| Military Quick Links (National Guard, Reserve, Active Duty) |
Exceptional Family Member Program/All Branches/Mobile
http://apps.mhf.dod.mil/pls/psgprod/f?p=EFMPMOB... Contains contact information, Base program locators and enrollment/justification forms for ALL Branches of service. |
The Medicaid Reference Desk (The ARC)
1825 K Street NW, Suite 1200
Washington, DC 20006
800-433-5255
http://www.thedesk.info E-mail: contact@thedesk.info The site offers state by state information on Medicaid programs and waivers, and includes a list of what types of services fall under each program/waivers jurisdiction. The website offers information on common questions and concerns regarding Medicaid. It includes a Medicaid terms and definitions section, defining words commonly used on Medicaid forms and correspondence as well as other useful information. |
The National Resource Directory
http://www.nationalresourcedirectory.gov The National Resource Directory (NRD) provides access to services and resources at the national, state and local levels that support recovery, rehabilitation and community reintegration. |
|
| Advocacy |
ADAPT
201 S. Cherokee
Denver, CO 80223
303-733-9324
http://www.adapt.org E-mail: adapt@adapt.org
*See Contact List for a chapter in your state.
|
Alliance for Full Participation
202 Lexington Dr.
Silver Springs, MD 20901
301-706-6252
http://www.allianceforfullparticipation.org/public * Goal to ensure inclusion, integration, productivity, independence and quality of life as a reality in policy and practice. |
Broadreach Training & Resources
http://www.normemma.com/index.htm E-mail: webmail01@broadreachtraining.com
*See the large Resource Library for advocacy resources and general reading information. |
Connect For Kids/Child Advocay 360/ Youth Policy Action Center
http://www.connectforkids.org |
Council of Parent Attorneys and Advocates
P.O. Box 6767
Towson, MD 21285
(443) 451-5270
(443) 451-2680 (Fax) http://www.copaa.net |
Family Voices, Inc.
2340 Alamo SE, Suite 102
Albuquerque, NM 87106
(888) 835-5669
(505) 872-4774
(505) 872-4780 (Fax) http://www.familyvoices.org Information on how to contact state senators and find Family Voices chapters in your state. |
Louisiana Citizens for Action Now
http://www.lacanadvocates.org Provides a wealth of self advocacy information. Linda recommends individuals check out the "Legislative Activities" section for an outline of a sample letter to Legislators and a "How-To" testify before a legislative body. |
National Disability Rights Network
900 Second Street, NE, Suite 211
Washington, DC 20002
202-408-9514
TTY: 202-408-9521
202-408-9520 (Fax) http://www.napas.org/ E-mail: info@ndrn.org
*Click on "Get Help in Your State" to find a chapter near you. |
Patient Advocate Foundation
421 Butler Farm Road
Hampton, VA 23666
(800) 532-5274
(757) 873-8999 (Fax) http://patientadvocate.org E-Mail: help@patientadvocate.org
*Provides patients with arbitration, mediation and negotiation to settle issues with access to care, medical debt, and job retention related to their illness. |
World Institute on Disability
510 16th Street, Suite 100
Oakland, CA 94612
(510) 763-4100
http://www.wid.org |
| Agencies/Assistance Programs - Government |
American National Red Cross
2025 E. Street NW
Washington, DC 20006
(202) 303-4498
http://www.redcross.org |
Centers for Medicare & Medicaid Services
7500 Security Boulevard
Baltimore, MD 21244
(877) 267-2323
http://www.cms.hhs.gov/home/medicaid.asp *Nationwide Medicaid program information. |
GovBenefits.Gov
http://www.Benefits.gov Provides information regarding government assistance programs nationwide. Includes a state-by-state program search. |
Social Security Administration Information for Parents
National Info. 1-800-772-1213
http://www.ssa.gov/pgm/links_ssi.htm *Benefits information and local office addresses with contact information available. |
The Medicaid Reference Desk (The ARC)
1825 K Street NW, Suite 1200
Washington, DC 20006
800-433-5255
http://www.thedesk.info E-mail: contact@thedesk.info
The site offers state by state information on Medicaid programs and waivers, and includes a list of what types of services fall under each program/waivers jurisdiction.
The website offers information on common questions and concerns regarding Medicaid. It includes a Medicaid terms and definitions section, defining words commonly used on Medicaid forms and correspondence as well as other useful information.
|
US Department of Indian Health Services
801 Thompson Avenue, Ste. 400
Rockville, MD 20852-1627
(See Contact Listing)
http://www.ihs.gov * Complete program and regional office listings for IHS Services |
| Agencies/Assistance Programs - Private |
Cover the Uninsured ~ A Project of the Robert Wood Johnson Foundation
(202) 572-2928
http://covertheuninsured.org E-mail: info@covertheuninsured.org
*State by state listings of various insurance programs for individuals and families who have difficulty obtaining medical insurance. |
Internet Drug Coupons.com
http://www.internetdrugcoupons.com * Free resource for hundreds of coupons for prescription drugs, non-prescription drugs. |
Merck Patient Assistance and Prescription Discount Programs
1-800-727-5400
http://www.merckhelps.com Merck offers a family of programs providing free and discounted medicines to patients who cannot afford their prescribed medicines. |
National School Foundation Association
2130 Grand Ave.
Des Moines, IA 50312
(515) 971-2324
(515) 965-5481 (Fax) http://www.schoolfoundations.org * Provides a Listing of Foundations by State (click on menu in left-hand menu). Excellent resource for those needing foundation information in each state. |
NeedyMeds.com
http://www.needymeds.com *Provides information and resources for finding medication assistance programs. Has a section specifically for children. |
Partnership for Prescription Assistance
1-888-477-2669
http://www.pparx.org *Offers single point access for prescription assistance programs for the uninsured/under-insured. |
Pfizer Helpful Answers
1-866-706-2400
http://www.pfizerhelpfulanswers.com *Pfizer Helpful Answers offers patient assistance programs to people without prescription coverage. |
Registry of Interpreters for the Deaf
333 Commerce Street
Alexandria, VA 22314
703) 838-0030
TTY: (703) 838-0459
(703) 838-0454 (Fax) http://www.rid.org/ |
Rx Assist Volunteers in Health Care
111 Brewster Street
Pawtucket, RI 02860
401-729-3284
401-729-2955 (Fax) http://www.rxassist.org E-mail: info@rxassist.org
Offers a comprehensive database of medical prescription patient assistance programs. |
The Arc of the United States
1010 Wayne Avenue, Suite 650
Silver Springs, MD 20910
(800) 433-5255
(301) 565-3842
(301) 565-3843 (Fax) http://www.thearc.org/ *National office email: info@thearc.org
|
Together Rx Assistance
PO Box 9426
Wilmington, DE 19809-9944
1-800-444-4106
http://www.togetherrxaccess.com/Tx/jsp/home.jsp *Assistance program for those without prescription drug coverage and ineligible for Medicare. |
|
| Assistive Technologies |
AbleData
8630 Fenton Street, Suite 930
Silver Spring, MD 20910
1-800-227-0216
301-608-8998
301-608-8958 (Fax) http://www.abledata.com E-mail: abledata@macrointernational.com
*AbleData provides objective information about assistive technology products and rehabilitation equipment nationwide. Does have a state by state directory. |
Assistive Technology Resource Center/Worcester Polytechnic Institute
100 Institute Road
Worcester, MA 01609
1-508-831-6056
1-508-831-5680 (Fax) http://www.me.wpi.edu/research/ATRC/About/ E-mail: atrc@wpi.edu
*The mission of the ATRC is to foster the use of assistive technology through collaboration with professionals associated with local and regional clinical, educational, governmental and social service organizations that serve persons with disabilities. The ATRC disseminates technical information regarding the availability and use of assistive devices and can,in some instances, build devices as needed. |
Center for Applied Special Technology, CAST
40 Harvard Mills Square, Suite 3
Wakefield, MA 01880-3233
(781) 245-2212
TTY (781) 245-9320
(781) 245-5212 (Fax) http://www.cast.org E-mail: cast@cast.org
* CAST is a nonprofit research and development organization that works to expand learning opportunities for all individuals, especially those with disabilities, through Universal Design for Learning.
|
Inclusive TLC (Technology Learning Communication)
2206 Legacy Oak Drive
Waxhaw, NC 28173
(704) 243-3622
1-800-462-0930
(704) 243-3623 (Fax) http://www.inclusivetlc.com/ E-mail: info@inclusiveTLC.com |
National Assistive Technology Assistance Partnership (NATTAP)
1700 North Moore St., Suite 1540
Arlington, VA 22209-1903
(703) 524-6686
TTY (703) 524-6639
(703) 524-6630 (Fax) http://www.resna.org *Listings by state. |
Recording for the Blind and Dyslexic
20 Roszel Road
Princeton, NJ 08540
(866-732-3585)
http://www.rfbd.org/ * The nation's educational library for those with print disabilities.
* See home page for the library branch in your area. |
RESNA~Rehabilitation Engineering and Assistive Technology Society of North America
1700 N. Moore Street, Suite 1540
Arlington, VA 22209
(703)-524-6686
http://www.resna.org RESNA maintains a large data base of assistive technology resources, funding sources and other programs. |
Section 508.gov (IT Accessibility & Workforce Division (ITAW))
Office of Governmentwide Policy 1800 F Street NW, Room G211
Washington, DC 20405
(Help) 202-208-7420
202-501-2010 (TTY)
202-501-6269 (Fax) http://www.section508.gov/index.cfm GSA’s IT Accessibility and Workforce (ITAW) provides assistive technology solutions to eliminate barriers for people with disabilities.ITAW is the governments principal advocate and coordinator for Section 508 implementation that requires agencies to make information technology accessible for people with disabilities.
|
| Charities and Foundations |
Christopher & Dana Reeve Foundation
636 Morris Turnpike, Suite 3A
Short Hills, NJ 07078
1-800-225-0292
http://www.christopherreeve.org *Spinal Cord injuries and paralysis. Specific military treatment program available. |
Easter Seals National Headquarters
230 W. Monroe St., Suite 1800
Chicago, IL 60606
(800) 221-6827
TTY 312-726-4258
(312) 726-1494 (Fax) http://www.easterseals.com Check your local chapter for camps, grants, respite services and other services available in your area. |
Jordan Thomas Foundation
P.O. Box 22764
Chattanooga, TN 37422
(423) 622-9006
http://www.jordanthomasfoundation.org *Assists children with the need for prosthetics. |
Make-A-Wish Foundation of America
3550 North Central Avenue, Suite 300
Phoenix, AZ 85012-2127
(800) 722-9474
(602) 279-9474
(602) 279-0855 (Fax) http://www.wish.org/ *See contact Us page for local chapters in your state. |
March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
(914) 997-4488 (National Office)
http://www.marchofdimes.com/ *See site for the office in your state. |
Muscular Dystrophy Association (MDA)
3300 E. Sunrise Drive
Tucson, AZ 85718
1-800-344-4863
http://www.mdausa.org/ Email: mda@mdausa.org
*See home page for office in your community. |
Ronald McDonald House Charities
One Kroc Drive
Oak Brook, IL 60523
630-623-7048
http://www.rmhc.org/ E-mail: info@rmhc.org
*Click on RMHC Programs to find the facility nearest you. |
Stuttering Foundation of America
3100 Walnut Grove Road, Suite 603
Memphis, TN 38111-0749
Hot-line:(800) 992-9392
(901) 452-7343
(901) 452-3931 (Fax) http://www.stuttersfa.org/ Email: info@stutteringhelp.org. |
The Lindsay Foundation
P.O. Box 1073
Huffman, TX 77336
281-399-2937
http://www.lindsayfoundation.org E-mail: helpforachild@lindsayfoundation.org
We assist families who have children with long-term catastropic special-needs to obtain medical necessities for their children. We assist with physical, speech, aquatic and equestrian therapies. As well, we provide medical equipment and supplies when the insurance company Denies or when there is no medical insurance. |
United Cerebral Palsy (UCP)
1660 L Street, NW, Suite 700
Washington, DC 20036
(800) 872-5827
TTY (202) 973-7197
(202) 776-0414 (Fax) http://www.ucp.org *Excellent state-by-state resource guide. |
United Way
701 N. Fairfax St.
Alexandria, VA 22314
http://national.unitedway.org Non-profit charitable organization offering a variety of services including camps, respite, grants, etc. Find your local chapter here. |
|
| Child Care Resource Listings |
Care . Com, Inc.
1400 Main St.
Waltham, MA 02451
http://www.care.com/special-needs-p1162.html *Has a large Special Needs section with references as well as information regarding respite providers in local areas. Listed by state and zip code. |
Child Care Aware
3101 Wilson Blvd. Suite 350
Arlington, VA 22201
1-800-424-2246
TTY:1-866-278-9428
(703) 341-4101 (Fax) http://www.childcareaware.org Child Care Aware is a cooperative program of the National Association of Child Care Resource and Referral Agencies. Funded through the Office of Family Assistance, Administration for Children and Families, U.S. Department of Health and Human Services.
**SNRP does NOT endorse this site. Listed for reference only. Use responsible caution when investigating ALL care providers. |
National Association of Child Care Resource and Referral Agencies
http://www.naccrra.net *Find Child Care CCR&R centers by State.
|
National Respite Locator Service
800 Easttowne Drive, Suite 105
Chapel Hill, NC 27514
(800) 473-1727 ext. 222
http://www.respitelocator.org/index.htm List of Respite provider links nationwide. Focuses on respite care for families of special needs children. |
ZiggyBug
92 Corporate Park, Suite C-262
Irvine, CA 92606
http://www.ziggybug.com *"World's largest child care directory". SNRP does NOT endorse this site. Listed for reference only. Use responsible caution when investigating ALL care providers. |
|
| Disability Specific Organizations |
(Autism) Temple Grandin PhD.
http://www.templegrandin.com/templehome.html *Great informational resource. |
ADHD News (Attention Deficit Hyperactivity Disorder)
http://www.adhdnews.com/ *Features message boards, a monthly newsletter, information on medication and treatments, links to relevant Blogs, etc. |
Administration on Developmental Disabilities
370 L'Enfant Promenade, S.W
Washington, DC 20447
http://www.acf.hhs.gov/programs/add/ ADD programs are at work in every state and U.S. territory. ADD does not provide direct consumer support or financial assistance. ADD provides funding, monitoring, and policy guidance to it's programs Nationwide. Check the State Program Listing for program information in your state. |
Alexander Graham Bell Association for the Deaf and Hard of Hearing
3417 Volta Place, NW
Washington, DC 20007
(202) 337-5220
TTY: (202) 337-5221
(202) 337-8314 (Fax) http://www.agbell.org Email: info@agbell.org |
American Association on Intellectual and Developmental Disabilities (AAIDD)
444 N. Capitol Street, NW, Suite 846
Washington, DC 20001-1512
(800) 424-3688
(202) 387-1968
(202) 387-2193 (Fax) http://www.aaidd.org/ |
American Brain Tumor Association
2720 River Road
Des Plaines, IL 60018
(800) 886-2282
(847) 827-9910
(847) 827-9918 (Fax) http://hope.abta.org Email: info@abta.org
|
American Council of the Blind
1155 15th Street NW, Suite 1004
Washington, DC 20005
(800) 424-8666
(202) 467-5081
(202) 467-5085 (Fax) http://www.acb.org |
American Diabetes Association
1701 North Beauregard Street
Alexandria, VA 22311
(1-800-342-2383).
http://www.diabetes.org/home.jsp Email: AskADA@diabetes.org.
*See registry for local chapter near you. |
American Foundation for the Blind
11 Penn Plaza, Suite 300
New York, NY 10001
(800-232-5463)
(212) 502-7600
(212) 502-7777 (Fax) http://www.afb.org/ E-mail: afbinfo@afb.net
|
American Heart Association (National Center)
7272 Greenville Avenue
Dallas, TX 75231
1-800-242-8721
http://www.americanheart.org *Click on "Local Info" or input your Zip code for your local office. |
American Lung Association
61 Broadway, 6th Floor
New York, NY 10006
1-800-586-4872
(212) 315-8700
http://www.lungusa.org |
American Printing House for the Blind
1839 Frankfort Avenue,
Louisville, KY 40206
http://www.aph.org/ |
American Society for Deaf Children
3820 Hartzdale Drive
Camp Hill, PA 17011
V/TTY: 1-800-942-2732
http://www.deafchildren.org/ |
Amputee Coalition
900 East Hill Avenue, Suite 205
Knoxville, TN 37915-2566
888-267-5669
TTY:865-525-4512
http://www.amputee-coalition.org
|
Angelman Syndrome Foundation
4255 Westbrook Drive, Ste. 216
Aurora, IL 60504
1-800-432-6435
(630) 978-4245
(630) 978-7408 (Fax) http://www.angelman.org/angel/ Email: info@angelman.org |
ASPEN (Autism/Asperger Spectrum Disorders)
9 Aspen Circle
Edison, NJ 08820
(732) 321-0880
http://aspennj.org/ email: info@AspenNJ.org |
Association for Children With Down Syndrome
4 Fern Place
Plainview, NY 11803
(516) 933-4700
(516) 933-9524 (Fax) http://www.acds.org/index.htm *Dedicated to providing lifetime resources of exceptional quality, innovation and inclusion for individuals with Down syndrome and other developmental disabilities and their families. |
Asthma and Allergy Foundation of America
1233 20th Street, NW, Suite 402
Washington, DC 20036
1-800-727-8462
http://www.aafa.org/ Email:Info@aafa.org |
Attention Deficit Disorder Association (ADDA)
15000 Commerce Parkway, Suite C
Mount Laurel, NJ 08054
(856) 439-9099
(856) 439-0525 (Fax) http://www.add.org/ Email: adda@ahint.com |
Attention Deficit Disorder Resources
223 Tacoma Ave S #100
Tacoma, WA 98402
(253) 759-5085
(253) 572-3700 (Fax) http://www.addresources.org/ |
Attention Deficit Disorders Association - Southern Region
12345 Jones Rd. Suite 287-7
Houston, TX 77070
(281) 897-0982
(281) 894-6883 (Fax) http://www.adda-sr.org/ |
Autism and PDD Support Network
14271 Jeffrey #3
Irvine, CA 92620
http://www.autism-pdd.net On-line information and support for families with children with Autism and Spectrum Disorders. Has a state-by-state Autism resource list. |
Autism Research Institute
1-866-366-3361
http://www.autism.com/ *A research organization which provides information based on research to parents and professionals, worldwide. |
Autism Resources
http://www.autism-resources.com/ * An informational site offering links and articles regarding Autism and Asperger's Syndrome. |
Autism Society of America
7910 Woodmont Ave., Suite 300
Bethesda , MD 20814-3067
(800) 328-8476
(301) 647-0881
http://www.autism-society.org Education, diagnosis education, family, resource lists, etc. |
Autism Speaks
2 Park Avenue, 11th Floor
New York, NY 10016
(212) 252-8584
(212) 252-8676 (Fax) http://www.autismspeaks.org/ E-mail: contactus@autismspeaks.org |
Autism Speaks
5455 Wilshire Boulevard, Suite 2250
Los Angeles, CA 90036
(323) 549-0500
(323) 549-0547 (Fax) http://www.autismspeaks.org E-Mail: contactus@autismspeaks.org
*For an Autism Speaks office in your area visit our Community Pages. |
Brain Injury Association of America
8201 Greensboro Drive
McLean, VA 22102
1-800-444-6443 Information Only
(703) 761-0750
http://www.biausa.org/ *Contains listings by state from the home page. |
Center for Autism and Related Disabilities, University of Florida, Gainesville
2124 NE Waldo Road, Suite 3200
Gainesville, FL 32609
1 (800) 928-8476
(352) 273-0581
(352) 846-3703 (Fax) http://card.ufl.edu Email: card-info@ufl.edu
*The Center for Autism and Related Disabilities (CARD) provides support and assistance with the goal of optimizing the potential of people with autism and related disabilities. |
Cerebral Palsy Family Network
http://www.cpfamilynetwork.org |
Child & Adolescent Bipolar Foundation
820 Davis St., Ste. 520
Evanston, IL 60201
847-492-8519
847-492-8520 (Fax) http://www.bpkids.org |
Childhood Apraxia of Speech Association (CASANA)
1151 Freeport Road #243
Pittsburgh, PA 15238
http://www.apraxia-kids.org/ |
Children & Adults With Attention Deficit Disorder (CHADD)
8181 Professional Place - Suite 150
Landover, MD 20785
(301) 306-7070
(301) 306-7090 (Fax) http://www.chadd.org |
Children With Diabetes
5689 Chancery Place
Hamilton, OH 45011
http://www.childrenwithdiabetes.com *Diabetes education and information |
Children's Craniofacial Association
13140 Coit Road, Suite 307
Dallas, TX 75240
(800) 535-3643
(214) 570-9099
(214) 570-8811 (Fax) http://www.ccakids.com/ Email: contactCCA@ccakids.com |
Chronic Fatigue & Immune Dysfunction Syndrome Association
PO Box 220398
Charlotte, NC 28222-0398
(704) 365-2343
http://www.cfids.org/ |
Cleft Advocate (A program of AboutFace, USA)
http://www.cleftadvocate.org/index.html |
Cornelia de Lange Syndrome Foundation, Inc
302 West Main St. #100
Avon, CT 06001
800-223-8355
860-676-8166
860-676-8337 (Fax) http://www.cdlsusa.org E-mail: info@cdlsusa.org |
Deafblind International
http://www.deafblindinternational.org/default.htm |
Developmental Delay Resources
5801 Beacon St.
Pittsburgh, PA 15217
1-800-497-0944
(412) 422-1374 (Fax) http://www.devdelay.org/ Email:devdelay@mindspring.com |
Diabetes Monitor
51 Woods Road
Hillsborough, NJ 08844
http://www.diabetesmonitor.com E-mail: info@diabetesmonitor.com
*Large data base of resources, sites and information. |
Epilepsy Foundation of America
8301 Professional Place
Landover, MD 20785
(800) 332-1000
http://www.epilepsyfoundation.org/ |
Epilepsy Therapy Development Project
11921 Freedom Drive, Suite 730
Reston, VA 20190
http://www.epilepsytdp.org/ |
Epilepsy.com/ Epilepsy Therapy Development Project
http://www.epilepsy.com/ |
Families For Early Autism Treatment (FEAT)
P.O. Box 255722
Sacramento, CA 95865-5722
(916) 843-1536
http://www.feat.org Email: webmaster@feat.org
*State-by-State listing available. |
FAS (Fetal Alcohol Syndrome) Community Resource Center
4710 East 29th. Street, Suite 7
Tucson, AZ 85711
(520) 296-9172
http://www.come-over.to/FASCRC/ |
Federation of Families for Children's Mental Health
9605 Medical Center Drive., Suite 280
Rockville, MD 20850
(240) 403-1901
(240) 403-1909 (Fax) http://www.ffcmh.org/ *Local chapters listed by state. |
Fetal Alcohol Spectrum Disorders Center for Excellence
2101 Gaither Road, Suite 600
Rockville, MD 20850
1-866-786-7327
http://www.fascenter.samhsa.gov |
Fetal Alcohol Syndrome (FAS)
http://come-over.to/FAS/ *Informational site sponsored by FAS community Resource Center, Tucson, Arizona. |
First Signs, Inc.
P.O. Box 358
Merrimac, MA 01860
(978) 346-4380
http://www.firstsigns.org E-mail: info@firstsigns.org
*Autism Training for families and professionals. |
Five P Minus Society (Cru-du-chat)
1-888-970-0777
http://www.fivepminus.org *To encourage and facilitate communication among families having a child with 5p- Syndrome and to spread awareness and education of the syndrome to these families and their service providers.Call for referral to the Family Support Coordinator covering your area. |
Foundation for Ichthyosis and Related Skin Types
1364 Welsh Road G2
North Wales, PA 19454
(215) 619-0670
(215) 619-0780 (Fax) http://www.scalyskin.org/ Email: info@scalyskin.org |
Hands & Voices (Deaf & Hard of Hearing)
P.O. Box 371926
Denver, CO 80237
(866) 422-0422
(303) 300-9763
http://www.handsandvoices.org/ Email: parentadvocate@handsandvoices.org
*State chapter links available on the Home Page. |
Hearing Loss Association of America
7910 Woodmont Ave., Suite 1200
Bethesda, MD 20814
(301) 657-2248
http://www.hearingloss.org *Check for local chapters in your state. |
Helen Keller Services for the Blind National Center
141 Middle Neck Road
Sands Point, NY 11050
(516) 944-8900
(516) 944-7302 (Fax) http://www.helenkeller.org/index.html email: HKNCinfo@hknc.org
*Satellite office listing. |
IDEA League ~ International Dravet Syndrome Epilepsy Action League
P.O. Box 803338 #18880
Chicago, IL 60680
http://www.idea-league.org E-mail: info@idea-league.org
Parent and professional organization promotes research and education for the early diagnosis, appropriate treatment, and cure of Dravet Syndrome, also known as SMEI (Severe Myoclonic Epilepsy of Infancy), and related genetic, febrile, sodium channel epilepsies. |
International Dyslexia Association
40 York Rd., 4th Floor
Baltimore, MD 21204-5202
(800) 222-3123
(410) 296-0232
http://www.interdys.org/ Email: info@interdys.org |
International Fibrodysplasia Ossificans Progressiva Association (IFOPA)
PO Box 196217
Winter Springs, FL 32719-6217
(407) 365-4194
http://www.ifopa.org/ E-mail: together@ifopa.org |
International Rett Syndrome Association
9121 Piscataway Road, #2B
Clinton, MD 20735
(800) 818-7388
(301) 856-3334
http://www.rettsyndrome.org/ Email: irsa@rettsyndrome.org |
IsoDicentric 15 (IDEAS) Advocacy, Exchange & Support
18 Kings Road
Canton, MA 02021
503.253.2872
http://www.idic15.org/index.php Email: info@idic15.org |
Learning Disabilities Association of America
4156 Library Road
Pittsburgh, PA 15234
(412) 341-1515
(412) 344-0224 (Fax) http://www.ldanatl.org * See menu for chapter listings by state. |
Little People of America - National Headquarters
5289 NE Elam Young Parkway, Suite F-100
Hillsboro, OR 97124
(888) 572-2001
(503) 846-1562
http://www.lpaonline.org/mc/page.do E-mail: info@lpaonline.org |
Mental Health America
2000 N. Beauregard Street, 6th Floor
Alexandria, VA 22311
(800) 969-6642
TTY: (800) 433-5959
(703) 684-5968 (Fax) http://www.nmha.org/ |
Mental Health Matters
P.O. Box 82149
Kenmore , WA 98028
(425) 402-6934
http://www.mental-health-matters.com/ Email:info@mental-health-matters.com |
Muscular Dystrophy Association-USA
3300 E. Sunrise Drive
Tucson, AZ 85718
1-800-572-1717
http://www.mda.org * Click on Find Your Local MDA Office to locate an office and clinic near you. |
National Alliance for the Mentally Ill (NAMI)
Colonial Place Three 2107 Wilson Blvd., Suite 300
Arlington, VA 22201-3042
(703) 524-7600
Member Services:(888) 999-6264
(703) 524-9094 (Fax) http://www.nami.org/ *See home page for State and local contacts. |
National Association for Child Development
549 25th Street
Ogden, UT 84401
(801) 621-8606
(801) 621-8389 (Fax) http://www.nacd.org/ Email: info@nacd.org |
National Association for Child Development/Eastern Regional Office
120 North Church Street #101
Westchester, PA 19382
http://www.nacd.org/ |
National Association for Parents of Children with Visual Impairments
P.O. Box 317
Watertown, MA 02471
1-800-562-6265
1-617-972-7441
1-617-972-7444 (Fax) http://www.spedex.com/napvi/ email: napvi@perkins.org |
National Association of People With AIDS
8401 Colesville Road, Suite 750
Sliver Spring, MD 20910
240-247-0880
240-247-0574 (Fax) http://www.napwa.org/ email: info@napwa.org |
National Association of the Deaf
8630 Fenton Street, Suite 820
Silver Spring, MD 20910-3819
(301) 587-1788
TTY: (301) 587-1789
301-587-1791 (Fax) http://www.nad.org |
National Ataxia Foundation
2600 Fernbrook Lane Suite 119
Minneapolis, MN 55447
(763) 553-0020
http://www.ataxia.org/index.aspx |
National Attention Deficit Disorder Association
15000 Commerce Parkway, Suite C
Mount Laurel, NJ 08054
(856) 439-9099
(856) 439-0525 (Fax) http://www.add.org/ Email: adda@ahint.com |
National Autism Services Center (The West Virginia Autism Training Center)
1 John Marshall Drive, Suite 316
Huntington, WV 25755
(800) 344-5115 (WV Only)
(304) 696-2332
http://www.autismservicescenter.org/ |
National Brain Tumor Foundation
22 Battery Street, Suite 612
San Fransisco, CA 94111-5520
1-800-934-2873
415.834.9970
http://www.braintumor.org/ Email:nbtf@braintumor.org |
National Center for Learning Disabilities (NCLD)
381 Park Avenue South Suite 1401
New York, NY 10016
(888) 575-7373
(212) 545-7510
(212) 545-9665 (Fax) http://www.ncld.org/ |
National Consortium On Deaf-Blindness
345 N. Monmouth Ave.
Monmouth, OR 97361
800-438-9376
800-854-7013(TTY)
503-838-8150 (Fax) http://www.nationaldb.org E-mail: info@nationaldb.org |
National Council on Disability - State Mental Health Agencies
1331 F. Street NW Suite 850
Washington, DC 20004
(202)272-2004
TTY: (202) 272-2074
(202) 272-2022 (Fax) http://www.ncd.gov/mental.htm *Contact information listed by state. |
National Craniofacial Association
P.O.Box. 11082
Chattanooga, TN 37401
1-800-332-2373
http://www.faces-cranio.org/ Email: faces@faces-cranio.org |
National Cued Speech Association (NCSA)
5619 McLean Drive
Bethesda, MD 20814-1021
V/TTY (800) 459-3529
V/TTY (301) 915-8009
http://www.cuedspeech.org/ *See "Affiliates" for a regional center near you. |
National Down Syndrome Congress
1370 Center Drive, Suite 102
Atlanta, GA 30338
(800) 232-6372
(770) 604-9500
(770) 604-9898 (Fax) http://www.ndsccenter.org/index.php E-Mail: info@ndsccenter.org |
National Down Syndrome Society
666 Broadway
New York, NY 10012
(800) 221-4602
(212) 979-2873 (Fax) http://www.ndss.org/ email: info@ndss.org |
National Family Association For Deaf-Blind
141 Middle Neck Road
Sands Point, NY 11050
800-255-0411
516-883-9060 (Fax) http://www.nfadb.org/home.html email: NFADB@aol.com
*National State-by-State listing |
National Federation for the Blind
1800 Johnson Street
Baltimore, MD 21230
(410) 659-9314
http://www.nfb.org |
National Fragile X Foundation
PO Box 190488
San Francisco, CA 94119
800-688-8765
925-938-9300
925-938-9315 (Fax) http://www.fragilex.org email:NATLFX@FragileX.org
|
National Fragile X Foundation
1615 Bonanza St. Suite 202
Walnut Creek, CA 95456
(800) 688-8765
(925) 938-9315 (Fax) http://www.fragilex.org Email: natlfx@fragilex.org |
National Institute on Developmental Delays
1900 West MacArthur
Shawnee, OK 75801
(405) 878-5301
(405) 878-5114 (Fax) http://nidd.org/ *Large number of programs, services and information sources available. |
National Library Services for the Blind and Physically Handicapped
The National Library Service for the Blind and Physically Handicapped Library of Congress
Washington , DC 20542
(800) 424-8567
(202) 707-5100
http://www.loc.gov/nls/ *To connect to a local library call 1-888-657-7323.
email: nls@loc.gov |
National Multiple Sclerosis Society
733 Third Avenue, Third Floor
New York, NY 10017
1-800-344-4867
http://www.nmss.org * Click on "Find Your Chapter" to find a chapter in your area. |
National Organization on Fetal Alcohol Syndrome (NOFAS)
900 17th Street, NW, Suite 910
Washington, DC 20006
1-800-66NOFAS
(202) 785-4585
http://www.nofas.org *Go to the Resource Directory for the office in your state. |
National Reye's Syndrome Foundation
1-800-233-7393
(419) 636-2679
(419) 636-989 (Fax) http://www.reyessyndrome.org/ E-mail: nrsf@reyessyndrome.org
|
National Scoliosis Foundation
5 Cabot Place
Stoughton, MA 02072
1-800-673-6922
http://www.scoliosis.org/index.php Email: NSF@scoliosis.org |
National Spinal Cord Injury Association
6701 Democracy Blvd., Suite 300-9
Bethesda, MD 20817
(800) 962-9629
Voice-mail:(301) 214-4006
(301) 990-0445 (Fax) http://www.spinalcord.org/ email: info@spinalcord.org |
National Stuttering Association
119 W. 40th Street, 14th Floor
New York, NY 10018
(800-937-8888)
(212) 944-4050
http://www.nsastutter.org/ Email: info@WeStutter.org |
Neurofibromatosis, Inc.
P.O.Box 18246
Minneapolis, MN 55418
1- 800-942-6825
(301) 918-4600
http://www.nfinc.org/ |
Obsessive Compulsive Foundation, Inc.
676 State Street
New Haven, CT 06511
(203) 401-2070
http://www.ocfoundation.org/ |
Osteogenesis Imperfecta Foundation
804 W. Diamond Ave, Suite 210
Gaithersburg, MD 20878
(800) 981-2663
(301) 947-0083
(301) 947-0456 (Fax) http://www.oif.org/site/PageServer Email: bonelink@oif.org |
Parents of Galactosemic Children, Inc. (PGC)
P.O. Box 2401
Mandeville, LA 70470-2401
1-866-900-7421
http://www.galactosemia.org/ |
Prader-Willi Syndrome Association (USA)
5700 Midnight Pass Road, Suite 6
Sarasota , FL 34242
800-926-4797
941-312-0400
http://www.pwsausa.org/ Email: national@pwsausa.org |
Selective Mutism Group
http://www.selectivemutism.org |
Smart Kids With Learning Disabilities
(203) 226-6831
(203) 226-4861 (Fax) http://www.smartkidswithld.org/index.html |
Spina Bifida Association of America
4590 MacArthur BLVD. NW Suite 250
Washington, DC 20007-4226
(800) 944-3285
(202) 944-3285
(202) 944-3295 (Fax) http://www.sbaa.org email: sbaa@sbaa.org |
The Children's Tumor Foundation (California Office)
8939 S. Sepulveda Blvd., Suite 516
Los Angeles, CA 90045-3616
(310) 216-9570
(310) 216-7789 (Fax) http://www.ctf.org/ E-Mail: info@ctf.org |
The Children's Tumor Foundation (New England Regional Office)
275 Grove Street, Suite 200-4
Newton, MA 02467
(617) 663-5711
(617) 663-4801 (Fax) http://www.ctf.org/ E-Mail: info@ctf.org |
The Children's Tumor Foundation (New York Office)
95 Pine Street, 16th Floor
New York, NY 10005
1-800-323-7938
(212) 344-6633
(212) 747-0004 (Fax) http://www.ctf.org/ E-Mail: info@ctf.org |
The Genetic Alliance
4301 Connecticut Ave. NW, Suite 404
Washington, DC 20008-2369
(202) 966-5557
(202) 966-8553 (Fax) http://www.geneticalliance.org/ Email: info@geneticalliance.org |
The Hydrocephalus Association
870 Market Street, Suite 705
San Francisco, CA 94102.
888-598-3789.
(415) 732-7040
(415) 732-7044 (Fax) http://www.hydroassoc.org/ Email: info@hydroassoc.org |
The National Directory of Family-Run & Youth-Guided Organizations for Children's Mental Health
http://familyorgdirectory.fmhi.usf.edu/default.cfm *State by State and Tribal Listings available. |
Tourette Syndrome Association, Inc
42-40 Bell Blvd., Suite 205
Bayside, NY 11361-2820
(718) 224-2999
http://tsa-usa.org/ |
Tuberous Sclerosis Alliance
801 Roeder Road, Suite 750
Silver Spring, MD 20910
1-800-225-6872
(301) 562-9890
(301) 562-9870 (Fax) http://www.tsalliance.org/ Email: info@tsalliance.org
|
Uniquely Gifted
http://www.uniquelygifted.org/ *An older web site, still contains useful information for parents of children with Autism and related disorders. |
United Cerebral Palsy (UCP)
1660 L Street, NW, Suite 700
Washington, DC 20036
(800) 872-5827
TTY (202) 973-7197
(202) 776-0414 (Fax) http://www.ucp.org *Excellent state-by-state resource guide. E-mail your local chapter for more information. |
United Mitochondrial Disease Foundation
8085 Saltsburg Road, Suite 201
Pittsburgh, PA 15239
1-888-317-8633
1-412-793-8077
1-412-793-6477 (Fax) http://www.umdf.org E-mail: info@umdf.org
|
United Spinal Association
75-20 Astoria Boulevard
Jackson Heights, NY 11370
800-404-2898
(718) 803-3782
(718) 803-0414 (Fax) http://www.unitedspinal.org E-mail: info@unitedspinal.org |
Williams Syndrome Association, Inc.
PO Box 297
Clawson, MI 48017-0297
1-800-806-1871
(248) 244-2229
1-248-244-2230 (Fax) http://www.williams-syndrome.org/ Email:info@williams-syndrome.org |
Williams Syndrome Family of Hope, Inc.
P.O. Box 2144
Tifton, GA 31793
727-557-7177
http://www.wsfamilyofhope.org E-mail: info@wsfamilyofhope.org
*The Hope Family Assistance Project provides financial assistance in getting necessary medical treatment/testing, recreational and education therapies, support resources and travel assistance for individuals with Williams syndrome.
|
| Early Intervention |
Federation For Children with Special Needs
1135 Tremont St., Suite 420
Boston, MA 02120
(800) 331-0688 (in MA)
(617) 236-7210
(627) 572-2094 (Fax) http://www.fcsn.org email: fcsninfo@fscn.org |
National Association for the Education of Young Children
1313 L. Street, NW, Suite 500
Washington, DC 20005
(800) 424-2460
(202) 232-8777
(202) 328-1846 (Fax) http://www.naeyc.org |
National Center for Infants, Toddlers and Families (Zero to Three)
2000 M Street, NW, Suite 200
Washington, DC 20036
(202) 638-1144
http://www.zerotothree.org Western Office: 350 South Bixel, suite 150
Los Angeles, California 90017
(213) 481-7279 |
National Early Childhood Technical Assistance System (NEC*TAS)
517 South Greensboro Street
Carrboro, NC 27510
(919) 962-2001
TDD (919) 843-3269
(919) 966-7463 (Fax) http://www.nectas.unc.edu email: nectac@unc.edu |
NCBDDD Learn The Signs ~Act Early Campaign
1600 Clifton Rd.
Atlanta, GA 30333
1-800-232-4636 (Info Line)
http://www.cdc.gov/ncbddd/autism/ActEarly *Large data base of early developmental milestones and information. |
Office of Head Start-US Administration for Children & Families
370 L'Enfants Promenade, SW
Washington, DC 20447
http://www.acf.hhs.gov/programs/hsb/index.htm Provides a State by State program finder. |
Pathways Awareness Foundation
150 N. Michigan Ave. , Suite 2100
Chicago, IL 60601
1-800-955-2445
http://www.pathwaysawareness.org/ *Informational site regarding Early Childhood Development. Questions? Check here. |
The Division for Early Childhood Education
27 Fort Missoula Road, Suite 2
Missoula, MT 59804
(406) 543-0872
(406) 543-0887 (Fax) http://www.dec-sped.org |
| Education |
American Council on Rural Special Education (ACRES)
2865 Old Main Hill
Logan, UT 84322-2865
(435) 797 3728
http://www.acres-sped.org/ E-mail: inquiries@acres-sped.org
|
Association on Higher Education and Disability (AHEAD)
107 Commerce Center Drive, Suite 204
Huntsville, NC 28078
(704) 947-7779
(704) 948-7779 (Fax) http://www.ahead.org/index.htm email: ahead@ahead.org |
Education Resources Information Center
655 15th Street, NW Suite 500
Washington, DC 20005
(800) 538-3742
http://www.eric.ed.gov Large clearinghouse of information. |
Federal Disability Information Task Force
http://www.disabilityinfo.gov Offers a consolidation of all governmental disability information and services provided. Excellent explanations of various IEPs. |
Federal Resource Center for Special Education
1825 Connecticut Avenue, NW
Washington, DC 20009
(202) 884-8215
TTY (202) 884-8200
(202) 884-8443 (Fax) http://www.rrfcnetwork.org email: frc@aed.org |
Gallaudet University
800 Florida Avenue, N.E.
Washington, DC 20002-3695
(202) 651-5300
http://www.gallaudet.edu/ email: infotech.services@gallaudet.edu |
Great Lakes Area Regional Resource Center (GLARRC) OSU Center for Special Needs
700 Ackerman Road, Suite 440
Columbus, OH 43202
(614) 447-0844
TTY (614) 447-8776
http://www.rrfcnetwork.org/glarrc E-mail: daniels.121@osu.edu |
IDEA 2004/U.S. Department of Education
http://idea.ed.gov/ *Updated IDEA Act information for all age groups. |
Kids Together, Inc.
P.O. Box 574
Quakertown, PA 18951
http://www.kidstogether.org email: staff@kidstogether.org
Information regarding inclusion, IEP, Early Intervention, etc. |
Learning Disabilities Association of America
4156 Library Road
Pittsburgh, PA 15234-1349
(412) 341-1515
(412) 344-0224 (Fax) http://www.ldaamerica.us |
Mid-South Regional Resource Center (MSRRC) University of Kentucky
Human Development Institute 126 Mineral Industries Building
Lexington, KY 40506-0051
(859) 257-4921
TTY (859) 257-2903
http://www.rrfcnetwork.org/msrrc E-mail: msrrc@ihdi.uky.edu |
Mountain Plains Regional Resource Center (Utah State University)
1780 N. Research Parkway, Suite 112
Logan, UT 84341
(435) 752-0238
http://www.rrfcnetwork.org/mprrc The MPRRC serves Arizona, the Bureau of Indian Affairs, Colorado, Kansas, Montana, Nebraska, New Mexico, North Dakota, South Dakota, Utah and Wyoming. Click on your state from this home page for events and information in your area. |
National Center for Learning Disabilities
381 Park Avenue South, Suite 1401
New York, NY 10016
(888) 575-7373
(212) 545-7510
(212) 545-9665 (Fax) http://www.ncld.org Information regarding learning disabilities such as ADD, Dyslexia, Dyspraxia, and many others. Advocacy guide and monthly news letters. |
National Center on Secondary Education and Transition
6 Pattee Hall, 150 Pillsbury Drive SE
Minneapolis, MN 55455
612-624-2097
612-624-9344 (Fax) http://www.ncset.org/ email:ncset@umn.edu
*Be sure to include address and phone number. |
National Coalition for Parent Involvement in Education (NCPIE)
3929 Old Lee Highway, Suite 91-A
Fairfax, VA 22030-2401
(703) 359-8973
(703) 359-0972 (Fax) http://www.ncpie.org |
Northeast Regional Resource Center(NERRC)
Learning Innovations 20 Winter Sport Lane
Williston, VT 05495
(802) 951-8226
TTY (802) 951-8213
http://www.rrfcnetwork.org/nerrc E-mail: nerrc@aol.com |
Recognition and Response (NCLD)
381 Park Avenue South, Suite 1401
New York, NY 10016
(888) 575-7373
http://www.recognitionandresponse.org |
School Matters ( A Service of Standard and Poors)
http://www.schoolmatters.com *Search for schools by state, district, name or zip code. |
Southeast Regional Resource Center (SERRC) Auburn University Montgomery School of Education
P.O. Box 244023
Montgomery, AL 36124
(334) 244-3100
TTY (334) 244-3800
http://www.rrfcnetwork.org/serrc E-mail: bbeale@edla.aum.edu
Also serves Puerto Rico and U.S. Virgin Islands |
Special Education Advisor
9909 Topanga Canyon Blvd. #169
Chatsworth, CA 91311
(818) 993-3011
http://www.specialeducationadvisor.com * An online Special Education & IEP Advisor covering a wide base of special education and IEP/504 topics.
|
Special Education Resources on the Internet
http://seriweb.com/ |
Speech Therapy Ideas and Speech Therapy Activities
http://www.speechtherapyideas.com *Provides speech therapy ideas and activities developed by a licensed Speech Language Pathologist for parents and professionals. |
The Access Center
1000 Thomas Jefferson St., NW
Washington, DC 20007
(202) 403-5000
TTY:(877) 334-3499
(202) 403-5001 (Fax) http://www.k8accesscenter.org/index.php Email: accesscenter@air.org |
The Council for Exceptional Children
1110 No. Glebe Rd., Suite 300
Arlington, VA 22201-5704
(888) 232-7733
(703) 620-5660
(703) 264-9494 (Fax) http://www.cec.sped.org |
Think College.Net
ICI/University of Massachusetts
Boston, MA
(617) 287-4310
TTY (617) 287-4350
http://www.thinkcollege.net/index.php Includes a program search. |
University of Washington DO-IT (Disabilities, Opportunities, Internetworking, and Technology)
University of Washington Box 355670
Seattle, WA 98195-5670
V/TTY888-972-3648
(206) 221-4171 (Fax) http://www.washington.edu/doit/ Email: doit@u.washington.edu
|
US Department of Education~ No Child Left Behind Act (Updated)
http://www.ed.gov/nclb/landing.jhtml?src=ln |
US Office of Education/Office of Special Education
Mary E. Switzer Building 330 C Street SW
Washington, DC 20202
V/TTY (202) 205-5507
http://www.ed.gov/offices/OSERS/OSEP |
We Connect Now
McIlhenny Drive
Baton Rouge, LA 70809
http://weconnectnow.wordpress.com E-mail: weconnectnow2008@gmail.com
*We Connect Now is dedicated to uniting people on issues which affect people with disabilities, with emphasis on college students higher education & employment. |
Western Regional Resource Center (WRRC)
1268 University of Oregon
Eugene, OR 97403-1268
(541) 346-5641
TTY (541) 346-0367
http://www.rrfcnetwork.org/wrrc E-mail: wrrc@oregon.uoregon.edu |
| Employment |
Job Accommodation Network
PO Box 6080
Morgantown, WV 26506-6080
(800) 526-7234
TTY: (877) 781-9403
304-293-5407 (Fax) http://www.jan.wvu.edu/ |
Office of Disability Employment Policy (ODEP)
200 Constitution Avenue (US Dept. Of Labor)
Washington, DC 20210
1-866-ODEP-DOL (633-7365)
TTY 1-877-889-5627
http://www.dol.gov/odep |
U.S. Department of Labor
Frances Perkins Building 200 Constitution Avenue, NW
Washington, DC 20210
(866) 633-7365
(877) 889-5627
(202) 693-7888 (Fax) http://www.dol.gov/odep/ |
We Connect Now
McIlhenny Drive
Baton Rouge, LA 70809
http://weconnectnow.wordpress.com E-mail: weconnectnow2008@gmail.com
*We Connect Now is dedicated to uniting people on issues which affect people with disabilities, with emphasis on college students higher education & employment. |
Your Ticket To Work
1-866-968-7842
http://www.yourtickettowork.com/program_info * A program of the US Social Security Administration. |
|
| Equipment |
AAC (Augmentative and Alternative Communication) Funding Help
http://www.aacfundinghelp.com This website posts information regarding programs which cover and fund augmentative and assistive communication devices. Updated frequently. |
Ability Hub/Assistive Technology Solutions
c/o The Gilman Group, L.L.C. P.O. Box 6356
Rutland, VT 05702-6356
(802) 775 1993
http://www.abilityhub.com/links/computer.htm Email: info@abilityhub.com
*Information regarding computer assistive technologies. |
Alliance for Technology Access
1304 Southpoint Blvd., Suite 240
Petaluma, CA 94954
(707) 778-3011
TTY: (707) 778-3015
(707) 765-2080 (Fax) http://www.ataccess.org/community/centers.lasso Email ATAinfo@ATAccess.org
*State by state program listing. |
Center for Assistive Technology and Environmental Access/ Georgia Institute of Technology
490 Tenth Street
Atlanta, GA 30332-0156
V/TTY: 800-726-9119
404-894-1414
404-894-9320 (Fax) http://assistivetech.net/index.php Email: catea@coa.gatech.edu |
Family Center on Technology and Disability (FCTD)
1825 Connecticut Ave. NW 7th Floor
Washington, DC 20009-5721
(202) 884-8068
(202) 884-8441 (Fax) http://www.fctd.info email: fctd@aed.org |
National Institute For Rehabilitation Engineering
P.O. Box 1088
Hewett, NJ 07421
(800) 736-2216
(973) 853-6585
(9280 832-2894 (Fax) http://www.angelfire.com/nj/nire2/ The N.I.R.E. assists people of all ages with all types of disabilities including but not limited to vision, speech, hearing, hand dexterity, and mobility impairments. |
Pass It On Center
c/o Ga Department of Labor, Tools for Life1700 Century Circle, Suite 300
Atlanta , GA 30345-3020
1-800-497-8665
TDD: 1-866-373-7778
http://www.passitoncenter.org/find.shtml *State/Regional listings of Assistive technology recycle programs. |
Trace Research & Development Center~University of Wisconsin-Madison
2107 Engineering Centers Bldg. 1550 Engineering Dr.
Madison, WI 53706
(608) 262-6966
TTY: (608) 263-5408
(608) 262-8848 (Fax) http://trace.wisc.edu/ E-mail: info@trace.wisc.edu
|
University of Pittsburgh Rehabilitation Engineering Research Center (RERC)
(412) 624-4141
http://www.rercwts.pitt.edu/index.html *Information Regarding Wheelchair Transportation Safety |
UsersFirst ~ Mobility Map | A Program of United Spinal Association
75-20 Astoria Blvd
Jackson Heights, NY 11370
718-803-3782
http://www.usersfirst.org E-mail: usersfirst@unitedspinal.org
*The Mobility Map provides people with disabilities guidance in getting wheelchairs and other mobility equipment that meets their unique needs. It offers tips on identifying your “wheelchair team†such as physicians and medical equipment suppliers, how to obtain a wheelchair evaluation, and where to find funding. |
Wheelchair
http://www.newdisability.com * A european website with many useful wheelchair related articles and interesting video. Click on "Articles" in the left hand menu. |
|
| Housing Programs - Government |
Center for Housing and New Community Economics (CHANCE) University of New Hampshire
10 West Edge Drive, Suite 101
Durham, NH 03824-3522
http://chance.unh.edu/ |
DisabilityInfo.gov ~ Housing
http://www.disabilityinfo.gov *Provides a comprehensive listing of Federal and State housing programs and up to date program information. |
Fair Housing Accessibility FIRST
(888) 341-7781 (V/TTY)
http://www.fairhousingfirst.org/index.asp *Promotes compliance with the Fair Housing Act in design and construction. Excellent resource links list. |
Paralyzed Veterans of America
801 18th Street NW
Washington, DC 20006-3517
1-800-424-8200
http://www.pva.org *Not just for paralyzed Veterans, not just for paralysis. Ask for their Architecture Program!
**SNRP recommends their publication "Accessible Home Design". |
Public Housing Authorities Directors Association/Local Housing Authority Sites
http://www.phada.org/ha_list.php *Site lists for city/community Housing Authorities (listed by state). |
US Dept. on Housing and Urban Development (HUD)
451 7th Street, SW
Washington, DC 20410
(202) 708-1112
TTY (202) 708-1455
http://www.hud.gov *Listings of HUD offices by state found at the bottom of the home page. |
| Housing Programs - Private |
ABILITY Awareness
1440 E. 1st St., Suite 107
Santa Anna, CA 92710
(714) 277-4330
(949) 943-4496 (military/ Los Al
(714) 277-3743 (Fax) http://www.abilityawareness.org/index.htm Email: Info@ABILITYawareness.org
*Builds accessible low income homes.
**Provides outpatient reahbilitiation housing for wounded military members and their families.
To contact ABILITY House at Los Al, please Email LosAl@ABILITYawareness.org |
Assist, Inc.
218 East 500 South
Salt Lake City, UT 84111
(801) 355-7085
(801) 355-7086 (Fax) http://www.assistutah.org/index.html *Email:info@assistutah.org
*Among other services, ASSIST provides architectural design assistance for housing and accessibility to low income households or persons with disabilities living within specific geographic areas in the state of Utah.
**SNRP Recommends the Assist Guidebook to the Accessible Home. |
Center For Universal Design North Carolina State University
P.O. Box 8613
Raleigh, NC 27695-8613
(800) 647-6777
V/TTY:(919) 515-3082
(919) 515-3023 (Fax) http://www.design.ncsu.edu\cud |
Easy Living Home Coalition
http://www.easylivinghome.org/ *See website for contact information. |
Habitat for Humanity/United States
121 Habitat Street
Americus, GA 31709
1-800-422-4828
http://www.habitat.org/intl/na/218.aspx E-mail: publicinfo@habitat.org |
Homes For Our Troops
37 Main Street
Taunton, MA 02780
(866) 787-6677
508-823-3300
508-823-5411 (Fax) http://www.homesforourtroops.org *Provides adaptive housing for disabled Vets |
Institute for Human Centered Design (Adaptive Environments)
180-200 Portland Street, Suite 1
Boston, MA 02114
(617) 695-1225
(617) 482-8099 (Fax) http://www.adaptenv.org E-mail: info@HumanCenteredDesign.org |
Institute for Human Centered Design (Adaptive Environments)
180-200 Portland Street, Suite 1
Boston, MA 02114
(617) 695-1225 (v/tty)
1 (617) 482-8099 (Fax) http://adaptiveenvironments.org E-mail: info@HumanCenteredDesign.org
|
National Council of State Housing Authorities
444 North Capitol Street, NW, Suite 438
Washington, DC 20001
202-624-7710
202-624-5899 (Fax) http://www.ncsha.org/section.cfm/4/39/187 *Provides a state-by-state listing of State Housing Financing Agencies and links. |
National Resource Center on Supportive Housing and Home Modification/University of Southern California
3715 McClintock Avenue
Los Angeles, CA 90089-0191
(213) 740-1364
(213) 740-7069 (Fax) http://www.homemods.org/ email: homemods@usc.edu
|
Rebuilding Together/National Headquarters
1536 16th Street, N.W.
Washington, DC 20036
1-800-473-4229
http://www.rebuildingtogether.org *Currently has 225 affiliates, nationwide. Click on "Affiliates" for the Affiliate office nearest you. |
|
| Independent Living Organizations |
IL USA - Independent Living Centers
3108 Main Street
Buffalo, NY 14214
(518) 274-7944 (Fax) http://www.ilusa.com/links/ilcenters.htm *Click on your state to find a list of Independent Living Centers in your state
** Also includes Puerto Rico, U.S. Virgin Islands, Canada, UK, Brazil, Africa and European Countries. |
Independent Living Institute
46-8-506 22-181
http://www.independentliving.org/ Arenavagen 63-121-77
Stockholm-Johanneshou
Sweden
|
Independent Living Research Utilization Project/The Institute for Rehabilitation and Research
2323 So. Sheppard, Suite 1000
Houston, TX 77019
(713) 520-0232
TTY: (713) 520-5136
http://www.ilru.org email: ilru@ilru.org
Contact information for Statewide Independent Living Councils listed by state. |
IRLU Directory of Centers and SILCs
Listings For The State of Virginia
Washington, DC
http://www.ilru.org/html/publications/directory... National Directory listed by state. |
National Council on Independent Living
1710 Rhode Island Avenue, NW, 5th Floor
Washington, DC 20036
(877) 525-3400
TTY (202) 207-0340
(202) 207-0341 (Fax) http://www.ncil.org/region.html CIL listings by state. |
|
| Indian Health Services |
National Indian Child Welfare Association NICWA
5100 SW Macadam Ave. Suite 300
Portland, OR 97239
(503) 222-4044
(503) 222-4007 (Fax) http://www.nicwa.org/index.asp |
|
| Information |
ADA Document Portal
3630 Sinton Road, Suite 103
Colorado Springs, CO 80907
(800) 949-4232 v/tty
http://www.adaportal.org/ |
ADA Information and Technical Assistance
U.S. Department of Justice,950 Pennsylvania Avenue, NW,Disability Rights Section - NYA
Washington, DC 20530
800-514-0301
800-514-0383 (TTY)
http://www.ada.gov *For information and assistance call the information line listed above. |
Association of University Centers on Disabilities
1010 Wayne Avenue, Suite 920
Silver Spring, MD 20910
(301) 588-8252
(301) 588-2842 (Fax) http://www.aucd.org *Click on the UCEDDs button to find the University Center in your state. |
Bridges 4 Kids
3520 Okemos Road, Suite 6 -150
Okemos, MI 48864
http://www.bridges4kids.org E-mail: info@bridges4kids.org
*A nationwide data base providing parents, educators, and others the information they need to help children who might be at-risk or have special needs. Includes information on child development, education issues and opportunities, and extensive disability, gifted, at-risk, parenting, and teaching resources. |
Center for Personal Assistance Services
University of California, San Fransisco
San Francisco, CA
http://www.pascenter.org/home/index.php *Contains updated Medicaid information and state-by-state listing of Medicaid waivers. |
Cornucopia of Disability Information (CODI)
University at Buffalo
Buffalo, NY
http://codi.buffalo.edu Excellent repository of information. |
Cover The Uninsured (Robert Wood Johnson Foundation)
1 (800) 234-1317
http://covertheuninsured.org *This site is dedicated to providing information regarding Medicaid, state insurance programs, High-Risk Pools and other programs provided in every state. |
Disability Information.Gov
http://www.disabilityinfo.gov *Large Federal database providing easy access to comprehensive information about disability programs, services, laws and benefits. To find disability resources in your state just click on the Find State and Local Resources map located in each of the subject areas listed in their menu. |
Disability is Natural
http://www.disabilityisnatural.com Parent, care giver, teacher and provider information.
*Not an SNRP supported site. |
DisAbility.gov
http://www.disability.gov |
Drugwatch.com
800-452-0949
http://www.drugwatch.com Email: webmaster@drugwatch.com
Drugwatch.com provides information on a wide range of prescription and over-the-counter medications, including details on side effects, uses, and interactions, as well as the latest drug news and FDA alerts.
|
Enabled Kids
(416) 250-1904
http://enabledkids.ca E-mail: natan@enabledkids.ca
*"Enabling children to function independently" |
Foundation for Health Coverage Education® (FHCE)
800-234-1317
http://www.coverageforall.org Email: fhceinfo@coverageforall.org
* Assists individuals and families find health care coverage in their area. |
Girls Health.gov
8270 Willow Oaks Corporate Drive, Suite 301
Fairfax, VA 22031
http://4girls.gov *See "Illness and Disability" tab. Excellent information resource. |
Health Care dot Gov
http://www.healthcare.gov/index.html *Provides current and up to date information regarding health care legislation and a state-by-state guide to insurance programs available in every state. |
Healthfinder dot Gov
P.O. Box 1133
Washington, DC 20013-1133
http://www.healthfinder.gov E-mail: healthfinder@nhic.org
Provides medical information and "How To" find services and resources nationwide.
|
Independent Living Institute (International)
http://www.independentliving.org Located at: Arenavagen 63, 121 77
Stockholm-Johanneshov, Sweden |
Institute For Community Inclusion (UCEDD) UMass Boston
100 Morrissey Blvd.
Boston , MA 02125
(617) 287-4300
TTY: (617) 287-4350
(617) 287-4352 (Fax) http://www.communityinclusion.org/index.php email: ici@umb.edu |
Internet Resource for Special Children (IRSC)
http://www.irsc.org *Large database of links on a wide variety of topics. |
LD Online - WETA Public Television
2775 So. Quincy Street
Arlington, VA 22206
(703) 998-2060 (Fax) http://www.ldonline.org *Learning Disability/Autism Spectrum Information |
MedicareSolutions
http://www.medicaresolutions.com/disability-res... *A comprehensive page on disabilities providing informative links in several areas of interest including Disability Rights, support groups, government resources and organizations and others. |
National Association for Home Care and Hospice
228 Seventh Street, SE
Washington , DC 20003
(202) 547-7424
(202) 547-3540 (Fax) http://www.nahc.org/home.html *Access a state by state listing of Home Care and Hospice provider companies |
National Center on Birth Defects and Developmental Disabilities
1600 Clifton Rd.
Atlanta, GA 30333
1-800-232-4636 (Info Line)
http://www.cdc.gov/ncbddd/default.htm *Excellent informational resource for a multitude of developmental disabilities.
** Also see "Learn the Signs. Act Early". |
National Dissemination Center for Children with Disabilities (NICHCY)
P.O. Box 1492
Washington, DC 20013
(800) 695-0285
http://www.nichcy.org email: nichcy@aed.org |
National Organization on Disability
910 Sixteenth Street, N.W., Suite 600
Washington, DC 20006
(202) 293-5960
TTY: (202) 293-5968
(202) 293-7999 (Fax) http://www.nod.org E-mail: ability@nod.org |
The Family Village - Waisman Center/ University of Wisconsin - Madison
1500 Highland Ave.
Madison, WI 53705-2280
http://www.familyvillage.wisc.edu/index.html email: familyvillage@waisman.wisc.edu |
United Spinal Association
75-20 Astoria Boulevard
Jackson Heights, NY 11370
800-404-2898
(718) 803-3782
(718) 803-0414 (Fax) http://www.unitedspinal.org/disability-publicat... *Linda's favorite down-loadable informational resource. Linda recommends the following booklets: Disability Etiquette (PDF), Taking Action (PDF), Adaptive Automotive Equipment (PDF), The Americans with Disabilities Act (PDF),The Fair Housing Amendments Acts (PDF) and Accessing Local Government (PDF). Please see the menu page for other publications you may be interested in. |
US Department of Health and Human Services
200 Independence Avenue, SW
Washington, DC 20201
http://www.hhs.gov US Government site for tracking and reporting general diagnosis and treatment information. Reference links available. |
Visiting Nurse Association of America
99 Summer Street Suite 1700
Boston, MA 02110
(617) 737-3200
(617) 737-1144 (Fax) http://www.vnaa.org/vnaa/g/?h=html/home Maintains a state-by-state Home Health Agency Directory. Member companies only are listed for each state. |
|
| Insurance Assistance Programs |
Cover the Uninsured
http://covertheuninsured.org Email: info@covertheuninsured.org
* Provides a State by State guide to finding healthcare insurance coverage in your state. |
Healthcare Dot Gov
200 Independence Avenue, S.W.
Washington, DC 20201
http://www.healthcare.gov *Provides a wide variety of current health care information. State-by-State listings will help consumers compare programs and services in their communities. |
Insure Kids Now dot gov
1-877-543-7669
http://www.insurekidsnow.gov E-mail: CMSOCHIPRAQuestions@cms.hhs.gov
*InsureKidsNow.gov provides information about Medicaid and CHIP services for families who need health insurance coverage. These programs are designed to be affordable for families who are not able to afford health insurance coverage in the private market or do not have coverage available to them. Even if you’ve been turned down in the past, you may be able to get health coverage for your child now. Learn more about health coverage programs in your state.
How to Contact Us
If you have specific questions about health insurance for your children, please contact the programs in your state or make a free call to 1-877-543-7669, our free and confidential hotline, where you’ll be connected directly to someone from your state who will help you apply.
|
Patient Advocate Foundation
421 Butler Farm Road
Hampton, VA 23666
(800) 532-5274
(757) 873-8999 (Fax) http://patientadvocate.org *Provides effective mediation and arbitration services to patients to remove obstacles to healthcare including medical debt crisis, insurance access issues and employment issues for patients with chronic, debilitating and life-threatening illnesses.
|
| Legal Advocacy/Information |
Assistive Technology Law Center
401 East State Street
Ithaca, NY 14850
607-277-7286
607-277-5239 (Fax) http://www.aacfundinghelp.com E-mail: lewis.golinker@aacfundinghelp.com |
Disability Rights Advocates
2001 Center Street, Third Floor
Berkeley, CA 94704-1204
(510) 665-8644
http://www.dralegal.org/ email: general@dralegal |
Disability Rights Education & Defense Fund
2212 Sixth Street
Berkeley, CA 94710
Toll Free: (800) 348-4232
(510) 841-8645 (Fax) http://www.dredf.org/ email: info@dredf.org |
National Association for Community Mediation
P.O. Box 44578
Madison, WI 53744
(608) 845-9918
http://www.nafcm.org Email: nafcm@mailbag.com
*Has a large list of state affiliates. |
National Disability Rights Network
900 Second Street, NE, Suite 211
Washington, DC 20002
(202) 408-9514
TTY: (202-408-9521
(202) 408-9520 (Fax) http://www.ndrn.org |
National Guardianship Association, Inc.
526 Brittany Dr.
State College, PA 16803
(877) 326-5992
(814) 238-7051 (Fax) http://www.guardianship.org email: info@guardianship.org |
National Health Law Program (NHelp) Main Office
2639 South La Cienega Blvd
Los Angeles, CA 90034-2675
(310) 204-6010
(310) 204-0891 (Fax) http://www.healthlaw.org Email: nhelp@healthlaw.org
* NHeLP serves legal services programs, community-based organizations, the private bar, providers and individuals who work to preserve a health care safety net for the millions of uninsured or underinsured low-income people. |
National Help Law Program (NHeLP) North Carolina Office
211 North Columbia Street, 2nd Floor
Chapel Hill, NC 27514-3503
(919) 968-6308
(919) 968-8855 (Fax) http://www.healthlaw.org Email: nhelp@healthlaw.org
* NHeLP serves legal services programs, community-based organizations, the private bar, providers and individuals who work to preserve a health care safety net for the millions of uninsured or underinsured low-income people. |
National Help Law Program (NHeLP) Washington, D.C. Office
1101 14th Street, NW Suite 405
Washington, DC 20005
(202) 289-7661
(202) 289-7724 (Fax) http://www.healthlaw.org Email: nhelpdc@healthlaw.org
* NHeLP serves legal services programs, community-based organizations, the private bar, providers and individuals who work to preserve a health care safety net for the millions of uninsured or underinsured low-income people. |
TASH (Equity and Inclusion for People With Disabilities)
1025 Vermont Ave., Floor 7
Washington, DC 20005
(202)263-5500
http://www.tash.org/index.html |
The Center on Human Policy,Law,& Disability Studies at Syracuse University
805 South Crouse Avenue
Syracuse, NY 13244-2280
1-800-894-0826
TTY: (315) 443-4355
(315) 443-4338 (Fax) http://thechp.syr.edu/index.html E-mail: thechp@sued.syr.edu |
The Special Needs Alliance
http://specialneedsalliance.com *Provides a national list of lawyers specializing in special needs trusts and other resources by state. |
US Department of Justice Americans with Disabilities Act
950 Pennsylvania Avenue, NW Civil Rights Division, Disability Rights Section - NYA
Washington, DC 20530
800-514-0301
TTY: 800-514-0383
http://www.usdoj.gov/crt/ada/adahom1.htm |
Wright's Law
http://www.wrightslaw.com |
| Legislative |
Children's Defense Fund
25 E Street N.W.
Washington, DC 20001
(800-233-1200)
202-628-8787
http://www.childrensdefense.org/ email: cdfinfo@childrensdefense.org |
National Council on Disability
1331 F. Street, NW, Suite 850
Washington , DC 20004
(202) 272-2004
TTY (202) 272-2074
(202) 272-2022 (Fax) http://www.ncd.gov |
| Medical Centers/Hospitals/Clinics |
Shriner's of North America (International)
2900 Rocky Point Dr.
Tampa, FL 33607-1460
(800) 237-5055
http://www.shrinershq.org Charitable children's hospitals specializing in burn and orthopedic treatment. Check for the hospital nearest your area. |
|
| Medical Information/Research Organizations |
American Academy of Pediatrics/Childhood Immunization Support Program
141 Northwest Point Blvd.
Elk Grove Village, IL 60007
http://www.cispimmunize.org/ *Information regarding childhood immunizations. |
American Association of Pediatrics
141 Northwest Point Blvd.
Elk Grove Village, IL 60007
(847) 434-4000
http://www.aap.org General information regarding diagnosis and treatment of pediatric disorders and diseases as well as some referral services. |
American Medical Association
515 No. State St.
Chicago , IL 60610
(800) 621-8335
http://www.ama-assn.org General information regarding diagnosis,treatment and current research in the medical community. |
American Occupational Therapy Association, Inc.
4720 Montgomery Lane
Bethesda, MD 20824-1220
(301) 652-2682
TDD: 1-800-377-8555
(301) 652-7711 (Fax) http://www.aota.org/ |
American Society of Health-System Pharmacists
7272 Wisconsin Avenue
Bethesda, MD 20814
http://www.ashp.org/PAP/Federal.cfm *Contains links to Patient Assistance Programs for pharmaceutical services (Drugs/Medications). |
American Speech-Language-Hearing Association
10801 Rockville Pike
Rockville, MD 20852
(800) 638-8255
http://www.asha.org * Has an extensive database of Audiologists and Speech-Language Pathologists. Click on "Find a Professional". |
Annette and Irwin Eskind Biomedical Library (at Vanderbilt University)
2209 Garland Avenue
Nashville, TN 37232-8340
(615) 936-1410
(615) 936-1384 (Fax) http://www.mc.vanderbilt.edu/biolib/index.html |
Birth Defects Research for Children, Inc.
800 Celebration Avenue, Suite 225
Celebration, FL 34747
(407) 566-8304
(407) 566-8341 (Fax) http://www.birthdefects.org/ |
Columbus Children's Research Institute
700 Children's Drive
Columbus, OH 43205
(614) 722-2000
(614) 722-2716 (Fax) http://columbuschildrens.com/GD/Templates/Pages... |
Consumer Reports Medical Guide
http://www.consumerreports.org/mg/home.htm Medical reports on a wide variety of topics.
*ALWAYS consider the source when reviewing medical information |
Early Childhood Research Institute on
61 Children's Research Center
Champaign, IL 61821
(877) 275-3227
(217) 333-4123
http://www.clas.uiuc.edu/aboutclas.html |
Hardin Library for the Health Sciences/University of Iowa
600 Newton Rd.
Iowa City, IA 52242-1098
(319) 335-9151
http://www.lib.uiowa.edu/hardin/md email: lib-hardin@uiowa.edu
|
Journal of the American Medical Association (JAMA)
http://www.jama.ama-assn.org Published by the American Medical Association. Contains current research and archives. |
National Health Information Center
P.O. Box 1133
Washington, DC 20013-1133
(800) 336-4797
(301) 565-4167
(301) 984-4256 (Fax) http://www.health.gov/NHIC/ |
National Library of Medicine (National Institutes of Health)
8600 Rockville Pike
Bethesda, MD 20894
http://www.nlm.nih.gov/ Email: custserv@nlm.nih.gov
*The World's Largest Medical Library |
National Network for Immunization Information (NNII)
301 University Blvd
Galveston, TX 77555-0351
(409) 772-0199
(409)747-4995 (Fax) http://www.immunizationinfo.org Information on vaccines and preventable diseases. State vaccine requirements for school entry listed. |
National Organization for Rare Disorders (NORD)
PO Box 1968, 55 Kenosia Avenue
Danbury, CT 06813-1968
(800) 999-6673 (voicemail only)
(203)798-2291 (Fax) http://www.rarediseases.org/ email: orphan@rarediseases.org
*Please note:If you must send NORD an attachment, please notify them first. They are unable to open unexpected e-mail attachments. |
National Rehabilitation Information Center
4200 Forbes Blvd., Suite 202
Lanham, MD 20706
(800) 346-2742
TTY (301) 459-5984
http://www.naric.com email: naricinfo@heitechservices.com |
Speech Therapy Ideas and Speech Therapy Activities
http://www.speechtherapyideas.com *Provides speech therapy ideas and activities developed by a licensed Speech Language Pathologist for parents and professionals. |
The Children's Hospital of Philadelphia's Vaccine Education Center
http://www.vaccine.chop.edu/ *The goal of the Vaccine Education Center is to accurately communicate the facts about each childhood vaccine as well as how vaccines are made, how and why they work, who recommends them, and more. |
UAB Civitan International Research Center/University of Alabama Center of Excellence in Developmental Disabilities (UCEDD)
1530 3rd Ave. South CIRC 329
Birmingham, AL 35294
1-800-UAB-CIRC
205-934-8900
205-975-6330 (Fax) http://www.circ.uab.edu/ *CIRC provides services throughout Alabama and the surrounding region. |
United States Department of Health and Human Services/National Mental Health Information Center
P.O. Box 42557
Washington, DC 20015
1-800-789-2647
TDD: (866) 889-2647
(240) 221-4295 (Fax) http://mentalhealth.samhsa.gov/child/childhealt... |
University of Montana Rural Institute Center for Excellence in Disability Education, Research, and Services
52 Corban Hall
Missoula , MT 59812
(800) 732-0032
(406) 243-5467
http://ruralinstitute.umt.edu *Information regarding RURAL living and services.
*Native American Resource Listings |
Vanderbilt University Clinical Research Center
1161 21st Avenue South, AA-3208 MCN
Nashville, TN 37232-2195
615-322-6972
615-343-2979 (Fax) http://www.mc.vanderbilt.edu/gcrc/ |
| Military Quick Links (National Guard, Reserve, Active Duty) |
Exceptional Family Member Program/All Branches/Mobile
http://apps.mhf.dod.mil/pls/psgprod/f?p=EFMPMOB... Contains contact information, Base program locators and enrollment/justification forms for ALL Branches of service. |
The Medicaid Reference Desk (The ARC)
1825 K Street NW, Suite 1200
Washington, DC 20006
800-433-5255
http://www.thedesk.info E-mail: contact@thedesk.info The site offers state by state information on Medicaid programs and waivers, and includes a list of what types of services fall under each program/waivers jurisdiction. The website offers information on common questions and concerns regarding Medicaid. It includes a Medicaid terms and definitions section, defining words commonly used on Medicaid forms and correspondence as well as other useful information. |
The National Resource Directory
http://www.nationalresourcedirectory.gov The National Resource Directory (NRD) provides access to services and resources at the national, state and local levels that support recovery, rehabilitation and community reintegration. |
|
| Other |
Ability OnLine Support Network
1120 Finch Avenue West, Suite 104
Toronto, Ontario, DC Canada M3J 3H7
1-866-650-6207
416-650-6207
416-650-5073 (Fax) http://www.ablelink.org Email: information@ablelink.org
*Canadian On-Line Support Community. Monitored for safety. As with all bulletins boards/chat rooms exercise supervision and caution. |
Adaptions By Adrian
P.O. Box 7
San Marcos, CA 92079-0007
1-877- 623 - 7426
http://www.adaptationsbyadrian.com/ Email: adrians1@sbcglobal.net
*Clothing adaptions. |
Adaptive Driving Program/Good Samaritan Hospital
| 5601 Loch Raven Boulevard
Baltimore, MD 21239
443-444-4601
http://www.goodsam-md.org/body.cfm?id=650 * Contact for program information. |
Disability Studies, Temple University Blog
http://disstud.blogspot.com *Based at Temple University but with nationwide contributors. Has a LARGE list of disability related blogs. |
Latin American Health Institute
95 Berkeley St. (Main Office)
Boston, MA 02116
(617) 350-6900
(617) 350-6901 (Fax) http://www.lhi.org/lhi/ email: Info@lhi.org
*Latin American Services |
National Council of La Raza
Raul Gzaguirre Bldg., 1126 St. N.W.
Washington, DC 20036
(202) 785-1670
(202) 776-1792 (Fax) http://www.nclr.org *Latin American Services |
Sibling Support Project
16120 NE Eighth Street
Bellevue, WA 98008
(425) 747-4004
TTY 1-800-833-6388
(425) 747-1069 (Fax) http://www.siblingsupport.org email:info@kindering.org |
The Special Parent dot Com
http://thespecialparent.com |
| Parent Support Programs |
CADRE ~ Consortium for Appropriate Dispute Resolution in Special Education
3411-A Willamette Street
Eugene, OR 97405-5122
(541) 686-5060
TTY: (541) 284-4740
(541) 686-5063 (Fax) http://www.directionservice.org/cadre/ * Encourages the use of mediation and other collaborative strategies to resolve disagreements about special education and early intervention programs. |
Compassion Fatigue Awareness Project
http://compassionfatigue.org
The Compassion Fatigue Awareness Project© is dedicated to educating caregivers about authentic, sustainable self-care and aiding organizations in their goal of providing healthy, compassionate care to those whom they serve.
E-mail: patricia@compassionfatigue.org |
Exceptional Children's Assistance Center (ECAC) Region 2 & 3
907 Barra Row, Suite 102/103
Davidson , NC 28036
(800) 962-6817
(704) 892-1321
http://www.ecac-parentcenter.org/ email: ecacta@ecacmail.org |
Family Voices
3701 San Mateo Blvd. NE, Suite 103
Albuquerque, NM 87110
(888) 835-5669
(505) 872-4774
(505) 872-4780 (Fax) http://www.familyvoices.org Family Voices aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities. Through our national network, we provide families tools to make informed decisions, advocate for improved public and private policies, build partnerships among professionals and families, and serve as a trusted resource on health care.
*Click on your state for local chapter information. |
Hands and Voices
PO Box 3093
Boulder, CO 80307
(866) 422-0422
http://www.handsandvoices.org/index.htm E-mail: parentadvocate@handsandvoices.org
*Dedicated to supporting families with children who are Deaf or Hard of Hearing without a bias around communication modes or methodology. We're a parent-driven, non-profit organization providing families with the resources, networks, and information they need to improve communication access and educational outcomes for their children, nationwide. Click on the Map to find the chapter in your state. |
Kids Together, Inc.
P.O. Box 574
Quakertown, PA 18954
http://www.kidstogether.org E-mail staff @ kidstogether.org |
Matrix Parent Network and Resource Center Region 6
94 Galli Drive, Suite C
Novato, CA 94949
(800) 578-2592
(415) 884-3535
(415) 884-2592 (Fax) http://www.matrixparents.org email: region6@matrixparents.org |
National Family Caregivers Association
10400 Connecticut Avenue, Suite 500
Kensington, MD 20895-3944
1-800-896-3650
(301) 942-6430
(301) 942-2302 (Fax) http://www.nfcacares.org/ E-mail: info@thefamilycaregiver.org |
National Fatherhood Initiative
101 Lake Forest Boulevard, Suite 360
Gaithersburg, MD 20877
(301) 948-0599
(301) 948-4325 (Fax) http://www.fatherhood.org *See Programs~Military for Deployed Fathers and Families information available for a small fee.
**This is a for-profit site not endorsed by SNRP. |
National Parent Network On Disabilities
1130 17th Street NW Ste 400
Washington, DC 20036
(202) 463-2299
(202) 463-9403 (Fax) http://php.com/include/agency/agency_item.php?A... Email: NPND-NPND@cs.com |
National Technical Assistance Center/PACER Center
8161 Normandale Blvd.
Minneapolis, MN 55437-1044
1-800-248-0822
(952) 838-9000
(952) 838-0199 (Fax) http://www.taalliance.org |
Ohio Coalition for the Education of Children with Disabilities (OCECD)
165 West Center Street, Suite 302
Marion , OH 43302-3741
(800) 374-2806
(740) 382-5452
(740) 383-6421 (Fax) http://www.ocecd.org email: oced@gte.net
*Check for information in your state. |
Parent Technical Assistance Center Network
888-248-0822
http://www.parentcenternetwork.org *Parent Centers provide training, information and assistance to families of children with all disabilities ages birth to 26 years and the professionals who work with them. Click on the Regional Map to find the program/programs in your state. |
PEAK Parent Center, Inc Region 5
611 North Weber, Suite 200
Colorado Springs, CO 80903
(800) 284-0251
(719) 531-9400
http://www.peakparent.org email: region5ptac@peakparent.org |
Specialized Training of Military Parents (STOMP)
PAVE 6316 S. 12th Street, Suite B
Tacoma , WA 98465
(V/TTY) (800) 572-7368
(V/TTY) (253) 565-2266
(253) 566-8052 (Fax) http://www.stompproject.org |
Statewide Family Networks
1401 El Camino Ave., Suite 340
Sacramento, CA 95815
(866) 807-7687
http://www.tacenter.net |
Statewide Parent Advocacy Network (SPAN) Region 1
35 Halsey Street, 4th Floor
Newark, NJ 07102
(973) 642-8100
(973) 642-8080 (Fax) http://www.spannj.org email: span@spannj.org |
Technical Assistance Alliance for Parents Centers Map
8161 Normandale Blvd
Minneapolis, MN 55437
1-888-248-0822 Nationwide
http://www.taalliance.org/centers/index.htm *E-mail: alliance@taalliance.org
**Each state has at least one parent center. These should be listed on your state resource links page. If not, click here and find your state on the map. |
The Fathers Network
Kindering Center 16120 NE, Eighth Street
Bellevue, WA 98008
(425) 747-4004 EXT: 4286
(425) 747-1069 (Fax) http://www.fathersnetwork.org Supports fathers raising children with Special Needs. Links to Father's networks in the U.S., Canada, and New Zealand. |
Think Kids: Rethinking Challenging Kids
CPS Institute 313 Washington Street, Suite 402
Newtons Corner, MA 02458
617.244.0400
FAX 617.965.3080 (Fax) http://www.thinkkids.org E-mail: info@thinkkids.org
*Massachusetts General Hospital |
Through The Looking Glass
2198 Sixth Street, Suite 100
Berkeley, CA 94710-2204
1-800-644-2666
TTY: 1-800-804-1616
(510) 848-4445 (Fax) http://lookingglass.org/index.php |
|
| Patient Assistance Programs |
American Dental Association ~ Give Kids A Smile Program
http://www.givekidsasmile.ada.org/findGKAS.asp *This is a yearly clinic in most communities. Click on the Clinic locator to find a clinic in your area. |
Merck Patient Assistance Programs
P.O. Box 100
Whitehouse Station, NJ 08889-0100
908-423-1000
http://www.merck.com/responsibility/pap-informa... Merck offers a family of programs providing free and discounted medicines to patients who cannot afford their prescribed medicines. |
NeedyMeds
P.O. Box 219
Gloucester, MA 01931
http://www.needymeds.org NeedyMeds is a 501(c)(3) national non profit, has information on programs that help people who can't afford their medications and health care costs. Provides data regarding approximately 2400 programs and nearly 11,000 free/low-cost/sliding-scale clinics. |
Partnership for Prescription Assistance
1-888-477-2669
http://www.pparx.org The Partnership for Prescription Assistance offers a single point of access to more than 475 public and private patient assistance programs, including more than 180 programs offered by pharmaceutical companies. More than 2,500 brand-name and generic medicines are covered. |
Partnership for Prescription Assistance Kids
1-877-369-1477
http://kids.pparx.org The Partnership for Prescription Assistance offers a single point of access to more than 475 public and private patient assistance programs, including more than 180 programs offered by pharmaceutical companies. More than 2,500 brand-name and generic medicines are covered. |
Pfizer Helpful Answers
1-866-706-2400
http://www.pfizerhelpfulanswers.com Pfizer Helpful Answers is a family of assistance programs for uninsured and underinsured patients who need help getting their Pfizer medicines.
These programs provide:
•Pfizer medicines for free or at a savings to patients who qualify
•Some programs also offer reimbursement support services
Call for more information. |
RxAssist
111 Brewster Street
Pawtucket, RI 02860
401-729-3284
401-729-2955 (Fax) http://www.rxassist.org Email: info@rxassist.org
Patient Assistance Program Center ~ Offers a comprehensive database of programs and information. |
|
| Recreation |
U.S. Adaptive Recreation Center
43101 Goldmine Drive
Big Bear Lake, CA 92351
909-584-0269
TTY/1-800-735-2929
909-585-6805 (Fax) http://www.usarc.org E-mail: mail@usarc.org
* Offers a variety of programs for all ages and abilities year round. Contact for more information. |
United States Tennis Association/Wheelchair Tennis
70 West Red Oak Lane
White Plains, NY 10604
HQ (914) 696-7000
http://www.usta.com/Play-Tennis/Wheelchair-Tenn... *Provides regulation and paralympic play information nation wide.Contact for full program information. |
Ability Station
278 South 880 West
Spanish Fork, UT 84660
800-520-1222
http://www.abilitystation.com Ability Station offers toys for special needs children needing sensory, fine motor and gross motor,and cognitive development. Toys are reviewed by an Occupational, Physical or Speech Therapist. |
Accessible Playground dot Net
1463 Greystone Dr.
Pittsburgh, PA 15206
(412) 334-2652
http://www.accessibleplayground.net E-mail: mara@letkidsplay.com
*Excellent web based center for information re: Accessible playgrounds. Provides a nationwide playground directory and playground resources.
|
Adaptive Action Sports
PO box 16558
South Lake Tahoe, CA 96151
http://adacs.org/about-aas General Information E-mail: info@adacs.org
Check out their blog at http://adaptiveactionsports.blogspot.com |
Adaptive Adventures ~ Chicago
2616 Wilmette Avenue
Wilmette, IL 60091
(847) 251-8445
(866) 679-2770
http://www.adaptiveadventures.org E-mail: info@adaptiveadventures.org
|
Adaptive Adventures ~ Evergreen
P.O. Box2245
Evergreen, CO 84037
(877) 679-2770
(303) 670-8290 (Fax) http://www.adaptiveadventures.org E-mail: info@adaptiveadventures.org
|
American Amputee Hockey Association
http://www.usahockey.com/aaha/ E-Mail:clw_man@hotmail.com
*The AAHA invites all players with limb loss/ birth defects/ and other disabilities to play upright ice hockey. |
American Blind Skiing Foundation
2228 Grand Pointe Trail
Aurora, IL 60504
http://www.absf.org/ Email: ABSF@absf.org |
American Camp Association
5000 State Road 67 North
Martinsville, IN 46151-7902
800-428-2267
765-342-8456
765-342-2065 (Fax) http://www.campparents.org *24 Regional Offices nationwide. Check listings for camps near you. |
American Therapeutic Recreation Association
1414 Prince Street, Suite 204
Alexandria, VA 22314
(703) 683-9420
(703) 683-9431 (Fax) http://atra-online.com |
American Wheelchair Bowling Association
P.O. Box 69
Clover, VA 24534
http://www.awba.org E-mail: info@awba.org
*The AWBA provides a competitive, challenging, and informative environment for those individuals with disabilities requiring the use of a wheelchair while bowling to participate in bowling events no matter their individual skill level. |
Americans for The Arts
1000 Vermont Avenue NW, 6th Floor
Washington, DC 20005
(202) 371-2830
(202) 371-0424 (Fax) http://www.AmericansForTheArts.org Email: info@artsusa.org
|
Amputee Coalition
900 East Hill Avenue, Suite 205
Knoxville, TN 37915
888-267-5669
http://www.amputee-coalition.org/fact_sheets/Ki... E-Mail: amputee-coalition.org
*See for amputee camps listed by state.
|
Best Buddies - Global Headquarters
100 Southeast Second Street, Suite 2200
Miami , FL 33131
(800) 892-8339
(305) 374-2233
(305) 374-5305 (Fax) http://www.bestbuddies.org *Contact for a chapter in your area. |
C.A.S.T. for Kids Foundation (Eastern Region)
1529 Sunview Drive
Dallas, TX 75253
(972) 913-2933
(972) 557-8447 (Fax) http://www.castforkids.org/ Email: art@castforkids.org
*Contact for a program in your state. |
C.A.S.T. for Kids Foundation (Western Region)
227 S.W. 41st Street
Renton, WA 98057
(425) 251-3214
(425) 251-3272 (Fax) http://www.castforkids.org/ Email:jim@castforkids.org
*Contact for a fishing program in your state |
Camp Huntington
56 Bruceville Rd
High Falls, NY 12440
(866) 514-5281
http://www.camphuntington.com E-mail: admissions@camphuntington.com
Founded in 1960, Camp Huntington serves youth with Learning and Developmental Disabilities, ADD/HD, Autism Spectrum Disorders, Apsperger's, PDD, and other special needs. The camp is located in High Falls, NY on a 34-acre rural site that provides a fun, safe summer experience for 6- to 21-year-olds. Our program is specifically designed to focus on Adaptive and Therapeutic Recreation. Campers are grouped by age and ability, not by diagnosis, and spend time swimming, playing music, cooking, indoor climbing, singing and acting.
We serve campers from the U.S. and other countries
|
CampResource.com/Online Summer Camp Directory
http://www.campresource.com *Special needs camps for boys and girls that focus on the challenges of ADHD, Autism, physical disabilities, weight loss, diabetes, and many other special needs that children face. Listed alphabetically. Can search by camp type and state.
|
Culture! Disability! Talent
P.O. Box 1107
Berkeley, CA 94701
(510) 845-5576
http://www.culturedisabilitytalent.org Email: cdtinfo@aol.com |
Disabled Sports USA
451 Hungerford Drive, Suite 100
Rockville, MD 20850
(301) 217-0960
301) 217-0960 Phone (Fax) http://www.dsusa.org/ email: information@dsusa.org
*LONG list of Sports programs throughout the US. |
Dreams Fulfilled Through Music
P.O. Box 40548
San Antonio, TX 78229
210-771-5809
210-247-9681 (Fax) http://dreamsfulfilledthroughmusic.org/index.ph... E-mail: info@dftm.org
*National Music Teacher Directory for teachers specializing/also teaching children with special needs. Click on Resources then Teacher Directory. |
Dwarf Athletic Association of America
418 Willow Way
Highland Village, TX 75077
(972) 317-8299
(972) 966-0184 (Fax) http://www.daaa.org/ |
Fishing Has No Boundaries, Inc.
15453 County Hwy B, P.O. Box 175
Hayward, WI 54843
800-243-3462
715-634-3185
http://fhnbinc.org *Check Chapter Listing for a chapter in your state. |
FlagHouse Inc.
601 FlagHouse Drive
Hasbrouck Heights , NJ 07604-3116
http://www.flaghouse.com *Need a grant? Click on "Grant Writing Center" in the bottom menu for more information.
*Supplier of Special Needs equipment and resources for physical education, sports, fitness, and recreation and for health, special needs, special education, sensory integration, and multisensory environments. |
Freedom's Wings International, Inc.
324 Charles Street, Apt #25
Coopersburg, PA 18036
(800) 382-1197
http://www.freedomswings.org Freedom's Wings International (FWI) is a non-profit organization run by and for people with physical disabilities. We provide the opportunity for those who are physically challenged to fly in specially adapted sailplanes, either as a passenger or as a member of the flight training program.
|
GORP (Recreation Community)
http://gorp.away.com/gorp/eclectic/disabled.htm * Commercial site with helpful information and National Park listings.
**SNRP does not endorse this site. |
Hole in the Wall Camps
265 Church Street, Suite #503
New Haven, CT 06510
(203) 562-1203
(203) 562-1207 (Fax) http://www.holeinthewallcamps.org Email: info@holeinthewallcamps.org
*Camps located in 34 states and 31 countries. Contact to find camp nearest you. |
HopeKids
P.O. Box 672
Cave Creek, AZ 85327-0672
800-319-5845
888-418-3980 (Fax) http://www.hopekids.org E-mail: info@hopekids.org
*Provides ongoing events & activities and a powerful, unique support community for families who have a child with cancer or some other life-threatening medical condition. We surround these remarkable children and their families with the message that hope can be a powerful medicine.** Chapters currently in Arizona,Utah,Texas, and Minnesota. See site for chapter contact information.
|
International Wheelchair Aviators
P.O. Box 279
Kemah, TX 77565
281-703-7450
http://wheelchairaviators.org E-mail: IWAviators@aol.com
A worldwide group of disabled and able bodied
pilots interested in aviation and flying. Members have many different disabilities including paraplegia,quadriplegia, amputee, multiple sclerosis, spina bifida, polio and other problems. |
KaBoom
4455 Connecticut Ave., NW, Suite B100
Washington, DC 20008
1-202-659-0215
http://kaboom.org National accessible playground project. See site for locations. |
Kids Camps.Com
500 NE Spanish River Blvd., Suite 30
Boca Raton, FL 33431
(877) 242-9330
(561) 443-2924
(866) 665-2904 (Fax) http://kidscamps.com/ Email: info@kidscamps.com
*Listing of Special Needs Camps by disability and region. |
Lakeshore Foundation
4000 Ridgeway Drive
Birmingham, AL 35209
205-313-7400
http://www.lakeshore.org/ email: information@lakeshore.org
* Camp for both children and adults.
**Also serves injured US Servicemen.
|
Let Kids Play!
1463 Greystone Dr.
Pittsburgh, PA 15206
(412) 334-2652
http://www.letkidsplay.com E-mail: mara@letkidsplay.com
*Let Kids Play is a consulting firm that works with manufacturers,
communities, non-profits, park districts, retail stores, and parents on projects and strategies that ensure that all
children have the best play opportunities possible |
Liberty Swing
http://www.libertyswing.com.au For information E-mail: Australia office at diane@libertyswing.com.au
*Playground swing equipment for people with disabilities which enable children in wheelchairs to enjoy the fun and recreation of swinging. |
MySummerCamps.Com
909 Sepulveda Blvd.
El Segundo, CA 90245
310-280-4105
877-777-7738
310-280-4921 (Fax) http://www.mysummercamps.com/camps/Special_Need... *Large resource listing of a wide variety of Special Needs summer camps in the US and Canada. |
National 4-H Headquarters~Cooperative State Research, Education, and Extension Service United States Department of Agriculture
800 9th St., S.W., Room 4401
Washington, DC 20024
(202) 720-2908
http://www.national4-hheadquarters.gov/ E-mail: 4hhq@csrees.usda.gov
|
National Ability Center (Bronfman Family Recreational Center and Ranch)
3351 No. Highway 248
Park City, UT 84060
Voice/TDD: 1-435-649-3991
435-49-3991 ext. 7 Ski Center
http://www.discovernac.org *Offers year round sports and camps for individuals with disabilities and their families. |
National Alliance for Accessible Golf
12100 Sunset Hills Road, Suite 130
Reston, VA 20190
(703) 234-4136
(703) 435-4390 (Fax) http://www.accessgolf.org Email: info@accessgolf.org
|
National Amputee Golf Association
11 Walnut Hill Rd
Amherst, NH 03031
http://nagagolf.org E-mail:info@nagagolf.org
See "Related Links" for regional and international organization contact information. |
National Arts and Disability Center Tarjan Center for Developmental Disabilities
300 UCLA Medical Plaza Suite #3310
Los Angeles, CA 90095-6967
(310) 794-1141
(310) 794-1143 (Fax) http://nadc.ucla.edu/index.cfm |
National Assembly of State Art Agencies
1029 Vermont Ave., NW 2nd Floor
Washington, DC 20005
(202) 347-6352
TDD: (202) 347-5948
(202) 737-0526 (Fax) http://www.nasaa-arts.org/ Email: nasaa@nasaa-arts.org
|
National Beep Baseball Association
http://www.nbba.org/ NBBA General Information - Email: secretary@nbba.org
Contact to find a team near you. |
National Center on Accessibility
501 North Morton Street, #109
Bloomington, IL 47404-3732
(812) 856-4422
TTY(812) 856-4421
(812) 856-4480 (Fax) http://www.indiana.edu/~nca/ |
National Center on Physical Activity and Disability
1640 W. Roosevelt Road
Chicago, IL 60608-6904
1-800-900-8086
1-312-355-4058 (Fax) http://www.ncpad.org/ Email: ncpad@uic.edu.
*Maintains a State-by-state listing of Summer Camps and recreational facilities. |
National Endowment for the Arts/Children With Disabilities Resource List
1100 Pennsylvania Avenue NW
Washington, DC 20506
(202) 682-5532
TTY: (202) 682-5496
http://www.nea.gov/resources/Accessibility/rlis... |
National Lekotek Center
3204 W. Armitage Avenue
Chicago, IL 60647
(800) 366-7529
(773) 276-5164
(773) 276-8644 (Fax) http://www.lekotek.org/ email: ekotek@lekotek.org
*Specializes in adapted toys and play aids. |
National Park Service/Accessible Opportunities in National Parks
http://www.nps.gov/pub_aff/access/opportunities... *Contact information is available by Park. Check out the left-hand menu for more National Park accessibility information. |
National Parks Pass
http://www.nps.gov/fees_passes.htm *Updated information regarding free access passes to National Parks for U.S. citizens or permanent residents with permanent disabilities. |
National Sports Center for the Disabled
P.O. Box 1290
Winterpark , CO 80482
(970) 726-1540
(303) 316-1540
(970) 726-4112 (Fax) http://www.nscd.org *National Sports Center for the Disabled's mission is to positively impact the lives of people with any physical or mental challenge through quality adaptive recreation programs in over 20 sports. |
National Wheelchair Basketball Association
1130 Elkton St., Suite C
Colorado Springs, CO 80907
(719) 266-4082
(719) 266-4876 (Fax) http://www.nwba.org E-mail: info@nwba.org |
New England Handicapped Sports Association
PO Box 2135
Newbury, NH 03255-2135
(603) 763-2356
(603) 763-4400 (Fax) http://www.nehsa.org/ Email: info@nehsa.org |
North American Riding for the Handicapped Association, Inc
7475 Dakin Street Suite #600
Denver, CO 80221
(800) 369-RIDE (7433)
Fax (303) 252-4610 (Fax) http://www.narha.org/ *Find an NARHA certified Center in your state from the home page. |
Sensafloat
www.reboundtherapy.org/hydrotherapy E-Mail: Hydro@reboundtherapy.org
Original Floatsation is a unique water support aid, designed to facilitate relaxation and movement in water. It has applications for children and adults across the whole spectrum of special needs. Winner of the 1993 Toshiba / CBI Invention of the Year award.
|
Special Olympics Program Locator
1133 19th Street, N.W.
Washington, DC 20036
1-202-628-3630
http://www.specialolympics.org/Special+Olympics... *Check here to find a program in your area. |
TFH Special Needs Toys
4537 Gibsonia Road
Gibsonia, PA 15044
(800) 467-6222
(724) 444-6411 (Fax) http://www.specialneedstoys.com |
The John F. Kennedy Center for the Performing Arts
2700 F. Street, NW
Washington, DC 20566-0001
(202) 416-8727
(202) 416-8728 (Fax) http://www.kennedy-center.org/accessibility/ Email: access@kennedy-center.org |
The Miracle League Association
1506 Klondike Road, Suite 105
Conyers, GA 30094
770 760-1933
770 483-1223 (Fax) http://www.miracleleague.com E-mail: Johnny@miracleleague.com
*The Miracle League focuses on removing barriers which keep mentally and physically disabled children off the baseball field and lets them experience the joy of America's favorite pastime.Click on "Find a League" to find a league in your community. |
The National Alliance for Accessible Golf
1733 King Street
Alexandria, VA 22314
(703) 299-4296
(703) 739-0124 (Fax) http://resourcecenter.usga.org E-mail: info@accessgolf.org
|
The United States Association of Blind Athletes
33 N. Institute St.
Colorado Springs, CO 80903
(719) 630-0422
(719) 630-0616 (Fax) http://www.usaba.org/ *See home page for Camp Information and Regional Offices in your area and state. |
Therapy/Respite Camps For Kids
http://wmoore.net/therapy.html email: will.moore AT Buffaloes.com
**Contains a State-by-State listing of camps in the US, Canada, Central America and Greece. |
Turning Point
403 Pacific Ave.
Terrell, TX 75160
http://www.turningpointnation.org Email: dk@turningpointnation.org
*Develop self-esteem and confidence
in the physically challenged population through participation in adapted outdoor adventures. Contact for chapter and program information. |
United States Blind Golf Association
http://www.blindgolf.com/ *Contact for state chapters. |
United States Quad Rugby Association
(561) 969-1970
(561) 642-4444 (Fax) http://www.quadrugby.com *The United States Quad Rugby Association provides opportunities, support, and structure for competitive wheelchair rugby to people with disabilities. |
Universal Wheelchair Football Association/University of Cincinnati: Raymond Walters College
9555 Plainfield Road
Cincinnati, OH 45236
(513) 792-8625
TTY/1-513-745-8300
(513) 792-8624 (Fax) http://www.rwc.uc.edu/kraimer/PAGE1.HTM E-mail: John.Kraimer@UC.Edu
The Universal Wheelchair Football Association (UWFA) presents the rules of the world's most inclusive sport of Universal Wheelchair Football (UWF). |
US Deaf Sports Federation
102 North Krohn Place
Sioux Falls, SD 57103-1800
TTY:(605) 367-5761
(605) 367-5760
(605) 977-6625 (Fax) http://www.usdeafsports.org/ E-mail:HomeOffice@usdeafsports.org |
US Electric Wheelchair Hockey Association
7216 39th Avenue North
Minneapolis, MN 55427
763-535-4736
208-279-1368 (Fax) http://www.powerhockey.com PowerHockey™ is based on basic hockey rules with a few adaptations to allow everyone in a power wheelchair the ability to participate. |
US Youth Soccer TOPSoccer (The Outreach Program for Soccer
9220 World Cup Way
Frisco, TX 75034
800-4SOCCER
(972) 334-9960 (Fax) http://www.usyouthsoccer.org/programs/topsoccer... E-mail: mmoran@usyouthsoccer.org
*A community-based training and team placement program for young athletes with disabilities, organized by youth soccer association volunteers. The program is designed to bring the opportunity of learning and playing soccer to any boy or girl, ages 4-19, who has a mental or physical disability.
*Contact for a program in your area. |
USA Disabled Hockey
http://www.usahockey.com//disable_hockey/defaul... *Contains a listing of teams and disciplines all over the US. See Team Listings for a team near you. |
VerySpecialCamps.Com
http://www.veryspecialcamps.com An online camp directory for individuals with one or more of a wide range of special needs. Listings are by state. |
VSA arts
800 Connecticut Ave., NW Ste. 600
Washington, DC 20006
(800) 933-8721
(202) 628-2800
(202) 737-0725 (Fax) http://www.vsarts.org/ *Check for VSA programs in your state. |
Wheelchair Sports, USA
1236 Jungermann Road, Suite A
St. Peters, MO 63376
(636) 614-6784
(636) 329-1090 (Fax) http://www.wsusa.org/ Email: wsusa@aol.com |
World TEAM (The Exceptional Athlete Matters) Sports
1629 K Street, Suite 950
Washington, DC 20006-1675
855-987-8326
855-288-3377 (Fax) http://worldteamsports.org *We bring together as athletes people of all cultures, with and without disabilities, to accomplish goals beyond what is thought possible. |
|
| Service Dogs/Canine Programs |
Assistance Dog Institute/Bergin University of Canine Studies
1215 Sebastopol Road
Santa Rosa, CA 95407
(707) 545-3647
http://www.assistancedog.org/ Email: info@berginu.edu |
Assistance Dogs International, Inc (ADI)
PO Box 5174
Santa Rosa, CA 95402
(707) 571-0427
http://www.adionline.org/ Email: info@adionline.org
|
Autism Service Dogs of America
4248 Galewood St.
Lake Oswego, OR 97035
http://autismservicedogsofamerica.com |
Canine and Abled
(609) 213-7790
http://www.canineandabled.com/index.html E-mail:canineandabled@aol.com
|
Canine Companions for Independence
P.O. Box 205
Farmingdale, NY 11735
(800) 572-2275 (TDD)
http://www.cci.org Chapter Listings by Region |
Canine Companions for Independence (CCI)/National Center
P.O. Box
Oceanside, CA 92052
(800) 572-2275
(760) 901-4300
(760) 901-4551 (Fax) http://www.caninecompanions.org *Contact for regional training centers and Veteran's Programs. |
Compassionate Paws, Inc.
W7064 Bighorn Lane
Wautoma, WI 54982
(920)787-1467
(920) 987-9098
http://www.compassionatepaws.com *Specializes in working with families and individuals affected with Autism and Autism Spectrum Disorders. Will train anyone in the US but does focus primarily on states in the Mid-West. |
Delta Society National Service Dog Center
875 124th Ave. NE Suite 101
Bellevue, WA 98005
(425) 226-7351
http://www.deltasociety.org (Search for trainers and local training programs by state) |
Dogs 4 Diabetics
1647 Willow Pass Road, #157
Concord, CA 94520-2611
(925) 246-5785
http://www.dogs4diabetics.com E-mail: info@dogs4diabetics.com |
Guiding Eyes for the Blind
611 Granite Springs Road
Yorktown Heights, NY 10598
800-942-0149
http://www.guidingeyes.org/site/PageServer |
Heaven Scent Paws
(Mailing address) 108 HWY, PP
St. Elizabeth, MO 65075
(573) 493-2627
http://www.heavenscentpaws.com E-Mail: info@heavenscentpaws.com
**Specializes in Diabetic Alert Dogs & Seizure Alert/Response Dogs |
International Association of Assistance Dog Partners
38691 Filly Drive
Sterling Heights, MI 48310
http://www.iaadp.org/ |
Land of Pure Gold Foundation
3731 Greenway Lane
Owings Mills, MD 21117
http://landofpuregold.com/service-groups.htm * A Canine Cancer research group they also provide a nationwide assistance dog group and training program listing. |
Lost Acres Assistance Dogs
RR 4 Box 643
Marble Hill, MO 63764
http://lostacresassistancedogs.bravehost.com/ Email: LostAcresAssistanceDogs@hotmail.com
*Places Service Dogs nation wide. Contact for further information. |
Paws With a Cause
4646 South Division
Wayland, MI 49348
(800) 253-7297
http://www.pawswithacause.org/ |
Positive Partners Assistance Dogs, Inc.
P.O. Box 2088
Hailey, ID 83333
(208) 721-1309
* Trains wheelchair assistance, hearing assistance, guide dogs and mobility assistance dogs. Will train dogs for anyone in the United States. |
The Psychiatric Service Dog Society (PSDS)
P.O. Box 754
Arlington, VA 22216
(571) 216-1589
http://www.psychdog.org/index.html |
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| Tax Information |
Internal Revenue Service (IRS)
http://www.irs.gov We recommend searching for "Commonly missed tax deductions". |
People's Financial Services
http://www.peoplestax.com Information guide to commonly asked questions and missed deductions (search by state) |
| Transition/Post Secondary Schooling |
Going To College: A Resource For Teens With Disabilities
(804) 828-1851
TTY: (804) 828-2494
(804) 828-2193 (Fax) http://www.going-to-college.org/index.html *This web site is designed for college bound high school students with disabilities. |
Healthy & Ready to Work National Resource Center
5600 Fishers Lane
Rockville, MD 20857
http://www.hrtw.org Provides a large resource database for Transitional teens/young adults. |
HEATH Resource Center/ George Washington University
2134 G Street, N.W.
Washington, DC 20052
http://www.heath.gwu.edu E-mail: AskHEATH@gwu.edu
*The HEATH Resource Center gathers and disseminates information to help people with disabilities reach their full potential through postsecondary education and training. Contains a wealth of information and resources on a wide variety of subjects related to education. |
National Collaborative on Workforce and Disability for Youth (NCWD)
4455 Connecticut Avenue NW, Suite 310
Washington, DC 20008
877-871-0744
TTY: 877-871-0665
http://www.ncwd-youth.info *Federal informational program site. Excellent resource. Click on "Content By State" for programs in your area. |
Virginia College Quest
George Mason University
, VA
http://www.vacollegequest.org/index.shtml E-mail: info@vacollegequest.org
*An excellent Post-High School education resource. |
We Connect Now
McIlhenny Drive
Baton Rouge, LA 70809
http://weconnectnow.wordpress.com E-mail: weconnectnow2008@gmail.com
*We Connect Now is dedicated to uniting people on issues which affect people with disabilities, with emphasis on college students higher education & employment. |
| Transportation Information |
Air Charity Network
National Headquarters 410 1st. Av. NW
Rochester, MN 55901
877-858-7788
http://aircharitynetwork.org/ Email:execdir@aircharitynetwork.org
*Air medical transportation services. Contact for office in your region to apply. |
Autoweek
1155 Gratiot Avenue
Detroit, MI
http://www.shopautoweek.com/topics/mobility.html E-mail: customerservice@shopautoweek.com
ShopAutoweek.com, from the editors of Autoweek, offers a large database of articles on mobility and assistive driving technology, in addition to reviews and recommendations to help guide new and used car buying decisions.
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Easter Seals - Vehicle Donation
http://www.vehicledonation.com Accepts donations and applications for equipment. |
Freewheel Mobility
109 Iowa Avenue
Colorado Springs, CO 80909
(719) 635-7800
1-800-728-5313
(719) 636-2718 (Fax) http://www.freewheelvans.com E-mail: freewheel@freewheelvans.com
* Multiple locations in Colorado and Utah. Nationwide delivery. |
IMED Mobility (Funding Resource page)
200 East 1st Street
Tea, SD 57064
http://www.handicapvansdirect.com/fundingsource... *This is a vendor page NOT SUPPORTED by SNRP. A partial state-by-state listing of transportation and grant programs is listed. |
Miracle Flights for Kids
2764 N. Green Valley Pkwy, #115
Green Valley, NV 89014-2120
(800) FLY-1711
(702) 261-0494
(702) 261-0497 (Fax) http://www.miracleflights.org |
National Mobility Equipment Dealers Association
3327 W. Bearss Ave.
Tampa, FL 33618
(800) 833-0427
(813) 264-2697
(813) 962-8970 (Fax) http://www.nmeda.org/ Email: nmeda@aol.com
*Provides a state-by-state listing of NMEDA QAP certified dealerships. Start here when looking for mobility equipment (lifts, vehicles, steering systems, etc.) information. |
School Transportation News
P.O. Box 789
Redondo Beach, CA 90277
(310) 792-2226
http://www.stnonline.com/stn/ *See Special Needs Transportation |
The Air Care Alliance
1515 East 71st Street, Suite 312
Tulsa, OK 74136
888-260-9707
http://www.aircareall.org Email:inquiries@aircareall.org
*Large National/International listing of agencies, groups and organizations providing air transportation for medical patients. Start here first. |
The Mobility Resource
1-866-771-7770
http://www.themobilityresource.com *Provides nationwide dealer contact information as well as a limited number of Financial Assistance programs. |