is a motor speech disorder that makes it difficult for children to speak. Children with the diagnosis of apraxia of speech generally have a good understanding of language and know what they want to say. However, they have difficulty learning or carrying out the complex sequenced movements that are necessary for intelligible speech.
Autism Program at Yale (Yale Child Study Center)
230 South Frontage Rd.
New Haven, CT 06519
(203) 785-3420
(203) 764-4373 (Fax)
https://medicine.yale.edu/childstudy/services/a...
E-mail: betty.litto@yale.edu Clinical and research activities are located in the Child Study Center at Yale University, School of Medicine in New Haven, Connecticut.
Autism Speaks
5455 Wilshire Boulevard, Suite 2250
Los Angeles, CA 90036
(323) 549-0500
(323) 549-0547 (Fax)
http://www.autismspeaks.org
E-Mail: contactus@autismspeaks.org *For an Autism Speaks office in your area visit our Community Pages.
Bohring-Opitz Syndrome Foundation, Inc.
1703 Nw 42 Pl
Gainesville, FL 32605
http://bohring-opitz.org
E-mail bohringopitz@gmail.com *Bohring-Opitz Syndrome Foundation, Inc. is dedicated to improving the lives of people affected by BOS through the establishment of a Medical Advisory Board, awareness initiatives, and parent/patient advocacy.
Center for Autism and Related Disabilities, University of Florida, Gainesville
2124 NE Waldo Road, Suite 3200
Gainesville, FL 32609
1 (800) 928-8476
(352) 273-0581
(352) 846-3703 (Fax)
http://card.ufl.edu
Email: card-info@ufl.edu *The Center for Autism and Related Disabilities (CARD) provides support and assistance with the goal of optimizing the potential of people with autism and related disabilities.
Children With Diabetes
5689 Chancery Place
Hamilton, OH 45011
http://www.childrenwithdiabetes.com
*Diabetes education and information
Dravet Syndrome Foundation, Inc.
PO Box 16536
West Haven, CT 06516
203-392-1950
203-907-1940 (Fax)
http://www.dravetfoundation.org
E-mail:info@dravetfoundation.org Parent and professional organization promotes research and education for the early diagnosis, appropriate treatment, and cure of Dravet Syndrome, also known as SMEI (Severe Myoclonic Epilepsy of Infancy), and related genetic, febrile, sodium channel epilepsies.
Dup15q Alliance
P.O. Box 674
Fayetteville, NY 13066
855-387-1572
http://www.dup15q.org
Email: info@dup15q.org *See web site for Dup15q clinics in the US.
Epilepsy Foundation of America
8301 Professional Place
Landover, MD 20785
(800) 332-1000
http://www.epilepsyfoundation.org/
FAS (Fetal Alcohol Syndrome) Community Resource Center
4710 East 29th. Street, Suite 7
Tucson, AZ 85711
(520) 296-9172
http://www.come-over.to/FASCRC/
Five P Minus Society (Cru-du-chat)
1-888-970-0777
http://www.fivepminus.org
*To encourage and facilitate communication among families having a child with 5p- Syndrome and to spread awareness and education of the syndrome to these families and their service providers.Call for referral to the Family Support Coordinator covering your area.
Intermountain Spina Bifida Support Group
(801) 214-8070
http://utahspinabifida.org
E-mail: support@utahspinabifida.org *Provides support to any families and individuals who live and work with Spina Bifida in Utah and in neighboring States that rely on Primary Children's Medical Center in Salt Lake City.
International Dyslexia Association
40 York Rd., 4th Floor
Baltimore, MD 21204-5202
(800) 222-3123
(410) 296-0232
https://dyslexiaida.org
Email: info@dyslexiaida.org
Learning Disabilities Association of America
461 Cochran Road, Suite 245
Pittsburgh, PA 15234
(412) 341-1515
(412) 344-0224 (Fax)
https://ldaamerica.org
*Since 1963, LDA has provided support to people with learning disabilities, their parents, teachers and other professionals with cutting edge information on learning disabilities, practical solutions, and a comprehensive network of resources.See menu for chapter listings by state.
Muscular Dystrophy Association-USA
3300 E. Sunrise Drive
Tucson, AZ 85718
1-800-572-1717
http://www.mda.org
* Click on Find Your Local MDA Office to locate an office and clinic near you.
National Center for Learning Disabilities (NCLD)
381 Park Avenue South Suite 1401
New York, NY 10016
(888) 575-7373
(212) 545-7510
(212) 545-9665 (Fax)
http://www.ncld.org
National Consortium On Deaf-Blindness
345 N. Monmouth Ave.
Monmouth, OR 97361
800-438-9376
800-854-7013(TTY)
503-838-8150 (Fax)
http://www.nationaldb.org
E-mail: info@nationaldb.org
National Family Association For Deaf-Blind
141 Middle Neck Road
Sands Point, NY 11050
800-255-0411
516-883-9060 (Fax)
http://nfadb.org
email: NFADB@aol.com *National State-by-State listing
National Institute on Developmental Delays
1900 West MacArthur
Shawnee, OK 75801
(405) 878-5301
(405) 878-5114 (Fax)
http://nidd.us
*Large number of programs, services and information sources available.
Sesame Street and Autism:See Amazing in All Children
http://autism.sesamestreet.org
*Aimed at communities with children ages 2 to 5. Developed with input from parents, people who serve the autism community, and people with autism, See Amazing in All Children offers families ways to overcome common challenges and simplify everyday activities.A terrific Autism Resource page for parents and everybody else.
The Temple University Collaborative on Community Inclusion
1700 N. Broad Street, Suite 313
Philadelphia, PA 19122
215-204-6779
http://tucollaborative.org
E-mail: tucollab@temple.edu *We provide evidence-based resources that consumers, agencies, and policy makers can use to increase community participation across varied life domains.
United Cerebral Palsy (UCP)
1660 L Street, NW, Suite 700
Washington, DC 20036
(800) 872-5827
TTY (202) 973-7197
(202) 776-0414 (Fax)
http://www.ucp.org
*Excellent state-by-state resource guide. E-mail your local chapter for more information.
Williams Syndrome Changing Lives Foundation
727-557-7177
https://globalgenes.org/raredaily/williams-synd...
E-mail: info@wschanginglives.org The Williams Syndrome Changing Lives Foundation is a non-profit organization centered on increasing awareness, increasing education for families, the community, physicians and therapists. We provide needed financial assistance with medical, therapeutic, recreational and other developmental resources.
Early Intervention
Early Childhood Technical Assistance Center (ECTA Center)
517 South Greensboro Street
Carrboro, NC 27510
(919) 962-2001
TDD (919) 843-3269
(919) 966-7463 (Fax)
http://ectacenter.org
E-mail: nectac@unc.edu NECTAC is the national early childhood technical assistance center supported by the U.S. Department of Education's Office of Special Education Programs (OSEP) under the provisions of the Individuals with Disabilities Education Act (IDEA). NECTAC serves Part C-Infant and Toddlers with Disabilities Programs and Part B-Section 619 Preschool Programs for Children with Disabilities in all 50 states and 10 jurisdictions to improve service systems and outcomes for children and families.
National Association for the Education of Young Children
1313 L. Street, NW, Suite 500
Washington, DC 20005
(800) 424-2460
(202) 232-8777
(202) 328-1846 (Fax)
http://www.naeyc.org
Nevada Early Intervention Services & Developmental Services/ Aging & Disability Services Division
4126 Technology Way, Second Floor
Carson City, NV 89706
Central Office: (775) 684-5943
(775) 684-5964 (Fax)
http://adsd.nv.gov
*Nevada Early Intervention Services and Developmental Services became a part of the newly formed Aging and Disability Services Division in 2013. Since the integration, we have been working hard to ensure that this site contains information for all of the services offered by ADSD and is user friendly. There are 3 Regional Offices plus Satellites. Contact for the office closest you.
Nevada Early Intervention Services (State Office)
4126 Technology Way, Suite 100
Carson City, NV 89706
(800) 522-0066
http://dhhs.nv.gov/Programs/IDEA/Early_Interven...
A family-centered, community-based, comprehensive, interagency service delivery system for infants and toddlers (birth through two years of age with disability, disabilities, delays or special needs in their development who are eligible for Early Intervention services), and their families. If you are concerned about your child's development, the first step is to have your child referred for evaluation and assessed for Early Intervention Services by calling the toll free number (800) 522-0066 or email to ProjectAssist@dhhs.nv.gov
Office of Head Start-US Administration for Children & Families
370 L'Enfants Promenade, SW
Washington, DC 20447
http://www.acf.hhs.gov/programs/ohs
Provides a State by State program finder.
Zero To Three
1255 23rd Street, NW, Suite 350
Washington, DC 20037
(202) 638-1144
(202) 638-0851 (Fax)
http://www.zerotothree.org
*ZERO TO THREE is a national nonprofit organization that provides parents, professionals and policymakers the knowledge and the know-how to nurture early development.
Education
Education Resources Information Center
655 15th Street, NW Suite 500
Washington, DC 20005
(800) 538-3742
https://ies.ed.gov/ncee/projects/eric.asp
*Large clearinghouse of information.
IDEA 2004/U.S. Department of Education
https://sites.ed.gov/idea
*Updated IDEA Act information for all age groups.
National Center on Accessible Instructional Materials at CAST, Inc.
40 Harvard Mills Square, Suite 3
Wakefield, MA 01880
(781) 245-2212
http://aem.cast.org
*Provides a wide variety of information and resources, including training events Nationwide, regarding Accessible Instructional Materials. A state-by-state listing of programs and services is also available from the home page.
Nevada Department of Education
700 Ea. Fifth Street
Carson City, NV 89701
(775) 687-9170
http://www.doe.nv.gov
Nevada State Department of Education/Special Education
700 East Fifth Street, Suite 113
Carson City, NV 89701
(775) 687-9142
http://www.doe.nv.gov/Special_Education1/
*For specific department contact information go to the left hand menu.
PAVE: Partnerships for Action, Voices for Empowerment
6316 So. 12th St.
Tacoma, WA 98465
(253) 565-2266
1-800-5-PARENT
(253) 566-8052 (Fax)
https://wapave.org
Email: pave@wapave.org *Enhanced knowledge of parents/caregivers, families and individuals with disabilities/special needs. Tools, information and resources for you, as a parent/care-giver of a child with disabilities and/or special health care needs and for youth, with and without disabilities. Increased self-reliance of parents/caregivers, families and individuals with disabilities/special needs
Speech Therapy Ideas and Speech Therapy Activities
http://www.speechtherapyideas.com
*Provides speech therapy ideas and activities developed by a licensed Speech Language Pathologist for parents and professionals.
The Council for Exceptional Children
2900 Crystal Drive, Suite 1000
Arlington, VA 22202
(888) 232-7733
TTY: (866) 915-5000
(703) 264-9494 (Fax)
http://www.cec.sped.org
*The Council for Exceptional Children is an international community of professionals who are the voice and vision of special and gifted education. CEC's mission is to improve, through excellence and advocacy, the education and quality of life for children and youth with exceptionalities and to enhance engagement of their families.
Think Inclusion
http://www.thinkinclusive.us
E-mail: timvillegas@thinkinclusive.us * An informational blog with wide ranging information and experience in educational inclusion. A Recommended Read.
U.S. Department of Education//My Child's Special Needs
400 Maryland Avenue, SW
Washington, DC 20202
1-800-872-5327
http://www2.ed.gov/parents/needs/speced/edpicks...
*Contains a large data base of information regarding programs, legislation, resources, parent helps, etc.
Employment
National Collaborative on Workforce and Disability (NCWD)
4301 Connecticut Avenue, NW, Suite 100
Washington, DC 20008-2304
877-871-0744
TTY: 877-871-0665
http://www.http://www.ncwd-youth.info
*Making the connection between Youth with Disabilities and employment. Check out their Blog.
The Employer Assistance and Resource Network on Disability Inclusion (EARN)
https://www.askearn.org
Email: askearn@viscardicenter.org *A free resource that helps employers tap the benefits of disability diversity. We educate public- and private-sector organizations on ways to build inclusive workplace cultures, and we empower them to become leaders in the employment and advancement of people with disabilities.
What Can You Do? The Campaign for Disability Employment
https://www.whatcanyoudocampaign.org
E-mail: info@whatcanyoudocampaign.org *Every day, people with disabilities can and do make important contributions to America’s businesses. They have the drive to succeed in employment, and the skills and talent they need to deliver value and results for their employers.These are messages that bear repeating far and wide. And that’s what the Campaign for Disability Employment (CDE) is all about.
Your Ticket To Work
1-866-968-7842
https://www.ssa.gov/work/
*Ticket to Work is a free and voluntary program that can help Social Security beneficiaries go to work, get a good job that may lead to a career, and become financially independent, all while they keep their Medicare or Medicaid. Individuals who receive Social Security benefits because of a disability and are age 18 through 64 probably already qualify for the program.
Equipment
C*A*R*E* Chest
7910 North Virginia Street
Reno, NV 89506
(775) 829-2273
(775) 829-8745 (Fax)
https://www.carechest.org
*CARE Chest is a nonprofit agency serving individuals in need by providing medical resources free of charge.
 
Housing Programs - Government
Nevada Housing Division
1771 East Flamingo Road, Suite 103-B
Las Vegas, NV 89119
(702) 486-7220
(702) 486-7227 (Fax)
http://www.nvhousing.state.nv.us
E-mail: nhd@nvhousing.state.nv.us
Nevada Rural Housing Authority
3695 Desatoya Drive
Carson City, NV 89701
(775) 887-1795
TDD (800) 545-1833 ext. 545
(775) 887-1798 (Fax)
http://www.nvrural.org
E-mail: info@nvrural.org
Paralyzed Veterans of America
801 18th Street NW
Washington, DC 20006-3517
1-800-424-8200
http://www.pva.org
*Not just for paralyzed Veterans, not just for paralysis. Ask for their Architecture Program! **SNRP recommends their publication "Accessible Home Design".
Public Housing Authorities Directors Association/Local Housing Authority Sites
https://www.phada.org
*Site lists for city/community Housing Authorities (listed by state).
Reno Housing Authority
1525 East Ninth Street
Reno, NV 89512
775-329-3630
TDDY 775-331-5138 ext. 204
775-786-1712 (Fax)
http://www.renoha.org
*Serving Reno, Sparks, and Washoe Counties.
 
Housing Programs - Private
Center For Universal Design North Carolina State University
P.O. Box 8613
Raleigh, NC 27695-8613
(800) 647-6777
V/TTY:(919) 515-3082
(919) 515-3023 (Fax)
http://www.ncsu.edu/ncsu/design/cud/index.htm
*Please check the publications listings for detailed information.
Habitat for Humanity
121 Habitat Street
Americus, GA 31709-3498
1-800-422-4828
1-229-924-6935
http://www.habitat.org
*For information on eligibility,locations, projects and supported communities in your state click on "Contact Us" and then search for location.
Habitat for Humanity/United States
121 Habitat Street
Americus, GA 31709
1-800-422-4828
https://www.habitat.org/where-we-build
E-mail: publicinfo@habitat.org *Find local programs in your community.
IDEA - Center for Inclusive Design and Environmental Access University at Buffalo | School of Architecture and Planning
3435 Main St., 309 Hayes Hall
Buffalo, NY 14214-3087
(716) 829-5902
(716) 829-3861 (Fax)
http://idea.ap.buffalo.edu
E-mail: ap-idea@buffalo.edu *The IDEA Center is dedicated to making environments and products more usable, safer and healthier in response to the needs of an increasingly diverse population. The IDEA Center's activities are based on the philosophy of Inclusive Design, often called Universal Design or Design for All.It is a way of thinking that can be applied in any design activity, business practice, program or service involving interaction of people with the physical, social or virtual worlds.
Institute for Human Centered Design (Adaptive Environments)
180-200 Portland Street, Suite 1
Boston, MA 02114
(617) 695-1225
(617) 482-8099 (Fax)
http://humancentereddesign.org
E-mail: info@HumanCenteredDesign.org
Ramps dot Org ~Free Ramp Program list
(877)312-6989
http://www.ramps.org/free-ramps.htm
E-mail: questions@ramps.org *Ramps.org is here to help you decide what type of wheelchair ramp is right for your specific situation. Need assistance programs? Click on FREE RAMP PROGRAMS at the bottom of the left-hand menu for a listing of programs in your state.
Rebuilding Together/National Headquarters
1536 16th Street, N.W.
Washington, DC 20036
1-800-473-4229
http://www.rebuildingtogether.org
*Currently has 225 affiliates, nationwide. Click on "Affiliates" for the Affiliate office nearest you.
The Home Wheelchair Ramp Project
http://www.klownwerkz.com/ramp/default.htm
E-mail:homeramps@gmail.com *A comprehensive informational site regarding ramp building and the programs that can help you build one. For FUNDING information (and programs to contact for assistance) scroll to the bottom of the page and click on "Funding".
The National Resource Center on Home Modification UC Davis
3715 McClintock Avenue
Los Angeles, CA 90089
(213) 740-1364
(213) 740-7069 (Fax)
https://homemods.org
*Contains a State-by-state resource registry of home modification resources. Go to the Links List under their Resources section and the National Directory for state information.
Universal Design dot Com
http://www.universaldesign.com
*An excellent resource site for information and resources regarding Universal Design.
Visitability dot Org- National Council on Independent Living
1710 Rhode Island Avenue, NW, 5th Floor
Washington, DC 20036
(877) 525-3400
TTY (202) 207-0340
(202) 207-0341 (Fax)
https://visitability.org
*Visitability is a growing trend nationwide. The term refers to single-family or owner-occupied housing designed in such a way that it can be lived in or visited by people who have trouble with steps or who use wheelchairs or walkers.
 
Independent Living Organizations
Independent Living Research Utilization Project/The Institute for Rehabilitation and Research
2323 So. Sheppard, Suite 1000
Houston, TX 77019
(713) 520-0232
TTY: (713) 520-5136
http://www.ilru.org/projects/cil-net/cil-center...
email: ilru@ilru.org Contact information for Statewide Independent Living Councils listed by state.
Northern Nevada Center for Independent Living
999 Pyramid Way
Sparks, NV 89431-4471
(775) 353-3599
TTY: (775) 353-3599
(775) 353-3588 (Fax)
email: nncil@cccomm.net Call or email for satellite office locations.
Southern Nevada Centers for Independent Living (SNCIL)
6039 Eldora Ave., Suite H-8
Las Vegas, NV 89146
(800) 870-7003
(702) 889-4216
(702) 889-4574 (Fax)
http://www.sncil.org
 
Indian Health Services
National Council of Urban Indian Health
924 Pennsylvania Ave., SE
Washington , DC 20003
202-544-0344
http://www.ncuih.org
Phoenix Area Indian Health Services
Two Rennaisance Square 40 North Central Avenue
Phoenix, AZ 85004-4424
(602) 364-4123
http://www.ihs.gov/phoenix/
US Department of Indian Health Services
801 Thompson Avenue, Ste. 400
Rockville, MD 20852-1627
(See Contact Listing)
http://www.ihs.gov
* Complete program and regional office listings for IHS Services
 
Information
Abilities dot Com
https://www.abilities.com
Email: info@abilities.com *Covers a broad spectrum of disability information for children and adults.
ABLE National Resource Center
1667 K Street, NW Suite 480
Washington, DC 20006
1-(202) 683-6094
https://www.ablenrc.org
Email: info@ablenrc.org *The ANRC aims to educate individuals with disabilities and their families, state government and legislatures, financial service companies and financial planners and attorneys - who focus on trust and estate planning - about ABLE’s potential positive impact on the lives of millions of Americans with disabilities.
ADA Document Portal
http://adata.org/ada-document-portal
*The ADA Web Search Portal is a focused search of important websites that contain information about the ADA. The purpose of the Portal is to connect individuals with high quality information about the Americans with Disabilities Act and to assist individuals in answering ADA questions.
ADA National Network
U.S. Department of Justice,950 Pennsylvania Avenue, NW,Disability Rights Section - NYA
Washington, DC 20530
1-800-949-4232
800-514-0383 (TTY)
http://adata.org
*Contact Your Regional Office using the map on the home page. For information and assistance call the information line listed above.
Administration for Community Living
330 C St SW
Washington, DC 20201
(202) 401-4634
https://www.acl.gov
Email: Requests for information about ACL programs and comments and technical issues related to the ACL website can be sent to: aclinfo@acl.hhs.gov ADD programs are at work in every state and U.S. territory. ADD does not provide direct consumer support or financial assistance. ADD provides funding, monitoring, and policy guidance to it's programs Nationwide. Check the State Program Listing for program information in your state. Eldercare Locator (to find local resources):(800) 677-1116
American Association on Health and Disability
110 N. Washington Street, Suite 328-J
Rockville, MD 20850
(301) 545-6140
(301) 545-6144 (Fax)
http://www.aahd.us
E-mail: contact@aahd.us * A large data base of current studies and information regarding disabilities.
Center for Parent Information and Resources (formerly NICHCY)
35 Halsey St., Fourth Floor
Newark, NJ 07102
(973) 642-8100
http://www.parentcenterhub.org
*The Center for Parent Information and Resources (CPIR) serves as a central resource of information and products to the community of Parent Training Information (PTI) Centers and the Community Parent Resource Centers (CPRCs), so that they can focus their efforts on serving families of children with disabilities.
Child Development Institute
1442 E Lincoln Avenue Suite 121
Orange, CA 92865
https://childdevelopmentinfo.com
*The “go to” site for parents for information, products and services related to child development, psychology, health, parenting, learning, media, entertainment, family activities as well as to connect with other parents, professional experts organizations and other useful websites. The goal of our website is to promote healthy development to enable children to reach their true potential for a successful and rewarding life.
Complex Child- Online Magazine
http://complexchild.org
Email: info@complexchild.org *Complex Child is a monthly online magazine written by parents of children with special healthcare needs and disabilities. It is intended to provide medical information, along with personal experiences, in simple language that other parents can understand.
Disability dot Gov - Information
200 Constitution Ave NW,
Washington, DC 20210
1-866-633-7365
https://www.dol.gov/odep/topics/disability.htm
*A listing of a wide variety of federal Disability Resources available through the US Dept. of Labor.
Disability History Museum
(413)369-4372
(413)369-4784 (Fax)
http://www.disabilitymuseum.org
E-mail:info@straightaheadpictures.org *The Disability History Museum hosts a Library of virtual artifacts, Education curricula, and Museum exhibits. These programs are designed to foster research and study about the historical experiences of people with disabilities and their communities.
Disability Information.Gov
https://webarchive.library.unt.edu/eot2008/2008...
*This site is archived but still contains a large database of useful links. Please be aware some links may no longer work.* Large Federal database providing easy access to comprehensive information about disability programs, services, laws and benefits. To find disability resources in your state just click on the Find State and Local Resources map located in each of the subject areas listed in their menu.
Disability Resources
50 East Greg Street, Suite 102
Sparks, NV 89431
(775) 329-1126
http://www.disabilityresourcesnv.org
E-mail: info@disabilityresourcesnv.org
Early Childhood Special Education Resource Library
4126 Technology Way, Suite 200
Carson City, NV 89706
1-800-522-0066
(775) 687-0588
http://dhhs.nv.gov/Programs/IDEA/ProjectASSIST/...
E-mail: ProjectAssist@dhhs.nv.gov *A statewide resource library available to families, professionals, educators, and staff working with young children with disabilities, and their families is the Early Childhood Special Education Resource Library located in the IDEA Part C office. This library contains hundreds of books, DVDs and other materials regarding Autism, children with disabilities, Downs syndrome, early intervention, families, special education and law, and more. This library is available for use statewide and a catalog is available on the website.
Enabled Kids
(416) 250-1904
http://enabledkids.ca
E-mail: natan@enabledkids.ca *"Enabling children to function independently"
Girls Health.gov
8270 Willow Oaks Corporate Drive, Suite 301
Fairfax, VA 22031
http://www.girlshealth.gov/
*See "Illness and Disability" tab. Excellent information resource.
Great Lakes ADA Center
MC 728 - 1640 W. Roosevelt Road, Room 405
Chicago, IL 60608
312-413-1407 (V/TTY)
877-232-1990 (V/TTY)
312-413-1856 (Fax)
http://www.accessibilityonline.org
* The ADA National Network provides a comprehensive set of services for up-to-date information, consultation, referrals, resources, and training on the Americans with Disabilities Act for businesses, employers, governmental entities, service providers and individuals with disabilities.
Health Care dot Gov
http://www.healthcare.gov/index.html
*Provides current and up to date information regarding health care legislation and a state-by-state guide to insurance programs available in every state.
Healthy Children dot Org/American Academy of Pediatrics
345 Park Boulevard
Itasca, IL 60143
1-630-626-6000
https://healthychildren.org
*Great parent information provided by The American Academy of Pediatrics (AAP) and its member pediatricians who dedicate their efforts and resources to the health, safety and well-being of infants, children, adolescents and young adults.
IMPACT on Health and Wellness (Family Voices)
3701 San Mateo Blvd. NE, Suite 103
Albuquerque, NM 87110
(505) 872-4774
(888) 835-5669
(505) 872-4780 (Fax)
http://www.familyvoices.org/projects?id=0001
*IMPACT is a project of national Family Voices. Our goal is to promote a holistic, culturally relevant approach to health and wellness for all families and children including those with special healthcare needs and disabilities.
National Organization on Disability
910 Sixteenth Street, N.W., Suite 600
Washington, DC 20006
(202) 293-5960
TTY: (202) 293-5968
(202) 293-7999 (Fax)
https://www.nod.org
E-mail: ability@nod.org
Safe Kids Worldwide
1255 23rd Street, NW, Suite 400
Washington, DC 20037
202-662-0600
202-393-2072 (Fax)
https://www.safekids.org
*Safe Kids Worldwide is a global organization dedicated to preventing injuries in children, the number one killer of kids in the United States.
United Spinal Association
75-20 Astoria Boulevard
Jackson Heights, NY 11370
800-404-2898
(718) 803-3782
(718) 803-0414 (Fax)
http://www.unitedspinal.org/disability-publicat...
*Linda's favorite down-loadable informational resource. Linda recommends the following booklets: Disability Etiquette (PDF), Taking Action (PDF), Adaptive Automotive Equipment (PDF), The Americans with Disabilities Act (PDF),The Fair Housing Amendments Acts (PDF) and Accessing Local Government (PDF). Please see the menu page for other publications you may be interested in.
 
Insurance Assistance Programs
Good Rx dot com
501 Santa Monica Blvd.Suite 403
Santa Monica, CA 90401
1-888-799-2553
http://www.goodrx.com
*Comparison shop for over 6000 FDA approved medications at 70,000 pharmacies nationwide. With or without insurance this site can save you money.
Healthcare Dot Gov
200 Independence Avenue, S.W.
Washington, DC 20201
http://www.healthcare.gov
*Provides a wide variety of current health care information. State-by-State listings will help consumers compare programs and services in their communities.
Insure Kids Now dot gov
1-877-543-7669
http://www.insurekidsnow.gov
E-mail: CMSOCHIPRAQuestions@cms.hhs.gov *InsureKidsNow.gov provides information about Medicaid and CHIP services for families who need health insurance coverage. These programs are designed to be affordable for families who are not able to afford health insurance coverage in the private market or do not have coverage available to them. Even if you've been turned down in the past, you may be able to get health coverage for your child now. Learn more about health coverage programs in your state. How to Contact Us: If you have specific questions about health insurance for your children, please contact the programs in your state or make a free call to 1-877-543-7669, our free and confidential hotline, where you'll be connected directly to someone from your state who will help you apply.
Patient Access Network (PAN) Foundation
PO Box 221858
Charlotte, NC 28222
1-866-316-7263
1-866-316-7261 (Fax)
https://www.panfoundation.org
E-mail: contact@panfoundation.org *The Patient Access Network Foundation is an independent, national 501 (c)(3) organization dedicated to providing underinsured patients with financial assistance through more than 50 disease-specific funds that provide access to progressive therapies.
Patient Advocate Foundation
421 Butler Farm Road
Hampton, VA 23666
(800) 532-5274
(757) 873-8999 (Fax)
http://patientadvocate.org
*Provides effective mediation and arbitration services to patients to remove obstacles to healthcare including medical debt crisis, insurance access issues and employment issues for patients with chronic, debilitating and life-threatening illnesses.
 
Legal Advocacy/Information
ADA Dot Gov/US Department of Justice Civil RIghts Division
950 Pennsylvania Avenue, NW Civil Rights Division, Disability Rights Section - NYA
Washington, DC 20530
800 - 514 - 0301
800 - 514 - 0383 (TTY)
http://www.ada.gov
*The U.S. Department of Justice provides information about the Americans with Disabilities Act (ADA) through a toll-free ADA Information Line.
American Bar Association
http://apps.americanbar.org/legalservices/findl...
*Consumer's Guide to Legal Help - Contains a state-by-state listing.
Council of Parent Attorneys and Advocates
P.O. Box 6767
Towson, MD 21285
(443) 451-5270
(443) 451-2680 (Fax)
http://www.copaa.org
*COPAA’s mission is to protect and enforce the legal and civil rights of students with disabilities and their families. Our primary goal is to secure high quality educational services and to promote excellence in advocacy. Has a MILITARY resource Section under "Parents".
National Association of Indian Legal Services
300 Third Street, Suite 210
Wausau, WI 54403
1-800-472-1638
(715) 842-1681
(715) 848-1885 (Fax)
http://www.judicare.org/Content/National_Indian...
E-mail: info@judicare.org *See home page for state by state listing of service centers.
National Health Law Program (NHelp) Main Office
2639 South La Cienega Blvd
Los Angeles, CA 90034-2675
(310) 204-6010
(310) 204-0891 (Fax)
http://www.healthlaw.org
Email: nhelp@healthlaw.org * NHeLP serves legal services programs, community-based organizations, the private bar, providers and individuals who work to preserve a health care safety net for the millions of uninsured or underinsured low-income people.
National Resource Center for Supported Decision-Making
202-448-1448
http://www.supporteddecisionmaking.org
E-mail: JHJP@dcqualitytrust.org *Information about the Right to Make Choices – the right we all have to make our own decisions and direct our own lives. See state map for your state. Can connect you with people and organizations that may be able to help you, and answer your questions.
The Special Needs Alliance
http://www.specialneedsalliance.org
*Provides a national list of lawyers specializing in special needs trusts and other resources by state.
Utah State Courts Guardianships and Conservatorships
http://www.utcourts.gov/howto/family/gc/
*A large "How To" database full of information required to go through the process for minors and adults. Geared for Utah this site is still useful for other states.
Wright's Law
http://www.wrightslaw.com
 
Medical Centers/Hospitals/Clinics
Northern California Shriners Hospital
2425 Stockton Blvd.
Sacramento, CA 95817
(916) 453-2000
(916) 453-2352
(916) 453-2352 (Fax)
http://www.shrinershospitalsforchildren.org/en/...
*Specialty facility. Specializes in burns, spinal cord injuries and orthopedics.
Primary Children's Medical Center
100 Mario Capecchi Dr
Salt Lake City, UT 84113
(801) 662-1000
http://intermountainhealthcare.org/hospitals/pr...
*Full service multi-specialty children's hospital.
Shriner's of North America (International)
2900 Rocky Point Dr.
Tampa, FL 33607-1460
(800) 237-5055
http://www.shrinersinternational.org
Charitable children's hospitals specializing in burn and orthopedic treatment. Check for the hospital nearest your area.
Sunrise Children's Hospital
3186 South Maryland Parkway
Las Vegas, NV 89109
(702) 731-8000
(702) 731-8668 (Fax)
http://www.sunrisehospital.com
The National Association of Free & Charitable Clinics
1800 Diagonal Road, Suite 600
Alexandria, VA 22314
703-647-7427
866-875-3827 (Fax)
http://nafcclinics.org
Email: Info@nafcclinics.org * The National Association of Free and Charitable Clinics (NAFC) is the only nonprofit 501c(3) organization whose mission is solely focused on the issues and needs of the more than 1,400 Free and Charitable Clinics and the people they serve in the United States.
 
Medical Information/Research Organizations
American Academy of Pediatrics/Childhood Immunization Support Program
141 Northwest Point Blvd.
Elk Grove Village, IL 60007
http://www.cispimmunize.org/
*Information regarding childhood immunizations.
American Association of Pediatrics
141 Northwest Point Blvd.
Elk Grove Village, IL 60007
(847) 434-4000
http://www.aap.org
General information regarding diagnosis and treatment of pediatric disorders and diseases as well as some referral services.
American Medical Association
515 No. State St.
Chicago , IL 60610
(800) 621-8335
http://www.ama-assn.org
General information regarding diagnosis,treatment and current research in the medical community.
American Occupational Therapy Association, Inc.
4720 Montgomery Lane
Bethesda, MD 20824-1220
(301) 652-2682
TDD: 1-800-377-8555
(301) 652-7711 (Fax)
http://www.aota.org/
American Speech-Language-Hearing Association
10801 Rockville Pike
Rockville, MD 20852
(800) 638-8255
http://www.asha.org
* Has an extensive database of Audiologists and Speech-Language Pathologists. Click on "Find a Professional".
Annette and Irwin Eskind Biomedical Library (at Vanderbilt University)
2209 Garland Avenue
Nashville, TN 37232-8340
(615) 936-1410
(615) 936-1384 (Fax)
http://www.mc.vanderbilt.edu/biolib/index.html
Birth Defects Research for Children, Inc.
800 Celebration Avenue, Suite 225
Celebration, FL 34747
(407) 566-8304
(407) 566-8341 (Fax)
http://www.birthdefects.org/
Columbus Children's Research Institute
700 Children's Drive
Columbus, OH 43205
(614) 722-2000
(614) 722-2716 (Fax)
http://columbuschildrens.com/GD/Templates/Pages...
Consumer Reports Medical Guide
http://www.consumerreports.org/cro/health/index...
Medical reports on a wide variety of topics. *ALWAYS consider the source when reviewing medical information
FDA New Pediatric Labeling Information Database
10903 New Hampshire Avenue
Silver Springs, MD 20993
1-888-463-6332
http://www.accessdata.fda.gov/scripts/sda/sdNav...
The Pediatric Labeling Information Database is a one-stop resource. You can search for information by the products commercial or chemical name, or by the condition for which it was studied. FDA's Office of Pediatric Therapeutics (OPT), which focuses on safety, scientific, and ethical issues that arise in pediatric clinical trials or after products are approved for use in children, developed the tool in collaboration with another branch of the agency, the Center for Drug Evaluation and Research.
National Network of Libraries of Medicine (NNLM)
8600 Rockville Pike,Bldg. 38, Room B1-E03
Bethesda, MD 20894
https://nnlm.gov
*The mission of NNLM is to advance the progress of medicine and improve the public health by providing all U.S. health professionals with equal access to biomedical information and improving the public's access to information to enable them to make informed decisions about their health. The Program is coordinated by the National Library of Medicine and carried out through a nationwide network of health science libraries and information centers.
Speech Therapy Ideas and Speech Therapy Activities
http://www.speechtherapyideas.com
*Provides speech therapy ideas and activities developed by a licensed Speech Language Pathologist for parents and professionals.
Military Family Support Organizations
Armed Services YMCA
14040 Central Loop, Suite B
Woodbridge, VA 22193
800-597-1260
703-730-5120 (Fax)
https://www.asymca.org
The ASYMCA is an association of the YMCA, specifically dedicated to serving junior-enlisted military service members and their families of all five armed services: Army, Marine Corps, Navy, Air Force and Coast Guard. The oldest military support organization in the U.S., serving 93 military installations nationwide. Our national and locally tailored programs and services for our nation’s troops and their families are offered at no or low cost and require no dues or membership fees.
Child Care Aware - Military Programs
3101 Wilson Blvd. Suite 350
Arlington, VA 22201
1-800-424-2246
TTY:1-866-278-9428
(703) 341-4101 (Fax)
http://usa.childcareaware.org
Child Care Aware is a cooperative program of the National Association of Child Care Resource and Referral Agencies. Funded through the Office of Family Assistance, Administration for Children and Families, U.S. Department of Health and Human Services. **SNRP does NOT endorse this site. Listed for reference only. Use responsible caution when investigating ALL care providers.
Military Quick Links (National Guard, Reserve, Active Duty)
ABA Military Pro Bono Project
321 N. Clark St.
Chicago, IL 60654
312-988-5783
http://www.militaryprobono.org
*The ABA Military Pro Bono Project accepts case referrals from military attorneys on behalf of junior-enlisted, active-duty military personnel and their families with civil legal problems, and it places these cases with pro bono attorneys where the legal assistance is needed. The Project is also the platform for Operation Stand-By, through which military attorneys may seek attorney-to-attorney advice to further assist their service member clients.
American Bar Association/Military Lawyers
http://www.americanbar.org/portals/military_law...
*Scroll down the home page to the very bottom for Military and Veteran Bar Association listings.
DoD Forms Management Program
http://www.esd.whs.mil/Directives/forms/dd0001_...
*Find Dependency Determination Forms here. Scroll down to the DD 137-5 Dependency Statement - Incapacitated Child Over Age 21 and click on the form number. This form can be filled out on line.
Easter Seals National Headquarters
230 W. Monroe St., Suite 1800
Chicago, IL 60606
(800) 221-6827
TTY 312-726-4258
(312) 726-1494 (Fax)
http://www.easterseals.com
*Contact for the chapter closest to you. Ask your local chapter for camps, grants, respite services and other services available in your area.
EFMP & Me: Exceptional Family Member Program (EFMP)
https://efmpandme.militaryonesource.mil
*Use this tool to maneuver through the Defense Department's network of services and supports for families with special needs. No sign-up is required for service members and family members, but you can choose to create an account to save your progress and preferences.
Exceptional Family Member Program/All Branches/Mobile
https://www.militaryonesource.mil/family-relati...
Contains contact information, Base program locators and enrollment/justification forms for ALL Branches of service.
Kids' Waivers/Medicaid Waiver Programs
http://www.kidswaivers.org
Medicaid waivers for children are unfortunately quite confusing. Not only that, but it is impossible to find information about them. This project State-by-State is intended to simplify the process as much as possible.
Medicaid Waiver dot Org
http://medicaidwaiver.org
*A state-by-state Medicaid Waiver program listing. Please note: Medicaid programs do not transfer. If you're planning a move you'll want to do some homework. Start here then go to the official page of the state you are considering.
Military One Source
800-342-9647
https://www.militaryonesource.mil/special-needs/
* A DoD supported site. Military OneSource has policy and programmatic information, helpful resources, products, articles and tips on numerous topics related to military life. Confidential services are available 24 hours a day by telephone and online. In addition to the website support, Military OneSource offers confidential call center and online support for consultations on a number of issues such as spouse education and career opportunities, issues specific to families with a member with special needs, health coaching, financial support, and resources.
Military Parent Technical Assistance Center
6316 S 12th St
Tacoma, WA 98465
(253) 565-2266
(800) 572-7368
https://branchta.org
E-mail: thebranch@wapave.org * Provides Base EFMP and Special Needs contact information for all regions, all branches of service.
National Military Family Association
3601 Eisenhower Avenue, Suite 425
Alexandria, VA 22304
http://www.militaryfamily.org
E-mail: infor@militaryfamily.org *Click on Info & Resources links for EFMP=Special Needs information.
Nevada Medicaid
1100 East William Street, Suite 101
Carson City , NV 89701
(775) 684-3676
(775) 687-3893 (Fax)
https://dhcfp.nv.gov/index.htm
Social Security Administration Information for Parents
National Info. 1-800-772-1213
http://www.ssa.gov/pgm/links_ssi.htm
*Benefits information and local office addresses with contact information available by state and city.
State & Local Government on the Net
http://statelocalgov.net/50states-military-vete...
*State listings for Military and Veterans sites within the 50 United States.
The National Guard Family Program
https://www.jointservicessupport.org/fp/
*Click on Contacts & Resources to find your state program.
The National Resource Directory
http://www.nationalresourcedirectory.gov
The National Resource Directory (NRD) provides access to services and resources at the national, state and local levels that support recovery, rehabilitation and community reintegration.
The Special Needs Alliance
http://www.specialneedsalliance.org
*Provides a national list of lawyers specializing in special needs trusts and other resources by state. Check here for help with Guardianship, incapacitation, trusts and other pertinent topics.
United Cerebral Palsy (UCP)
1660 L Street, NW, Suite 700
Washington, DC 20036
(800) 872-5827
TTY (202) 973-7197
(202) 776-0414 (Fax)
http://www.ucp.org
*Contact for your local chapter. Excellent state-by-state resource guide.
United Way
701 N. Fairfax St.
Alexandria, VA 22314
https://www.unitedway.org/local/united-states
*Non-profit charitable organization offering a variety of services including camps, respite, grants, etc. Find your local chapter here.
 
Other
Disability Studies, Temple University Blog
http://disstud.blogspot.com
*Based at Temple University but with nationwide contributors. Has a LARGE list of disability related blogs.
 
Parent Support Programs
A Mother's Rest Charitable Respite Foundation
P.O. Box 131
Monrovia, MD 21770
https://www.amothersrest.org
Email: innkeeper@amothersrest.org *Non-profit AMR coordinates affordable, 3-night respite retreats with our national network of bed and breakfast inn partners. Proactive health initiative. Exclusively for parents and caregivers of children or adults with ANY extra need. Serving bio & adoptive parents. Moms, Dads, Couples, Grandparents, Special Educators, Mommy & Me, Daddy & Me, Families. Funding for child care and summer camp grants, financial planning, employment
Autism Support Network
P.O. Box 1525
Fairfield, CT 06824
(203) 404-4929
(203) 404-4969 (Fax)
http://www.autismsupportnetwork.com
E-mail: info@AutismSupportNetwork.com *The mission of Autism Support Network is: connect, guide and unite. Our goal is to short-cut the uphill battle individuals and families undertake when faced with autism – whether that means the initial diagnosis, the day-to-day living and coping needed, relationship and therapeutic strategies and the latest information. **Use the search engine on the Home Page to find resources in your state areas.
Center for Parent Information and Resources
35 Halsey St., Fourth Floor
Newark, NJ 07102
(202) 884-8355
http://www.parentcenterhub.org
*Each state has at least one parent center. These should be listed on your state resource links page. If not, click on Parent Centers in the header menu to locate the nearest center to you.
Compassion Fatigue Awareness Project
http://compassionfatigue.org
The Compassion Fatigue Awareness Project© is dedicated to educating caregivers about authentic, sustainable self-care and aiding organizations in their goal of providing healthy, compassionate care to those whom they serve. E-mail: patricia@compassionfatigue.org
DadsMOVE (Mentoring Others With Voices of Experience)
6315 South 19th Street
Tacoma, WA 98466
http://www.dadsmove.org
*Dads MOVE serves all parents and the families of children with special needs - mental health, behavioral, or emotional concerns, across Washington State and soon, the nation. We are a family-focused, dads driven peer support model, providing education, support, and advocacy to the families of special needs children. CHECK OUT THEIR BLOG!
Disabled Parenting Project (DPP)
http://www.disabledparenting.com
*An online organization, the Disabled Parenting Project is on a mission to leverage technology in order to create opportunities for parents and prospective parents with disabilities to connect and interact, and serve as an information clearinghouse for relevant information about adaptive parenting.
Family TIES of Nevada
5250 Neil Rd., Suite 200
Reno, NV 89502
1-866-326-8437
1-775-823-9500
http://www.familytiesnv.org
*Offices in Reno and Las Vegas. Training, Information, & Emotional Support for all families affected by disabilities and/or special health care needs in Nevada, Family TIES is the Nevada Family-to-Family Health Information Center - a family-run non-profit organization that provides information, education, training, outreach, and peer support at no cost to families of children and youth with special health care needs and the professionals who serve them. Training, Information, & Emotional Support for all families affected by disabilities and/or special health care needs in Nevada.
Family Voices
3701 San Mateo Blvd. NE, Suite 103
Albuquerque, NM 87110
(888) 835-5669
(505) 872-4774
(505) 872-4780 (Fax)
http://www.familyvoices.org
Family Voices aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities. Through our national network, we provide families tools to make informed decisions, advocate for improved public and private policies, build partnerships among professionals and families, and serve as a trusted resource on health care. *Click on your state for local chapter information.
Hands and Voices
PO Box 3093
Boulder, CO 80307
(866) 422-0422
http://www.handsandvoices.org/index.htm
E-mail: parentadvocate@handsandvoices.org *Dedicated to supporting families with children who are Deaf or Hard of Hearing without a bias around communication modes or methodology. We're a parent-driven, non-profit organization providing families with the resources, networks, and information they need to improve communication access and educational outcomes for their children, nationwide. Click on the Map to find the chapter in your state.
Matrix Parent Network and Resource Center Region 6
94 Galli Drive, Suite C
Novato, CA 94949
(800) 578-2592
(415) 884-3535
(415) 884-2592 (Fax)
http://www.matrixparents.org
email: region6@matrixparents.org
Mommies of Miracles
http://www.mommiesofmiracles.com
*Mommies of Miracles is a growing international peer-driven support group of mothers who have children of any age (infant-adult) with complex medical issues, rare or undiagnosed conditions, and/or developmental disabilities.
Parent Technical Assistance Center Network
35 Halsey St., 4th Floor
Newark, NJ 07102
(973) 642-8100
http://www.parentcenterhub.org/rptacs/
*Parent Centers provide training, information and assistance to families of children with all disabilities ages birth to 26 years and the professionals who work with them. Click on the Regional Map to find the program/programs in your state.
Parent to Parent USA (P2PUSA)
2030 M St. NW, Suite 350
Washington, DC 20036
http://www.p2pusa.org/p2pusa/sitepages/p2p-home...
E-mail: memberinfo@p2pusa.org *The site is now closed but still has some archived information.
Parent Training and Information Center
2355 Red Rock, Suite 106
Las Vegas, NV 89146
(800)-216-5188 Statewide
http://www.nvpep.org
Sesame Street & Autism - Resources for Parents
http://autism.sesamestreet.org
*Sesame Workshop created Sesame Street and Autism: See Amazing in All Children, a nationwide initiative aimed at communities with children ages 2 to 5. Developed with input from parents, people who serve the autism community, and people with autism, See Amazing in All Children offers families ways to manage common challenges, to simplify everyday activities, and to grow connections and support from family, friends, and community.
Sibling Support Project/A Kindering Center Program
6512 23rd Ave NW, #213
Seattle, WA 98117
(206) 297-6368
(509) 752-6789 (Fax)
http://www.siblingsupport.org
E-mail: info@siblingsupport.org *The Sibling Support Project is a national effort dedicated to the life-long concerns of brothers and sisters of people who have special health, developmental, or mental health concerns.
The Caregiver's Space
http://www.thecaregiverspace.org
*The Caregiver Space is designed to be a free social network, dedicated solely to the welfare of caregivers­: The Invisible Patients. Our goal is to become the premier center for finding resources, sharing experiences, developing personal networks and learning ways to minimize and cope with caregiver stress. Our code is to provide services that transcend disease, age, length of illness and income.
The Temple University Collaborative on Community Inclusion
1700 N. Broad Street, Suite 313
Philadelphia, PA 19122
215-204-6779
http://tucollaborative.org/community-inclusion-...
E-mail: abilger@temple.edu *Contains an excellent list of available educational, and other, resources.
Patient Assistance Programs
American Dental Association ~ Give Kids A Smile Program
http://www.givekidsasmile.ada.org/findGKAS.asp
*This is a yearly clinic in most communities. Click on the Clinic locator to find a clinic in your area.
Merck Patient Assistance Programs
P.O. Box 100
Whitehouse Station, NJ 08889-0100
908-423-1000
http://www.merck.com/merckhelps/patientassistance/
Merck offers a family of programs providing free and discounted medicines to patients who cannot afford their prescribed medicines.
National Council on Patient Information and Education
200-A Monroe Street, Suite 212
Rockville, MD 20850
(301) 340-3940
(301) 340-3944 (Fax)
http://www.talkaboutrx.org
Email: ncpie@ncpie.info
NeedyMeds
P.O. Box 219
Gloucester, MA 01931
http://www.needymeds.org
NeedyMeds is a 501(c)(3) national non profit, has information on programs that help people who can't afford their medications and health care costs. Provides data regarding approximately 2400 programs and nearly 11,000 free/low-cost/sliding-scale clinics.
Partnership for Prescription Assistance
1-888-477-2669
http://www.pparx.org
The Partnership for Prescription Assistance offers a single point of access to more than 475 public and private patient assistance programs, including more than 180 programs offered by pharmaceutical companies. More than 2,500 brand-name and generic medicines are covered.
Partnership for Prescription Assistance Kids
1-877-369-1477
http://kids.pparx.org
The Partnership for Prescription Assistance offers a single point of access to more than 475 public and private patient assistance programs, including more than 180 programs offered by pharmaceutical companies. More than 2,500 brand-name and generic medicines are covered.
Pfizer Helpful Answers
1-866-706-2400
http://www.pfizerhelpfulanswers.com
Pfizer Helpful Answers is a family of assistance programs for uninsured and underinsured patients who need help getting their Pfizer medicines. These programs provide: •Pfizer medicines for free or at a savings to patients who qualify •Some programs also offer reimbursement support services Call for more information.
RxAssist
111 Brewster Street
Pawtucket, RI 02860
401-729-3284
401-729-2955 (Fax)
http://www.rxassist.org
Email: info@rxassist.org Patient Assistance Program Center ~ Offers a comprehensive database of programs and information.
Recreation
United States Tennis Association/Wheelchair Tennis
70 West Red Oak Lane
White Plains, NY 10604
HQ (914) 696-7000
https://www.usta.com/en/home/play/lots-of-ways-...
*Provides regulation and paralympic play information nation wide.Contact for full program information.
Accessible Playground dot Net
1463 Greystone Dr.
Pittsburgh, PA 15206
(412) 334-2652
http://www.accessibleplayground.net
E-mail: mara@letkidsplay.com *Excellent web based center for information re: Accessible playgrounds. Provides a nationwide state-by-state playground directory and playground resources.
American Amputee Hockey Association and Standing Amputee
http://www.usahockey.com/page/show/902518-stand...
E-Mail: DisabledHockey@USAHockey.org *The AAHA invites all players with limb loss/ birth defects/ and other disabilities to play upright ice hockey.
American Camp Association
5000 State Road 67 North
Martinsville, IN 46151-7902
800-428-2267
765-342-8456
765-342-2065 (Fax)
https://www.acacamps.org
*24 Regional Offices nationwide. Check listings for camps near you.
American Dance Therapy Association
230 Washington Avenue Extension, Suite 101
Albany, NY 12203-3539
818-340-4010
567-377-5710 (Fax)
https://adta.org
Email: info@adta.org *Supports chapters and regional study groups throughout the United States. Find your chapter under About, Information, Chapters.
American Heroes Project (Utah)
570 South Main Street
Spanish Fork, UT 84660
801-592-7809
http://americanheroesproject.org/program-for-ve...
E-mail: wade@americanheroesproject.org *Hand in Hand Outdoors provides opportunities for our nations veterans as well as underprivileged and disabled children and adults to experience outdoor activities which enhance their lives through education and direct hands-on participation in fishing, boating, shooting and camping.
American Music Therapy Association
8455 Colesville Road, Suite 1000
Silver Spring, MD 20910
301-589-3300
301-589-5175 (Fax)
https://www.musictherapy.org
*The mission of the American Music Therapy Association is to advance public awareness of the benefits of music therapy and increase access to quality music therapy services in a rapidly changing world.
American Wheelchair Bowling Association
P.O. Box 69
Clover, VA 24534
http://www.awba.org
E-mail: info@awba.org *The AWBA provides a competitive, challenging, and informative environment for those individuals with disabilities requiring the use of a wheelchair while bowling to participate in bowling events no matter their individual skill level.
Amputee Coalition
900 East Hill Avenue, Suite 205
Knoxville, TN 37915
888-267-5669
http://www.amputee-coalition.org
E-Mail: amputee-coalition.org *See for amputee camps listed by state.
Art Shop Therapuetic Art Lessons for Children and Adults with Disabilities
1043 Grand Ave.
St. Paul, MN 55105
612-254-5013
http://artshoptherapy.com
*ArtShop provides opportunities for children and adults with cognitive, developmental, emotional and physical disabilities to participate in the creative process and develop as artists. Through therapeutic art lessons and projects adapted for individuals with disabilities, ArtShop utilizes the process of creating art to promote and develop self expression and empowerment.
Artistic Realization Technologies, Inc.
11 Whippoorwill Way
Belle Meade, NJ 08502
908-359-3098
http://www.artrealization.org
E-mail: info@artrealization.org *Created technologies, studio programming, and training that empowers those who lack the articulate use of their hands to gain perfect individual control of the art-making process.
Best Buddies - Global Headquarters
100 Southeast Second Street, Suite 2200
Miami , FL 33131
(800) 892-8339
(305) 374-2233
(305) 374-5305 (Fax)
http://www.bestbuddies.org
*Currently has 177 chapters across the United States. Contact for a chapter in your area.
C.A.S.T. for Kids Foundation (Western Region)
227 S.W. 41st Street
Renton, WA 98057
(425) 251-3214
(425) 251-3272 (Fax)
http://www.castforkids.org/
Email:jim@castforkids.org *Contact for a fishing program in your state
CampResource.com/Online Summer Camp Directory
http://www.campresource.com
*Special needs camps for boys and girls that focus on the challenges of ADHD, Autism, physical disabilities, weight loss, diabetes, and many other special needs that children face. Listed alphabetically. Can search by camp type and state.
Challenge Air
7363 Cedar Springs Road
Dallas, TX 75235
(214) 351-3353
1-877-FLY-KIDS
http://www.challengeair.com
Challenge Air has enriched the lives of children and youth with special needs through its unique aviation programs since 1993. Programs can be set up in various communities that qualify. Contact for details!
Dreams Fulfilled Through Music
P.O. Box 40548
San Antonio, TX 78229
210-771-5809
210-247-9681 (Fax)
http://dreamsfulfilledthroughmusic.org/index.ph...
E-mail: info@dftm.org *National Music Teacher Directory for teachers specializing/also teaching children with special needs. Click on Resources then Teacher Directory.
Freedom's Wings International, Inc.
324 Charles Street, Apt #25
Coopersburg, PA 18036
(800) 382-1197
http://www.freedomswings.org
Freedom's Wings International (FWI) is a non-profit organization run by and for people with physical disabilities. We provide the opportunity for those who are physically challenged to fly in specially adapted sailplanes, either as a passenger or as a member of the flight training program.
International Wheelchair Aviators
P.O. Box 279
Kemah, TX 77565
281-703-7450
http://wheelchairaviators.org
E-mail: IWAviators@aol.com A worldwide group of disabled and able bodied pilots interested in aviation and flying. Members have many different disabilities including paraplegia,quadriplegia, amputee, multiple sclerosis, spina bifida, polio and other problems.
Let Kids Play!
1463 Greystone Dr.
Pittsburgh, PA 15206
(412) 334-2652
http://www.letkidsplay.com
E-mail: mara@letkidsplay.com *Let Kids Play is a consulting firm that works with manufacturers, communities, non-profits, park districts, retail stores, and parents on projects and strategies that ensure that all children have the best play opportunities possible
Life Rolls On
400 Corporate Pointe, Suite 525
Culver City, CA 90230
866-We Will Walk
(Ph) (310) 807-5488 (Fax)
http://www.liferollson.org
Email: Contact@LifeRollsOn.org *Life Rolls On is a non-profit organization that inspires others to see the boundless possibilities beyond paralysis. Established in 2002, LRO’s signature adaptive surfing program, They Will Surf Again, has grown into a catalyst of hope for thousands of individuals throughout the world.
Morgans™ Wonderland (Fully Accessible Theme Park)
5223 David Edwards Drive
San Antonio, TX 78233
(210) 495-5888
(877) 495-5888 (toll free)
http://www.morganswonderland.com
E-mail: info@morganswonderland.com *Provides a safe, clean and beautiful environment free of economic barriers that all individuals, regardless of age, special need or disability, can come to and enjoy.
MySummerCamps.Com
909 Sepulveda Blvd.
El Segundo, CA 90245
310-280-4105
877-777-7738
310-280-4921 (Fax)
http://www.mysummercamps.com/camps/Special_Need...
*Large resource listing of a wide variety of Special Needs summer camps in the US and Canada.
National 4-H Council
7100 Connecticut Ave.
Chevy Chase, MD 28015
301-961-2800
https://4-h.org/about/leadership/national-4-h-c...
*Click on "Contact Us" to find your local chapter.
National Amputee Golf Association
11 Walnut Hill Rd
Amherst, NH 03031
http://nagagolf.org
E-mail:info@nagagolf.org See "Related Links" for regional and international organization contact information.
National Center on Accessibility
501 North Morton Street, #109
Bloomington, IL 47404-3732
(812) 856-4422
TTY(812) 856-4421
(812) 856-4480 (Fax)
http://www.ncaonline.org
*NCA was established through a cooperative agreement between Indiana University and the National Park Service. Over the last two decades, NCA has emerged as a leading authority on access issues unique to park and recreation programs and facilities.
National Center on Physical Activity and Disability
1640 W. Roosevelt Road
Chicago, IL 60608-6904
1-800-900-8086
1-312-355-4058 (Fax)
http://www.ncpad.org/
Email: ncpad@uic.edu. *Maintains a State-by-state listing of Summer Camps and recreational facilities.
National Inclusion Project - Let's ALL Play Resources
800 Park Office Dr Suite 3314
RTP, NC 27709
919-314-5540
919-314-5541 (Fax)
https://www.inclusionproject.org/lets-all-play/...
Email: contactus@inclusionproject.org *Let’s ALL Play provides training, resources, and partnerships for recreational programs that are currently serving children with special needs and wish to do it better or programs seeking to open doors currently shut to children with special needs in their community. We strive to meet programs where they are.
National Park Service/Accessible Opportunities in National Parks
http://www.nps.gov/pub_aff/access/opportunities...
*Contact information is available by Park. Check out the left-hand menu for more National Park accessibility information.
National Parks InteragencyAmerica the Beautiful Passes
http://www.nps.gov/fees_passes.htm
*Updated information regarding free access passes to National Parks for U.S. citizens or permanent residents with permanent disabilities.
National Sports Center for the Disabled
P.O. Box 1290
Winterpark , CO 80482
(970) 726-1540
(303) 316-1540
(970) 726-4112 (Fax)
http://www.nscd.org
*National Sports Center for the Disabled's mission is to positively impact the lives of people with any physical or mental challenge through quality adaptive recreation programs in over 20 sports.
National Wheelchair Basketball Association
1130 Elkton St., Suite C
Colorado Springs, CO 80907
(719) 266-4082
(719) 266-4876 (Fax)
http://www.nwba.org
E-mail: info@nwba.org
Special Olympics Program Locator
1133 19th Street, N.W.
Washington, DC 20036
1-202-628-3630
https://www.specialolympics.org/programs?locale=en
*Check here to find a program in your area.
SportsAbilities
9249 South Broadway #200-156
Highlands Ranch, CO 80129
http://sportsabilities.com
*We are the premier resource for people with disabilities to find recreational, advocacy, support, and sporting activities in the nation. We have calendars for every state and 27 different activities ranging from Team Sports to Social Gatherings.
The Center for Courageous Kids
1501 Burnley Road
Scottsville, KY 42164
270-618-2900
http://www.thecenterforcourageouskids.org
E-mail info@courageouskids.org *The Center for Courageous Kids, also known as CCK, is a world class medical camp located in Scottsville, KY, serving children and families from across the country who are living with a variety of medical challenges. We are open year round and can host 120 kids at a time.
The Miracle League Association
1506 Klondike Road, Suite 105
Conyers, GA 30094
770 760-1933
770 483-1223 (Fax)
http://www.miracleleague.com
E-mail: Johnny@miracleleague.com *The Miracle League focuses on removing barriers which keep mentally and physically disabled children off the baseball field and lets them experience the joy of America's favorite pastime.Click on "Find a League" to find a league in your community.
The National Alliance for Accessible Golf
1733 King Street
Alexandria, VA 22314
(703) 299-4296
(703) 739-0124 (Fax)
http://www.accessgolf.org
E-mail: info@accessgolf.org
The United States Association of Blind Athletes
33 N. Institute St.
Colorado Springs, CO 80903
(719) 630-0422
(719) 630-0616 (Fax)
http://www.usaba.org/
*See home page for Camp Information and Regional Offices in your area and state.
United States Quad Rugby Association
4000 Ridgeway Drive
Birmingham, AL 35209
(205) 313-7431
http://usqra.org
E-mail:president@quadrugby.com *The United States Quad Rugby Association provides opportunities, support, and structure for competitive wheelchair rugby to people with disabilities.
US Deaf Sports Federation
PO Box 22011
Santa Fe, NM 87502-2011
TTY:(605) 367-5761
(605) 367-5760
(605) 977-6625 (Fax)
https://usdeafsports.org
Email: support@usdeafsports.org
US Electric Wheelchair Hockey Association
7216 39th Avenue North
Minneapolis, MN 55427
763-535-4736
208-279-1368 (Fax)
http://www.powerhockey.com
PowerHockey™ is based on basic hockey rules with a few adaptations to allow everyone in a power wheelchair the ability to participate.
US Youth Soccer TOPSoccer (The Outreach Program for Soccer
9220 World Cup Way
Frisco, TX 75034
800-4SOCCER
(972) 334-9960 (Fax)
http://www.usyouthsoccer.org/programs/topsoccer/
E-mail: mmoran@usyouthsoccer.org *A community-based training and team placement program for young athletes with disabilities, organized by youth soccer association volunteers. The program is designed to bring the opportunity of learning and playing soccer to any boy or girl, ages 4-19, who has a mental or physical disability. *Contact for a program in your area.
USA Disabled Hockey
1775 Bob Johnson Dr
Colorado Springs , CO 80906-4090
(719) 576-USAH (8724)
(719) 538-1160 (Fax)
http://www.usahockey.com/page/show/887219-disab...
E-mail: usah@usahockey.org *Contains a listing of teams and disciplines all over the US. See Team Listings for a team near you.
VerySpecialCamps.Com
http://www.veryspecialcamps.com
An online camp directory for individuals with one or more of a wide range of special needs. Listings are by state.
VSA arts
2700 F Street, NW
Washington, DC 20566
(800) 933-8721
(202) 628-2800
(202) 737-0725 (Fax)
http://education.kennedy-center.org/education/vsa/
*With 52 international affiliates and a network of nationwide affiliates, VSA is providing arts and education programming for youth and adults with disabilities around the world. Check for VSA programs in your state.
Service Dogs/Canine Programs
Assistance Dog Institute/Bergin University of Canine Studies
1215 Sebastopol Road
Santa Rosa, CA 95407
(707) 545-3647
http://www.berginu.edu
Email: info@berginu.edu
Canine Companions for Independence
P.O. Box 205
Farmingdale, NY 11735
(800) 572-2275 (TDD)
http://www.cci.org
Chapter Listings by Region
Canine Companions for Independence (CCI)/National Center
P.O. Box
Oceanside, CA 92052
(800) 572-2275
(760) 901-4300
(760) 901-4551 (Fax)
http://www.caninecompanions.org
*Contact for regional training centers and Veteran's Programs.
Canine Companions for Independence/Southwest Region
124 Rancho del Oro Drive
Oceanside, CA 92057
(800) 572-2275
(760) 901-4300
(760) 901-4350 (Fax)
http://www.cci.org/southwest/index.html
Delta Society National Service Dog Center
875 124th Ave. NE Suite 101
Bellevue, WA 98005
(425) 226-7351
http://www.deltasociety.org
(Search for trainers and local training programs by state)
Dogs 4 Diabetics
1647 Willow Pass Road, #157
Concord, CA 94520-2611
(925) 246-5785
http://www.dogs4diabetics.com
E-mail: info@dogs4diabetics.com
Eye Dog Foundation for the Blind
8252 S. 15th Ave
Phoenix, AZ 85041
(602) 276-0051
1-800-393-3641
http://www.eyedogfoundation.org
Positive Partners Assistance Dogs, Inc.
P.O. Box 2088
Hailey, ID 83333
(208) 721-1309
* Trains wheelchair assistance, hearing assistance, guide dogs and mobility assistance dogs. Will train dogs for anyone in the United States.
The Sam Simon Foundation (Hearing Dogs)
30765 Pacific Coast Hwy #113
Malibu, CA 90265
V/TTY: (310) 457-5898
http://www.samsimonfoundation.com
Email: info@samsimonfoundation.org
 
Transition/Post Secondary Schooling
Got Transition
1615 M Street NW, Suite 290
Washington, DC 20036
202-223-1500
202-429-3957 (Fax)
http://www.gottransition.org
E-mail: info@GotTransition.org *Our aim is to improve transition from pediatric to adult health care through the use of new and innovative strategies for health professionals and youth and families. Serves as a clearinghouse for current transition information, tools, and resources.
Applied Self Direction
1089 Commonwealth Avenue, #371
Boston, MA 02215
http://www.appliedselfdirection.com
E-mail: info@appliedselfdirection.com *Applied Self Direction provides practical expertise intended to create and operate self direction programs that run effectively and efficiently for individuals, states, managed care entities, Financial Management Services providers, and other stakeholders. The mission of Applied Self Direction is to promote self direction so individuals have the choice and control to live the lives they want.
Association on Higher Education And Disability (AHEAD)
107 Commerce Center Drive, Suite 204
Huntersville, NC 28078
(704) 947-7779
(704) 948-7779 (Fax)
https://www.ahead.org/home
*AHEAD is actively involved in all facets of promoting full and equal participation by individuals with disabilities in higher education; and supporting the systems, institutions, professions, and professionals who attend to the fulfillment of this important mission.
National Collaborative on Workforce and Disability for Youth (NCWD)
4455 Connecticut Avenue NW, Suite 310
Washington, DC 20008
877-871-0744
TTY: 877-871-0665
https://youth.gov/federal-agencies/national-col...
*Federal informational program site. Excellent resource. Click on "Content By State" for programs in your area.
National Gateway to Self-Determination
http://www.ngsd.org
*This site provides a single access for self-advocates, professionals, policy-makers and the general public on the current best practices and evidence-based activities in enhancing self-determination in the lives of people with developmental and intellectual disabilities, as well as any individual.
 
Transportation Information
Mercy Medical Angels
4620 Haygood Road suite 1
Virginia Beach, VA 23455
757-318-9174
757-464-1284 (Fax)
http://mercymedical.org
E-mail: info@MercyMedical.org *Our mission is to ensure that no financially stressed patient is denied access to distant specialized medical evaluation, diagnosis or treatment for lack of a means of long-distance medically related transportation; further to ensure the provision of urgent transportation in situations of compelling human need and homeland security (disaster response) emergencies.
Miracle Flights for Kids
2764 N. Green Valley Pkwy, #115
Green Valley, NV 89014-2120
(800) FLY-1711
(702) 261-0494
(702) 261-0497 (Fax)
http://www.miracleflights.org
National Mobility Equipment Dealers Association
3327 W. Bearss Ave.
Tampa, FL 33618
(800) 833-0427
(813) 264-2697
(813) 962-8970 (Fax)
http://www.nmeda.com
Email: nmeda@aol.com *Provides a state-by-state listing of NMEDA QAP certified dealerships. Start here when looking for mobility equipment (lifts, vehicles, steering systems, etc.) information.
National Mobility Equipment Dealers Association (NMEDA) Special Kids Fund (SKF)
732-397-5056
http://www.nmeda.com/special-kids-fund/
E-mail: dg@specialkidsfund.org *This program is designed to collect donated accessible vans and transfer them to families of individuals with disabilities. SKF also works to provide funding for families to purchase a handicap van conversion and have dealerships refurbish older and higher mileage vans for the needy.
School Transportation News
P.O. Box 789
Redondo Beach, CA 90277
(310) 792-2226
310-792-2231 (Fax)
https://www.stnonline.com
*See Special Needs Transportation news, equipment, resources, etc.
US Department of Transportation
1200 New Jersey Ave, SE
Washington, DC 20590
1 (202) 366-4000
TTY:(800) 877-8339
https://www.transportation.gov/accessibility
*Accessibility - Equal Access to Transportation.