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Getting Started
Get Diagnosed
Gathering Important Information
Organizing Your Information
The Educated Parent
Early Intervention
What To Do First
What is Early Intervention?
Research
Introduction
Keeping an IEP Notebook
Preparing for an IEP Meeting
Conducting an IEP Meeting
Individuals With Disabilities Act
IDEA ACT - A Quick Reference
IDEA Legal Text
Family Finances
Recommended Resources
Housing
Introduction to Universal Housing Design
Housing options
Building a New House ~ That Works!
Introduction to Universal Housing Design
Entrances and Thresholds
Single Family Home Resources
Remodeled Bathroom
Ceiling Lifts
Problem Spaces
Adding a Ramp
Good Restroom
Not So Good Restrooms
Great Space Adaptions
Not So Great Adaptations
Ramp Design
Ramp Design (Part 2)
Commercial Ramps
Public Access Ramps
Adding a Ramp
Retrofit Door Sill Ramp
Insurance
Medical Bills
Filing an Appeal
Medical Expenses and Income Taxes
Finding Help for the Uninsured or Underinsured
Free or Discounted Prescription Programs
Medicaid Waivers
Legal Adults - Introduction
Guardianship and Declaration of Incapacitation
Establishing Guardianship and Obtaining a Declaration of Incapacitation
Dependency Determination (Military)
When to Start the Transition Process
Begin Transition - Age 14-16
Exploring Possibilities and Guardianship Issues - Age 17
Age 18
After High School Graduation - Age 19-22
Post High School Education Options
Future Housing Options
Specialized Medical Equipment
Wheelchair Evaluation
Wheelchair Safety
Introduction: Special Needs and the Military Family
DEERS & ID Cards
Dependency Determination
TriCare Introduction
TriCare Program Options
Exceptional Family Member Program (EFMP)
Individual Case Management
TriCare Extended Care Health Option (ECHO)
Early Intervention
Housing Options
Family Support Services
Community Contacts
Letters of Medical Sufficiency
Wheelchair Accessible Vans
Van Conversion: A good Example
Fund Raising - The Flamingo Air Project
Utah DSPD Complaint List Winter 2011
 

NATIONAL

Military Quick Links (National Guard, Reserve, Active Duty)
ABA Military Pro Bono Project
321 N. Clark St.
Chicago, IL 60654
312-988-5783
http://www.militaryprobono.org
*The ABA Military Pro Bono Project accepts case referrals from military attorneys on behalf of junior-enlisted, active-duty military personnel and their families with civil legal problems, and it places these cases with pro bono attorneys where the legal assistance is needed. The Project is also the platform for Operation Stand-By, through which military attorneys may seek attorney-to-attorney advice to further assist their service member clients.
American Bar Association/Military Lawyers
http://www.americanbar.org/portals/military_law...
*Scroll down the home page to the very bottom for Military and Veteran Bar Association listings.
DoD Forms Management Program
http://www.esd.whs.mil/Directives/forms/dd0001_...
*Find Dependency Determination Forms here. Scroll down to the DD 137-5 Dependency Statement - Incapacitated Child Over Age 21 and click on the form number. This form can be filled out on line.
Exceptional Family Member Program/All Branches/Mobile
http://apps.militaryonesource.mil/pls/psgprod/f...
Contains contact information, Base program locators and enrollment/justification forms for ALL Branches of service.
Kids' Waivers/Medicaid Waiver Programs
http://www.kidswaivers.org
Medicaid waivers for children are unfortunately quite confusing. Not only that, but it is impossible to find information about them. This project State-by-State is intended to simplify the process as much as possible.
Medicaid Waiver dot Org
http://medicaidwaiver.org
*A state-by-state Medicaid Waiver program listing. Please note: Medicaid programs do not transfer. If you're planning a move you'll want to do some homework. Start here then go to the official page of the state you are considering.
Military Home Front/Exceptional Family Member Program (EFMP)
http://www.militaryonesource.mil/-/the-exceptio...
*Over 100,000 military families have members with special needs. These include spouses, children, or dependent parents who require special medical or educational services. These family members have a diagnosed physical, intellectual, or emotional condition. The Exceptional Family Member Program (EFMP) works with these families to address their unique needs.The materials within this section of Military HOMEFRONT are designed to give service members and their families critical information and resources related to the EFMP program.
Military One Source
800-342-9647
http://www.militaryonesource.mil
* A DoD supported site. Military OneSource has policy and programmatic information, helpful resources, products, articles and tips on numerous topics related to military life. Confidential services are available 24 hours a day by telephone and online. In addition to the website support, Military OneSource offers confidential call center and online support for consultations on a number of issues such as spouse education and career opportunities, issues specific to families with a member with special needs, health coaching, financial support, and resources.
Military Parent Technical Assistance Center
6316 S 12th St
Tacoma, WA 98465
(253) 565-2266
(800) 572-7368
https://branchta.org
E-mail: thebranch@wapave.org * Provides Base EFMP and Special Needs contact information for all regions, all branches of service.
National Military Family Association
3601 Eisenhower Avenue, Suite 425
Alexandria, VA 22304
http://www.militaryfamily.org
E-mail: infor@militaryfamily.org *Click on Info & Resources links for EFMP=Special Needs information.
State & Local Government on the Net
http://statelocalgov.net/50states-military-vete...
*State listings for Military and Veterans sites within the 50 United States.
The National Guard Family Program
https://www.jointservicessupport.org/fp/
*Click on Contacts & Resources to find your state program.
The National Resource Directory
http://www.nationalresourcedirectory.gov
The National Resource Directory (NRD) provides access to services and resources at the national, state and local levels that support recovery, rehabilitation and community reintegration.
 
Advocacy
ADAPT
201 S. Cherokee
Denver, CO 80223
303-733-9324
http://www.adapt.org
E-mail: adapt@adapt.org *See Contact List for a chapter in your state.
Family Voices, Inc.
2340 Alamo SE, Suite 102
Albuquerque, NM 87106
(888) 835-5669
(505) 872-4774
(505) 872-4780 (Fax)
http://www.familyvoices.org
Information on how to contact state senators and find Family Voices chapters in your state.
Kids Included Together (KIT)
2013 H Street NW, Ste 620
Washington, DC 20006
(858) 225-5680
(619) 758-0949 (Fax)
http://www.kitonline.org
Email: info@KITonline.org *Kids Included Together (KIT) specializes in providing best practices training for community–based organizations committed to including children with and without disabilities into their recreational, child development and youth development programs.
Louisiana Developmental Disabilitites Council
626 Main Street, Suite A
Baton Rouge, LA 70821-3455
(225) 342-6804
(800) 450-8108
(225) 342-1970 (Fax)
https://laddc.org
Provides a wealth of self advocacy information. Linda recommends individuals check out the "Advocacy 101" section under "Policy and Advocacy" for an outline of a sample letter to Legislators and a "How-To" testify before a legislative body and other great legislative advocacy information.
National Disability Rights Network
900 Second Street, NE, Suite 211
Washington, DC 20002
202-408-9514
TTY: 202-408-9521
202-408-9520 (Fax)
http://www.ndrn.org
E-mail: info@ndrn.org *Click on "Get Help in Your State" to find a chapter near you.
National Gateway to Self-Determination Web Portal
http://www.aucd.org/ngsd
*This site provides a single access for self-advocates, professionals, policy-makers and the general public on the current best practices and evidence-based activities in enhancing self-determination in the lives of people with developmental and intellectual disabilities, as well as any individual.
Patient Advocate Foundation
421 Butler Farm Road
Hampton, VA 23666
(800) 532-5274
(757) 873-8999 (Fax)
http://patientadvocate.org
E-Mail: help@patientadvocate.org *Provides patients with arbitration, mediation and negotiation to settle issues with access to care, medical debt, and job retention related to their illness.
The American Association of People with Disabilities (AAPD)
2013 H Street, NW, 5th Floor
Washington, DC 20006
800-840-8844 (V/TTY)
202-457-0046 (V/TTY)
866-536-4461 (Fax)
http://www.aapd.com
*The American Association of People with Disabilities is the nation's largest disability rights organization. We promote equal opportunity, economic power, independent living, and political participation for people with disabilities. Our members, including people with disabilities and our family, friends, and supporters, represent a powerful force for change.
World Institute on Disability
510 16th Street, Suite 100
Oakland, CA 94612
(510) 763-4100
http://www.wid.org
 
Agencies/Assistance Programs - Government
American National Red Cross
2025 E. Street NW
Washington, DC 20006
(202) 303-4498
http://www.redcross.org
Centers for Medicare & Medicaid Services
7500 Security Boulevard
Baltimore, MD 21244
(877) 267-2323
http://www.cms.hhs.gov/home/medicaid.asp
*Nationwide Medicaid program information.
GovBenefits.Gov
http://www.Benefits.gov
Provides information regarding government assistance programs nationwide. Includes a state-by-state program search.
Kids' Waivers/Medicaid Waiver Programs
http://www.kidswaivers.org
Medicaid waivers for children are unfortunately quite confusing. Not only that, but it is impossible to find information about them. This project State-by-State is intended to simplify the process as much as possible.
Medicaid Waiver dot Org Disability Services & Waivers all 50 States
http://medicaidwaiver.org
*A state-by-state Medicaid Waiver program listing. Please note: Medicaid programs do not transfer. If you're planning a move you'll want to do some homework. Start here then go to the official page of the state you are considering.
Social Security Administration Information for Parents
National Info. 1-800-772-1213
http://www.ssa.gov/pgm/links_ssi.htm
*Benefits information and local office addresses with contact information available.
US Department of Indian Health Services
801 Thompson Avenue, Ste. 400
Rockville, MD 20852-1627
(See Contact Listing)
http://www.ihs.gov
* Complete program and regional office listings for IHS Services
 
Agencies/Assistance Programs - Private
ABILITY Corps
http://www.abilityawareness.org/index.htm
*Our purpose is to create a world of inclusion and awareness for people with disabilities – through art, media, housing, employment, and volunteer opportunities.
Internet Drug Coupons.com
http://www.internetdrugcoupons.com
* Free resource for hundreds of coupons for prescription drugs, non-prescription drugs.
Kiwanis International
3636 Woodview Trace
Indianapolis, IN 46268-3196
1-800-549-2647
Cell 1-317-875-8755
http://www.kiwanis.org
*Service is at the heart of every Kiwanis club, no matter where in the world it’s located. Members stage nearly 150,000 service projects and raise nearly US$100 million every year for communities, families and projects. By working together, members achieve what one person cannot accomplish alone. Click on Clubs to find a community club near you.
Merck Patient Assistance and Prescription Discount Programs
1-800-727-5400
http://www.merckhelps.com
Merck offers a family of programs providing free and discounted medicines to patients who cannot afford their prescribed medicines.
National School Foundation Association
509 Aurora Ave, Ste 406
Naperville, IL 60540
(866) 824-8513
http://www.schoolfoundations.org
* Provides a Listing of Foundations by State (click on menu in left-hand menu). Excellent resource for those needing foundation information in each state. Click on Foundations at the top of the page.
NeedyMeds.com
http://www.needymeds.com
*Provides information and resources for finding medication assistance programs. Has a section specifically for children.
Partnership for Prescription Assistance
1-888-477-2669
http://www.pparx.org
*Offers single point access for prescription assistance programs for the uninsured/under-insured.
Pfizer Helpful Answers
1-866-706-2400
http://www.pfizerhelpfulanswers.com
*Pfizer Helpful Answers offers patient assistance programs to people without prescription coverage.
Registry of Interpreters for the Deaf, Inc.
333 Commerce Street
Alexandria, VA 22314
703) 838-0030
TTY: (703) 838-0459
(703) 838-0454 (Fax)
http://www.rid.org
*The Registry of Interpreters for the Deaf, Inc. (RID), a national membership organization, plays a leading role in advocating for excellence in the delivery of interpretation and transliteration services between people who use sign language and people who use spoken language.
Rx Assist Volunteers in Health Care
111 Brewster Street
Pawtucket, RI 02860
401-729-3284
401-729-2955 (Fax)
http://www.rxassist.org
E-mail: info@rxassist.org Offers a comprehensive database of medical prescription patient assistance programs.
Single Mothers Grants dot Org
http://helpwithpayingbills.org
*Lists of companies and organizations that will help individuals pay the essentials of basic needs, such as rent or energy bills. Click on your state and review the list of companies and agencies available.
The Ability Experience
PO Box 241368
Charlotte, NC 28224
(980) 318-5385
(704) 504-2400 ext. 5385
(980) 318-5296 (Fax)
http://www.abilityexperience.org
E-mail: chapterservices@abiltyexperience.org *Members of Pi Kappa Phi support their local communities through the construction of wheelchair ramps for families and individuals that would not otherwise be able to afford it.If you are an individual or family in need of a wheelchair ramp or know of someone who is in need of one to help provide better access to your home, we will gladly get a local chapter organized to assist with the construction.
The Arc of the United States
1010 Wayne Avenue, Suite 650
Silver Springs, MD 20910
(800) 433-5255
(301) 565-3842
(301) 565-3843 (Fax)
http://www.thearc.org/
*National office email: info@thearc.org
UnitedHealthcare Children's Foundation
PO Box 41
Minneapolis, MN 55440-0041
1-855-698-4223
http://www.uhccf.org
*UHCCF grants provide financial help/assistance for families with children that have medical needs not covered or not fully covered by their commercial health insurance plan. The Foundation aims to fill the gap between what medical services/items a child needs and what their commercial health benefit plan will pay for.
Army National Guard/Reserve
The National Guard Family Program
https://www.jointservicessupport.org/fp/
*Click on Contacts & Resources to find your state program.
 
Assistive Technologies
AbleData
8630 Fenton Street, Suite 930
Silver Spring, MD 20910
1-800-227-0216
301-608-8998
301-608-8958 (Fax)
http://www.abledata.com
E-mail: abledata@macrointernational.com *AbleData provides objective information about assistive technology products and rehabilitation equipment nationwide. Does have a state by state directory.
Ablenet
2625 Patton Road
Roseville, MN 55113
800-322-0956
http://www.ablenetinc.com
E-mail: customerservice@ablenetinc.com *Creating assistive technology products that transform lives in simple, tangible, and powerful ways. We believe that all people deserve the tools to help them learn about, interact with, and participate in the world around them. Whether that's a child in the classroom, an adult recovering from an injury, a veteran with a permanent disability, or a senior who wants to remain at home, AbleNet is there to provide an "easy tech, easy value" approach to helping people improve their lives.
Center for Applied Special Technology, CAST
40 Harvard Mills Square, Suite 3
Wakefield, MA 01880-3233
(781) 245-2212
TTY (781) 245-9320
(781) 245-5212 (Fax)
http://www.cast.org
E-mail: cast@cast.org * CAST is a nonprofit research and development organization that works to expand learning opportunities for all individuals, especially those with disabilities, through Universal Design for Learning.
Center on Technology and Disability
FHI 360 1825 Connecticut Avenue N.W.,
Washington, DC 20009
https://www.ctdinstitute.org
E-mail: ctd@fhi360.org * The Center on Technology and Disability (CTD) is funded by the U.S. Department of Education’s Office of Special Education Programs (OSEP). The Center is designed to increase the capacity of families and providers to advocate for, acquire, and implement effective assistive and instructional technology (AT/IT) practices, devices, and services.
First Hand Foundation
2800 Rockcreek Parkway
Kansas City, MO 64117
816-201-1569
https://www.firsthandfoundation.org
E-mail: Firsthandfoundation@cerner.com *A funding resource for Assistive Technology. First Hand accepts applications from anywhere in the world. If you or someone you know would like to apply for assistance on behalf of a child, please review the financial guidelines and the criteria listed on the site. If your child's case meets all criteria, we are happy to consider your application.
If I Need Help
PO Box 803356
Santa Clarita, CA 91380
661-524-6732
https://ifineedhelp.org
E-mail: Erin@IfiNeedHelp.org *Personal wearable scan codes that link to a live profile. The profile can be updated in real time and can be emailed to others when a search is needed. Our free members include people with Autism, Epilepsy, Alzheimer's, Down Syndrome, medical conditions, Intellectual Disability and service dogs.
Inclusive TLC (Technology Learning Communication)
2206 Legacy Oak Drive
Waxhaw, NC 28173
(704) 243-3622
1-800-462-0930
(704) 243-3623 (Fax)
http://www.inclusivetlc.com/
E-mail: info@inclusiveTLC.com
National Library Service for the Blind and Physically Handicapped (NLS)
1291 Taylor Street, NW
Washington, DC 20011
(202) 707-5100
TDD: (202) 707-0744
(202) 707-0712 (Fax)
http://www.loc.gov/nls
E-mail/General Info: nls@loc.gov *Through a national network of cooperating libraries, NLS administers a free library program of braille and audio materials circulated to eligible borrowers in the United States by postage-free mail.
Pass It On Center ~ The National AT Reuse Center
1700 Century Circle, Suite 300
Atlanta, GA 30345
1-800-497-8665
1-866-373-7778 TDD
http://www.passitoncenter.org
E-mail: info@passitoncenter.org *The Pass It On Center is creating national and state by state resource lists to foster the appropriate reuse of AT so that people with disabilities can get the affordable AT they need in order to live, learn, work and play more independently.
Recording for the Blind and Dyslexic
20 Roszel Road
Princeton, NJ 08540
(866-732-3585)
http://www.rfbd.org/
* The nation's educational library for those with print disabilities. * See home page for the library branch in your area.
RESNA~Rehabilitation Engineering and Assistive Technology Society of North America
1700 N. Moore Street, Suite 1540
Arlington, VA 22209
(703)-524-6686
http://www.resna.org
RESNA maintains a large data base of assistive technology resources, funding sources and other programs. *Listings by state.
Section 508.gov (IT Accessibility & Workforce Division (ITAW))
Office of Government wide Policy 1800 F Street NW, Room G211
Washington, DC 20405
(Help) 202-208-7420
202-501-2010 (TTY)
202-501-6269 (Fax)
http://www.section508.gov/
GSA’s IT Accessibility and Workforce (ITAW) provides assistive technology solutions to eliminate barriers for people with disabilities. ITAW is the government's principal advocate and coordinator for Section 508 implementation that requires agencies to make information technology accessible for people with disabilities.
TeamChildren
960 Rittenhouse Road
Audubon, PA 19403
1 (610) 666-1795
1 (610) 666-1798 (Fax)
http://www.teamchildren.org
Email: teamchildren@teamchildren.com *Our mission is to re-purpose older/slower computers to ensure that every child has access to the use of a computer in the comfort and safety of their home, every school has adequate computers in the classroom, and no social service organization is without the technological tools to accomplish their goals.
 
Charities and Foundations
Christopher & Dana Reeve Foundation
636 Morris Turnpike, Suite 3A
Short Hills, NJ 07078
1-800-225-0292
http://www.christopherreeve.org
*Spinal Cord injuries and paralysis. Specific military treatment program available.
Easter Seals National Headquarters
230 W. Monroe St., Suite 1800
Chicago, IL 60606
(800) 221-6827
TTY 312-726-4258
(312) 726-1494 (Fax)
http://www.easterseals.com
Check your local chapter for camps, grants, respite services and other services available in your area.
First Hand Foundation
2800 Rockcreek Parkway
Kansa City, MO 64117
816-201-1569
https://www.firsthandfoundation.org
E-mail: Firsthandfoundation@cerner.com *A funding resource for Assistive Technology. First Hand accepts applications from anywhere in the world. If you or someone you know would like to apply for assistance on behalf of a child, please review the financial guidelines and the criteria listed on the site. If your child's case meets all criteria, we are happy to consider your application.
Food Pantries dot Org
http://www.foodpantries.org
*A state-by-state directory of Food Banks, Soup Kitchens, and non-profit organizations committed to fighting hunger.
Jordan Thomas Foundation
P.O. Box 22764
Chattanooga, TN 37422
(423) 622-9006
http://www.jordanthomasfoundation.org
*Assists children with the need for prosthetics.
Lions Clubs International
300 W. 22nd Street
Oak Brook, IL 60523-8842
http://www.lionsclubs.org/EN/index.php
*A national service organization with clubs in all 50 states. Eye glasses, ramp programs, other services which vary by location. Click on their Club Locator to find a club near you.
Make-A-Wish Foundation of America
3550 North Central Avenue, Suite 300
Phoenix, AZ 85012-2127
(800) 722-9474
(602) 279-9474
(602) 279-0855 (Fax)
http://www.wish.org/
*See contact Us page for local chapters in your state.
March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
(914) 997-4488 (National Office)
http://www.marchofdimes.com/
*See site for the office in your state.
Muscular Dystrophy Association (MDA)
3300 E. Sunrise Drive
Tucson, AZ 85718
1-800-344-4863
http://www.mdausa.org/
Email: mda@mdausa.org *See home page for office in your community.
National School Foundation Association
509 Aurora Ave, Ste 406
Naperville, IL 60540
(866) 824-8513
http://www.schoolfoundations.org
* Provides a Listing of Foundations by State Excellent resource for those needing foundation information in each state. Click on Foundations at the top of the page.
Ronald McDonald House Charities
One Kroc Drive
Oak Brook, IL 60523
630-623-7048
http://www.rmhc.org/
E-mail: info@rmhc.org *Click on RMHC Programs to find the facility nearest you.
Stuttering Foundation of America
3100 Walnut Grove Road, Suite 603
Memphis, TN 38111-0749
Hot-line:(800) 992-9392
(901) 452-7343
(901) 452-3931 (Fax)
http://www.stuttersfa.org/
Email: info@stutteringhelp.org.
United Cerebral Palsy (UCP)
1660 L Street, NW, Suite 700
Washington, DC 20036
(800) 872-5827
TTY (202) 973-7197
(202) 776-0414 (Fax)
http://www.ucp.org
*Excellent state-by-state resource guide.
United Way
701 N. Fairfax St.
Alexandria, VA 22314
http://national.unitedway.org
*Non-profit charitable organization offering a variety of services including camps, respite, grants, home modification assistance, etc. Find your local chapter here.
Child Care Resource Listings
Family Caregiver Alliance
785 Market Street, Suite 750
San Francisco, CA 94103
(800) 445-8106
(415) 434-3388
http://www.caregiver.org
E-mail: info@caregiver.org *Check out the Family Care Navigator for services in your state. http://www.caregiver.org/caregiver/jsp/fcn_content_node.jsp?nodeid=2083
Care . Com, Inc.
1400 Main St.
Waltham, MA 02451
http://www.care.com/special-needs-p1162.html
*Has a large Special Needs section with references as well as information regarding respite providers in local areas. Listed by state and zip code.
Child Care Aware
3101 Wilson Blvd. Suite 350
Arlington, VA 22201
1-800-424-2246
TTY:1-866-278-9428
(703) 341-4101 (Fax)
http://www.childcareaware.org
Child Care Aware is a cooperative program of the National Association of Child Care Resource and Referral Agencies. Funded through the Office of Family Assistance, Administration for Children and Families, U.S. Department of Health and Human Services. **SNRP does NOT endorse this site. Listed for reference only. Use responsible caution when investigating ALL care providers.
National Respite Locator Service
800 Easttowne Drive, Suite 105
Chapel Hill, NC 27514
(800) 473-1727 ext. 222
http://archrespite.org
List of Respite provider links nationwide. Focuses on respite care for families of special needs children.
Disability Specific Organizations
ADHD News (Attention Deficit Hyperactivity Disorder)
http://www.adhdnews.com/
*Features message boards, a monthly newsletter, information on medication and treatments, links to relevant Blogs, etc.
Administration for Community Living
330 C St SW
Washington, DC 20201
(202) 401-4634
https://www.acl.gov
Email: Requests for information about ACL programs and comments and technical issues related to the ACL website can be sent to: aclinfo@acl.hhs.gov ADD programs are at work in every state and U.S. territory. ADD does not provide direct consumer support or financial assistance. ADD provides funding, monitoring, and policy guidance to it's programs Nationwide. Check the State Program Listing for program information in your state. Eldercare Locator (to find local resources):(800) 677-1116
Alexander Graham Bell Association for the Deaf and Hard of Hearing
3417 Volta Place, NW
Washington, DC 20007
(202) 337-5220
TTY: (202) 337-5221
(202) 337-8314 (Fax)
http://www.agbell.org
Email: info@agbell.org
American Association on Intellectual and Developmental Disabilities (AAIDD)
444 N. Capitol Street, NW, Suite 846
Washington, DC 20001-1512
(800) 424-3688
(202) 387-1968
(202) 387-2193 (Fax)
http://www.aaidd.org/
American Brain Tumor Association
2720 River Road
Des Plaines, IL 60018
(800) 886-2282
(847) 827-9910
(847) 827-9918 (Fax)
http://hope.abta.org
Email: info@abta.org
American Council of the Blind
1155 15th Street NW, Suite 1004
Washington, DC 20005
(800) 424-8666
(202) 467-5081
(202) 467-5085 (Fax)
http://www.acb.org
American Diabetes Association
1701 North Beauregard Street
Alexandria, VA 22311
(1-800-342-2383).
http://www.diabetes.org
Email: AskADA@diabetes.org. *See registry for local chapter near you.
American Foundation for the Blind
11 Penn Plaza, Suite 300
New York, NY 10001
(800-232-5463)
(212) 502-7600
(212) 502-7777 (Fax)
http://www.afb.org/
E-mail: afbinfo@afb.net
American Heart Association (National Center)
7272 Greenville Avenue
Dallas, TX 75231
1-800-242-8721
http://www.americanheart.org
*Click on "Local Info" or input your Zip code for your local office.
American Lung Association
61 Broadway, 6th Floor
New York, NY 10006
1-800-586-4872
(212) 315-8700
http://www.lungusa.org
American Printing House for the Blind
1839 Frankfort Avenue,
Louisville, KY 40206
http://www.aph.org/
American Society for Deaf Children
3820 Hartzdale Drive
Camp Hill, PA 17011
V/TTY: 1-800-942-2732
http://www.deafchildren.org/
Amputee Coalition
900 East Hill Avenue, Suite 205
Knoxville, TN 37915-2566
888-267-5669
TTY:865-525-4512
http://www.amputee-coalition.org
Angelman Syndrome Foundation
4255 Westbrook Drive, Ste. 216
Aurora, IL 60504
1-800-432-6435
(630) 978-4245
(630) 978-7408 (Fax)
http://www.angelman.org
Email: info@angelman.org
ASPEN (Autism/Asperger Spectrum Disorders)
9 Aspen Circle
Edison, NJ 08820
(732) 321-0880
http://aspennj.org/
email: info@AspenNJ.org
Asthma and Allergy Foundation of America
1233 20th Street, NW, Suite 402
Washington, DC 20036
1-800-727-8462
http://www.aafa.org/
Email:Info@aafa.org
Attention Deficit Disorder Association (ADDA)
15000 Commerce Parkway, Suite C
Mount Laurel, NJ 08054
(856) 439-9099
(856) 439-0525 (Fax)
http://www.add.org/
Email: adda@ahint.com
Attention Deficit Disorders Association - Southern Region
12345 Jones Rd. Suite 287-7
Houston, TX 77070
(281) 897-0982
(281) 894-6883 (Fax)
http://www.adda-sr.org/
Autism and PDD Support Network
14271 Jeffrey #3
Irvine, CA 92620
http://www.autism-pdd.net
On-line information and support for families with children with Autism and Spectrum Disorders. Has a state-by-state Autism resource list.
Autism Program at Yale (Yale Child Study Center)
230 South Frontage Rd.
New Haven, CT 06519
(203) 785-3420
(203) 764-4373 (Fax)
http://medicine.yale.edu/childstudy/autism/inde...
E-mail: betty.litto@yale.edu Our program involves infants, toddlers, pre-school, and school-age children, as well as young adults (18-21 years) with autism and related disorders and integrates highly experienced professionals from the fields of clinical psychology, neuropsychology and neuroimaging, child psychiatry, speech-language pathology, social work, genetics and the biological sciences, as well as psychopharmacology and psychiatric nursing. Our clinical and research activities are located in the Child Study Center at Yale University, School of Medicine in New Haven, Connecticut.
Autism Research Institute
1-866-366-3361
http://www.autism.com/
*A research organization which provides information based on research to parents and professionals, worldwide.
Autism Resources
http://www.autism-resources.com/
* An informational site offering links and articles regarding Autism and Asperger's Syndrome.
Autism Society of America
7910 Woodmont Ave., Suite 300
Bethesda , MD 20814-3067
(800) 328-8476
(301) 647-0881
http://www.autism-society.org
Education, diagnosis education, family, resource lists, etc.
Autism Speaks
2 Park Avenue, 11th Floor
New York, NY 10016
(212) 252-8584
(212) 252-8676 (Fax)
http://www.autismspeaks.org/
E-mail: contactus@autismspeaks.org
Autism Speaks
5455 Wilshire Boulevard, Suite 2250
Los Angeles, CA 90036
(323) 549-0500
(323) 549-0547 (Fax)
http://www.autismspeaks.org
E-Mail: contactus@autismspeaks.org *For an Autism Speaks office in your area visit our Community Pages.
Bohring-Opitz Syndrome Foundation, Inc.
1703 Nw 42 Pl
Gainesville
, FL 32605
http://bohring-opitz.org
E-mail bohringopitz@gmail.com *Bohring-Opitz Syndrome Foundation, Inc. is dedicated to improving the lives of people affected by BOS through the establishment of a Medical Advisory Board, awareness initiatives, and parent/patient advocacy.
Brain Injury Association of America
8201 Greensboro Drive
McLean, VA 22102
1-800-444-6443 Information Only
(703) 761-0750
http://www.biausa.org/
*Contains listings by state from the home page.
Center for Autism and Related Disabilities, University of Florida, Gainesville
2124 NE Waldo Road, Suite 3200
Gainesville, FL 32609
1 (800) 928-8476
(352) 273-0581
(352) 846-3703 (Fax)
http://card.ufl.edu
Email: card-info@ufl.edu *The Center for Autism and Related Disabilities (CARD) provides support and assistance with the goal of optimizing the potential of people with autism and related disabilities.
Child & Adolescent Bipolar Foundation
820 Davis St., Ste. 520
Evanston, IL 60201
847-492-8519
847-492-8520 (Fax)
http://www.bpkids.org
Childhood Apraxia of Speech Association (CASANA)
1151 Freeport Road #243
Pittsburgh, PA 15238
http://www.apraxia-kids.org/
Children & Adults With Attention Deficit Disorder (CHADD)
8181 Professional Place - Suite 150
Landover, MD 20785
(301) 306-7070
(301) 306-7090 (Fax)
http://www.chadd.org
Children With Diabetes
5689 Chancery Place
Hamilton, OH 45011
http://www.childrenwithdiabetes.com
*Diabetes education and information
Children's Craniofacial Association
13140 Coit Road, Suite 307
Dallas, TX 75240
(800) 535-3643
(214) 570-9099
(214) 570-8811 (Fax)
http://www.ccakids.com/
Email: contactCCA@ccakids.com
Chronic Fatigue & Immune Dysfunction Syndrome Association
PO Box 220398
Charlotte, NC 28222-0398
(704) 365-2343
http://www.cfids.org/
Cleft Advocate (A program of AboutFace, USA)
http://www.cleftadvocate.org/index.html
Cornelia de Lange Syndrome Foundation, Inc
302 West Main St. #100
Avon, CT 06001
800-223-8355
860-676-8166
860-676-8337 (Fax)
http://www.cdlsusa.org
E-mail: info@cdlsusa.org
Deafblind International
http://www.deafblindinternational.org
* This organization is mainly in Australia and Canada but the site has some great information.
Developmental Delay Resources
5801 Beacon St.
Pittsburgh, PA 15217
1-800-497-0944
(412) 422-1374 (Fax)
http://www.devdelay.org/
Email:devdelay@mindspring.com
Diabetes Monitor
51 Woods Road
Hillsborough, NJ 08844
http://www.diabetesmonitor.com
E-mail: info@diabetesmonitor.com *Large data base of resources, sites and information. (Banner ads are NOT part of their content. We recommend the Blog content, only)
Dravet Syndrome Foundation, Inc.
PO Box 16536
West Haven, CT 06516
203-392-1950
203-907-1940 (Fax)
http://www.dravetfoundation.org
E-mail:info@dravetfoundation.org Parent and professional organization promotes research and education for the early diagnosis, appropriate treatment, and cure of Dravet Syndrome, also known as SMEI (Severe Myoclonic Epilepsy of Infancy), and related genetic, febrile, sodium channel epilepsies.
Dup15q Alliance
P.O. Box 674
Fayetteville, NY 13066
855-387-1572
http://www.dup15q.org
Email: info@dup15q.org *See web site for Dup15q clinics in the US.
Epilepsy Foundation of America
8301 Professional Place
Landover, MD 20785
(800) 332-1000
http://www.epilepsyfoundation.org/
Families For Early Autism Treatment (FEAT)
P.O. Box 255722
Sacramento, CA 95865-5722
(916) 843-1536
http://www.feat.org
Email: webmaster@feat.org *State-by-State listing available.
FAS (Fetal Alcohol Syndrome) Community Resource Center
4710 East 29th. Street, Suite 7
Tucson, AZ 85711
(520) 296-9172
http://www.come-over.to/FASCRC/
Federation of Families for Children's Mental Health
9605 Medical Center Drive., Suite 280
Rockville, MD 20850
(240) 403-1901
(240) 403-1909 (Fax)
http://www.ffcmh.org/
*Local chapters listed by state.
Fetal Alcohol Spectrum Disorders Center for Excellence
2101 Gaither Road, Suite 600
Rockville, MD 20850
1-866-786-7327
http://www.fascenter.samhsa.gov
Fetal Alcohol Syndrome (FAS)
http://come-over.to/FAS/
*Informational site sponsored by FAS community Resource Center, Tucson, Arizona.
First Signs, Inc.
P.O. Box 358
Merrimac, MA 01860
(978) 346-4380
http://www.firstsigns.org
E-mail: info@firstsigns.org *Autism Training for families and professionals.
Five P Minus Society (Cru-du-chat)
1-888-970-0777
http://www.fivepminus.org
*To encourage and facilitate communication among families having a child with 5p- Syndrome and to spread awareness and education of the syndrome to these families and their service providers.Call for referral to the Family Support Coordinator covering your area.
Foundation for Ichthyosis and Related Skin Types
1364 Welsh Road G2
North Wales, PA 19454
(215) 619-0670
(215) 619-0780 (Fax)
http://www.scalyskin.org/
Email: info@scalyskin.org
Hands & Voices (Deaf & Hard of Hearing)
P.O. Box 371926
Denver, CO 80237
(866) 422-0422
(303) 300-9763
http://www.handsandvoices.org/
Email: parentadvocate@handsandvoices.org *State chapter links available on the Home Page.
Hearing Loss Association of America
7910 Woodmont Ave., Suite 1200
Bethesda, MD 20814
(301) 657-2248
http://www.hearingloss.org
*Check for local chapters in your state.
Helen Keller Services for the Blind National Center
141 Middle Neck Road
Sands Point, NY 11050
(516) 944-8900
(516) 944-7302 (Fax)
http://www.helenkeller.org
email: HKNCinfo@hknc.org *Satellite office listing.
International Dyslexia Association
40 York Rd., 4th Floor
Baltimore, MD 21204-5202
(800) 222-3123
(410) 296-0232
https://dyslexiaida.org
Email: info@dyslexiaida.org
International Fibrodysplasia Ossificans Progressiva Association (IFOPA)
PO Box 196217
Winter Springs, FL 32719-6217
(407) 365-4194
http://www.ifopa.org/
E-mail: together@ifopa.org
International Rett Syndrome Association
9121 Piscataway Road, #2B
Clinton, MD 20735
(800) 818-7388
(301) 856-3334
http://www.rettsyndrome.org/
Email: irsa@rettsyndrome.org
Learning Disabilities Association of America
4156 Library Road
Pittsburgh, PA 15234
(412) 341-1515
(412) 344-0224 (Fax)
http://www.ldanatl.org
* See menu for chapter listings by state.
Little People of America - National Headquarters
5289 NE Elam Young Parkway, Suite F-100
Hillsboro, OR 97124
(888) 572-2001
(503) 846-1562
http://www.lpaonline.org/mc/page.do
E-mail: info@lpaonline.org
Mental Health America
2000 N. Beauregard Street, 6th Floor
Alexandria, VA 22311
(800) 969-6642
TTY: (800) 433-5959
(703) 684-5968 (Fax)
http://www.nmha.org/
Mental Health Matters
P.O. Box 82149
Kenmore , WA 98028
(425) 402-6934
http://www.mental-health-matters.com/
Email:info@mental-health-matters.com
Muscular Dystrophy Association-USA
3300 E. Sunrise Drive
Tucson, AZ 85718
1-800-572-1717
http://www.mda.org
* Click on Find Your Local MDA Office to locate an office and clinic near you.
National Alliance for the Mentally Ill (NAMI)
Colonial Place Three 2107 Wilson Blvd., Suite 300
Arlington, VA 22201-3042
(703) 524-7600
Member Services:(888) 999-6264
(703) 524-9094 (Fax)
http://www.nami.org/
*See home page for State and local contacts.
National Association for Child Development
549 25th Street
Ogden, UT 84401
(801) 621-8606
(801) 621-8389 (Fax)
http://www.nacd.org/
Email: info@nacd.org
National Association for Child Development/Eastern Regional Office
120 North Church Street #101
Westchester, PA 19382
http://www.nacd.org/
National Association for Parents of Children with Visual Impairments
P.O. Box 317
Watertown, MA 02471
1-800-562-6265
1-617-972-7441
1-617-972-7444 (Fax)
http://www.napvi.org
email: napvi@perkins.org
National Association of the Deaf
8630 Fenton Street, Suite 820
Silver Spring, MD 20910-3819
(301) 587-1788
TTY: (301) 587-1789
301-587-1791 (Fax)
http://www.nad.org
National Ataxia Foundation
2600 Fernbrook Lane Suite 119
Minneapolis, MN 55447
(763) 553-0020
http://www.ataxia.org/index.aspx
National Attention Deficit Disorder Association
15000 Commerce Parkway, Suite C
Mount Laurel, NJ 08054
(856) 439-9099
(856) 439-0525 (Fax)
http://www.add.org/
Email: adda@ahint.com
National Autism Services Center (The West Virginia Autism Training Center)
1 John Marshall Drive, Suite 316
Huntington, WV 25755
(800) 344-5115 (WV Only)
(304) 696-2332
http://www.autismservicescenter.org/
National Brain Tumor Foundation
22 Battery Street, Suite 612
San Fransisco, CA 94111-5520
1-800-934-2873
415.834.9970
http://www.braintumor.org/
Email:nbtf@braintumor.org
National Center for Learning Disabilities (NCLD)
381 Park Avenue South Suite 1401
New York, NY 10016
(888) 575-7373
(212) 545-7510
(212) 545-9665 (Fax)
http://www.ncld.org
National Consortium On Deaf-Blindness
345 N. Monmouth Ave.
Monmouth, OR 97361
800-438-9376
800-854-7013(TTY)
503-838-8150 (Fax)
http://www.nationaldb.org
E-mail: info@nationaldb.org
National Craniofacial Association
P.O.Box. 11082
Chattanooga, TN 37401
1-800-332-2373
http://www.faces-cranio.org/
Email: faces@faces-cranio.org
National Cued Speech Association (NCSA)
5619 McLean Drive
Bethesda, MD 20814-1021
V/TTY (800) 459-3529
V/TTY (301) 915-8009
http://www.cuedspeech.org/
*See "Affiliates" for a regional center near you.
National Down Syndrome Congress
1370 Center Drive, Suite 102
Atlanta, GA 30338
(800) 232-6372
(770) 604-9500
(770) 604-9898 (Fax)
http://www.ndsccenter.org/index.php
E-Mail: info@ndsccenter.org
National Down Syndrome Society
666 Broadway
New York, NY 10012
(800) 221-4602
(212) 979-2873 (Fax)
http://www.ndss.org/
email: info@ndss.org
National Family Association For Deaf-Blind
141 Middle Neck Road
Sands Point, NY 11050
800-255-0411
516-883-9060 (Fax)
http://nfadb.org
email: NFADB@aol.com *National State-by-State listing
National Federation for the Blind
1800 Johnson Street
Baltimore, MD 21230
(410) 659-9314
http://www.nfb.org
National Fragile X Foundation
1615 Bonanza St. Suite 202
Walnut Creek, CA 95456
(800) 688-8765
(925) 938-9315 (Fax)
http://www.fragilex.org
Email: natlfx@fragilex.org
National Fragile X Foundation
PO Box 190488
San Francisco, CA 94119
800-688-8765
925-938-9300
925-938-9315 (Fax)
http://www.fragilex.org
email:NATLFX@FragileX.org
National Institute on Developmental Delays
1900 West MacArthur
Shawnee, OK 75801
(405) 878-5301
(405) 878-5114 (Fax)
http://nidd.us
*Large number of programs, services and information sources available.
National Library Services for the Blind and Physically Handicapped
The National Library Service for the Blind and Physically Handicapped Library of Congress
Washington , DC 20542
(800) 424-8567
(202) 707-5100
http://www.loc.gov/nls/
*To connect to a local library call 1-888-657-7323. email: nls@loc.gov
National Multiple Sclerosis Society
733 Third Avenue, Third Floor
New York, NY 10017
1-800-344-4867
http://www.nmss.org
* Click on "Find Your Chapter" to find a chapter in your area.
National Organization on Fetal Alcohol Syndrome (NOFAS)
900 17th Street, NW, Suite 910
Washington, DC 20006
1-800-66NOFAS
(202) 785-4585
http://www.nofas.org
*Go to the Resource Directory for the office in your state.
National Reye's Syndrome Foundation
1-800-233-7393
(419) 636-2679
(419) 636-989 (Fax)
http://www.reyessyndrome.org/
E-mail: nrsf@reyessyndrome.org
National Scoliosis Foundation
5 Cabot Place
Stoughton, MA 02072
1-800-673-6922
http://www.scoliosis.org/index.php
Email: NSF@scoliosis.org
National Spinal Cord Injury Association
6701 Democracy Blvd., Suite 300-9
Bethesda, MD 20817
(800) 962-9629
Voice-mail:(301) 214-4006
(301) 990-0445 (Fax)
http://www.spinalcord.org/
email: info@spinalcord.org
National Stuttering Association
119 W. 40th Street, 14th Floor
New York, NY 10018
(800-937-8888)
(212) 944-4050
http://www.nsastutter.org/
Email: info@WeStutter.org
Obsessive Compulsive Foundation, Inc.
676 State Street
New Haven, CT 06511
(203) 401-2070
http://www.ocfoundation.org/
Osteogenesis Imperfecta Foundation
804 W. Diamond Ave, Suite 210
Gaithersburg, MD 20878
(800) 981-2663
(301) 947-0083
(301) 947-0456 (Fax)
http://www.oif.org/site/PageServer
Email: bonelink@oif.org
Parents of Galactosemic Children, Inc. (PGC)
P.O. Box 2401
Mandeville, LA 70470-2401
1-866-900-7421
http://www.galactosemia.org/
Prader-Willi Syndrome Association (USA)
5700 Midnight Pass Road, Suite 6
Sarasota , FL 34242
800-926-4797
941-312-0400
http://www.pwsausa.org/
Email: national@pwsausa.org
Selective Mutism Association
http://www.selectivemutism.org
*Provides listing of state-by-state support groups, information and resources.
Sesame Street and Autism:See Amazing in All Children
http://autism.sesamestreet.org
*Aimed at communities with children ages 2 to 5. Developed with input from parents, people who serve the autism community, and people with autism, See Amazing in All Children offers families ways to overcome common challenges and simplify everyday activities.A terrific Autism Resource page for parents and everybody else.
Smart Kids With Learning Disabilities
(203) 226-6831
(203) 226-6708 (Fax)
http://www.smartkidswithld.org
Spina Bifida Association of America
4590 MacArthur BLVD. NW Suite 250
Washington, DC 20007-4226
800-621-3141, ext. 35
http://spinabifidaassociation.org
E-mail: sbaa@sbaa.org *Find a local chapter, find a clinic in your area.
The Children's Tumor Foundation (New York Office)
95 Pine Street, 16th Floor
New York, NY 10005
1-800-323-7938
(212) 344-6633
(212) 747-0004 (Fax)
http://www.ctf.org/
E-Mail: info@ctf.org
The Genetic Alliance
4301 Connecticut Ave. NW, Suite 404
Washington, DC 20008-2369
(202) 966-5557
(202) 966-8553 (Fax)
http://www.geneticalliance.org/
Email: info@geneticalliance.org
The Hydrocephalus Association
870 Market Street, Suite 705
San Francisco, CA 94102.
888-598-3789.
(415) 732-7040
(415) 732-7044 (Fax)
http://www.hydroassoc.org/
Email: info@hydroassoc.org
The National Directory of Family-Run & Youth-Guided Organizations for Children's Mental Health
http://familyorgdirectory.fmhi.usf.edu
*State by State and Tribal Listings available. The directory lists family-run and youth-guided organizations and support groups throughout the United States, US Territories and Tribal Nations. You can search our database to find organizations across the country run by families or youth consumers that are working to support families who have children and adolescents with behavioral health challenges and to improve behavioral health services and supports. Behavioral health services include mental health and substance abuse services.
The Temple University Collaborative on Community Inclusion
1700 N. Broad Street, Suite 313
Philadelphia, PA 19122
215-204-6779
http://tucollaborative.org
E-mail: tucollab@temple.edu *We provide evidence-based resources that consumers, agencies, and policy makers can use to increase community participation across varied life domains.
Tourette Syndrome Association, Inc
42-40 Bell Blvd., Suite 205
Bayside, NY 11361-2820
(718) 224-2999
http://tsa-usa.org/
Tuberous Sclerosis Alliance
801 Roeder Road, Suite 750
Silver Spring, MD 20910
1-800-225-6872
(301) 562-9890
(301) 562-9870 (Fax)
http://www.tsalliance.org/
Email: info@tsalliance.org
Uniquely Gifted
http://www.uniquelygifted.org/
*An older web site, still contains useful information for parents of children with Autism and related disorders.
United Cerebral Palsy (UCP)
1660 L Street, NW, Suite 700
Washington, DC 20036
(800) 872-5827
TTY (202) 973-7197
(202) 776-0414 (Fax)
http://www.ucp.org
*Excellent state-by-state resource guide. E-mail your local chapter for more information.
United Mitochondrial Disease Foundation
8085 Saltsburg Road, Suite 201
Pittsburgh, PA 15239
1-888-317-8633
1-412-793-8077
1-412-793-6477 (Fax)
http://www.umdf.org
E-mail: info@umdf.org
United Spinal Association
75-20 Astoria Boulevard
Jackson Heights, NY 11370
800-404-2898
(718) 803-3782
(718) 803-0414 (Fax)
http://www.unitedspinal.org
E-mail: info@unitedspinal.org
Williams Syndrome Association, Inc.
PO Box 297
Clawson, MI 48017-0297
1-800-806-1871
(248) 244-2229
1-248-244-2230 (Fax)
http://www.williams-syndrome.org/
Email:info@williams-syndrome.org
Williams Syndrome Changing Lives Foundation
727-557-7177
https://globalgenes.org/raredaily/williams-synd...
E-mail: info@wschanginglives.org The Williams Syndrome Changing Lives Foundation is a non-profit organization centered on increasing awareness, increasing education for families, the community, physicians and therapists. We provide needed financial assistance with medical, therapeutic, recreational and other developmental resources.
 
Early Intervention
Association for Comprehensive NeuroTherapy
PO Box 159
Grosse Ile, MI 48138-0159
561-798-0472
https://latitudes.org/behavior-charts
* A nonprofit that focuses on providing complementary and alternative treatments for neurological and behavioral disorders. Our community primarily consists of families with special needs kids.
Early Childhood Technical Assistance Center (ECTA Center)
517 South Greensboro Street
Carrboro, NC 27510
(919) 962-2001
TDD (919) 843-3269
(919) 966-7463 (Fax)
http://ectacenter.org
E-mail: nectac@unc.edu NECTAC is the national early childhood technical assistance center supported by the U.S. Department of Education's Office of Special Education Programs (OSEP) under the provisions of the Individuals with Disabilities Education Act (IDEA). NECTAC serves Part C-Infant and Toddlers with Disabilities Programs and Part B-Section 619 Preschool Programs for Children with Disabilities in all 50 states and 10 jurisdictions to improve service systems and outcomes for children and families.
Federation For Children with Special Needs
1135 Tremont St., Suite 420
Boston, MA 02120
(800) 331-0688 (in MA)
(617) 236-7210
(627) 572-2094 (Fax)
http://www.fcsn.org
email: fcsninfo@fscn.org
National Association for the Education of Young Children
1313 L. Street, NW, Suite 500
Washington, DC 20005
(800) 424-2460
(202) 232-8777
(202) 328-1846 (Fax)
http://www.naeyc.org
National Center for Infants, Toddlers and Families (Zero to Three)
2000 M Street, NW, Suite 200
Washington, DC 20036
(202) 638-1144
http://www.zerotothree.org
Western Office: 350 South Bixel, suite 150 Los Angeles, California 90017 (213) 481-7279
NCBDDD Learn The Signs ~Act Early Campaign
1600 Clifton Rd.
Atlanta, GA 30333
1-800-232-4636 (Info Line)
http://www.cdc.gov/ncbddd/autism/ActEarly
*Large data base of early developmental milestones and information.
Office of Head Start-US Administration for Children & Families
370 L'Enfants Promenade, SW
Washington, DC 20447
http://www.acf.hhs.gov/programs/ohs
Provides a State by State program finder.
Pathways Awareness Foundation
150 N. Michigan Ave. , Suite 2100
Chicago, IL 60601
1-800-955-2445
http://www.pathwaysawareness.org/
*Informational site regarding Early Childhood Development. Questions? Check here.
The Division for Early Childhood Education
27 Fort Missoula Road, Suite 2
Missoula, MT 59804
(406) 543-0872
(406) 543-0887 (Fax)
http://www.dec-sped.org
Zero To Three
1255 23rd Street, NW, Suite 350
Washington, DC 20037
(202) 638-1144
(202) 638-0851 (Fax)
http://www.zerotothree.org
*ZERO TO THREE is a national nonprofit organization that provides parents, professionals and policymakers the knowledge and the know-how to nurture early development.
Education
American Council on Rural Special Education (ACRES) West Virginia University
509 Allen Hall
Morgantown, WV 26506
304-293-3450
http://acres-sped.org
E-mail: acres-sped@mail.wvu.edu *The American Council on Rural Special Education (ACRES) is a non-profit organization comprised of special educators, general educators, related service providers, administrators, teacher trainers, researchers, and parents who are committed to the enhancement of services to students and individuals living in rural America.
Childswork/Childsplay
1-800-962-1141
https://childswork.com
*Provides products for the teaching and counseling of special needs and emotionally troubled kids and teens. For over 25 years our children’s learning toys, therapeutic activities for kids, and tools for social skills training (individual and/or in groups) have been used by special education professionals, parents, counselors, and therapists worldwide. The full product line includes games, books, and multimedia tools.
Education Resources Information Center
655 15th Street, NW Suite 500
Washington, DC 20005
(800) 538-3742
https://ies.ed.gov/ncee/projects/eric.asp
*Large clearinghouse of information.
Gallaudet University
800 Florida Avenue, N.E.
Washington, DC 20002-3695
(202) 651-5300
http://www.gallaudet.edu/
email: infotech.services@gallaudet.edu
IDEA 2004/U.S. Department of Education
https://sites.ed.gov/idea
*Updated IDEA Act information for all age groups.
Kids Together, Inc.
P.O. Box 574
Quakertown, PA 18951
http://www.kidstogether.org
email: staff@kidstogether.org Information regarding inclusion, IEP, Early Intervention, etc.
Learning Disabilities Association of America
4156 Library Road
Pittsburgh, PA 15234-1349
(412) 341-1515
(412) 344-0224 (Fax)
http://www.ldaamerica.us
National Center for Learning Disabilities
381 Park Avenue South, Suite 1401
New York, NY 10016
(888) 575-7373
(212) 545-7510
(212) 545-9665 (Fax)
http://www.ncld.org
Information regarding learning disabilities such as ADD, Dyslexia, Dyspraxia, and many others. Advocacy guide and monthly news letters.
National Center on Accessible Instructional Materials at CAST, Inc.
40 Harvard Mills Square, Suite 3
Wakefield, MA 01880
(781) 245-2212
http://aem.cast.org
*Provides a wide variety of information and resources, including training events Nationwide, regarding Accessible Instructional Materials. A state-by-state listing of programs and services is also available from the home page.
National Center on Secondary Education and Transition
6 Pattee Hall, 150 Pillsbury Drive SE
Minneapolis, MN 55455
612-624-2097
612-624-9344 (Fax)
http://www.ncset.org/
email:ncset@umn.edu *Be sure to include address and phone number.
Special Education Advisor
9909 Topanga Canyon Blvd. #169
Chatsworth, CA 91311
(818) 993-3011
http://www.specialeducationadvisor.com
* An online Special Education & IEP Advisor covering a wide base of special education and IEP/504 topics.
Speech Therapy Ideas and Speech Therapy Activities
http://www.speechtherapyideas.com
*Provides speech therapy ideas and activities developed by a licensed Speech Language Pathologist for parents and professionals.
The Council for Exceptional Children
2900 Crystal Drive, Suite 1000
Arlington, VA 22202
(888) 232-7733
TTY: (866) 915-5000
(703) 264-9494 (Fax)
http://www.cec.sped.org
*The Council for Exceptional Children is an international community of professionals who are the voice and vision of special and gifted education. CEC's mission is to improve, through excellence and advocacy, the education and quality of life for children and youth with exceptionalities and to enhance engagement of their families.
Think College.Net
ICI/University of Massachusetts
Boston, MA
(617) 287-4310
TTY (617) 287-4350
http://www.thinkcollege.net/index.php
Includes a program search.
Think Inclusion
http://www.thinkinclusive.us
E-mail: timvillegas@thinkinclusive.us * An informational blog with wide ranging information and experience in educational inclusion. A Recommended Read.
TTAC Online (Training & Technical Assistance Centers)
4400 University Drive
Fairfax, VA 22030
https://ttaconline.org/index
*A web-based community linking people and resources to help children and youth with disabilities (birth to 22. Available 24/7 to teachers, other professionals and families. A place to search a wide range of resources by age level, category, disability area, or topic.
U.S. Department of Education//My Child's Special Needs
400 Maryland Avenue, SW
Washington, DC 20202
1-800-872-5327
http://www2.ed.gov/parents/needs/speced/edpicks...
*Contains a large data base of information regarding programs, legislation, resources, parent helps, etc.
University of Washington DO-IT (Disabilities, Opportunities, Internetworking, and Technology)
University of Washington Box 355670
Seattle, WA 98195-5670
V/TTY888-972-3648
(206) 221-4171 (Fax)
http://www.washington.edu/doit/
Email: doit@u.washington.edu
US Department of Education~ No Child Left Behind Act (Updated)
http://www.ed.gov/nclb/landing.jhtml?src=ln
US Office of Education/Office of Special Education
Mary E. Switzer Building 330 C Street SW
Washington, DC 20202
V/TTY (202) 205-5507
http://www2.ed.gov/about/offices/list/osers/ose...
We Connect Now
McIlhenny Drive
Baton Rouge, LA 70809
http://weconnectnow.wordpress.com
E-mail: weconnectnow2008@gmail.com *We Connect Now is dedicated to uniting people on issues which affect people with disabilities, with emphasis on college students higher education & employment.
WestEd ~ Northeast Regional Resource Center(NERRC)
426 Industrial Avenue, Suite 160
Williston, VT 05495
(802) 951-8226
TTY (802) 951-8213
http://www.wested.org
E-mail: nerrc@aol.com
Employment
Job Accommodation Network
PO Box 6080
Morgantown, WV 26506-6080
(800) 526-7234
TTY: (877) 781-9403
304-293-5407 (Fax)
http://www.jan.wvu.edu/
Office of Disability Employment Policy (ODEP)
200 Constitution Avenue (US Dept. Of Labor)
Washington, DC 20210
1-866-ODEP-DOL (633-7365)
TTY 1-877-889-5627
http://www.dol.gov/odep
The Employer Assistance and Resource Network on Disability Inclusion (EARN)
https://www.askearn.org
Email: askearn@viscardicenter.org *A free resource that helps employers tap the benefits of disability diversity. We educate public- and private-sector organizations on ways to build inclusive workplace cultures, and we empower them to become leaders in the employment and advancement of people with disabilities.
U.S. Department of Labor
Frances Perkins Building 200 Constitution Avenue, NW
Washington, DC 20210
(866) 633-7365
(877) 889-5627
(202) 693-7888 (Fax)
http://www.dol.gov/odep/
We Connect Now
McIlhenny Drive
Baton Rouge, LA 70809
http://weconnectnow.wordpress.com
E-mail: weconnectnow2008@gmail.com *We Connect Now is dedicated to uniting people on issues which affect people with disabilities, with emphasis on college students higher education & employment.
Your Ticket To Work
1-866-968-7842
https://www.ssa.gov/work/
*Ticket to Work is a free and voluntary program that can help Social Security beneficiaries go to work, get a good job that may lead to a career, and become financially independent, all while they keep their Medicare or Medicaid. Individuals who receive Social Security benefits because of a disability and are age 18 through 64 probably already qualify for the program.
Equipment
AAC (Augmentative and Alternative Communication) Funding Help
http://www.aacfundinghelp.com
This website posts information regarding programs which cover and fund augmentative and assistive communication devices. Updated frequently.
Center for Assistive Technology and Environmental Access/ Georgia Institute of Technology
490 Tenth Street
Atlanta, GA 30332-0156
V/TTY: 800-726-9119
404-894-1414
404-894-9320 (Fax)
http://assistivetech.net/index.php
Email: catea@coa.gatech.edu
Center on Technology and Disability
1825 Connecticut Ave. NW 7th Floor
Washington, DC 20009-5721
(202) 884-8068
(202) 884-8441 (Fax)
https://www.ctdinstitute.org
E-mail: ctd@fhi360.org *Assistive and instructional technology (AT/IT) allows children across the ability spectrum to participate fully at home, in school, and in the community.
National Institute For Rehabilitation Engineering
P.O. Box 1088
Hewett, NJ 07421
(800) 736-2216
(973) 853-6585
(9280 832-2894 (Fax)
http://www.angelfire.com/nj/nire2/
The N.I.R.E. assists people of all ages with all types of disabilities including but not limited to vision, speech, hearing, hand dexterity, and mobility impairments.
Pass It On Center
c/o Ga Department of Labor, Tools for Life1700 Century Circle, Suite 300
Atlanta , GA 30345-3020
1-800-497-8665
TDD: 1-866-373-7778
http://www.passitoncenter.org
*State/Regional listings of Assistive technology recycle programs.
Tadpole Adaptive
3940 7th Avenue, Suite 103
San Diego, CA 92103
(877) 698-2376
619-881-0044 (Fax)
http://www.tadpoleadaptive.com
Email: sales@tadpoleadaptve.com *Tadpole Adaptive is a website that specializes in pediatric special needs equipment. It was co-founded by a physical therapist and a wheelchair user. There is a physical therapist on staff that can help individuals make sound choices for their equipment needs. Also, Tadpole Adaptive has a registry, where families can register for their adaptive equipment. This gives individuals the opportunity to do their own fundraising. For example, families can say, "In lieu of Christmas presents this year, please make a donation to our registry at Tadpole Adaptive."
Trace Research & Development Center~University of Wisconsin-Madison
2107 Engineering Centers Bldg. 1550 Engineering Dr.
Madison, WI 53706
(608) 262-6966
TTY: (608) 263-5408
(608) 262-8848 (Fax)
http://trace.wisc.edu/
E-mail: info@trace.wisc.edu
University of Pittsburgh Rehabilitation Engineering Research Center (RERC)
(412) 624-4141
http://wc-transportation-safety.umtri.umich.edu
*Information regarding Wheelchair Transportation Safety including crash testing and National Safety Standards.
USA TechGuide
75-20 Astoria Blvd
Jackson Heights, NY 11370
718-803-3782
http://www.usatechguide.org
E-mail: usersfirst@unitedspinal.org *USA TechGuide is a web guide to wheelchairs, mobility scooters, and assistive technology choices. You can read and submit wheelchair reviews, mobility scooter reviews, wheelchair cushion reviews, standing device reviews, and search The TechGuide for all types of assistive equipment.
Wheelchair
http://www.newdisability.com/articles.htm
* A european website with many useful wheelchair related articles and interesting video. Click on "Articles" in the left hand menu.
Housing Programs - Government
Center for Housing and New Community Economics (CHANCE) University of New Hampshire
10 West Edge Drive, Suite 101
Durham, NH 03824-3522
(603) 862-4320
(603) 862-0555 (Fax)
https://iod.unh.edu/projects/center-housing-and...
*Information and links
Fair Housing Accessibility FIRST
(888) 341-7781 (V/TTY)
http://www.fairhousingfirst.org/index.asp
*Promotes compliance with the Fair Housing Act in design and construction. Excellent resource links list.
Paralyzed Veterans of America
801 18th Street NW
Washington, DC 20006-3517
1-800-424-8200
http://www.pva.org
*Not just for paralyzed Veterans, not just for paralysis. Ask for their Architecture Program! **SNRP recommends their publication "Accessible Home Design".
Public Housing Authorities Directors Association/Local Housing Authority Sites
http://www.phada.org/ha_list.php
*Site lists for city/community Housing Authorities (listed by state).
US Dept. on Housing and Urban Development (HUD)
451 7th Street, SW
Washington, DC 20410
(202) 708-1112
TTY (202) 708-1455
http://www.hud.gov
*Listings of HUD offices by state found at the bottom of the home page.
 
Housing Programs - Private
Assist, Inc.
218 East 500 South
Salt Lake City, UT 84111
(801) 355-7085
(801) 355-7086 (Fax)
http://www.assistutah.org/index.html
*Email:info@assistutah.org *Among other services, ASSIST provides architectural design assistance for housing and accessibility to low income households or persons with disabilities living within specific geographic areas in the state of Utah. **SNRP Recommends the Assist Guidebook to the Accessible Home.
Center For Universal Design North Carolina State University
P.O. Box 8613
Raleigh, NC 27695-8613
(800) 647-6777
V/TTY:(919) 515-3082
(919) 515-3023 (Fax)
http://www.ncsu.edu/ncsu/design/cud/index.htm
*Please check the publications listings for detailed information.
Easy Living Home Coalition
http://www.easylivinghome.org/
*See website for contact information.
Habitat for Humanity
121 Habitat Street
Americus, GA 31709-3498
1-800-422-4828
1-229-924-6935
http://www.habitat.org
*For information on eligibility,locations, projects and supported communities in your state click on "Contact Us" and then search for location.
Habitat for Humanity/United States
121 Habitat Street
Americus, GA 31709
1-800-422-4828
https://www.habitat.org/where-we-build
E-mail: publicinfo@habitat.org *Find local programs in your community.
Homes For Our Troops
37 Main Street
Taunton, MA 02780
(866) 787-6677
508-823-3300
508-823-5411 (Fax)
http://www.homesforourtroops.org
*Provides adaptive housing for disabled Vets
IDeA ~ Center for Inclusive Design and Environmental Access
3435 Main Street, 114 Diefendorf Hall
Buffalo, NY 14214-3087
(716) 829-5902
(716) 829-3861 (Fax)
http://www.ap.buffalo.edu/idea/Home/index.asp
E-mail: ap-idea@buffalo.edu *The IDeA Center is dedicated to making environments and products more usable, safer and healthier in response to the needs of an increasingly diverse population. The IDeA Centers activities are based on the philosophy of Inclusive Design, often called Universal Design or Design for All.ť It is a way of thinking that can be applied in any design activity, business practice, program or service involving interaction of people with the physical, social or virtual worlds.
Institute for Human Centered Design (Adaptive Environments)
180-200 Portland Street, Suite 1
Boston, MA 02114
(617) 695-1225
(617) 482-8099 (Fax)
http://humancentereddesign.org
E-mail: info@HumanCenteredDesign.org
National Council of State Housing Authorities
444 North Capitol Street, NW, Suite 438
Washington, DC 20001
202-624-7710
202-624-5899 (Fax)
http://www.ncsha.org
*Provides a state-by-state listing of State Housing Financing Agencies and links.
National Resource Center on Supportive Housing and Home Modification/University of Southern California
3715 McClintock Avenue
Los Angeles, CA 90089-0191
(213) 740-1364
(213) 740-7069 (Fax)
https://www.homemods.org/directory/nrcshhm/inde...
email: homemods@usc.edu
Ramps dot Org ~Free Ramp Program list
(877)312-6989
http://www.ramps.org/free-ramps.htm
E-mail: questions@ramps.org *Ramps.org is here to help you decide what type of wheelchair ramp is right for your specific situation. Need assistance programs? Click on FREE RAMP PROGRAMS at the bottom of the left-hand menu for a listing of programs in your state.
Rebuilding Together/National Headquarters
1536 16th Street, N.W.
Washington, DC 20036
1-800-473-4229
http://www.rebuildingtogether.org
*Currently has 225 affiliates, nationwide. Click on "Affiliates" for the Affiliate office nearest you.
The National Resource Center on Supportive Housing and Home Modification (NRCSHHM)
3715 McClintock Avenue
Los Angeles, CA 90089
(213) 740-1364
(213) 740-7069 (Fax)
https://www.homemods.org/directory/nrcshhm/inde...
*Contains a State-by-state resource registry of home modification resources.
 
Independent Living Organizations
IL USA - Independent Living Centers
3108 Main Street
Buffalo, NY 14214
(518) 274-7944 (Fax)
http://www.ilusa.com/links/ilcenters.htm
*Click on your state to find a list of Independent Living Centers in your state ** Also includes Puerto Rico, U.S. Virgin Islands, Canada, UK, Brazil, Africa and European Countries.
Independent Living Institute
46-8-506 22-181
http://www.independentliving.org/
Arenavagen 63-121-77 Stockholm-Johanneshou Sweden
Independent Living Research Utilization Project/The Institute for Rehabilitation and Research
2323 So. Sheppard, Suite 1000
Houston, TX 77019
(713) 520-0232
TTY: (713) 520-5136
http://www.ilru.org/projects/cil-net/cil-center...
email: ilru@ilru.org Contact information for Statewide Independent Living Councils listed by state.
National Council on Independent Living
1710 Rhode Island Avenue, NW, 5th Floor
Washington, DC 20036
(877) 525-3400
TTY (202) 207-0340
(202) 207-0341 (Fax)
http://www.ncil.org
CIL listings by state.
Indian Health Services
National Council of Urban Indian Health
924 Pennsylvania Ave., SE
Washington , DC 20003
202-544-0344
http://www.ncuih.org
National Indian Child Welfare Association NICWA
5100 SW Macadam Ave. Suite 300
Portland, OR 97239
(503) 222-4044
(503) 222-4007 (Fax)
http://www.nicwa.org
US Department of Indian Health Services
801 Thompson Avenue, Ste. 400
Rockville, MD 20852-1627
(See Contact Listing)
http://www.ihs.gov
* Complete program and regional office listings for IHS Services
 
Information
ADA Document Portal
http://adata.org/ada-document-portal
*The ADA Web Search Portal is a focused search of important websites that contain information about the ADA. The purpose of the Portal is to connect individuals with high quality information about the Americans with Disabilities Act and to assist individuals in answering ADA questions.
ADA National Network
U.S. Department of Justice,950 Pennsylvania Avenue, NW,Disability Rights Section - NYA
Washington, DC 20530
1-800-949-4232
800-514-0383 (TTY)
http://adata.org
*Contact Your Regional Office using the map on the home page. For information and assistance call the information line listed above.
American Association on Health and Disability
110 N. Washington Street, Suite 328-J
Rockville, MD 20850
(301) 545-6140
(301) 545-6144 (Fax)
http://www.aahd.us
E-mail: contact@aahd.us * A large data base of current studies and information regarding disabilities.
Association of University Centers on Disabilities
1010 Wayne Avenue, Suite 920
Silver Spring, MD 20910
(301) 588-8252
(301) 588-2842 (Fax)
http://www.aucd.org
*Click on the UCEDDs button to find the University Center in your state.
Beach Center on Disability/University of Kansas
1200 Sunnyside Ave. Room 3136 Haworth Hall
Lawrence , KS 66045-7534
(785) 864-7600
TTY (785) 864-3434
(785) 864-7605 (Fax)
http://www.beachcenter.org
email:beachcenter@ku.edu
Bridges 4 Kids
3520 Okemos Road, Suite 6 -150
Okemos, MI 48864
http://www.bridges4kids.org
E-mail: info@bridges4kids.org *A nationwide data base providing parents, educators, and others the information they need to help children who might be at-risk or have special needs. Includes information on child development, education issues and opportunities, and extensive disability, gifted, at-risk, parenting, and teaching resources.
Center for Parent Information and Resources (formerly NICHCY)
35 Halsey St., Fourth Floor
Newark, NJ 07102
(973) 642-8100
http://www.parentcenterhub.org
*The Center for Parent Information and Resources (CPIR) serves as a central resource of information and products to the community of Parent Training Information (PTI) Centers and the Community Parent Resource Centers (CPRCs), so that they can focus their efforts on serving families of children with disabilities.
Child Development Institute
1442 E Lincoln Avenue Suite 121
Orange, CA 92865
https://childdevelopmentinfo.com
*The “go to” site for parents for information, products and services related to child development, psychology, health, parenting, learning, media, entertainment, family activities as well as to connect with other parents, professional experts organizations and other useful websites. The goal of our website is to promote healthy development to enable children to reach their true potential for a successful and rewarding life.
Complex Child- Online Magazine
http://complexchild.org
Email: info@complexchild.org *Complex Child is a monthly online magazine written by parents of children with special healthcare needs and disabilities. It is intended to provide medical information, along with personal experiences, in simple language that other parents can understand.
Cornucopia of Disability Information (CODI) (Archived)
University at Buffalo
Buffalo, NY
http://codi.tamucc.edu/
Excellent repository of information.
Disability History Museum
(413)369-4372
(413)369-4784 (Fax)
http://www.disabilitymuseum.org
E-mail:info@straightaheadpictures.org *The Disability History Museum hosts a Library of virtual artifacts, Education curricula, and Museum exhibits. These programs are designed to foster research and study about the historical experiences of people with disabilities and their communities.
Disability Information.Gov
https://webarchive.library.unt.edu/eot2008/2008...
*This site is archived but still contains a large database of useful links. Please be aware some links may no longer work.* Large Federal database providing easy access to comprehensive information about disability programs, services, laws and benefits. To find disability resources in your state just click on the Find State and Local Resources map located in each of the subject areas listed in their menu.
Disability is Natural
http://www.disabilityisnatural.com
Parent, care giver, teacher and provider information. *Not an SNRP supported site.
Enabled Kids
(416) 250-1904
http://enabledkids.ca
E-mail: natan@enabledkids.ca *"Enabling children to function independently"
Foundation for Health Coverage Education® (FHCE)
800-234-1317
http://www.coverageforall.org
Email: fhceinfo@coverageforall.org * Assists individuals and families find health care coverage in their area.
Girls Health.gov
8270 Willow Oaks Corporate Drive, Suite 301
Fairfax, VA 22031
http://www.girlshealth.gov/
*See "Illness and Disability" tab. Excellent information resource.
Great Lakes ADA Center
MC 728 - 1640 W. Roosevelt Road, Room 405
Chicago, IL 60608
312-413-1407 (V/TTY)
877-232-1990 (V/TTY)
312-413-1856 (Fax)
http://www.accessibilityonline.org
* The ADA National Network provides a comprehensive set of services for up-to-date information, consultation, referrals, resources, and training on the Americans with Disabilities Act for businesses, employers, governmental entities, service providers and individuals with disabilities.
Health Care dot Gov
http://www.healthcare.gov/index.html
*Provides current and up to date information regarding health care legislation and a state-by-state guide to insurance programs available in every state.
Healthfinder dot Gov
P.O. Box 1133
Washington, DC 20013-1133
http://www.healthfinder.gov
E-mail: healthfinder@nhic.org Provides medical information and "How To" find services and resources nationwide.
IMPACT on Health and Wellness (Family Voices)
3701 San Mateo Blvd. NE, Suite 103
Albuquerque, NM 87110
(505) 872-4774
(888) 835-5669
(505) 872-4780 (Fax)
http://www.familyvoices.org/projects?id=0001
*IMPACT is a project of national Family Voices. Our goal is to promote a holistic, culturally relevant approach to health and wellness for all families and children including those with special healthcare needs and disabilities.
Independent Living Institute (International)
http://www.independentliving.org
Located at: Arenavagen 63, 121 77 Stockholm-Johanneshov, Sweden
Institute For Community Inclusion (UCEDD) UMass Boston
100 Morrissey Blvd.
Boston , MA 02125
(617) 287-4300
TTY: (617) 287-4350
(617) 287-4352 (Fax)
http://www.communityinclusion.org/index.php
email: ici@umb.edu
LD Online - WETA Public Television
2775 So. Quincy Street
Arlington, VA 22206
(703) 998-2060 (Fax)
http://www.ldonline.org
*Learning Disability/Autism Spectrum Information
National Association for Home Care and Hospice
228 Seventh Street, SE
Washington , DC 20003
(202) 547-7424
(202) 547-3540 (Fax)
http://www.nahc.org
*Access a state by state listing of Home Care and Hospice provider companies
National Center on Birth Defects and Developmental Disabilities
1600 Clifton Rd.
Atlanta, GA 30333
1-800-232-4636 (Info Line)
http://www.cdc.gov/ncbddd/default.htm
*Excellent informational resource for a multitude of developmental disabilities. ** Also see "Learn the Signs. Act Early".
National Organization on Disability
910 Sixteenth Street, N.W., Suite 600
Washington, DC 20006
(202) 293-5960
TTY: (202) 293-5968
(202) 293-7999 (Fax)
https://www.nod.org
E-mail: ability@nod.org
Navigate Life Texas
https://www.navigatelifetexas.org
* A Division of Texas Health and Human Services. Navigate Life Texas was developed by parents, for parents. Most of the content is written by parents of children and adults with disabilities or special healthcare needs.
Safe Kids Worldwide
1255 23rd Street, NW, Suite 400
Washington, DC 20037
202-662-0600
202-393-2072 (Fax)
https://www.safekids.org
*Safe Kids Worldwide is a global organization dedicated to preventing injuries in children, the number one killer of kids in the United States.
United Spinal Association
75-20 Astoria Boulevard
Jackson Heights, NY 11370
800-404-2898
(718) 803-3782
(718) 803-0414 (Fax)
http://www.unitedspinal.org/disability-publicat...
*Linda's favorite down-loadable informational resource. Linda recommends the following booklets: Disability Etiquette (PDF), Taking Action (PDF), Adaptive Automotive Equipment (PDF), The Americans with Disabilities Act (PDF),The Fair Housing Amendments Acts (PDF) and Accessing Local Government (PDF). Please see the menu page for other publications you may be interested in.
US Department of Health and Human Services
200 Independence Avenue, SW
Washington, DC 20201
http://www.hhs.gov
US Government site for tracking and reporting general diagnosis and treatment information. Reference links available.
Visiting Nurse Association of America
99 Summer Street Suite 1700
Boston, MA 02110
(617) 737-3200
(617) 737-1144 (Fax)
http://www.vnaa.org
Maintains a state-by-state Home Health Agency Directory. Member companies only are listed for each state.
 
Insurance Assistance Programs
Good Rx dot com
501 Santa Monica Blvd.Suite 403
Santa Monica, CA 90401
1-888-799-2553
http://www.goodrx.com
*Comparison shop for over 6000 FDA approved medications at 70,000 pharmacies nationwide. With or without insurance this site can save you money.
Healthcare Dot Gov
200 Independence Avenue, S.W.
Washington, DC 20201
http://www.healthcare.gov
*Provides a wide variety of current health care information. State-by-State listings will help consumers compare programs and services in their communities.
Insure Kids Now dot gov
1-877-543-7669
http://www.insurekidsnow.gov
E-mail: CMSOCHIPRAQuestions@cms.hhs.gov *InsureKidsNow.gov provides information about Medicaid and CHIP services for families who need health insurance coverage. These programs are designed to be affordable for families who are not able to afford health insurance coverage in the private market or do not have coverage available to them. Even if you've been turned down in the past, you may be able to get health coverage for your child now. Learn more about health coverage programs in your state. How to Contact Us: If you have specific questions about health insurance for your children, please contact the programs in your state or make a free call to 1-877-543-7669, our free and confidential hotline, where you'll be connected directly to someone from your state who will help you apply.
Patient Access Network (PAN) Foundation
PO Box 221858
Charlotte, NC 28222
1-866-316-7263
1-866-316-7261 (Fax)
https://www.panfoundation.org
E-mail: contact@panfoundation.org *The Patient Access Network Foundation is an independent, national 501 (c)(3) organization dedicated to providing underinsured patients with financial assistance through more than 50 disease-specific funds that provide access to progressive therapies.
Patient Advocate Foundation
421 Butler Farm Road
Hampton, VA 23666
(800) 532-5274
(757) 873-8999 (Fax)
http://patientadvocate.org
*Provides effective mediation and arbitration services to patients to remove obstacles to healthcare including medical debt crisis, insurance access issues and employment issues for patients with chronic, debilitating and life-threatening illnesses.
 
Legal Advocacy/Information
ADA Dot Gov/US Department of Justice Civil RIghts Division
950 Pennsylvania Avenue, NW Civil Rights Division, Disability Rights Section - NYA
Washington, DC 20530
800 - 514 - 0301
800 - 514 - 0383 (TTY)
http://www.ada.gov
*The U.S. Department of Justice provides information about the Americans with Disabilities Act (ADA) through a toll-free ADA Information Line.
American Bar Association
http://apps.americanbar.org/legalservices/findl...
*Consumer's Guide to Legal Help - Contains a state-by-state listing.
Assistive Technology Law Center
401 East State Street
Ithaca, NY 14850
607-277-7286
607-277-5239 (Fax)
http://www.aacfundinghelp.com
E-mail: lewis.golinker@aacfundinghelp.com
Council of Parent Attorneys and Advocates
P.O. Box 6767
Towson, MD 21285
(443) 451-5270
(443) 451-2680 (Fax)
http://www.copaa.org
*COPAA’s mission is to protect and enforce the legal and civil rights of students with disabilities and their families. Our primary goal is to secure high quality educational services and to promote excellence in advocacy. Has a MILITARY resource Section under "Parents".
Disability Rights Advocates
2001 Center Street, Third Floor
Berkeley, CA 94704-1204
(510) 665-8644
http://www.dralegal.org/
email: general@dralegal
Disability Rights Education & Defense Fund
2212 Sixth Street
Berkeley, CA 94710
Toll Free: (800) 348-4232
(510) 841-8645 (Fax)
http://www.dredf.org/
email: info@dredf.org
National Association for Community Mediation
P.O. Box 44578
Madison, WI 53744
(608) 845-9918
http://www.nafcm.org
Email: nafcm@mailbag.com *Has a large list of state affiliates.
National Association of Indian Legal Services
300 Third Street, Suite 210
Wausau, WI 54403
1-800-472-1638
(715) 842-1681
(715) 848-1885 (Fax)
http://www.judicare.org/Content/National_Indian...
E-mail: info@judicare.org *See home page for state by state listing of service centers.
National Disability Rights Network
900 Second Street, NE, Suite 211
Washington, DC 20002
(202) 408-9514
TTY: (202-408-9521
(202) 408-9520 (Fax)
http://www.ndrn.org
National Guardianship Association, Inc.
526 Brittany Dr.
State College, PA 16803
(877) 326-5992
(814) 238-7051 (Fax)
http://www.guardianship.org
email: info@guardianship.org
National Health Law Program (NHelp) Main Office
2639 South La Cienega Blvd
Los Angeles, CA 90034-2675
(310) 204-6010
(310) 204-0891 (Fax)
http://www.healthlaw.org
Email: nhelp@healthlaw.org * NHeLP serves legal services programs, community-based organizations, the private bar, providers and individuals who work to preserve a health care safety net for the millions of uninsured or underinsured low-income people.
National Help Law Program (NHeLP) North Carolina Office
211 North Columbia Street, 2nd Floor
Chapel Hill, NC 27514-3503
(919) 968-6308
(919) 968-8855 (Fax)
http://www.healthlaw.org
Email: nhelp@healthlaw.org * NHeLP serves legal services programs, community-based organizations, the private bar, providers and individuals who work to preserve a health care safety net for the millions of uninsured or underinsured low-income people.
National Help Law Program (NHeLP) Washington, D.C. Office
1101 14th Street, NW Suite 405
Washington, DC 20005
(202) 289-7661
(202) 289-7724 (Fax)
http://www.healthlaw.org
Email: nhelpdc@healthlaw.org * NHeLP serves legal services programs, community-based organizations, the private bar, providers and individuals who work to preserve a health care safety net for the millions of uninsured or underinsured low-income people.
National Resource Center for Supported Decision-Making
202-448-1448
http://www.supporteddecisionmaking.org
E-mail: JHJP@dcqualitytrust.org *Information about the Right to Make Choices – the right we all have to make our own decisions and direct our own lives. See state map for your state. Can connect you with people and organizations that may be able to help you, and answer your questions.
TASH (Equity and Inclusion for People With Disabilities)
2013 H Street NW, Suite 715
Washington, DC 20006
(202) 540-9020
http://tash.org
*TASH is an international leader in disability advocacy. Founded in 1975, TASH advocates for human rights and inclusion for people with significant disabilities and support needs – those most vulnerable to segregation, abuse, neglect and institutionalization.
The Center on Human Policy,Law,& Disability Studies at Syracuse University
805 South Crouse Avenue
Syracuse, NY 13244-2280
http://disabilitystudies.syr.edu
E-mail: thechp@sued.syr.edu *The Center distributes bulletins, research reports, articles, information packages, and other materials on a broad range of topics related to integration or inclusion for people with disabilities.
The Special Needs Alliance
http://www.specialneedsalliance.org
*Provides a national list of lawyers specializing in special needs trusts and other resources by state.
Utah State Courts Guardianships and Conservatorships
http://www.utcourts.gov/howto/family/gc/
*A large "How To" database full of information required to go through the process for minors and adults. Geared for Utah this site is still useful for other states.
Wright's Law
http://www.wrightslaw.com
 
Legislative
Children's Defense Fund
25 E Street N.W.
Washington, DC 20001
(800-233-1200)
202-628-8787
http://www.childrensdefense.org/
email: cdfinfo@childrensdefense.org
National Council on Disability
1331 F. Street, NW, Suite 850
Washington , DC 20004
(202) 272-2004
TTY (202) 272-2074
(202) 272-2022 (Fax)
http://www.ncd.gov
Medical Centers/Hospitals/Clinics
Latin American Health Institute
95 Berkeley St. (Main Office)
Boston, MA 02116
(617) 350-6900
(617) 350-6901 (Fax)
http://www.lhi.org/Homepage.aspx
email: Info@lhi.org *Latin American Services
Shriner's of North America (International)
2900 Rocky Point Dr.
Tampa, FL 33607-1460
(800) 237-5055
http://www.shrinersinternational.org
Charitable children's hospitals specializing in burn and orthopedic treatment. Check for the hospital nearest your area.
The JUDY Center for Down Syndrome (Joseph M. Sanzari Children’s Hospital at Hackensack University Medical Center)
30 Prospect Avenue
Hackensack, NJ 07601
(551) 996-2000
http://www.hackensackumc.org/our-services/josep...
*Down Syndrome Services. The center is dedicated to the management of the complex health care needs of its patients. Our team of healthcare professionals utilizes a comprehensive range of services to maximize the quality and lives of our patients. We care for individuals with Down syndrome through young adulthood at any age, and partner with the community, schools, and other agencies to promote the best health outcomes. While our focus is on Down syndrome, individuals with other lifelong illnesses can also be helped.
The National Association of Free & Charitable Clinics
1800 Diagonal Road, Suite 600
Alexandria, VA 22314
703-647-7427
866-875-3827 (Fax)
http://nafcclinics.org
Email: Info@nafcclinics.org * The National Association of Free and Charitable Clinics (NAFC) is the only nonprofit 501c(3) organization whose mission is solely focused on the issues and needs of the more than 1,200 Free and Charitable Clinics and the people they serve in the United States.
Medical Information/Research Organizations
American Academy of Pediatrics/Childhood Immunization Support Program
141 Northwest Point Blvd.
Elk Grove Village, IL 60007
http://www.cispimmunize.org/
*Information regarding childhood immunizations.
American Association of Pediatrics
141 Northwest Point Blvd.
Elk Grove Village, IL 60007
(847) 434-4000
http://www.aap.org
General information regarding diagnosis and treatment of pediatric disorders and diseases as well as some referral services.
American Medical Association
515 No. State St.
Chicago , IL 60610
(800) 621-8335
http://www.ama-assn.org
General information regarding diagnosis,treatment and current research in the medical community.
American Occupational Therapy Association, Inc.
4720 Montgomery Lane
Bethesda, MD 20824-1220
(301) 652-2682
TDD: 1-800-377-8555
(301) 652-7711 (Fax)
http://www.aota.org/
American Speech-Language-Hearing Association
10801 Rockville Pike
Rockville, MD 20852
(800) 638-8255
http://www.asha.org
* Has an extensive database of Audiologists and Speech-Language Pathologists. Click on "Find a Professional".
Annette and Irwin Eskind Biomedical Library (at Vanderbilt University)
2209 Garland Avenue
Nashville, TN 37232-8340
(615) 936-1410
(615) 936-1384 (Fax)
http://www.mc.vanderbilt.edu/biolib/index.html
Birth Defects Research for Children, Inc.
800 Celebration Avenue, Suite 225
Celebration, FL 34747
(407) 566-8304
(407) 566-8341 (Fax)
http://www.birthdefects.org/
Columbus Children's Research Institute
700 Children's Drive
Columbus, OH 43205
(614) 722-2000
(614) 722-2716 (Fax)
http://columbuschildrens.com/GD/Templates/Pages...
Consumer Reports Medical Guide
http://www.consumerreports.org/cro/health/index...
Medical reports on a wide variety of topics. *ALWAYS consider the source when reviewing medical information
FDA New Pediatric Labeling Information Database
10903 New Hampshire Avenue
Silver Springs, MD 20993
1-888-463-6332
http://www.accessdata.fda.gov/scripts/sda/sdNav...
The Pediatric Labeling Information Database is a one-stop resource. You can search for information by the products commercial or chemical name, or by the condition for which it was studied. FDA's Office of Pediatric Therapeutics (OPT), which focuses on safety, scientific, and ethical issues that arise in pediatric clinical trials or after products are approved for use in children, developed the tool in collaboration with another branch of the agency, the Center for Drug Evaluation and Research.
Journal of the American Medical Association (JAMA)
http://www.jama.ama-assn.org
Published by the American Medical Association. Contains current research and archives.
National Health Information Center
P.O. Box 1133
Washington, DC 20013-1133
(800) 336-4797
(301) 565-4167
(301) 984-4256 (Fax)
http://www.health.gov/NHIC/
National Library of Medicine (National Institutes of Health)
8600 Rockville Pike
Bethesda, MD 20894
http://www.nlm.nih.gov/
Email: custserv@nlm.nih.gov *The World's Largest Medical Library
National Network for Immunization Information (NNII)
301 University Blvd
Galveston, TX 77555-0351
(409) 772-0199
(409)747-4995 (Fax)
http://www.immunizationinfo.org
Information on vaccines and preventable diseases. State vaccine requirements for school entry listed.
National Network of Libraries of Medicine (NNLM)
8600 Rockville Pike,Bldg. 38, Room B1-E03
Bethesda, MD 20894
https://nnlm.gov
*The mission of NNLM is to advance the progress of medicine and improve the public health by providing all U.S. health professionals with equal access to biomedical information and improving the public's access to information to enable them to make informed decisions about their health. The Program is coordinated by the National Library of Medicine and carried out through a nationwide network of health science libraries and information centers.
National Organization for Rare Disorders (NORD)
PO Box 1968, 55 Kenosia Avenue
Danbury, CT 06813-1968
(800) 999-6673 (voicemail only)
(203)798-2291 (Fax)
http://www.rarediseases.org/
email: orphan@rarediseases.org *Please note:If you must send NORD an attachment, please notify them first. They are unable to open unexpected e-mail attachments.
National Rehabilitation Information Center
4200 Forbes Blvd., Suite 202
Lanham, MD 20706
(800) 346-2742
TTY (301) 459-5984
http://www.naric.com
email: naricinfo@heitechservices.com
Speech Therapy Ideas and Speech Therapy Activities
http://www.speechtherapyideas.com
*Provides speech therapy ideas and activities developed by a licensed Speech Language Pathologist for parents and professionals.
The Children's Hospital of Philadelphia's Vaccine Education Center
http://www.vaccine.chop.edu/
*The goal of the Vaccine Education Center is to accurately communicate the facts about each childhood vaccine as well as how vaccines are made, how and why they work, who recommends them, and more.
The Early Childhood Research Institute on Culturally and Linguistically Appropriate Services (CLAS)
61 Children's Research Center
Champaign, IL 61821
(877) 275-3227
(217) 333-4123
http://www.clas.uiuc.edu/aboutclas.html
*Dear Visitors: Federal funding for this website ended in 2003, therefore few materials have been added since that time. Fortunately, there is continued interest in culturally and appropriate materials, curriculum, and programs. Because of this, we have allowed this site to remain as an archive. Please feel free to use this site, but recognize that it is no longer current.
UAB Civitan International Research Center/University of Alabama Center of Excellence in Developmental Disabilities (UCEDD)
1530 3rd Ave. South CIRC 329
Birmingham, AL 35294
1-800-UAB-CIRC
205-934-8900
205-975-6330 (Fax)
http://www.circ.uab.edu/
*CIRC provides services throughout Alabama and the surrounding region.
United States Department of Health and Human Services/National Mental Health Information Center
P.O. Box 42557
Washington, DC 20015
1-800-789-2647
TDD: (866) 889-2647
(240) 221-4295 (Fax)
http://mentalhealth.samhsa.gov/child/childhealt...
University of Montana Rural Institute Center for Excellence in Disability Education, Research, and Services
52 Corban Hall
Missoula , MT 59812
(800) 732-0032
(406) 243-5467
http://ruralinstitute.umt.edu
*Information regarding RURAL living and services. *Native American Resource Listings
Vanderbilt University Clinical Research Center
1161 21st Avenue South, AA-3208 MCN
Nashville, TN 37232-2195
615-322-6972
615-343-2979 (Fax)
http://www.mc.vanderbilt.edu/gcrc/
Military Family Support Organizations
Child Care Aware - Military Programs
3101 Wilson Blvd. Suite 350
Arlington, VA 22201
1-800-424-2246
TTY:1-866-278-9428
(703) 341-4101 (Fax)
http://usa.childcareaware.org
Child Care Aware is a cooperative program of the National Association of Child Care Resource and Referral Agencies. Funded through the Office of Family Assistance, Administration for Children and Families, U.S. Department of Health and Human Services. **SNRP does NOT endorse this site. Listed for reference only. Use responsible caution when investigating ALL care providers.
Military Families Learning Network
University of Nebraska - Lincoln
Lincoln, NE 68583-0918
(402) 472-9725
(402) 472-7796 (Fax)
http://blogs.extension.org/militaryfamilies
*The purpose of the Military Families Learning Network is to serve military family service professionals through engaged online communities which identify and make use of the highest quality, best practices, research-and evidence-based information, educational and curriculum materials, and programming activities and efforts.
Military Quick Links (National Guard, Reserve, Active Duty)
ABA Military Pro Bono Project
321 N. Clark St.
Chicago, IL 60654
312-988-5783
http://www.militaryprobono.org
*The ABA Military Pro Bono Project accepts case referrals from military attorneys on behalf of junior-enlisted, active-duty military personnel and their families with civil legal problems, and it places these cases with pro bono attorneys where the legal assistance is needed. The Project is also the platform for Operation Stand-By, through which military attorneys may seek attorney-to-attorney advice to further assist their service member clients.
American Bar Association/Military Lawyers
http://www.americanbar.org/portals/military_law...
*Scroll down the home page to the very bottom for Military and Veteran Bar Association listings.
DoD Forms Management Program
http://www.esd.whs.mil/Directives/forms/dd0001_...
*Find Dependency Determination Forms here. Scroll down to the DD 137-5 Dependency Statement - Incapacitated Child Over Age 21 and click on the form number. This form can be filled out on line.
Exceptional Family Member Program/All Branches/Mobile
http://apps.militaryonesource.mil/pls/psgprod/f...
Contains contact information, Base program locators and enrollment/justification forms for ALL Branches of service.
Kids' Waivers/Medicaid Waiver Programs
http://www.kidswaivers.org
Medicaid waivers for children are unfortunately quite confusing. Not only that, but it is impossible to find information about them. This project State-by-State is intended to simplify the process as much as possible.
Medicaid Waiver dot Org
http://medicaidwaiver.org
*A state-by-state Medicaid Waiver program listing. Please note: Medicaid programs do not transfer. If you're planning a move you'll want to do some homework. Start here then go to the official page of the state you are considering.
Military Home Front/Exceptional Family Member Program (EFMP)
http://www.militaryonesource.mil/-/the-exceptio...
*Over 100,000 military families have members with special needs. These include spouses, children, or dependent parents who require special medical or educational services. These family members have a diagnosed physical, intellectual, or emotional condition. The Exceptional Family Member Program (EFMP) works with these families to address their unique needs.The materials within this section of Military HOMEFRONT are designed to give service members and their families critical information and resources related to the EFMP program.
Military One Source
800-342-9647
http://www.militaryonesource.mil
* A DoD supported site. Military OneSource has policy and programmatic information, helpful resources, products, articles and tips on numerous topics related to military life. Confidential services are available 24 hours a day by telephone and online. In addition to the website support, Military OneSource offers confidential call center and online support for consultations on a number of issues such as spouse education and career opportunities, issues specific to families with a member with special needs, health coaching, financial support, and resources.
Military Parent Technical Assistance Center
6316 S 12th St
Tacoma, WA 98465
(253) 565-2266
(800) 572-7368
https://branchta.org
E-mail: thebranch@wapave.org * Provides Base EFMP and Special Needs contact information for all regions, all branches of service.
National Military Family Association
3601 Eisenhower Avenue, Suite 425
Alexandria, VA 22304
http://www.militaryfamily.org
E-mail: infor@militaryfamily.org *Click on Info & Resources links for EFMP=Special Needs information.
State & Local Government on the Net
http://statelocalgov.net/50states-military-vete...
*State listings for Military and Veterans sites within the 50 United States.
The National Guard Family Program
https://www.jointservicessupport.org/fp/
*Click on Contacts & Resources to find your state program.
The National Resource Directory
http://www.nationalresourcedirectory.gov
The National Resource Directory (NRD) provides access to services and resources at the national, state and local levels that support recovery, rehabilitation and community reintegration.
 
Other
Ability OnLine Support Network
1120 Finch Avenue West, Suite 104
Toronto, Ontario, DC Canada M3J 3H7
1-866-650-6207
416-650-6207
416-650-5073 (Fax)
http://www.ablelink.org
Email: information@ablelink.org *Canadian On-Line Support Community. Monitored for safety. As with all bulletins boards/chat rooms exercise supervision and caution.
Adaptions By Adrian
P.O. Box 7
San Marcos, CA 92079-0007
1-877- 623 - 7426
http://www.adaptationsbyadrian.com/
Email: adrians1@sbcglobal.net *Clothing adaptions.
Disability Studies, Temple University Blog
http://disstud.blogspot.com
*Based at Temple University but with nationwide contributors. Has a LARGE list of disability related blogs.
National Alliance for Direct Support Professionals
240 Washington Ave. Suite 501
Albany, NY 12203
518-449-7551
https://www.nadsp.org
E-Mail:lisam@nysacra.org * Working to enhance the status of direct support professionals and promote the development of a highly competent human services workforce.
National Council of La Raza
Raul Gzaguirre Bldg., 1126 St. N.W.
Washington, DC 20036
(202) 785-1670
(202) 776-1792 (Fax)
http://www.nclr.org
*Latin American Services
Sibling Support Project
16120 NE Eighth Street
Bellevue, WA 98008
(425) 747-4004
TTY 1-800-833-6388
(425) 747-1069 (Fax)
http://www.siblingsupport.org
email:info@kindering.org
The Special Parent dot Com
http://thespecialparent.com
 
Parent Support Programs
A Mother's Rest Charitable Respite Foundation
P.O. Box 131
Monrovia, MD 21770
https://www.amothersrest.org
Email: innkeeper@amothersrest.org *Non-profit AMR coordinates affordable, 3-night respite retreats with our national network of bed and breakfast inn partners. Proactive health initiative. Exclusively for parents and caregivers of children or adults with ANY extra need. Serving bio & adoptive parents. Moms, Dads, Couples, Grandparents, Special Educators, Mommy & Me, Daddy & Me, Families. Funding for child care and summer camp grants, financial planning, employment
Autism Support Network
P.O. Box 1525
Fairfield, CT 06824
(203) 404-4929
(203) 404-4969 (Fax)
http://www.autismsupportnetwork.com
E-mail: info@AutismSupportNetwork.com *The mission of Autism Support Network is: connect, guide and unite. Our goal is to short-cut the uphill battle individuals and families undertake when faced with autism – whether that means the initial diagnosis, the day-to-day living and coping needed, relationship and therapeutic strategies and the latest information. **Use the search engine on the Home Page to find resources in your state areas.
CADRE ~ Consortium for Appropriate Dispute Resolution in Special Education
3411-A Willamette Street
Eugene, OR 97405-5122
(541) 686-5060
TTY: (541) 284-4740
(541) 686-5063 (Fax)
http://www.directionservice.org/cadre/
* Encourages the use of mediation and other collaborative strategies to resolve disagreements about special education and early intervention programs.
Center for Parent Information and Resources
35 Halsey St., Fourth Floor
Newark, NJ 07102
(202) 884-8355
http://www.parentcenterhub.org
*NICHCY has closed their doors. Find hundreds of legacy NICHCY publications, as well as our training curriculum on IDEA 2004, in the Center for Parent Information and Resources' Library.
Center for Parent Information and Resources
35 Halsey St., Fourth Floor
Newark, NJ 07102
(800) 654-7726
(973) 642-8100
http://www.parentcenterhub.org/find-your-center/
**Each state has at least one parent center. These should be listed on your state resource links page. If not, click here and find your state on the map.
Compassion Fatigue Awareness Project
http://compassionfatigue.org
The Compassion Fatigue Awareness Project© is dedicated to educating caregivers about authentic, sustainable self-care and aiding organizations in their goal of providing healthy, compassionate care to those whom they serve. E-mail: patricia@compassionfatigue.org
Dads 4 Special Kids, Inc.
P.O. Box 73182
Phoenix, AZ 85050
602-909-5463
602-441-3248 (Fax)
http://dads4specialkids.org
E-mail: ray@dads4specialkids.org *To improve the lives of men and their families who care for children with special needs. We desire to provide an atmosphere where men can share and learn from others. To accomplish this we host monthly meetings, offer workshops that provide knowledge and practical skills for cultivating healthy communication within the marriage and family, and provide information on resources within the valley of the sun.
DadsMOVE (Mentoring Others With Voices of Experience)
6315 South 19th Street
Tacoma, WA 98466
http://www.dadsmove.org
*Dads MOVE serves all parents and the families of children with special needs - mental health, behavioral, or emotional concerns, across Washington State and soon, the nation. We are a family-focused, dads driven peer support model, providing education, support, and advocacy to the families of special needs children. CHECK OUT THEIR BLOG!
Disabled Parenting Project (DPP)
http://www.disabledparenting.com
*An online organization, the Disabled Parenting Project is on a mission to leverage technology in order to create opportunities for parents and prospective parents with disabilities to connect and interact, and serve as an information clearinghouse for relevant information about adaptive parenting.
Exceptional Children's Assistance Center (ECAC) Region 2 & 3
907 Barra Row, Suite 102/103
Davidson , NC 28036
(800) 962-6817
(704) 892-1321
http://www.ecac-parentcenter.org/
email: ecacta@ecacmail.org
Family Voices
3701 San Mateo Blvd. NE, Suite 103
Albuquerque, NM 87110
(888) 835-5669
(505) 872-4774
(505) 872-4780 (Fax)
http://www.familyvoices.org
Family Voices aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities. Through our national network, we provide families tools to make informed decisions, advocate for improved public and private policies, build partnerships among professionals and families, and serve as a trusted resource on health care. *Click on your state for local chapter information.
Hands and Voices
PO Box 3093
Boulder, CO 80307
(866) 422-0422
http://www.handsandvoices.org/index.htm
E-mail: parentadvocate@handsandvoices.org *Dedicated to supporting families with children who are Deaf or Hard of Hearing without a bias around communication modes or methodology. We're a parent-driven, non-profit organization providing families with the resources, networks, and information they need to improve communication access and educational outcomes for their children, nationwide. Click on the Map to find the chapter in your state.
Kids Together, Inc.
P.O. Box 574
Quakertown, PA 18954
http://www.kidstogether.org
E-mail staff @ kidstogether.org
Matrix Parent Network and Resource Center Region 6
94 Galli Drive, Suite C
Novato, CA 94949
(800) 578-2592
(415) 884-3535
(415) 884-2592 (Fax)
http://www.matrixparents.org
email: region6@matrixparents.org
Mommies of Miracles
http://www.mommiesofmiracles.com
*Mommies of Miracles is a growing international peer-driven support group of mothers who have children of any age (infant-adult) with complex medical issues, rare or undiagnosed conditions, and/or developmental disabilities.
National Family Caregivers Association
10400 Connecticut Avenue, Suite 500
Kensington, MD 20895-3944
1-800-896-3650
(301) 942-6430
(301) 942-2302 (Fax)
http://www.nfcacares.org/
E-mail: info@thefamilycaregiver.org
National Fatherhood Initiative
101 Lake Forest Boulevard, Suite 360
Gaithersburg, MD 20877
(301) 948-0599
(301) 948-4325 (Fax)
http://www.fatherhood.org
*See Programs~Military for Deployed Fathers and Families information available for a small fee. **This is a for-profit site not endorsed by SNRP.
National Technical Assistance Center/PACER Center
8161 Normandale Blvd.
Minneapolis, MN 55437-1044
1-800-248-0822
(952) 838-9000
(952) 838-0199 (Fax)
http://www.taalliance.org
Ohio Coalition for the Education of Children with Disabilities (OCECD)
165 West Center Street, Suite 302
Marion , OH 43302-3741
(800) 374-2806
(740) 382-5452
(740) 383-6421 (Fax)
http://www.ocecd.org
email: oced@gte.net *Check for information in your state.
Parent Technical Assistance Center Network
35 Halsey St., 4th Floor
Newark, NJ 07102
(973) 642-8100
http://www.parentcenterhub.org/rptacs/
*Parent Centers provide training, information and assistance to families of children with all disabilities ages birth to 26 years and the professionals who work with them. Click on the Regional Map to find the program/programs in your state.
Parent to Parent USA (P2PUSA)
2030 M St. NW, Suite 350
Washington, DC 20036
http://www.p2pusa.org/p2pusa/sitepages/p2p-home...
E-mail: memberinfo@p2pusa.org *The site is now closed but still has some archived information.
PEAK Parent Center, Inc Region 5
611 North Weber, Suite 200
Colorado Springs, CO 80903
(800) 284-0251
(719) 531-9400
http://www.peakparent.org
email: region5ptac@peakparent.org
Sesame Street & Autism - Resources for Parents
http://autism.sesamestreet.org
*Sesame Workshop created Sesame Street and Autism: See Amazing in All Children, a nationwide initiative aimed at communities with children ages 2 to 5. Developed with input from parents, people who serve the autism community, and people with autism, See Amazing in All Children offers families ways to manage common challenges, to simplify everyday activities, and to grow connections and support from family, friends, and community.
Sibling Support Project/A Kindering Center Program
6512 23rd Ave NW, #213
Seattle, WA 98117
(206) 297-6368
(509) 752-6789 (Fax)
http://www.siblingsupport.org
E-mail: info@siblingsupport.org *The Sibling Support Project is a national effort dedicated to the life-long concerns of brothers and sisters of people who have special health, developmental, or mental health concerns.
SPAN Parent Advocacy Network
35 Halsey St., Fourth Floor
Newark, NJ 07102
1-800-654-SPAN
973-642-8100
973-642-8080 (Fax)
http://www.spanadvocacy.org/node
*An independent 501(c)3 organization committed to empowering families as advocates and partners in improving education, health, and mental health outcomes for infants, toddlers, children and youth.
Specialized Training of Military Parents (STOMP)
PAVE 6316 S. 12th Street, Suite B
Tacoma , WA 98465
(V/TTY) (800) 572-7368
(V/TTY) (253) 565-2266
(253) 566-8052 (Fax)
http://wapave.org/programs/specialized-training...
*STOMP, a parent-directed program, exists to empower military parents, individuals with disabilities, and service providers with knowledge, skills, and resources so that they might access services to create a collaborative environment for family and professional partnerships without regard to geographic location.
The Caregiver's Space
http://www.thecaregiverspace.org
*The Caregiver Space is designed to be a free social network, dedicated solely to the welfare of caregivers­: The Invisible Patients. Our goal is to become the premier center for finding resources, sharing experiences, developing personal networks and learning ways to minimize and cope with caregiver stress. Our code is to provide services that transcend disease, age, length of illness and income.
The Fathers Network
Kindering Center 16120 NE, Eighth Street
Bellevue, WA 98008
(425) 747-4004 EXT: 4286
(425) 747-1069 (Fax)
http://www.fathersnetwork.org
Supports fathers raising children with Special Needs. Links to Father's networks in the U.S., Canada, and New Zealand.
The Temple University Collaborative on Community Inclusion
1700 N. Broad Street, Suite 313
Philadelphia, PA 19122
215-204-6779
http://tucollaborative.org/community-inclusion-...
E-mail: abilger@temple.edu *Contains an excellent list of available educational, and other, resources.
Think Kids: Rethinking Challenging Kids
CPS Institute 313 Washington Street, Suite 402
Newtons Corner, MA 02458
617.244.0400
FAX 617.965.3080 (Fax)
http://www.thinkkids.org
E-mail: info@thinkkids.org *Massachusetts General Hospital
Through The Looking Glass
2198 Sixth Street, Suite 100
Berkeley, CA 94710-2204
1-800-644-2666
TTY: 1-800-804-1616
(510) 848-4445 (Fax)
http://lookingglass.org/index.php
 
Patient Assistance Programs
American Dental Association ~ Give Kids A Smile Program
http://www.givekidsasmile.ada.org/findGKAS.asp
*This is a yearly clinic in most communities. Click on the Clinic locator to find a clinic in your area.
Merck Patient Assistance Programs
P.O. Box 100
Whitehouse Station, NJ 08889-0100
908-423-1000
http://www.merck.com/merckhelps/patientassistance/
Merck offers a family of programs providing free and discounted medicines to patients who cannot afford their prescribed medicines.
National Council on Patient Information and Education
200-A Monroe Street, Suite 212
Rockville, MD 20850
(301) 340-3940
(301) 340-3944 (Fax)
http://www.talkaboutrx.org
Email: ncpie@ncpie.info
NeedyMeds
P.O. Box 219
Gloucester, MA 01931
http://www.needymeds.org
NeedyMeds is a 501(c)(3) national non profit, has information on programs that help people who can't afford their medications and health care costs. Provides data regarding approximately 2400 programs and nearly 11,000 free/low-cost/sliding-scale clinics.
Partnership for Prescription Assistance
1-888-477-2669
http://www.pparx.org
The Partnership for Prescription Assistance offers a single point of access to more than 475 public and private patient assistance programs, including more than 180 programs offered by pharmaceutical companies. More than 2,500 brand-name and generic medicines are covered.
Partnership for Prescription Assistance Kids
1-877-369-1477
http://kids.pparx.org
The Partnership for Prescription Assistance offers a single point of access to more than 475 public and private patient assistance programs, including more than 180 programs offered by pharmaceutical companies. More than 2,500 brand-name and generic medicines are covered.
Pfizer Helpful Answers
1-866-706-2400
http://www.pfizerhelpfulanswers.com
Pfizer Helpful Answers is a family of assistance programs for uninsured and underinsured patients who need help getting their Pfizer medicines. These programs provide: •Pfizer medicines for free or at a savings to patients who qualify •Some programs also offer reimbursement support services Call for more information.
RxAssist
111 Brewster Street
Pawtucket, RI 02860
401-729-3284
401-729-2955 (Fax)
http://www.rxassist.org
Email: info@rxassist.org Patient Assistance Program Center ~ Offers a comprehensive database of programs and information.
Recreation
U.S. Adaptive Recreation Center
43101 Goldmine Drive
Big Bear Lake, CA 92351
909-584-0269
TTY/1-800-735-2929
909-585-6805 (Fax)
http://www.usarc.org
E-mail: mail@usarc.org * Offers a variety of programs for all ages and abilities year round. Contact for more information.
United States Tennis Association/Wheelchair Tennis
70 West Red Oak Lane
White Plains, NY 10604
HQ (914) 696-7000
https://www.usta.com/en/home/play/lots-of-ways-...
*Provides regulation and paralympic play information nation wide.Contact for full program information.
Accessible Playground dot Net
1463 Greystone Dr.
Pittsburgh, PA 15206
(412) 334-2652
http://www.accessibleplayground.net
E-mail: mara@letkidsplay.com *Excellent web based center for information re: Accessible playgrounds. Provides a nationwide state-by-state playground directory and playground resources.
Adaptive Action Sports
PO box 16558
South Lake Tahoe, CA 96151
http://adacs.org
General Information E-mail: info@adacs.org Check out their blog at http://adaptiveactionsports.blogspot.com
Adaptive Adventures ~ Chicago
2616 Wilmette Avenue
Wilmette, IL 60091
(847) 251-8445
(866) 679-2770
http://www.adaptiveadventures.org
E-mail: info@adaptiveadventures.org
Adaptive Adventures ~ Evergreen
P.O. Box2245
Evergreen, CO 84037
(877) 679-2770
(303) 670-8290 (Fax)
http://www.adaptiveadventures.org
E-mail: info@adaptiveadventures.org
American Amputee Hockey Association and Standing Amputee
http://www.usahockey.com/page/show/902518-stand...
E-Mail: DisabledHockey@USAHockey.org *The AAHA invites all players with limb loss/ birth defects/ and other disabilities to play upright ice hockey.
American Blind Skiing Foundation
2228 Grand Pointe Trail
Aurora, IL 60504
http://www.absf.org/
Email: ABSF@absf.org
American Camp Association
5000 State Road 67 North
Martinsville, IN 46151-7902
800-428-2267
765-342-8456
765-342-2065 (Fax)
https://www.acacamps.org
*24 Regional Offices nationwide. Check listings for camps near you.
American Therapeutic Recreation Association
1414 Prince Street, Suite 204
Alexandria, VA 22314
(703) 683-9420
(703) 683-9431 (Fax)
http://atra-online.com
American Wheelchair Bowling Association
P.O. Box 69
Clover, VA 24534
http://www.awba.org
E-mail: info@awba.org *The AWBA provides a competitive, challenging, and informative environment for those individuals with disabilities requiring the use of a wheelchair while bowling to participate in bowling events no matter their individual skill level.
Americans for The Arts
1000 Vermont Avenue NW, 6th Floor
Washington, DC 20005
(202) 371-2830
(202) 371-0424 (Fax)
http://www.AmericansForTheArts.org
Email: info@artsusa.org
Amputee Coalition
900 East Hill Avenue, Suite 205
Knoxville, TN 37915
888-267-5669
http://www.amputee-coalition.org
E-Mail: amputee-coalition.org *See for amputee camps listed by state.
Art Shop Therapuetic Art Lessons for Children and Adults with Disabilities
1043 Grand Ave.
St. Paul, MN 55105
612-254-5013
http://artshoptherapy.com
*ArtShop provides opportunities for children and adults with cognitive, developmental, emotional and physical disabilities to participate in the creative process and develop as artists. Through therapeutic art lessons and projects adapted for individuals with disabilities, ArtShop utilizes the process of creating art to promote and develop self expression and empowerment.
Artistic Realization Technologies, Inc.
11 Whippoorwill Way
Belle Meade, NJ 08502
908-359-3098
http://www.artrealization.org
E-mail: info@artrealization.org *Created technologies, studio programming, and training that empowers those who lack the articulate use of their hands to gain perfect individual control of the art-making process.
Best Buddies - Global Headquarters
100 Southeast Second Street, Suite 2200
Miami , FL 33131
(800) 892-8339
(305) 374-2233
(305) 374-5305 (Fax)
http://www.bestbuddies.org
*Currently has 177 chapters across the United States. Contact for a chapter in your area.
C.A.S.T. for Kids Foundation (Eastern Region)
1529 Sunview Drive
Dallas, TX 75253
(972) 913-2933
(972) 557-8447 (Fax)
http://www.castforkids.org/
Email: art@castforkids.org *Contact for a program in your state.
C.A.S.T. for Kids Foundation (Western Region)
227 S.W. 41st Street
Renton, WA 98057
(425) 251-3214
(425) 251-3272 (Fax)
http://www.castforkids.org/
Email:jim@castforkids.org *Contact for a fishing program in your state
Camp Huntington
56 Bruceville Rd
High Falls, NY 12440
(866) 514-5281
http://www.camphuntington.com
E-mail: admissions@camphuntington.com Founded in 1960, Camp Huntington serves youth with Learning and Developmental Disabilities, ADD/HD, Autism Spectrum Disorders, Apsperger's, PDD, and other special needs. The camp is located in High Falls, NY on a 34-acre rural site that provides a fun, safe summer experience for 6- to 21-year-olds. Our program is specifically designed to focus on Adaptive and Therapeutic Recreation. Campers are grouped by age and ability, not by diagnosis, and spend time swimming, playing music, cooking, indoor climbing, singing and acting. We serve campers from the U.S. and other countries
CampResource.com/Online Summer Camp Directory
http://www.campresource.com
*Special needs camps for boys and girls that focus on the challenges of ADHD, Autism, physical disabilities, weight loss, diabetes, and many other special needs that children face. Listed alphabetically. Can search by camp type and state.
Challenge Air
7363 Cedar Springs Road
Dallas, TX 75235
(214) 351-3353
1-877-FLY-KIDS
http://www.challengeair.com
Challenge Air has enriched the lives of children and youth with special needs through its unique aviation programs since 1993. Programs can be set up in various communities that qualify. Contact for details!
Culture! Disability! Talent
P.O. Box 1107
Berkeley, CA 94701
(510) 845-5576
http://www.culturedisabilitytalent.org
Email: cdtinfo@aol.com
Disabled Sports USA
451 Hungerford Drive, Suite 100
Rockville, MD 20850
(301) 217-0960
301) 217-0960 Phone (Fax)
http://www.disabledsportsusa.org
Email: information@dsusa.org *LONG list of disability sports programs throughout the US.
Dreams Fulfilled Through Music
P.O. Box 40548
San Antonio, TX 78229
210-771-5809
210-247-9681 (Fax)
http://dreamsfulfilledthroughmusic.org/index.ph...
E-mail: info@dftm.org *National Music Teacher Directory for teachers specializing/also teaching children with special needs. Click on Resources then Teacher Directory.
Dwarf Athletic Association of America
418 Willow Way
Highland Village, TX 75077
(972) 317-8299
(972) 966-0184 (Fax)
http://www.daaa.org/
Fishing Has No Boundaries, Inc.
15453 County Hwy B, P.O. Box 175
Hayward, WI 54843
800-243-3462
715-634-3185
http://fhnbinc.org
*Check Chapter Listing for a chapter in your state.
FlagHouse Inc.
601 FlagHouse Drive
Hasbrouck Heights , NJ 07604-3116
http://www.flaghouse.com
*Need a grant? Click on "Grant Writing Center" in the bottom menu for more information. *Supplier of Special Needs equipment and resources for physical education, sports, fitness, and recreation and for health, special needs, special education, sensory integration, and multisensory environments.
Freedom's Wings International, Inc.
324 Charles Street, Apt #25
Coopersburg, PA 18036
(800) 382-1197
http://www.freedomswings.org
Freedom's Wings International (FWI) is a non-profit organization run by and for people with physical disabilities. We provide the opportunity for those who are physically challenged to fly in specially adapted sailplanes, either as a passenger or as a member of the flight training program.
Fun and Function
PO Box 11
Merion Station, PA 19066
(800) 231-6329
(215) 876-8500
(866) 343-6863 (Fax)
http://funandfunction.com
E-mail: Sales@FunandFunction.com *We design sensory toys and therapy equipment for special needs to help children learn adaptive responses for what they may lack or crave.
Hole in the Wall Camps
265 Church Street, Suite #503
New Haven, CT 06510
(203) 562-1203
(203) 562-1207 (Fax)
http://www.holeinthewallcamps.org
Email: info@holeinthewallcamps.org *Camps located in 34 states and 31 countries. Contact to find camp nearest you.
HopeKids
P.O. Box 672
Cave Creek, AZ 85327-0672
800-319-5845
888-418-3980 (Fax)
http://www.hopekids.org
E-mail: info@hopekids.org *Provides ongoing events & activities and a powerful, unique support community for families who have a child with cancer or some other life-threatening medical condition. We surround these remarkable children and their families with the message that hope can be a powerful medicine.** Chapters currently in Arizona,Utah,Texas, and Minnesota. See site for chapter contact information.
International Wheelchair Aviators
P.O. Box 279
Kemah, TX 77565
281-703-7450
http://wheelchairaviators.org
E-mail: IWAviators@aol.com A worldwide group of disabled and able bodied pilots interested in aviation and flying. Members have many different disabilities including paraplegia,quadriplegia, amputee, multiple sclerosis, spina bifida, polio and other problems.
KaBoom
4455 Connecticut Ave., NW, Suite B100
Washington, DC 20008
1-202-659-0215
http://kaboom.org
National accessible playground project. See site for locations.
Kids Camps.Com
500 NE Spanish River Blvd., Suite 30
Boca Raton, FL 33431
(877) 242-9330
(561) 443-2924
(866) 665-2904 (Fax)
http://kidscamps.com/
Email: info@kidscamps.com *Listing of Special Needs Camps by disability and region.
Lakeshore Foundation
4000 Ridgeway Drive
Birmingham, AL 35209
205-313-7400
http://www.lakeshore.org/
email: information@lakeshore.org * Camp for both children and adults. **Also serves injured US Servicemen.
Let Kids Play!
1463 Greystone Dr.
Pittsburgh, PA 15206
(412) 334-2652
http://www.letkidsplay.com
E-mail: mara@letkidsplay.com *Let Kids Play is a consulting firm that works with manufacturers, communities, non-profits, park districts, retail stores, and parents on projects and strategies that ensure that all children have the best play opportunities possible
Liberty Swing
http://www.libertyswing.com.au
For information E-mail: Australia office at diane@libertyswing.com.au *Playground swing equipment for people with disabilities which enable children in wheelchairs to enjoy the fun and recreation of swinging.
Life Rolls On
400 Corporate Pointe, Suite 525
Culver City, CA 90230
866-We Will Walk
(Ph) (310) 807-5488 (Fax)
http://www.liferollson.org
Email: Contact@LifeRollsOn.org *Life Rolls On is a non-profit organization that inspires others to see the boundless possibilities beyond paralysis. Established in 2002, LRO’s signature adaptive surfing program, They Will Surf Again, has grown into a catalyst of hope for thousands of individuals throughout the world.
Morgans™ Wonderland (Fully Accessible Theme Park)
5223 David Edwards Drive
San Antonio, TX 78233
(210) 495-5888
(877) 495-5888 (toll free)
http://www.morganswonderland.com
E-mail: info@morganswonderland.com *Provides a safe, clean and beautiful environment free of economic barriers that all individuals, regardless of age, special need or disability, can come to and enjoy.
MySummerCamps.Com
909 Sepulveda Blvd.
El Segundo, CA 90245
310-280-4105
877-777-7738
310-280-4921 (Fax)
http://www.mysummercamps.com/camps/Special_Need...
*Large resource listing of a wide variety of Special Needs summer camps in the US and Canada.
National 4-H Council
7100 Connecticut Ave.
Chevy Chase, MD 28015
301-961-2800
https://4-h.org/about/leadership/national-4-h-c...
*Click on "Contact Us" to find your local chapter.
National Ability Center (Bronfman Family Recreational Center and Ranch)
3351 No. Highway 248
Park City, UT 84060
Voice/TDD: 1-435-649-3991
435-49-3991 ext. 7 Ski Center
http://www.discovernac.org
*Offers year round sports and camps for individuals with disabilities and their families.
National Alliance for Accessible Golf
12100 Sunset Hills Road, Suite 130
Reston, VA 20190
(703) 234-4136
(703) 435-4390 (Fax)
http://www.accessgolf.org
Email: info@accessgolf.org
National Amputee Golf Association
11 Walnut Hill Rd
Amherst, NH 03031
http://nagagolf.org
E-mail:info@nagagolf.org See "Related Links" for regional and international organization contact information.
National Arts and Disability Center Tarjan Center for Developmental Disabilities
300 UCLA Medical Plaza Suite #3310
Los Angeles, CA 90095-6967
(310) 794-1141
(310) 794-1143 (Fax)
http://nadc.ucla.edu/index.cfm
National Assembly of State Art Agencies
1029 Vermont Ave., NW 2nd Floor
Washington, DC 20005
(202) 347-6352
TDD: (202) 347-5948
(202) 737-0526 (Fax)
http://www.nasaa-arts.org/
Email: nasaa@nasaa-arts.org
National Beep Baseball Association
http://www.nbba.org/
NBBA General Information - Email: secretary@nbba.org Contact to find a team near you.
National Center on Accessibility
501 North Morton Street, #109
Bloomington, IL 47404-3732
(812) 856-4422
TTY(812) 856-4421
(812) 856-4480 (Fax)
http://www.ncaonline.org
*NCA was established through a cooperative agreement between Indiana University and the National Park Service. Over the last two decades, NCA has emerged as a leading authority on access issues unique to park and recreation programs and facilities.
National Center on Physical Activity and Disability
1640 W. Roosevelt Road
Chicago, IL 60608-6904
1-800-900-8086
1-312-355-4058 (Fax)
http://www.ncpad.org/
Email: ncpad@uic.edu. *Maintains a State-by-state listing of Summer Camps and recreational facilities.
National Endowment for the Arts/Children With Disabilities Resource List
1100 Pennsylvania Avenue NW
Washington, DC 20506
(202) 682-5532
TTY: (202) 682-5496
http://arts.gov
National Inclusion Project - Let's ALL Play Resources
800 Park Office Dr Suite 3314
RTP, NC 27709
919-314-5540
919-314-5541 (Fax)
https://www.inclusionproject.org/lets-all-play/...
Email: contactus@inclusionproject.org *Let’s ALL Play provides training, resources, and partnerships for recreational programs that are currently serving children with special needs and wish to do it better or programs seeking to open doors currently shut to children with special needs in their community. We strive to meet programs where they are.
National Lekotek Center
3204 W. Armitage Avenue
Chicago, IL 60647
(800) 366-7529
(773) 276-5164
(773) 276-8644 (Fax)
http://www.lekotek.org/
email: ekotek@lekotek.org *Specializes in adapted toys and play aids.
National Park Service/Accessible Opportunities in National Parks
http://www.nps.gov/pub_aff/access/opportunities...
*Contact information is available by Park. Check out the left-hand menu for more National Park accessibility information.
National Parks InteragencyAmerica the Beautiful Passes
http://www.nps.gov/fees_passes.htm
*Updated information regarding free access passes to National Parks for U.S. citizens or permanent residents with permanent disabilities.
National Sports Center for the Disabled
P.O. Box 1290
Winterpark , CO 80482
(970) 726-1540
(303) 316-1540
(970) 726-4112 (Fax)
http://www.nscd.org
*National Sports Center for the Disabled's mission is to positively impact the lives of people with any physical or mental challenge through quality adaptive recreation programs in over 20 sports.
National Wheelchair Basketball Association
1130 Elkton St., Suite C
Colorado Springs, CO 80907
(719) 266-4082
(719) 266-4876 (Fax)
http://www.nwba.org
E-mail: info@nwba.org
New England Handicapped Sports Association
PO Box 2135
Newbury, NH 03255-2135
(603) 763-2356
(603) 763-4400 (Fax)
http://www.nehsa.org/
Email: info@nehsa.org
Professional Association of Therapeutic Horsemanship International (PATH Intl.)
7475 Dakin Street Suite #600
Denver, CO 80221
(800) 369-RIDE (7433)
Fax (303) 252-4610 (Fax)
https://www.pathintl.org
*The PATH Intl. mission is to promote safety and optimal outcomes in equine-assisted activities and therapies for individuals with special needs. Find an NARHA certified Center in your state from the home page.
Sensafloat
http://www.reboundtherapy.org/hydrotherapy
E-Mail: Hydro@reboundtherapy.org Original Floatsation is a unique water support aid, designed to facilitate relaxation and movement in water. It has applications for children and adults across the whole spectrum of special needs. Winner of the 1993 Toshiba / CBI Invention of the Year award.
Special Olympics Program Locator
1133 19th Street, N.W.
Washington, DC 20036
1-202-628-3630
http://resources.specialolympics.org/RegionsPag...
*Check here to find a program in your area.
SportsAbilities
9249 South Broadway #200-156
Highlands Ranch, CO 80129
http://sportsabilities.com
*We are the premier resource for people with disabilities to find recreational, advocacy, support, and sporting activities in the nation. We have calendars for every state and 27 different activities ranging from Team Sports to Social Gatherings.
TFH Special Needs Toys
4537 Gibsonia Road
Gibsonia, PA 15044
(800) 467-6222
(724) 444-6411 (Fax)
http://www.specialneedstoys.com
The Center for Courageous Kids
1501 Burnley Road
Scottsville, KY 42164
270-618-2900
http://www.thecenterforcourageouskids.org
E-mail info@courageouskids.org *The Center for Courageous Kids, also known as CCK, is a world class medical camp located in Scottsville, KY, serving children and families from across the country who are living with a variety of medical challenges. We are open year round and can host 120 kids at a time.
The John F. Kennedy Center for the Performing Arts
2700 F. Street, NW
Washington, DC 20566-0001
(202) 416-8727
(202) 416-8728 (Fax)
http://www.kennedy-center.org/accessibility/
Email: access@kennedy-center.org
The Miracle League Association
1506 Klondike Road, Suite 105
Conyers, GA 30094
770 760-1933
770 483-1223 (Fax)
http://www.miracleleague.com
E-mail: Johnny@miracleleague.com *The Miracle League focuses on removing barriers which keep mentally and physically disabled children off the baseball field and lets them experience the joy of America's favorite pastime.Click on "Find a League" to find a league in your community.
The National Alliance for Accessible Golf
1733 King Street
Alexandria, VA 22314
(703) 299-4296
(703) 739-0124 (Fax)
http://www.accessgolf.org
E-mail: info@accessgolf.org
The United States Association of Blind Athletes
33 N. Institute St.
Colorado Springs, CO 80903
(719) 630-0422
(719) 630-0616 (Fax)
http://www.usaba.org/
*See home page for Camp Information and Regional Offices in your area and state.
Therapeutic Recreation Resources
http://www.recreationtherapy.com/index.htm
*This is an independent recreation therapy web site with information and resources supplied by its users. Check out the Fun and Games and Activity and TX sections.
Tot Cycle
http://totcycle.com
*Great information resource on family bicycling with kids.
Turning Point
403 Pacific Ave.
Terrell, TX 75160
http://www.turningpointnation.org
Email: dk@turningpointnation.org *Develop self-esteem and confidence in the physically challenged population through participation in adapted outdoor adventures. Contact for chapter and program information.
United States Blind Golf Association
http://www.blindgolf.com/
*Contact for state chapters.
United States Quad Rugby Association
4000 Ridgeway Drive
Birmingham, AL 35209
(205) 313-7431
http://usqra.org
E-mail:president@quadrugby.com *The United States Quad Rugby Association provides opportunities, support, and structure for competitive wheelchair rugby to people with disabilities.
Universal Wheelchair Football Association/University of Cincinnati: Raymond Walters College
9555 Plainfield Road
Cincinnati, OH 45236
(513) 792-8625
TTY/1-513-745-8300
(513) 792-8624 (Fax)
http://www.nchpad.org/23/159/Football~~American~
E-mail: John.Kraimer@UC.Edu The Universal Wheelchair Football Association (UWFA) presents the rules of the world's most inclusive sport of Universal Wheelchair Football (UWF).
US Deaf Sports Federation
PO Box 22011
Santa Fe, NM 87502-2011
TTY:(605) 367-5761
(605) 367-5760
(605) 977-6625 (Fax)
https://usdeafsports.org
Email: support@usdeafsports.org
US Electric Wheelchair Hockey Association
7216 39th Avenue North
Minneapolis, MN 55427
763-535-4736
208-279-1368 (Fax)
http://www.powerhockey.com
PowerHockey™ is based on basic hockey rules with a few adaptations to allow everyone in a power wheelchair the ability to participate.
US Youth Soccer TOPSoccer (The Outreach Program for Soccer
9220 World Cup Way
Frisco, TX 75034
800-4SOCCER
(972) 334-9960 (Fax)
http://www.usyouthsoccer.org/programs/topsoccer/
E-mail: mmoran@usyouthsoccer.org *A community-based training and team placement program for young athletes with disabilities, organized by youth soccer association volunteers. The program is designed to bring the opportunity of learning and playing soccer to any boy or girl, ages 4-19, who has a mental or physical disability. *Contact for a program in your area.
USA Disabled Hockey
1775 Bob Johnson Dr
Colorado Springs , CO 80906-4090
(719) 576-USAH (8724)
(719) 538-1160 (Fax)
http://www.usahockey.com/page/show/887219-disab...
E-mail: usah@usahockey.org *Contains a listing of teams and disciplines all over the US. See Team Listings for a team near you.
VerySpecialCamps.Com
http://www.veryspecialcamps.com
An online camp directory for individuals with one or more of a wide range of special needs. Listings are by state.
VSA arts
2700 F Street, NW
Washington, DC 20566
(800) 933-8721
(202) 628-2800
(202) 737-0725 (Fax)
http://education.kennedy-center.org/education/vsa/
*With 52 international affiliates and a network of nationwide affiliates, VSA is providing arts and education programming for youth and adults with disabilities around the world. Check for VSA programs in your state.
Wheelchair Sports, USA
1236 Jungermann Road, Suite A
St. Peters, MO 63376
(636) 614-6784
(636) 329-1090 (Fax)
https://adaptivesportsusa.org
Email: wsusa@aol.com
World TEAM (The Exceptional Athlete Matters) Sports
1629 K Street, Suite 950
Washington, DC 20006-1675
855-987-8326
855-288-3377 (Fax)
http://worldteamsports.org
*We bring together as athletes people of all cultures, with and without disabilities, to accomplish goals beyond what is thought possible.
 
Service Dogs/Canine Programs
Assistance Dog Institute/Bergin University of Canine Studies
1215 Sebastopol Road
Santa Rosa, CA 95407
(707) 545-3647
http://www.berginu.edu
Email: info@berginu.edu
Assistance Dogs International, Inc (ADI)
PO Box 5174
Santa Rosa, CA 95402
(707) 571-0427
http://www.assistancedogsinternational.org
Email: info@adionline.org
Autism Service Dogs of America
4248 Galewood St.
Lake Oswego, OR 97035
http://autismservicedogsofamerica.com
Canine and Abled
(609) 213-7790
http://www.canineandabled.com/index.html
E-mail:canineandabled@aol.com
Canine Companions for Independence
P.O. Box 205
Farmingdale, NY 11735
(800) 572-2275 (TDD)
http://www.cci.org
Chapter Listings by Region
Canine Companions for Independence (CCI)/National Center
P.O. Box
Oceanside, CA 92052
(800) 572-2275
(760) 901-4300
(760) 901-4551 (Fax)
http://www.caninecompanions.org
*Contact for regional training centers and Veteran's Programs.
Compassionate Paws, Inc.
W7064 Bighorn Lane
Wautoma, WI 54982
(920)787-1467
(920) 987-9098
http://www.compassionatepaws.org
*Specializes in working with families and individuals affected with Autism and Autism Spectrum Disorders. Will train anyone in the US but does focus primarily on states in the Mid-West.
Delta Society National Service Dog Center
875 124th Ave. NE Suite 101
Bellevue, WA 98005
(425) 226-7351
http://www.deltasociety.org
(Search for trainers and local training programs by state)
Dogs 4 Diabetics
1647 Willow Pass Road, #157
Concord, CA 94520-2611
(925) 246-5785
http://www.dogs4diabetics.com
E-mail: info@dogs4diabetics.com
Guiding Eyes for the Blind
611 Granite Springs Road
Yorktown Heights, NY 10598
800-942-0149
http://www.guidingeyes.org/site/PageServer
International Association of Assistance Dog Partners
38691 Filly Drive
Sterling Heights, MI 48310
http://www.iaadp.org/
Land of Pure Gold Foundation
3731 Greenway Lane
Owings Mills, MD 21117
http://landofpuregold.com/service-groups.htm
* A Canine Cancer research group they also provide a nationwide assistance dog group and training program listing.
Paws With a Cause
4646 South Division
Wayland, MI 49348
(800) 253-7297
http://www.pawswithacause.org/
Positive Partners Assistance Dogs, Inc.
P.O. Box 2088
Hailey, ID 83333
(208) 721-1309
* Trains wheelchair assistance, hearing assistance, guide dogs and mobility assistance dogs. Will train dogs for anyone in the United States.
The Psychiatric Service Dog Society (PSDS)
P.O. Box 754
Arlington, VA 22216
(571) 216-1589
http://www.servicedogcentral.org/content/PSD
The Sam Simon Foundation (Hearing Dogs)
30765 Pacific Coast Hwy #113
Malibu, CA 90265
V/TTY: (310) 457-5898
http://www.samsimonfoundation.com
Email: info@samsimonfoundation.org
Tax Information
Internal Revenue Service (IRS)
http://www.irs.gov
We recommend searching for "Commonly missed tax deductions".
People's Financial Services
http://www.peoplestax.com
Information guide to commonly asked questions and missed deductions (search by state)
Transition/Post Secondary Schooling
Got Transition
1615 M Street NW, Suite 290
Washington, DC 20036
202-223-1500
202-429-3957 (Fax)
http://www.gottransition.org
E-mail: info@GotTransition.org *Our aim is to improve transition from pediatric to adult health care through the use of new and innovative strategies for health professionals and youth and families. Serves as a clearinghouse for current transition information, tools, and resources.
Applied Self Direction
1089 Commonwealth Avenue, #371
Boston, MA 02215
http://www.appliedselfdirection.com
E-mail: info@appliedselfdirection.com *Applied Self Direction provides practical expertise intended to create and operate self direction programs that run effectively and efficiently for individuals, states, managed care entities, Financial Management Services providers, and other stakeholders. The mission of Applied Self Direction is to promote self direction so individuals have the choice and control to live the lives they want.
Association on Higher Education And Disability (AHEAD)
107 Commerce Center Drive, Suite 204
Huntersville, NC 28078
(704) 947-7779
(704) 948-7779 (Fax)
https://www.ahead.org/home
*AHEAD is actively involved in all facets of promoting full and equal participation by individuals with disabilities in higher education; and supporting the systems, institutions, professions, and professionals who attend to the fulfillment of this important mission.
Going To College: A Resource For Teens With Disabilities
(804) 828-1851
TTY: (804) 828-2494
(804) 828-2193 (Fax)
http://www.going-to-college.org/index.html
*This web site is designed for college bound high school students with disabilities.
HEATH Resource Center/ George Washington University
2134 G Street, N.W.
Washington, DC 20052
http://www.heath.gwu.edu
E-mail: AskHEATH@gwu.edu *The HEATH Resource Center gathers and disseminates information to help people with disabilities reach their full potential through postsecondary education and training. Contains a wealth of information and resources on a wide variety of subjects related to education.
National Collaborative on Workforce and Disability for Youth (NCWD)
4455 Connecticut Avenue NW, Suite 310
Washington, DC 20008
877-871-0744
TTY: 877-871-0665
http://www.ncwd-youth.info
*Federal informational program site. Excellent resource. Click on "Content By State" for programs in your area.
National Gateway to Self-Determination
http://www.ngsd.org
*This site provides a single access for self-advocates, professionals, policy-makers and the general public on the current best practices and evidence-based activities in enhancing self-determination in the lives of people with developmental and intellectual disabilities, as well as any individual.
We Connect Now
McIlhenny Drive
Baton Rouge, LA 70809
http://weconnectnow.wordpress.com
E-mail: weconnectnow2008@gmail.com *We Connect Now is dedicated to uniting people on issues which affect people with disabilities, with emphasis on college students higher education & employment.
Transportation Information
Air Charity Network
National Headquarters 410 1st. Av. NW
Rochester, MN 55901
877-858-7788
http://aircharitynetwork.org/
Email:execdir@aircharitynetwork.org *Air medical transportation services. Contact for office in your region to apply.
Easter Seals - Vehicle Donation
http://www.vehicledonation.com
Accepts donations and applications for equipment.
Mercy Medical Angels
4620 Haygood Road suite 1
Virginia Beach, VA 23455
757-318-9174
757-464-1284 (Fax)
http://mercymedical.org
E-mail: info@MercyMedical.org *Our mission is to ensure that no financially stressed patient is denied access to distant specialized medical evaluation, diagnosis or treatment for lack of a means of long-distance medically related transportation; further to ensure the provision of urgent transportation in situations of compelling human need and homeland security (disaster response) emergencies.
Miracle Flights for Kids
2764 N. Green Valley Pkwy, #115
Green Valley, NV 89014-2120
(800) FLY-1711
(702) 261-0494
(702) 261-0497 (Fax)
http://www.miracleflights.org
National Mobility Equipment Dealers Association
3327 W. Bearss Ave.
Tampa, FL 33618
(800) 833-0427
(813) 264-2697
(813) 962-8970 (Fax)
http://www.nmeda.com
Email: nmeda@aol.com *Provides a state-by-state listing of NMEDA QAP certified dealerships. Start here when looking for mobility equipment (lifts, vehicles, steering systems, etc.) information.
National Mobility Equipment Dealers Association (NMEDA) Special Kids Fund (SKF)
732-397-5056
http://www.nmeda.com/special-kids-fund/
E-mail: dg@specialkidsfund.org *This program is designed to collect donated accessible vans and transfer them to families of individuals with disabilities. SKF also works to provide funding for families to purchase a handicap van conversion and have dealerships refurbish older and higher mileage vans for the needy.
School Transportation News
P.O. Box 789
Redondo Beach, CA 90277
(310) 792-2226
310-792-2231 (Fax)
https://www.stnonline.com
*See Special Needs Transportation news, equipment, resources, etc.
The Air Care Alliance
1515 East 71st Street, Suite 312
Tulsa, OK 74136
888-260-9707
http://www.aircareall.org
Email:inquiries@aircareall.org *Large National/International listing of agencies, groups and organizations providing air transportation for medical patients. Start here first.
The Mobility Resource
1-866-771-7770
http://www.themobilityresource.com
*Provides nationwide dealer contact information as well as a limited number of Financial Assistance programs.