| Advocacy |
Alliance for Full Participation
202 Lexington Dr.
Silver Springs, MD 20901
301-706-6252
http://www.allianceforfullparticipation.org/public
* Goal to ensure inclusion, integration, productivity, independence and quality of life as a reality in policy and practice. |
Connect For Kids/Child Advocay 360/ Youth Policy Action Center
http://www.connectforkids.org
|
Council of Parent Attorneys and Advocates
P.O. Box 6767
Towson, MD 21285
(443) 451-5270
(443) 451-2680 (Fax)
http://www.copaa.net
|
Family Voices, Inc.
2340 Alamo SE, Suite 102
Albuquerque, NM 87106
(888) 835-5669
(505) 872-4774
(505) 872-4780 (Fax)
http://www.familyvoices.org
Information on how to contact state senators and find Family Voices chapters in your state. |
Louisiana Citizens for Action Now
http://www.lacanadvocates.org
Provides a wealth of self advocacy information. Linda recommends individuals check out the "Legislative Activities" section for an outline of a sample letter to Legislators and a "How-To" testify before a legislative body. |
National Disability Rights Network
900 Second Street, NE, Suite 211
Washington, DC 20002
202-408-9514
TTY: 202-408-9521
202-408-9520 (Fax)
http://www.napas.org/
E-mail: info@ndrn.org
*Click on "Get Help in Your State" to find a chapter near you. |
World Institute on Disability
510 16th Street, Suite 100
Oakland, CA 94612
(510) 763-4100
http://www.wid.org
|
|
| Agencies/Assistance Programs - Government |
American National Red Cross
2025 E. Street NW
Washington, DC 20006
(202) 303-4498
http://www.redcross.org
|
Centers for Medicare & Medicaid Services
7500 Security Boulevard
Baltimore, MD 21244
(877) 267-2323
http://www.cms.hhs.gov/home/medicaid.asp
*Nationwide Medicaid program information. |
GovBenefits.Gov
http://www.govbenefits.gov
Provides information regarding government assistance programs nationwide. Includes a state-by-state program search. |
Social Security Administration Information for Parents
National Info. 1-800-772-1213
http://www.ssa.gov/pgm/links_ssi.htm
*Benefits information and local office addresses with contact information available. |
The Children's Partnership ~ Expresslane Program
2000 P Street, NW, Suite 330
Washington, DC 20036
(202) 429-0033
(202) 429-0974 (Fax)
http://www.expresslaneinfo.org/AM/Template.cfm?...
E-mail:frontdoordc @childrenspartnership.org
*Click on "Program Examples" then "Program Location" for programs in your state. |
US Department of Indian Health Services
801 Thompson Avenue, Ste. 400
Rockville, MD 20852-1627
(See Contact Listing)
http://www.ihs.gov
* Complete program and regional office listings for IHS Services |
| Agencies/Assistance Programs - Private |
Cover the Uninsured ~ A Project of the Robert Wood Johnson Foundation
(202) 572-2928
http://covertheuninsured.org
E-mail: info@covertheuninsured.org
*State by state listings of various insurance programs for individuals and families who have difficulty obtaining medical insurance. |
Internet Drug Coupons.com
http://www.internetdrugcoupons.com
* Free resource for hundreds of coupons for prescription drugs, non-prescription drugs. |
Merck Patient Assistance and Prescription Discount Programs
1-800-727-5400
http://www.merckhelps.com
Merck offers a family of programs providing free and discounted medicines to patients who cannot afford their prescribed medicines. |
NeedyMeds.com
http://www.needymeds.com
*Provides information and resources for finding medication assistance programs. Has a section specifically for children. |
Partnership for Prescription Assistance
1-888-477-2669
http://www.pparx.org
*Offers single point access for prescription assistance programs for the uninsured/under-insured. |
Pfizer Helpful Answers
1-866-706-2400
http://www.pfizerhelpfulanswers.com
*Pfizer Helpful Answers offers patient assistance programs to people without prescription coverage. |
Registry of Interpreters for the Deaf
333 Commerce Street
Alexandria, VA 22314
703) 838-0030
TTY: (703) 838-0459
(703) 838-0454 (Fax)
http://www.rid.org/
|
Rx Assist Volunteers in Health Care
111 Brewster Street
Pawtucket, RI 02860
401-729-3284
401-729-2955 (Fax)
http://www.rxassist.org
E-mail: info@rxassist.org
Offers a comprehensive database of medical prescription patient assistance programs. |
The Arc of the United States
1010 Wayne Avenue, Suite 650
Silver Springs, MD 20910
(800) 433-5255
(301) 565-3842
(301) 565-3843 (Fax)
http://www.thearc.org/
*National office email: info@thearc.org
|
Together Rx Assistance
PO Box 9426
Wilmington, DE 19809-9944
1-800-444-4106
http://www.togetherrxaccess.com/Tx/jsp/home.jsp
*Assistance program for those without prescription drug coverage and ineligible for Medicare. |
| Assistive Technologies |
Inclusive TLC (Technology Learning Communication)
2206 Legacy Oak Drive
Waxhaw, NC 28173
(704) 243-3622
1-800-462-0930
(704) 243-3623 (Fax)
http://www.inclusivetlc.com/
E-mail: info@inclusiveTLC.com |
National Assistive Technology Assistance Partnership (NATTAP)
1700 North Moore St., Suite 1540
Arlington, VA 22209-1903
(703) 524-6686
TTY (703) 524-6639
(703) 524-6630 (Fax)
http://www.resna.org
*Listings by state. |
Recording for the Blind and Dyslexic
20 Roszel Road
Princeton, NJ 08540
(866-732-3585)
http://www.rfbd.org/
* The nation's educational library for those with print disabilities.
* See home page for the library branch in your area. |
|
| Charities and Foundations |
Christopher & Dana Reeve Foundation
636 Morris Turnpike, Suite 3A
Short Hills, NJ 07078
1-800-225-0292
http://www.christopherreeve.org
*Spinal Cord injuries and paralysis. |
Easter Seals National Headquarters
230 W. Monroe St., Suite 1800
Chicago, IL 60606
(800) 221-6827
TTY 312-726-4258
(312) 726-1494 (Fax)
http://www.easterseals.com
Check your local chapter for camps, grants, respite services and other services available in your area. |
Jordan Thomas Foundation
P.O. Box 22764
Chattanooga, TN 37422
(423) 622-9006
http://www.jordanthomasfoundation.org
*Assists children with the need for prosthetics. |
Make-A-Wish Foundation of America
3550 North Central Avenue, Suite 300
Phoenix, AZ 85012-2127
(800) 722-9474
(602) 279-9474
(602) 279-0855 (Fax)
http://www.wish.org/
*See contact Us page for local chapters in your state. |
March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
(914) 997-4488 (National Office)
http://www.marchofdimes.com/
*See site for the office in your state. |
Muscular Dystrophy Association (MDA)
3300 E. Sunrise Drive
Tucson, AZ 85718
1-800-344-4863
http://www.mdausa.org/
Email: mda@mdausa.org
*See home page for office in your community. |
Ronald McDonald House Charities
One Kroc Drive
Oak Brook, IL 60523
630-623-7048
http://www.rmhc.org/
E-mail: info@rmhc.org
*Click on RMHC Programs to find the facility nearest you. |
Stuttering Foundation of America
3100 Walnut Grove Road, Suite 603
Memphis, TN 38111-0749
Hot-line:(800) 992-9392
(901) 452-7343
(901) 452-3931 (Fax)
http://www.stuttersfa.org/
Email: info@stutteringhelp.org. |
United Cerebral Palsy (UCP)
1660 L Street, NW, Suite 700
Washington, DC 20036
(800) 872-5827
TTY (202) 973-7197
(202) 776-0414 (Fax)
http://www.ucp.org
*Excellent state-by-state resource guide. |
United Way
701 N. Fairfax St.
Alexandria, VA 22314
http://national.unitedway.org
Non-profit charitable organization offering a variety of services including camps, respite, grants, etc. Find your local chapter here. |
| Child Care Resource Listings |
Care . Com, Inc.
1400 Main St.
Waltham, MA 02451
http://www.care.com/special-needs-p1162.html
*Has a large Special Needs section with references as well as information regarding respite providers in local areas. Listed by state and zip code. |
Child Care Aware
3101 Wilson Blvd. Suite 350
Arlington, VA 22201
1-800-424-2246
TTY:1-866-278-9428
(703) 341-4101 (Fax)
http://www.childcareaware.org
Child Care Aware is a cooperative program of the National Association of Child Care Resource and Referral Agencies. Funded through the Office of Family Assistance, Administration for Children and Families, U.S. Department of Health and Human Services.
**SNRP does NOT endorse this site. Listed for reference only. Use responsible caution when investigating ALL care providers. |
National Association of Child Care Resource and Referral Agencies
http://www.naccrra.net
*Find Child Care CCR&R centers by State.
|
ZiggyBug
92 Corporate Park, Suite C-262
Irvine, CA 92606
http://www.ziggybug.com
*"World's largest child care directory". SNRP does NOT endorse this site. Listed for reference only. Use responsible caution when investigating ALL care providers. |
| Disability Specific Organizations |
ADHD News (Attention Deficit Hyperactivity Disorder)
http://www.adhdnews.com/
*Features message boards, a monthly newsletter, information on medication and treatments, links to relevant Blogs, etc. |
Alexander Graham Bell Association for the Deaf and Hard of Hearing
3417 Volta Place, NW
Washington, DC 20007
(202) 337-5220
TTY: (202) 337-5221
(202) 337-8314 (Fax)
http://www.agbell.org
Email: info@agbell.org |
American Association on Intellectual and Developmental Disabilities (AAIDD)
444 N. Capitol Street, NW, Suite 846
Washington, DC 20001-1512
(800) 424-3688
(202) 387-1968
(202) 387-2193 (Fax)
http://www.aaidd.org/
|
American Brain Tumor Association
2720 River Road
Des Plaines, IL 60018
(800) 886-2282
(847) 827-9910
(847) 827-9918 (Fax)
http://hope.abta.org
Email: info@abta.org
|
American Council of the Blind
1155 15th Street NW, Suite 1004
Washington, DC 20005
(800) 424-8666
(202) 467-5081
(202) 467-5085 (Fax)
http://www.acb.org
|
American Diabetes Association
1701 North Beauregard Street
Alexandria, VA 22311
(1-800-342-2383).
http://www.diabetes.org/home.jsp
Email: AskADA@diabetes.org.
*See registry for local chapter near you. |
American Foundation for the Blind
11 Penn Plaza, Suite 300
New York, NY 10001
(800-232-5463)
(212) 502-7600
(212) 502-7777 (Fax)
http://www.afb.org/
E-mail: afbinfo@afb.net
|
American Heart Association (National Center)
7272 Greenville Avenue
Dallas, TX 75231
1-800-242-8721
http://www.americanheart.org
*Click on "Local Info" or input your Zip code for your local office. |
American Lung Association
61 Broadway, 6th Floor
New York, NY 10006
1-800-586-4872
(212) 315-8700
http://www.lungusa.org
|
American Printing House for the Blind
1839 Frankfort Avenue,
Louisville, KY 40206
http://www.aph.org/
|
American Society for Deaf Children
3820 Hartzdale Drive
Camp Hill, PA 17011
V/TTY: 1-800-942-2732
http://www.deafchildren.org/
|
Angelman Syndrome Foundation
4255 Westbrook Drive, Ste. 216
Aurora, IL 60504
1-800-432-6435
(630) 978-4245
(630) 978-7408 (Fax)
http://www.angelman.org/angel/
Email: info@angelman.org |
ASPEN (Autism/Asperger Spectrum Disorders)
9 Aspen Circle
Edison, NJ 08820
(732) 321-0880
http://aspennj.org/
email: info@AspenNJ.org |
Asthma and Allergy Foundation of America
1233 20th Street, NW, Suite 402
Washington, DC 20036
1-800-727-8462
http://www.aafa.org/
Email:Info@aafa.org |
Attention Deficit Disorder Association (ADDA)
15000 Commerce Parkway, Suite C
Mount Laurel, NJ 08054
(856) 439-9099
(856) 439-0525 (Fax)
http://www.add.org/
Email: adda@ahint.com |
Attention Deficit Disorder Resources
223 Tacoma Ave S #100
Tacoma, WA 98402
(253) 759-5085
(253) 572-3700 (Fax)
http://www.addresources.org/
|
Attention Deficit Disorders Association - Southern Region
12345 Jones Rd. Suite 287-7
Houston, TX 77070
(281) 897-0982
(281) 894-6883 (Fax)
http://www.adda-sr.org/
|
Autism and PDD Support Network
14271 Jeffrey #3
Irvine, CA 92620
http://www.autism-pdd.net
On-line information and support for families with children with Autism and Spectrum Disorders. Has a state-by-state Autism resource list. |
Autism Research Institute
1-866-366-3361
http://www.autism.com/
*A research organization which provides information based on research to parents and professionals, worldwide. |
Autism Resources
http://www.autism-resources.com/
* An informational site offering links and articles regarding Autism and Asperger's Syndrome. |
Autism Society of America
7910 Woodmont Ave., Suite 300
Bethesda , MD 20814-3067
(800) 328-8476
(301) 647-0881
http://www.autism-society.org
Education, diagnosis education, family, resource lists, etc. |
Autism Speaks
2 Park Avenue, 11th Floor
New York, NY 10016
(212) 252-8584
(212) 252-8676 (Fax)
http://www.autismspeaks.org/
E-mail: contactus@autismspeaks.org |
Brain Injury Association of America
8201 Greensboro Drive
McLean, VA 22102
1-800-444-6443 Information Only
(703) 761-0750
http://www.biausa.org/
*Contains listings by state from the home page. |
Cerebral Palsy Family Network
http://www.cpfamilynetwork.org
|
Child & Adolescent Bipolar Foundation
820 Davis St., Ste. 520
Evanston, IL 60201
847-492-8519
847-492-8520 (Fax)
http://www.bpkids.org
|
Childhood Apraxia of Speech Association (CASANA)
1151 Freeport Road #243
Pittsburgh, PA 15238
http://www.apraxia-kids.org/
|
Children & Adults With Attention Deficit Disorder (CHADD)
8181 Professional Place - Suite 150
Landover, MD 20785
(301) 306-7070
(301) 306-7090 (Fax)
http://www.chadd.org
|
Children With Diabetes
5689 Chancery Place
Hamilton, OH 45011
http://www.childrenwithdiabetes.com
*Diabetes education and information |
Children's Craniofacial Association
13140 Coit Road, Suite 307
Dallas, TX 75240
(800) 535-3643
(214) 570-9099
(214) 570-8811 (Fax)
http://www.ccakids.com/
Email: contactCCA@ccakids.com |
Chronic Fatigue & Immune Dysfunction Syndrome Association
PO Box 220398
Charlotte, NC 28222-0398
(704) 365-2343
http://www.cfids.org/
|
Cleft Advocate (A program of AboutFace, USA)
http://www.cleftadvocate.org/index.html
|
Cornelia de Lange Syndrome Foundation, Inc
302 West Main St. #100
Avon, CT 06001
800-223-8355
860-676-8166
860-676-8337 (Fax)
http://www.cdlsusa.org
E-mail: info@cdlsusa.org |
Deafblind International
http://www.deafblindinternational.org/default.htm
|
Developmental Delay Resources
5801 Beacon St.
Pittsburgh, PA 15217
1-800-497-0944
(412) 422-1374 (Fax)
http://www.devdelay.org/
Email:devdelay@mindspring.com |
Diabetes Monitor
51 Woods Road
Hillsborough, NJ 08844
http://www.diabetesmonitor.com
E-mail: info@diabetesmonitor.com
*Large data base of resources, sites and information. |
Epilepsy Foundation of America
8301 Professional Place
Landover, MD 20785
(800) 332-1000
http://www.epilepsyfoundation.org/
|
Epilepsy Therapy Development Project
11921 Freedom Drive, Suite 730
Reston, VA 20190
http://www.epilepsytdp.org/
|
Epilepsy.com/ Epilepsy Therapy Development Project
http://www.epilepsy.com/
|
Families For Early Autism Treatment (FEAT)
P.O. Box 255722
Sacramento, CA 95865-5722
(916) 843-1536
http://www.feat.org
Email: webmaster@feat.org
*State-by-State listing available. |
FAS (Fetal Alcohol Syndrome) Community Resource Center
4710 East 29th. Street, Suite 7
Tucson, AZ 85711
(520) 296-9172
http://www.come-over.to/FASCRC/
|
Federation of Families for Children's Mental Health
9605 Medical Center Drive., Suite 280
Rockville, MD 20850
(240) 403-1901
(240) 403-1909 (Fax)
http://www.ffcmh.org/
*Local chapters listed by state. |
Fetal Alcohol Spectrum Disorders Center for Excellence
2101 Gaither Road, Suite 600
Rockville, MD 20850
1-866-786-7327
http://www.fascenter.samhsa.gov
|
Fetal Alcohol Syndrome (FAS)
http://come-over.to/FAS/
*Informational site sponsored by FAS community Resource Center, Tucson, Arizona. |
First Signs, Inc.
P.O. Box 358
Merrimac, MA 01860
(978) 346-4380
http://www.firstsigns.org
E-mail: info@firstsigns.org
*Autism Training for families and professionals. |
Foundation for Ichthyosis and Related Skin Types
1364 Welsh Road G2
North Wales, PA 19454
(215) 619-0670
(215) 619-0780 (Fax)
http://www.scalyskin.org/
Email: info@scalyskin.org |
Hands & Voices (Deaf & Hard of Hearing)
P.O. Box 371926
Denver, CO 80237
(866) 422-0422
(303) 300-9763
http://www.handsandvoices.org/
Email: parentadvocate@handsandvoices.org
*State chapter links available on the Home Page. |
Hearing Loss Association of America
7910 Woodmont Ave., Suite 1200
Bethesda, MD 20814
(301) 657-2248
http://www.hearingloss.org
*Check for local chapters in your state. |
Helen Keller Services for the Blind National Center
141 Middle Neck Road
Sands Point, NY 11050
(516) 944-8900
(516) 944-7302 (Fax)
http://www.helenkeller.org/index.html
email: HKNCinfo@hknc.org
*Satellite office listing. |
IDEA League ~ International Dravet Syndrome Epilepsy Action League
P.O. Box 803338 #18880
Chicago, IL 60680
http://www.idea-league.org
E-mail: info@idea-league.org
Parent and professional organization promotes research and education for the early diagnosis, appropriate treatment, and cure of Dravet Syndrome, also known as SMEI (Severe Myoclonic Epilepsy of Infancy), and related genetic, febrile, sodium channel epilepsies. |
International Dyslexia Association
40 York Rd., 4th Floor
Baltimore, MD 21204-5202
(800) 222-3123
(410) 296-0232
http://www.interdys.org/
Email: info@interdys.org |
International Fibrodysplasia Ossificans Progressiva Association (IFOPA)
PO Box 196217
Winter Springs, FL 32719-6217
(407) 365-4194
http://www.ifopa.org/
E-mail: together@ifopa.org |
International Rett Syndrome Association
9121 Piscataway Road, #2B
Clinton, MD 20735
(800) 818-7388
(301) 856-3334
http://www.rettsyndrome.org/
Email: irsa@rettsyndrome.org |
IsoDicentric 15 (IDEAS) Advocacy, Exchange & Support
18 Kings Road
Canton, MA 02021
503.253.2872
http://www.idic15.org/index.php
Email: info@idic15.org |
Learning Disabilities Association of America
4156 Library Road
Pittsburgh, PA 15234
(412) 341-1515
(412) 344-0224 (Fax)
http://www.ldanatl.org
* See menu for chapter listings by state. |
Little People of America - National Headquarters
5289 NE Elam Young Parkway, Suite F-100
Hillsboro, OR 97124
(888) 572-2001
(503) 846-1562
http://www.lpaonline.org/mc/page.do
E-mail: info@lpaonline.org |
Mental Health America
2000 N. Beauregard Street, 6th Floor
Alexandria, VA 22311
(800) 969-6642
TTY: (800) 433-5959
(703) 684-5968 (Fax)
http://www.nmha.org/
|
Mental Health Matters
P.O. Box 82149
Kenmore , WA 98028
(425) 402-6934
http://www.mental-health-matters.com/
Email:info@mental-health-matters.com |
National Alliance for the Mentally Ill (NAMI)
Colonial Place Three 2107 Wilson Blvd., Suite 300
Arlington, VA 22201-3042
(703) 524-7600
Member Services:(888) 999-6264
(703) 524-9094 (Fax)
http://www.nami.org/
*See home page for State and local contacts. |
National Association for Child Development
549 25th Street
Ogden, UT 84401
(801) 621-8606
(801) 621-8389 (Fax)
http://www.nacd.org/
Email: info@nacd.org |
National Association for Child Development/Eastern Regional Office
120 North Church Street #101
Westchester, PA 19382
http://www.nacd.org/
|
National Association for Parents of Children with Visual Impairments
P.O. Box 317
Watertown, MA 02471
1-800-562-6265
1-617-972-7441
1-617-972-7444 (Fax)
http://www.spedex.com/napvi/
email: napvi@perkins.org |
National Association of People With AIDS
8401 Colesville Road, Suite 750
Sliver Spring, MD 20910
240-247-0880
240-247-0574 (Fax)
http://www.napwa.org/
email: info@napwa.org |
National Association of the Deaf
8630 Fenton Street, Suite 820
Silver Spring, MD 20910-3819
(301) 587-1788
TTY: (301) 587-1789
301-587-1791 (Fax)
http://www.nad.org
|
National Ataxia Foundation
2600 Fernbrook Lane Suite 119
Minneapolis, MN 55447
(763) 553-0020
http://www.ataxia.org/index.aspx
|
National Attention Deficit Disorder Association
15000 Commerce Parkway, Suite C
Mount Laurel, NJ 08054
(856) 439-9099
(856) 439-0525 (Fax)
http://www.add.org/
Email: adda@ahint.com |
National Autism Services Center (The West Virginia Autism Training Center)
1 John Marshall Drive, Suite 316
Huntington, WV 25755
(800) 344-5115 (WV Only)
(304) 696-2332
http://www.autismservicescenter.org/
|
National Brain Tumor Foundation
22 Battery Street, Suite 612
San Fransisco, CA 94111-5520
1-800-934-2873
415.834.9970
http://www.braintumor.org/
Email:nbtf@braintumor.org |
National Center for Learning Disabilities (NCLD)
381 Park Avenue South Suite 1401
New York, NY 10016
(888) 575-7373
(212) 545-7510
(212) 545-9665 (Fax)
http://www.ncld.org/
|
National Council on Disability - State Mental Health Agencies
1331 F. Street NW Suite 850
Washington, DC 20004
(202)272-2004
TTY: (202) 272-2074
(202) 272-2022 (Fax)
http://www.ncd.gov/mental.htm
*Contact information listed by state. |
National Craniofacial Association
P.O.Box. 11082
Chattanooga, TN 37401
1-800-332-2373
http://www.faces-cranio.org/
Email: faces@faces-cranio.org |
National Cued Speech Association (NCSA)
5619 McLean Drive
Bethesda, MD 20814-1021
V/TTY (800) 459-3529
V/TTY (301) 915-8009
http://www.cuedspeech.org/
*See "Affiliates" for a regional center near you. |
National Down Syndrome Congress
1370 Center Drive, Suite 102
Atlanta, GA 30338
(800) 232-6372
(770) 604-9500
(770) 604-9898 (Fax)
http://www.ndsccenter.org/index.php
E-Mail: info@ndsccenter.org |
National Down Syndrome Society
666 Broadway
New York, NY 10012
(800) 221-4602
(212) 979-2873 (Fax)
http://www.ndss.org/
email: info@ndss.org |
National Family Association For Deaf-Blind
141 Middle Neck Road
Sands Point, NY 11050
800.255.0411
516.883.9060 (Fax)
http://www.nfadb.org/reg.htm
email: NFADB@aol.com
*National State-by-State listing |
National Federation for the Blind
1800 Johnson Street
Baltimore, MD 21230
(410) 659-9314
http://www.nfb.org
|
National Fragile X Foundation
PO Box 190488
San Francisco, CA 94119
800-688-8765
925-938-9300
925-938-9315 (Fax)
http://www.fragilex.org
email:NATLFX@FragileX.org
|
National Institute on Developmental Delays
1900 West MacArthur
Shawnee, OK 75801
(405) 878-5301
(405) 878-5114 (Fax)
http://nidd.org/
*Large number of programs, services and information sources available. |
National Library Services for the Blind and Physically Handicapped
The National Library Service for the Blind and Physically Handicapped Library of Congress
Washington , DC 20542
(800) 424-8567
(202) 707-5100
http://www.loc.gov/nls/
*To connect to a local library call 1-888-657-7323.
email: nls@loc.gov |
National Multiple Sclerosis Society
733 Third Avenue, Third Floor
New York, NY 10017
1-800-344-4867
http://www.nmss.org
* Click on "Find Your Chapter" to find a chapter in your area. |
National Organization on Fetal Alcohol Syndrome (NOFAS)
900 17th Street, NW, Suite 910
Washington, DC 20006
1-800-66NOFAS
(202) 785-4585
http://www.nofas.org
*Go to the Resource Directory for the office in your state. |
National Reye's Syndrome Foundation
1-800-233-7393
(419) 636-2679
(419) 636-989 (Fax)
http://www.reyessyndrome.org/
E-mail: nrsf@reyessyndrome.org
|
National Scoliosis Foundation
5 Cabot Place
Stoughton, MA 02072
1-800-673-6922
http://www.scoliosis.org/index.php
Email: NSF@scoliosis.org |
National Spinal Cord Injury Association
6701 Democracy Blvd., Suite 300-9
Bethesda, MD 20817
(800) 962-9629
Voice-mail:(301) 214-4006
(301) 990-0445 (Fax)
http://www.spinalcord.org/
email: info@spinalcord.org |
National Stuttering Association
119 W. 40th Street, 14th Floor
New York, NY 10018
(800-937-8888)
(212) 944-4050
http://www.nsastutter.org/
Email: info@WeStutter.org |
Neurofibromatosis, Inc.
P.O.Box 18246
Minneapolis, MN 55418
1- 800-942-6825
(301) 918-4600
http://www.nfinc.org/
|
Obsessive Compulsive Foundation, Inc.
676 State Street
New Haven, CT 06511
(203) 401-2070
http://www.ocfoundation.org/
|
Osteogenesis Imperfecta Foundation
804 W. Diamond Ave, Suite 210
Gaithersburg, MD 20878
(800) 981-2663
(301) 947-0083
(301) 947-0456 (Fax)
http://www.oif.org/site/PageServer
Email: bonelink@oif.org |
Parents of Galactosemic Children, Inc. (PGC)
P.O. Box 2401
Mandeville, LA 70470-2401
1-866-900-7421
http://www.galactosemia.org/
|
Prader-Willi Syndrome Association (USA)
5700 Midnight Pass Road, Suite 6
Sarasota , FL 34242
800-926-4797
941-312-0400
http://www.pwsausa.org/
Email: national@pwsausa.org |
Selective Mutism Group
http://www.selectivemutism.org
|
Smart Kids With Learning Disabilities
(203) 226-6831
(203) 226-4861 (Fax)
http://www.smartkidswithld.org/index.html
|
Spina Bifida Association of America
4590 MacArthur BLVD. NW Suite 250
Washington, DC 20007-4226
(800) 944-3285
(202) 944-3285
(202) 944-3295 (Fax)
http://www.sbaa.org
email: sbaa@sbaa.org |
The Children's Tumor Foundation (California Office)
8939 S. Sepulveda Blvd., Suite 516
Los Angeles, CA 90045-3616
(310) 216-9570
(310) 216-7789 (Fax)
http://www.ctf.org/
E-Mail: info@ctf.org |
The Children's Tumor Foundation (New England Regional Office)
275 Grove Street, Suite 200-4
Newton, MA 02467
(617) 663-5711
(617) 663-4801 (Fax)
http://www.ctf.org/
E-Mail: info@ctf.org |
The Children's Tumor Foundation (New York Office)
95 Pine Street, 16th Floor
New York, NY 10005
1-800-323-7938
(212) 344-6633
(212) 747-0004 (Fax)
http://www.ctf.org/
E-Mail: info@ctf.org |
The Genetic Alliance
4301 Connecticut Ave. NW, Suite 404
Washington, DC 20008-2369
(202) 966-5557
(202) 966-8553 (Fax)
http://www.geneticalliance.org/
Email: info@geneticalliance.org |
The Hydrocephalus Association
870 Market Street, Suite 705
San Francisco, CA 94102.
888-598-3789.
(415) 732-7040
(415) 732-7044 (Fax)
http://www.hydroassoc.org/
Email: info@hydroassoc.org |
The National Directory of Family-Run & Youth-Guided Organizations for Children's Mental Health
http://familyorgdirectory.fmhi.usf.edu/default.cfm
*State by State and Tribal Listings available. |
Tourette Syndrome Association, Inc
42-40 Bell Blvd., Suite 205
Bayside, NY 11361-2820
(718) 224-2999
http://tsa-usa.org/
|
Tuberous Sclerosis Alliance
801 Roeder Road, Suite 750
Silver Spring, MD 20910
1-800-225-6872
(301) 562-9890
(301) 562-9870 (Fax)
http://www.tsalliance.org/
Email: info@tsalliance.org
|
Uniquely Gifted
http://www.uniquelygifted.org/
*An older web site, still contains useful information for parents of children with Autism and related disorders. |
United Cerebral Palsy (UCP)
1660 L Street, NW, Suite 700
Washington, DC 20036
(800) 872-5827
TTY (202) 973-7197
(202) 776-0414 (Fax)
http://www.ucp.org
*Excellent state-by-state resource guide. E-mail your local chapter for more information. |
United Mitochondrial Disease Foundation
8085 Saltsburg Road, Suite 201
Pittsburgh, PA 15239
1-888-317-8633
1-412-793-8077
1-412-793-6477 (Fax)
http://www.umdf.org
E-mail: info@umdf.org
|
United Spinal Association
75-20 Astoria Boulevard
Jackson Heights, NY 11370
800-404-2898
(718) 803-3782
(718) 803-0414 (Fax)
http://www.unitedspinal.org
E-mail: info@unitedspinal.org |
Williams Syndrome Association, Inc.
PO Box 297
Clawson, MI 48017-0297
1-800-806-1871
(248) 244-2229
1-248-244-2230 (Fax)
http://www.williams-syndrome.org/
Email:info@williams-syndrome.org |
|
| Early Intervention |
Federation For Children with Special Needs
1135 Tremont St., Suite 420
Boston, MA 02120
(800) 331-0688 (in MA)
(617) 236-7210
(627) 572-2094 (Fax)
http://www.fcsn.org
email: fcsninfo@fscn.org |
National Association for the Education of Young Children
1313 L. Street, NW, Suite 500
Washington, DC 20005
(800) 424-2460
(202) 232-8777
(202) 328-1846 (Fax)
http://www.naeyc.org
|
National Center for Infants, Toddlers and Families (Zero to Three)
2000 M Street, NW, Suite 200
Washington, DC 20036
(202) 638-1144
http://www.zerotothree.org
Western Office: 350 South Bixel, suite 150
Los Angeles, California 90017
(213) 481-7279 |
National Early Childhood Technical Assistance System (NEC*TAS)
517 South Greensboro Street
Carrboro, NC 27510
(919) 962-2001
TDD (919) 843-3269
(919) 966-7463 (Fax)
http://www.nectas.unc.edu
email: nectac@unc.edu |
NCBDDD Learn The Signs ~Act Early Campaign
1600 Clifton Rd.
Atlanta, GA 30333
1-800-232-4636 (Info Line)
http://www.cdc.gov/ncbddd/autism/ActEarly
*Large data base of early developmental milestones and information. |
Office of Head Start-US Administration for Children & Families
370 L'Enfants Promenade, SW
Washington, DC 20447
http://www.acf.hhs.gov/programs/hsb/index.htm
Provides a State by State program finder. |
Pathways Awareness Foundation
150 N. Michigan Ave. , Suite 2100
Chicago, IL 60601
1-800-955-2445
http://www.pathwaysawareness.org/
*Informational site regarding Early Childhood Development. Questions? Check here. |
The Division for Early Childhood Education
27 Fort Missoula Road, Suite 2
Missoula, MT 59804
(406) 543-0872
(406) 543-0887 (Fax)
http://www.dec-sped.org
|
| Education |
American Council on Rural Special Education (ACRES)
2865 Old Main Hill
Logan, UT 84322-2865
(435) 797 3728
http://www.acres-sped.org/
E-mail: inquiries@acres-sped.org
|
Association on Higher Education and Disability (AHEAD)
107 Commerce Center Drive, Suite 204
Huntsville, NC 28078
(704) 947-7779
(704) 948-7779 (Fax)
http://www.ahead.org/index.htm
email: ahead@ahead.org |
Education Resources Information Center
655 15th Street, NW Suite 500
Washington, DC 20005
(800) 538-3742
http://www.eric.ed.gov
Large clearinghouse of information. |
Federal Disability Information Task Force
http://www.disabilityinfo.gov
Offers a consolidation of all governmental disability information and services provided. Excellent explanations of various IEPs. |
Federal Resource Center for Special Education
1825 Connecticut Avenue, NW
Washington, DC 20009
(202) 884-8215
TTY (202) 884-8200
(202) 884-8443 (Fax)
http://www.rrfcnetwork.org
email: frc@aed.org |
Gallaudet University
800 Florida Avenue, N.E.
Washington, DC 20002-3695
(202) 651-5300
http://www.gallaudet.edu/
email: infotech.services@gallaudet.edu |
Great Lakes Area Regional Resource Center (GLARRC) OSU Center for Special Needs
700 Ackerman Road, Suite 440
Columbus, OH 43202
(614) 447-0844
TTY (614) 447-8776
http://www.rrfcnetwork.org/glarrc
E-mail: daniels.121@osu.edu |
IDEA 2004/U.S. Department of Education
http://idea.ed.gov/
*Updated IDEA Act information for all age groups. |
Kids Together, Inc.
P.O. Box 574
Quakertown, PA 18951
http://www.kidstogether.org
email: staff@kidstogether.org
Information regarding inclusion, IEP, Early Intervention, etc. |
Learning Disabilities Association of America
4156 Library Road
Pittsburgh, PA 15234-1349
(412) 341-1515
(412) 344-0224 (Fax)
http://www.ldaamerica.us
|
Mid-South Regional Resource Center (MSRRC) University of Kentucky
Human Development Institute 126 Mineral Industries Building
Lexington, KY 40506-0051
(859) 257-4921
TTY (859) 257-2903
http://www.rrfcnetwork.org/msrrc
E-mail: msrrc@ihdi.uky.edu |
Mountain Plains Regional Resource Center (Utah State University)
1780 N. Research Parkway, Suite 112
Logan, UT 84341
(435) 752-0238
http://www.rrfcnetwork.org/mprrc
The MPRRC serves Arizona, the Bureau of Indian Affairs, Colorado, Kansas, Montana, Nebraska, New Mexico, North Dakota, South Dakota, Utah and Wyoming. Click on your state from this home page for events and information in your area. |
National Center for Learning Disabilities
381 Park Avenue South, Suite 1401
New York, NY 10016
(888) 575-7373
(212) 545-7510
(212) 545-9665 (Fax)
http://www.ncld.org
Information regarding learning disabilities such as ADD, Dyslexia, Dyspraxia, and many others. Advocacy guide and monthly news letters. |
National Center on Secondary Education and Transition
6 Pattee Hall, 150 Pillsbury Drive SE
Minneapolis, MN 55455
612-624-2097
612-624-9344 (Fax)
http://www.ncset.org/
email:ncset@umn.edu
*Be sure to include address and phone number. |
National Coalition for Parent Involvement in Education (NCPIE)
3929 Old Lee Highway, Suite 91-A
Fairfax, VA 22030-2401
(703) 359-8973
(703) 359-0972 (Fax)
http://www.ncpie.org
|
Northeast Regional Resource Center(NERRC)
Learning Innovations 20 Winter Sport Lane
Williston, VT 05495
(802) 951-8226
TTY (802) 951-8213
http://www.rrfcnetwork.org/nerrc
E-mail: nerrc@aol.com |
Recognition and Response (NCLD)
381 Park Avenue South, Suite 1401
New York, NY 10016
(888) 575-7373
http://www.recognitionandresponse.org
|
School Matters ( A Service of Standard and Poors)
http://www.schoolmatters.com
*Search for schools by state, district, name or zip code. |
Southeast Regional Resource Center (SERRC) Auburn University Montgomery School of Education
P.O. Box 244023
Montgomery, AL 36124
(334) 244-3100
TTY (334) 244-3800
http://www.rrfcnetwork.org/serrc
E-mail: bbeale@edla.aum.edu
Also serves Puerto Rico and U.S. Virgin Islands |
Special Education Resources on the Internet
http://seriweb.com/
|
The Access Center
1000 Thomas Jefferson St., NW
Washington, DC 20007
(202) 403-5000
TTY:(877) 334-3499
(202) 403-5001 (Fax)
http://www.k8accesscenter.org/index.php
Email: accesscenter@air.org |
The Council for Exceptional Children
1110 No. Glebe Rd., Suite 300
Arlington, VA 22201-5704
(888) 232-7733
(703) 620-5660
(703) 264-9494 (Fax)
http://www.cec.sped.org
|
Think College.Net
ICI/University of Massachusetts
Boston, MA
(617) 287-4310
TTY (617) 287-4350
http://www.thinkcollege.net/index.php
Includes a program search. |
University of Washington DO-IT (Disabilities, Opportunities, Internetworking, and Technology)
University of Washington Box 355670
Seattle, WA 98195-5670
V/TTY888-972-3648
(206) 221-4171 (Fax)
http://www.washington.edu/doit/
Email: doit@u.washington.edu
|
US Department of Education~ No Child Left Behind Act (Updated)
http://www.ed.gov/nclb/landing.jhtml?src=ln
|
US Office of Education/Office of Special Education
Mary E. Switzer Building 330 C Street SW
Washington, DC 20202
V/TTY (202) 205-5507
http://www.ed.gov/offices/OSERS/OSEP
|
Western Regional Resource Center (WRRC)
1268 University of Oregon
Eugene, OR 97403-1268
(541) 346-5641
TTY (541) 346-0367
http://www.rrfcnetwork.org/wrrc
E-mail: wrrc@oregon.uoregon.edu |
|
| Employment |
Job Accommodation Network
PO Box 6080
Morgantown, WV 26506-6080
(800) 526-7234
TTY: (877) 781-9403
304-293-5407 (Fax)
http://www.jan.wvu.edu/
|
Office of Disability Employment Policy (ODEP)
200 Constitution Avenue (US Dept. Of Labor)
Washington, DC 20210
1-866-ODEP-DOL (633-7365)
TTY 1-877-889-5627
http://www.dol.gov/odep
|
U.S. Department of Labor
Frances Perkins Building 200 Constitution Avenue, NW
Washington, DC 20210
(866) 633-7365
(877) 889-5627
(202) 693-7888 (Fax)
http://www.dol.gov/odep/
|
Your Ticket To Work
1-866-968-7842
http://www.yourtickettowork.com/program_info
* A program of the US Social Security Administration. |
| Equipment |
AAC (Augmentative and Alternative Communication) Funding Help
http://www.aacfundinghelp.com
This website posts information regarding programs which cover and fund augmentative and assistive communication devices. Updated frequently. |
Ability Hub/Assistive Technology Solutions
c/o The Gilman Group, L.L.C. P.O. Box 6356
Rutland, VT 05702-6356
(802) 775 1993
http://www.abilityhub.com/links/computer.htm
Email: info@abilityhub.com
*Information regarding computer assistive technologies. |
Alliance for Technology Access
1304 Southpoint Blvd., Suite 240
Petaluma, CA 94954
(707) 778-3011
TTY: (707) 778-3015
(707) 765-2080 (Fax)
http://www.ataccess.org/community/centers.lasso
Email ATAinfo@ATAccess.org
*State by state program listing. |
Center for Assistive Technology and Environmental Access/ Georgia Institute of Technology
490 Tenth Street
Atlanta, GA 30332-0156
V/TTY: 800-726-9119
404-894-1414
404-894-9320 (Fax)
http://assistivetech.net/index.php
Email: catea@coa.gatech.edu |
Family Center on Technology and Disability (FCTD)
1825 Connecticut Ave. NW 7th Floor
Washington, DC 20009-5721
(202) 884-8068
(202) 884-8441 (Fax)
http://www.fctd.info
email: fctd@aed.org |
National Institute For Rehabilitation Engineering
P.O. Box 1088
Hewett, NJ 07421
(800) 736-2216
(973) 853-6585
(9280 832-2894 (Fax)
http://www.angelfire.com/nj/nire2/
The N.I.R.E. assists people of all ages with all types of disabilities including but not limited to vision, speech, hearing, hand dexterity, and mobility impairments. |
Pass It On Center
c/o Ga Department of Labor, Tools for Life1700 Century Circle, Suite 300
Atlanta , GA 30345-3020
1-800-497-8665
TDD: 1-866-373-7778
http://www.passitoncenter.org/find.shtml
*State/Regional listings of Assistive technology recycle programs. |
Trace Research & Development Center~University of Wisconsin-Madison
2107 Engineering Centers Bldg. 1550 Engineering Dr.
Madison, WI 53706
(608) 262-6966
TTY: (608) 263-5408
(608) 262-8848 (Fax)
http://trace.wisc.edu/
E-mail: info@trace.wisc.edu
|
University of Pittsburgh Rehabilitation Engineering Research Center (RERC)
(412) 624-4141
http://www.rercwts.pitt.edu/index.html
*Information Regarding Wheelchair Transportation Safety |
|
| Housing Programs - Government |
Center for Housing and New Community Economics (CHANCE) University of New Hampshire
10 West Edge Drive, Suite 101
Durham, NH 03824-3522
http://chance.unh.edu/
|
DisabilityInfo.gov ~ Housing
http://www.disabilityinfo.gov
*Provides a comprehensive listing of Federal and State housing programs and up to date program information. |
Fair Housing Accessibility FIRST
(888) 341-7781 (V/TTY)
http://www.fairhousingfirst.org/index.asp
*Promotes compliance with the Fair Housing Act in design and construction. Excellent resource links list. |
Paralyzed Veterans of America
801 18th Street NW
Washington, DC 20006-3517
1-800-424-8200
http://www.pva.org
*Not just for paralyzed Veterans, not just for paralysis. Ask for their Architecture Program!
**SNRP recommends their publication "Accessible Home Design". |
Public Housing Authorities Directors Association/Local Housing Authority Sites
http://www.phada.org/ha_list.php
*Site lists for city/community Housing Authorities (listed by state). |
US Dept. on Housing and Urban Development (HUD)
451 7th Street, SW
Washington, DC 20410
(202) 708-1112
TTY (202) 708-1455
http://www.hud.gov
*Listings of HUD offices by state found at the bottom of the home page. |
| Housing Programs - Private |
Assist, Inc.
218 East 500 South
Salt Lake City, UT 84111
(801) 355-7085
(801) 355-7086 (Fax)
http://www.assistutah.org/index.html
*Email:info@assistutah.org
*Among other services, ASSIST provides architectural design assistance for housing and accessibility to low income households or persons with disabilities living within specific geographic areas in the state of Utah.
**SNRP Recommends the Assist Guidebook to the Accessible Home. |
Center For Universal Design North Carolina State University
P.O. Box 8613
Raleigh, NC 27695-8613
(800) 647-6777
V/TTY:(919) 515-3082
(919) 515-3023 (Fax)
http://www.design.ncsu.edu\cud
|
Easy Living Home Coalition
http://www.easylivinghome.org/
*See website for contact information. |
Habitat for Humanity/United States
121 Habitat Street
Americus, GA 31709
1-800-422-4828
http://www.habitat.org/intl/na/218.aspx
E-mail: publicinfo@habitat.org |
Homes For Our Troops
37 Main Street
Taunton, MA 02780
(866) 787-6677
508-823-3300
508-823-5411 (Fax)
http://www.homesforourtroops.org
*Provides adaptive housing for disabled Vets |
Institute for Human Centered Design (Adaptive Environments)
180-200 Portland Street, Suite 1
Boston, MA 02114
(617) 695-1225
(617) 482-8099 (Fax)
http://www.adaptenv.org
E-mail: info@HumanCenteredDesign.org |
Institute for Human Centered Design (Adaptive Environments)
180-200 Portland Street, Suite 1
Boston, MA 02114
(617) 695-1225 (v/tty)
1 (617) 482-8099 (Fax)
http://adaptiveenvironments.org
E-mail: info@HumanCenteredDesign.org
|
National Council of State Housing Authorities
444 North Capitol Street, NW, Suite 438
Washington, DC 20001
202-624-7710
202-624-5899 (Fax)
http://www.ncsha.org/section.cfm/4/39/187
*Provides a state-by-state listing of State Housing Financing Agencies and links. |
National Resource Center on Supportive Housing and Home Modification/University of Southern California
3715 McClintock Avenue
Los Angeles, CA 90089-0191
(213) 740-1364
(213) 740-7069 (Fax)
http://www.homemods.org/
email: homemods@usc.edu
|
Rebuilding Together/National Headquarters
1536 16th Street, N.W.
Washington, DC 20036
1-800-473-4229
http://www.rebuildingtogether.org
*Currently has 225 affiliates, nationwide. Click on "Affiliates" for the Affiliate office nearest you. |
| Independent Living Organizations |
IL USA - Independent Living Centers
3108 Main Street
Buffalo, NY 14214
(518) 274-7944 (Fax)
http://www.ilusa.com/links/ilcenters.htm
*Click on your state to find a list of Independent Living Centers in your state
** Also includes Puerto Rico, U.S. Virgin Islands, Canada, UK, Brazil, Africa and European Countries. |
Independent Living Institute
46-8-506 22-181
http://www.independentliving.org/
Arenavagen 63-121-77
Stockholm-Johanneshou
Sweden
|
Independent Living Research Utilization Project/The Institute for Rehabilitation and Research
2323 So. Sheppard, Suite 1000
Houston, TX 77019
(713) 520-0232
TTY: (713) 520-5136
http://www.ilru.org
email: ilru@ilru.org
Contact information for Statewide Independent Living Councils listed by state. |
IRLU Directory of Centers and SILCs
Listings For The State of Virginia
Washington, DC
http://www.ilru.org/html/publications/directory...
National Directory listed by state. |
National Council on Independent Living
1710 Rhode Island Avenue, NW, 5th Floor
Washington, DC 20036
(877) 525-3400
TTY (202) 207-0340
(202) 207-0341 (Fax)
http://www.ncil.org/region.html
CIL listings by state. |
|
| Indian Health Services |
National Indian Child Welfare Association NICWA
5100 SW Macadam Ave. Suite 300
Portland, OR 97239
(503) 222-4044
(503) 222-4007 (Fax)
http://www.nicwa.org/index.asp
|
|
| Information |
ADA Document Portal
3630 Sinton Road, Suite 103
Colorado Springs, CO 80907
(800) 949-4232 v/tty
http://www.adaportal.org/
|
Association of University Centers on Disabilities
1010 Wayne Avenue, Suite 920
Silver Spring, MD 20910
(301) 588-8252
(301) 588-2842 (Fax)
http://www.aucd.org
*Click on the UCEDDs button to find the University Center in your state. |
Bridges 4 Kids
3520 Okemos Road, Suite 6 -150
Okemos, MI 48864
http://www.bridges4kids.org
E-mail: info@bridges4kids.org
*A nationwide data base providing parents, educators, and others the information they need to help children who might be at-risk or have special needs. Includes information on child development, education issues and opportunities, and extensive disability, gifted, at-risk, parenting, and teaching resources. |
Center for Personal Assistance Services
University of California, San Fransisco
San Francisco, CA
http://www.pascenter.org/home/index.php
*Contains updated Medicaid information and state-by-state listing of Medicaid waivers. |
Cornucopia of Disability Information (CODI)
University at Buffalo
Buffalo, NY
http://codi.buffalo.edu
Excellent repository of information. |
Disability Information.Gov
http://www.disabilityinfo.gov
*Large Federal database providing easy access to comprehensive information about disability programs, services, laws and benefits. To find disability resources in your state just click on the Find State and Local Resources map located in each of the subject areas listed in their menu. |
Disability is Natural
http://www.disabilityisnatural.com
Parent, care giver, teacher and provider information.
*Not an SNRP supported site. |
DisAbility.gov
http://www.disability.gov
|
Girls Health.gov
8270 Willow Oaks Corporate Drive, Suite 301
Fairfax, VA 22031
http://4girls.gov
*See "Illness and Disability" tab. Excellent information resource. |
Independent Living Institute (International)
http://www.independentliving.org
Located at: Arenavagen 63, 121 77
Stockholm-Johanneshov, Sweden |
Institute For Community Inclusion (UCEDD) UMass Boston
100 Morrissey Blvd.
Boston , MA 02125
(617) 287-4300
TTY: (617) 287-4350
(617) 287-4352 (Fax)
http://www.communityinclusion.org/index.php
email: ici@umb.edu |
Internet Resource for Special Children (IRSC)
http://www.irsc.org
*Large database of links on a wide variety of topics. |
LD Online - WETA Public Television
2775 So. Quincy Street
Arlington, VA 22206
(703) 998-2060 (Fax)
http://www.ldonline.org
*Learning Disability/Autism Spectrum Information |
MedicareSolutions
http://www.medicaresolutions.com/disability-res...
*A comprehensive page on disabilities providing informative links in several areas of interest including Disability Rights, support groups, government resources and organizations and others. |
National Association for Home Care and Hospice
228 Seventh Street, SE
Washington , DC 20003
(202) 547-7424
(202) 547-3540 (Fax)
http://www.nahc.org/home.html
*Access a state by state listing of Home Care and Hospice provider companies |
National Center on Birth Defects and Developmental Disabilities
1600 Clifton Rd.
Atlanta, GA 30333
1-800-232-4636 (Info Line)
http://www.cdc.gov/ncbddd/default.htm
*Excellent informational resource for a multitude of developmental disabilities.
** Also see "Learn the Signs. Act Early". |
National Dissemination Center for Children with Disabilities (NICHCY)
P.O. Box 1492
Washington, DC 20013
(800) 695-0285
http://www.nichcy.org
email: nichcy@aed.org |
National Organization on Disability
910 Sixteenth Street, N.W., Suite 600
Washington, DC 20006
(202) 293-5960
TTY: (202) 293-5968
(202) 293-7999 (Fax)
http://www.nod.org
E-mail: ability@nod.org |
National Respite Locator Service
800 Easttowne Drive, Suite 105
Chapel Hill, NC 27514
(800) 473-1727 ext. 222
http://www.respitelocator.org/index.htm
List of Reapite provider links nationwide. Focuses on respite care for families of special needs children. |
The Family Village - Waisman Center/ University of Wisconsin - Madison
1500 Highland Ave.
Madison, WI 53705-2280
http://www.familyvillage.wisc.edu/index.html
email: familyvillage@waisman.wisc.edu |
United Spinal Association
75-20 Astoria Boulevard
Jackson Heights, NY 11370
800-404-2898
(718) 803-3782
(718) 803-0414 (Fax)
http://www.unitedspinal.org/disability-publicat...
*Linda's favorite down-loadable informational resource. Linda recommends the following booklets: Disability Etiquette (PDF), Taking Action (PDF), Adaptive Automotive Equipment (PDF), The Americans with Disabilities Act (PDF),The Fair Housing Amendments Acts (PDF) and Accessing Local Government (PDF). Please see the menu page for other publications you may be interested in. |
US Department of Health and Human Services
200 Independence Avenue, SW
Washington, DC 20201
http://www.hhs.gov
US Government site for tracking and reporting general diagnosis and treatment information. Reference links available. |
Visiting Nurse Association of America
99 Summer Street Suite 1700
Boston, MA 02110
(617) 737-3200
(617) 737-1144 (Fax)
http://www.vnaa.org/vnaa/g/?h=html/home
Maintains a state-by-state Home Health Agency Directory. Member companies only are listed for each state. |
|
| Legal Advocacy/Information |
Assistive Technology Law Center
401 East State Street
Ithaca, NY 14850
607-277-7286
607-277-5239 (Fax)
http://www.aacfundinghelp.com
E-mail: lewis.golinker@aacfundinghelp.com |
Disability Rights Advocates
2001 Center Street, Third Floor
Berkeley, CA 94704-1204
(510) 665-8644
http://www.dralegal.org/
email: general@dralegal |
Disability Rights Education & Defense Fund
2212 Sixth Street
Berkeley, CA 94710
Toll Free: (800) 348-4232
(510) 841-8645 (Fax)
http://www.dredf.org/
email: info@dredf.org |
National Association for Community Mediation
P.O. Box 44578
Madison, WI 53744
(608) 845-9918
http://www.nafcm.org
Email: nafcm@mailbag.com
*Has a large list of state affiliates. |
National Disability Rights Network
900 Second Street, NE, Suite 211
Washington, DC 20002
(202) 408-9514
TTY: (202-408-9521
(202) 408-9520 (Fax)
http://www.ndrn.org
|
National Guardianship Association, Inc.
526 Brittany Dr.
State College, PA 16803
(877) 326-5992
(814) 238-7051 (Fax)
http://www.guardianship.org
email: info@guardianship.org |
National Health Law Program (NHelp) Main Office
2639 South La Cienega Blvd
Los Angeles, CA 90034-2675
(310) 204-6010
(310) 204-0891 (Fax)
http://www.healthlaw.org
Email: nhelp@healthlaw.org
* NHeLP serves legal services programs, community-based organizations, the private bar, providers and individuals who work to preserve a health care safety net for the millions of uninsured or underinsured low-income people. |
National Help Law Program (NHeLP) North Carolina Office
211 North Columbia Street, 2nd Floor
Chapel Hill, NC 27514-3503
(919) 968-6308
(919) 968-8855 (Fax)
http://www.healthlaw.org
Email: nhelp@healthlaw.org
* NHeLP serves legal services programs, community-based organizations, the private bar, providers and individuals who work to preserve a health care safety net for the millions of uninsured or underinsured low-income people. |
National Help Law Program (NHeLP) Washington, D.C. Office
1101 14th Street, NW Suite 405
Washington, DC 20005
(202) 289-7661
(202) 289-7724 (Fax)
http://www.healthlaw.org
Email: nhelpdc@healthlaw.org
* NHeLP serves legal services programs, community-based organizations, the private bar, providers and individuals who work to preserve a health care safety net for the millions of uninsured or underinsured low-income people. |
TASH (Equity and Inclusion for People With Disabilities)
1025 Vermont Ave., Floor 7
Washington, DC 20005
(202)263-5500
http://www.tash.org/index.html
|
The Center on Human Policy,Law,& Disability Studies at Syracuse University
805 South Crouse Avenue
Syracuse, NY 13244-2280
1-800-894-0826
TTY: (315) 443-4355
(315) 443-4338 (Fax)
http://thechp.syr.edu/index.html
E-mail: thechp@sued.syr.edu |
US Department of Justice Americans with Disabilities Act
950 Pennsylvania Avenue, NW Civil Rights Division, Disability Rights Section - NYA
Washington, DC 20530
800-514-0301
TTY: 800-514-0383
http://www.usdoj.gov/crt/ada/adahom1.htm
|
Wright's Law
http://www.wrightslaw.com
|
|
| Legislative |
Children's Defense Fund
25 E Street N.W.
Washington, DC 20001
(800-233-1200)
202-628-8787
http://www.childrensdefense.org/
email: cdfinfo@childrensdefense.org |
National Council on Disability
1331 F. Street, NW, Suite 850
Washington , DC 20004
(202) 272-2004
TTY (202) 272-2074
(202) 272-2022 (Fax)
http://www.ncd.gov
|
| Medical Centers/Hospitals/Clinics |
Shriner's of North America (International)
2900 Rocky Point Dr.
Tampa, FL 33607-1460
(800) 237-5055
http://www.shrinershq.org
Charitable children's hospitals specializing in burn and orthopedic treatment. Check for the hospital nearest your area. |
|
| Medical Information/Research Organizations |
American Academy of Pediatrics/Childhood Immunization Support Program
141 Northwest Point Blvd.
Elk Grove Village, IL 60007
http://www.cispimmunize.org/
*Information regarding childhood immunizations. |
American Association of Pediatrics
141 Northwest Point Blvd.
Elk Grove Village, IL 60007
(847) 434-4000
http://www.aap.org
General information regarding diagnosis and treatment of pediatric disorders and diseases as well as some referral services. |
American Medical Association
515 No. State St.
Chicago , IL 60610
(800) 621-8335
http://www.ama-assn.org
General information regarding diagnosis,treatment and current research in the medical community. |
American Occupational Therapy Association, Inc.
4720 Montgomery Lane
Bethesda, MD 20824-1220
(301) 652-2682
TDD: 1-800-377-8555
(301) 652-7711 (Fax)
http://www.aota.org/
|
American Society of Health-System Pharmacists
7272 Wisconsin Avenue
Bethesda, MD 20814
http://www.ashp.org/PAP/Federal.cfm
*Contains links to Patient Assistance Programs for pharmaceutical services (Drugs/Medications). |
American Speech-Language-Hearing Association
10801 Rockville Pike
Rockville, MD 20852
(800) 638-8255
http://www.asha.org
* Has an extensive database of Audiologists and Speech-Language Pathologists. Click on "Find a Professional". |
Annette and Irwin Eskind Biomedical Library (at Vanderbilt University)
2209 Garland Avenue
Nashville, TN 37232-8340
(615) 936-1410
(615) 936-1384 (Fax)
http://www.mc.vanderbilt.edu/biolib/index.html
|
Birth Defects Research for Children, Inc.
800 Celebration Avenue, Suite 225
Celebration, FL 34747
(407) 566-8304
(407) 566-8341 (Fax)
http://www.birthdefects.org/
|
Columbus Children's Research Institute
700 Children's Drive
Columbus, OH 43205
(614) 722-2000
(614) 722-2716 (Fax)
http://columbuschildrens.com/GD/Templates/Pages...
|
Consumer Reports Medical Guide
http://www.consumerreports.org/mg/home.htm
Medical reports on a wide variety of topics.
*ALWAYS consider the source when reviewing medical information |
Early Childhood Research Institute on
61 Children's Research Center
Champaign, IL 61821
(877) 275-3227
(217) 333-4123
http://www.clas.uiuc.edu/aboutclas.html
|
Hardin Library for the Health Sciences/University of Iowa
600 Newton Rd.
Iowa City, IA 52242-1098
(319) 335-9151
http://www.lib.uiowa.edu/hardin/md
email: lib-hardin@uiowa.edu
|
Journal of the American Medical Association (JAMA)
http://www.jama.ama-assn.org
Published by the American Medical Association. Contains current research and archives. |
National Health Information Center
P.O. Box 1133
Washington, DC 20013-1133
(800) 336-4797
(301) 565-4167
(301) 984-4256 (Fax)
http://www.health.gov/NHIC/
|
National Library of Medicine (National Institutes of Health)
8600 Rockville Pike
Bethesda, MD 20894
http://www.nlm.nih.gov/
Email: custserv@nlm.nih.gov
*The World's Largest Medical Library |
National Network for Immunization Information (NNII)
301 University Blvd
Galveston, TX 77555-0351
(409) 772-0199
(409)747-4995 (Fax)
http://www.immunizationinfo.org
Information on vaccines and preventable diseases. State vaccine requirements for school entry listed. |
National Organization for Rare Disorders (NORD)
PO Box 1968, 55 Kenosia Avenue
Danbury, CT 06813-1968
(800) 999-6673 (voicemail only)
(203)798-2291 (Fax)
http://www.rarediseases.org/
email: orphan@rarediseases.org
*Please note:If you must send NORD an attachment, please notify them first. They are unable to open unexpected e-mail attachments. |
National Rehabilitation Information Center
4200 Forbes Blvd., Suite 202
Lanham, MD 20706
(800) 346-2742
TTY (301) 459-5984
http://www.naric.com
email: naricinfo@heitechservices.com |
The Children's Hospital of Philadelphia's Vaccine Education Center
http://www.vaccine.chop.edu/
*The goal of the Vaccine Education Center is to accurately communicate the facts about each childhood vaccine as well as how vaccines are made, how and why they work, who recommends them, and more. |
UAB Civitan International Research Center/University of Alabama Center of Excellence in Developmental Disabilities (UCEDD)
1530 3rd Ave. South CIRC 329
Birmingham, AL 35294
1-800-UAB-CIRC
205-934-8900
205-975-6330 (Fax)
http://www.circ.uab.edu/
*CIRC provides services throughout Alabama and the surrounding region. |
United States Department of Health and Human Services/National Mental Health Information Center
P.O. Box 42557
Washington, DC 20015
1-800-789-2647
TDD: (866) 889-2647
(240) 221-4295 (Fax)
http://mentalhealth.samhsa.gov/child/childhealt...
|
University of Montana Rural Institute Center for Excellence in Disability Education, Research, and Services
52 Corban Hall
Missoula , MT 59812
(800) 732-0032
(406) 243-5467
http://ruralinstitute.umt.edu
*Information regarding RURAL living and services.
*Native American Resource Listings |
Vanderbilt University Clinical Research Center
1161 21st Avenue South, AA-3208 MCN
Nashville, TN 37232-2195
615-322-6972
615-343-2979 (Fax)
http://www.mc.vanderbilt.edu/gcrc/
|
|
| Other |
Ability OnLine Support Network
1120 Finch Avenue West, Suite 104
Toronto, Ontario, DC Canada M3J 3H7
1-866-650-6207
416-650-6207
416-650-5073 (Fax)
http://www.ablelink.org
Email: information@ablelink.org
*Canadian On-Line Support Community. Monitored for safety. As with all bulletins boards/chat rooms exercise supervision and caution. |
Adaptions By Adrian
P.O. Box 7
San Marcos, CA 92079-0007
1-877- 623 - 7426
http://www.adaptationsbyadrian.com/
Email: adrians1@sbcglobal.net
*Clothing adaptions. |
Adaptive Driving Program/Good Samaritan Hospital
| 5601 Loch Raven Boulevard
Baltimore, MD 21239
443-444-4601
http://www.goodsam-md.org/body.cfm?id=650
* Contact for program information. |
Disability Studies, Temple University Blog
http://disstud.blogspot.com
*Based at Temple University but with nationwide contributors. Has a LARGE list of disability related blogs. |
Latin American Health Institute
95 Berkeley St. (Main Office)
Boston, MA 02116
(617) 350-6900
(617) 350-6901 (Fax)
http://www.lhi.org/lhi/
email: Info@lhi.org
*Latin American Services |
National Council of La Raza
Raul Gzaguirre Bldg., 1126 St. N.W.
Washington, DC 20036
(202) 785-1670
(202) 776-1792 (Fax)
http://www.nclr.org
*Latin American Services |
Sibling Support Project
16120 NE Eighth Street
Bellevue, WA 98008
(425) 747-4004
TTY 1-800-833-6388
(425) 747-1069 (Fax)
http://www.siblingsupport.org
email:info@kindering.org |
The Special Parent dot Com
http://thespecialparent.com
|
| Parent Support Programs |
CADRE ~ Consortium for Appropriate Dispute Resolution in Special Education
3411-A Willamette Street
Eugene, OR 97405-5122
(541) 686-5060
TTY: (541) 284-4740
(541) 686-5063 (Fax)
http://www.directionservice.org/cadre/
* Encourages the use of mediation and other collaborative strategies to resolve disagreements about special education and early intervention programs. |
Exceptional Children's Assistance Center (ECAC) Region 2 & 3
907 Barra Row, Suite 102/103
Davidson , NC 28036
(800) 962-6817
(704) 892-1321
http://www.ecac-parentcenter.org/
email: ecacta@ecacmail.org |
Kids Together, Inc.
P.O. Box 574
Quakertown, PA 18954
http://www.kidstogether.org
E-mail staff @ kidstogether.org |
Matrix Parent Network and Resource Center Region 6
94 Galli Drive, Suite C
Novato, CA 94949
(800) 578-2592
(415) 884-3535
(415) 884-2592 (Fax)
http://www.matrixparents.org
email: region6@matrixparents.org |
National Family Caregivers Association
10400 Connecticut Avenue, Suite 500
Kensington, MD 20895-3944
1-800-896-3650
(301) 942-6430
(301) 942-2302 (Fax)
http://www.nfcacares.org/
E-mail: info@thefamilycaregiver.org |
National Fatherhood Initiative
101 Lake Forest Boulevard, Suite 360
Gaithersburg, MD 20877
(301) 948-0599
(301) 948-4325 (Fax)
http://www.fatherhood.org
*See Programs~Military for Deployed Fathers and Families information available for a small fee.
**This is a for-profit site not endorsed by SNRP. |
National Parent Network On Disabilities
1130 17th Street NW Ste 400
Washington, DC 20036
(202) 463-2299
(202) 463-9403 (Fax)
http://php.com/include/agency/agency_item.php?A...
Email: NPND-NPND@cs.com |
National Technical Assistance Center/PACER Center
8161 Normandale Blvd.
Minneapolis, MN 55437-1044
1-800-248-0822
(952) 838-9000
(952) 838-0199 (Fax)
http://www.taalliance.org
|
Ohio Coalition for the Education of Children with Disabilities (OCECD)
165 West Center Street, Suite 302
Marion , OH 43302-3741
(800) 374-2806
(740) 382-5452
(740) 383-6421 (Fax)
http://www.ocecd.org
email: oced@gte.net
*Check for information in your state. |
PEAK Parent Center, Inc Region 5
611 North Weber, Suite 200
Colorado Springs, CO 80903
(800) 284-0251
(719) 531-9400
http://www.peakparent.org
email: region5ptac@peakparent.org |
Specialized Training of Military Parents (STOMP)
PAVE 6316 S. 12th Street, Suite B
Tacoma , WA 98465
(V/TTY) (800) 572-7368
(V/TTY) (253) 565-2266
(253) 566-8052 (Fax)
http://www.stompproject.org
|
Statewide Family Networks
1401 El Camino Ave., Suite 340
Sacramento, CA 95815
(866) 807-7687
http://www.tacenter.net
|
Statewide Parent Advocacy Network (SPAN) Region 1
35 Halsey Street, 4th Floor
Newark, NJ 07102
(973) 642-8100
(973) 642-8080 (Fax)
http://www.spannj.org
email: span@spannj.org |
Technical Assistance Alliance for Parents Centers Map
8161 Normandale Blvd
Minneapolis, MN 55437
1-888-248-0822 Nationwide
http://www.taalliance.org/centers/index.htm
*E-mail: alliance@taalliance.org
**Each state has at least one parent center. These should be listed on your state resource links page. If not, click here and find your state on the map. |
The Fathers Network
Kindering Center 16120 NE, Eighth Street
Bellevue, WA 98008
(425) 747-4004 EXT: 4286
(425) 747-1069 (Fax)
http://www.fathersnetwork.org
Supports fathers raising children with Special Needs. Links to Father's networks in the U.S., Canada, and New Zealand. |
Think Kids: Rethinking Challenging Kids
CPS Institute 313 Washington Street, Suite 402
Newtons Corner, MA 02458
617.244.0400
FAX 617.965.3080 (Fax)
http://www.thinkkids.org
E-mail: info@thinkkids.org
*Massachusetts General Hospital |
Through The Looking Glass
2198 Sixth Street, Suite 100
Berkeley, CA 94710-2204
1-800-644-2666
TTY: 1-800-804-1616
(510) 848-4445 (Fax)
http://lookingglass.org/index.php
|
|
| Patient Assistance Programs |
American Dental Association ~ Give Kids A Smile Program
http://www.givekidsasmile.ada.org/findGKAS.asp
*This is a yearly clinic in most communities. Click on the Clinic locator to find a clinic in your area. |
Cover the Uninsured
http://covertheuninsured.org
Email: info@covertheuninsured.org
* Provides a State by State guide to finding healthcare insurance coverage in your state. |
Merck Patient Assistance Programs
P.O. Box 100
Whitehouse Station, NJ 08889-0100
908-423-1000
http://www.merck.com/responsibility/pap-informa...
Merck offers a family of programs providing free and discounted medicines to patients who cannot afford their prescribed medicines. |
NeedyMeds
P.O. Box 219
Gloucester, MA 01931
http://www.needymeds.org
NeedyMeds is a 501(c)(3) national non profit, has information on programs that help people who can't afford their medications and health care costs. Provides data regarding approximately 2400 programs and nearly 11,000 free/low-cost/sliding-scale clinics. |
Partnership for Prescription Assistance
1-888-477-2669
http://www.pparx.org
The Partnership for Prescription Assistance offers a single point of access to more than 475 public and private patient assistance programs, including more than 180 programs offered by pharmaceutical companies. More than 2,500 brand-name and generic medicines are covered. |
Partnership for Prescription Assistance Kids
1-877-369-1477
http://kids.pparx.org
The Partnership for Prescription Assistance offers a single point of access to more than 475 public and private patient assistance programs, including more than 180 programs offered by pharmaceutical companies. More than 2,500 brand-name and generic medicines are covered. |
Pfizer Helpful Answers
1-866-706-2400
http://www.pfizerhelpfulanswers.com
Pfizer Helpful Answers is a family of assistance programs for uninsured and underinsured patients who need help getting their Pfizer medicines.
These programs provide:
•Pfizer medicines for free or at a savings to patients who qualify
•Some programs also offer reimbursement support services
Call for more information. |
RxAssist
111 Brewster Street
Pawtucket, RI 02860
401-729-3284
401-729-2955 (Fax)
http://www.rxassist.org
Email: info@rxassist.org
Patient Assistance Program Center ~ Offers a comprehensive database of programs and information. |
| Recreation |
Ability Station
278 South 880 West
Spanish Fork, UT 84660
800-520-1222
http://www.abilitystation.com
Ability Station offers toys for special needs children needing sensory, fine motor and gross motor,and cognitive development. Toys are reviewed by an Occupational, Physical or Speech Therapist. |
Adaptive Action Sports
PO box 16558
South Lake Tahoe, CA 96151
http://adacs.org/about-aas
General Information E-mail: info@adacs.org
Check out their blog at http://adaptiveactionsports.blogspot.com |
Adaptive Adventures ~ Chicago
2616 Wilmette Avenue
Wilmette, IL 60091
(847) 251-8445
(866) 679-2770
http://www.adaptiveadventures.org
E-mail: info@adaptiveadventures.org
|
Adaptive Adventures ~ Evergreen
P.O. Box2245
Evergreen, CO 84037
(877) 679-2770
(303) 670-8290 (Fax)
http://www.adaptiveadventures.org
E-mail: info@adaptiveadventures.org
|
American Blind Skiing Foundation
2228 Grand Pointe Trail
Aurora, IL 60504
http://www.absf.org/
Email: ABSF@absf.org |
American Therapeutic Recreation Association
1414 Prince Street, Suite 204
Alexandria, VA 22314
(703) 683-9420
(703) 683-9431 (Fax)
http://atra-online.com
|
Americans for The Arts
1000 Vermont Avenue NW, 6th Floor
Washington, DC 20005
(202) 371-2830
(202) 371-0424 (Fax)
http://www.AmericansForTheArts.org
Email: info@artsusa.org
|
Best Buddies - Global Headquarters
100 Southeast Second Street, Suite 2200
Miami , FL 33131
(800) 892-8339
(305) 374-2233
(305) 374-5305 (Fax)
http://www.bestbuddies.org
*Contact for a chapter in your area. |
C.A.S.T. for Kids Foundation (Eastern Region)
1529 Sunview Drive
Dallas, TX 75253
(972) 913-2933
(972) 557-8447 (Fax)
http://www.castforkids.org/
Email: art@castforkids.org
*Contact for a program in your state. |
C.A.S.T. for Kids Foundation (Western Region)
227 S.W. 41st Street
Renton, WA 98057
(425) 251-3214
(425) 251-3272 (Fax)
http://www.castforkids.org/
Email:jim@castforkids.org
*Contact for a fishing program in your state |
Culture! Disability! Talent
P.O. Box 1107
Berkeley, CA 94701
(510) 845-5576
http://www.culturedisabilitytalent.org
Email: cdtinfo@aol.com |
Disabled Sports USA
451 Hungerford Drive, Suite 100
Rockville, MD 20850
(301) 217-0960
301) 217-0960 Phone (Fax)
http://www.dsusa.org/
email: information@dsusa.org
*LONG list of Sports programs throughout the US. |
Dwarf Athletic Association of America
418 Willow Way
Highland Village, TX 75077
(972) 317-8299
(972) 966-0184 (Fax)
http://www.daaa.org/
|
GORP (Recreation Community)
http://gorp.away.com/gorp/eclectic/disabled.htm
* Commercial site with helpful information and National Park listings.
**SNRP does not endorse this site. |
Hole in the Wall Camps
265 Church Street, Suite #503
New Haven, CT 06510
(203) 562-1203
(203) 562-1207 (Fax)
http://www.holeinthewallcamps.org
Email: info@holeinthewallcamps.org
*Camps located in 34 states and 31 countries. Contact to find camp nearest you. |
KaBoom
4455 Connecticut Ave., NW, Suite B100
Washington, DC 20008
1-202-659-0215
http://kaboom.org
National accessible playground project. See site for locations. |
Kids Camps.Com
500 NE Spanish River Blvd., Suite 30
Boca Raton, FL 33431
(877) 242-9330
(561) 443-2924
(866) 665-2904 (Fax)
http://kidscamps.com/
Email: info@kidscamps.com
*Listing of Special Needs Camps by disability and region. |
Lakeshore Foundation
4000 Ridgeway Drive
Birmingham, AL 35209
205-313-7400
http://www.lakeshore.org/
email: information@lakeshore.org
* Camp for both children and adults.
**Also serves injured US Servicemen.
|
National 4-H Headquarters~Cooperative State Research, Education, and Extension Service United States Department of Agriculture
800 9th St., S.W., Room 4401
Washington, DC 20024
(202) 720-2908
http://www.national4-hheadquarters.gov/
E-mail: 4hhq@csrees.usda.gov
|
National Alliance for Accessible Golf
12100 Sunset Hills Road, Suite 130
Reston, VA 20190
(703) 234-4136
(703) 435-4390 (Fax)
http://www.accessgolf.org
Email: info@accessgolf.org
|
National Arts and Disability Center Tarjan Center for Developmental Disabilities
300 UCLA Medical Plaza Suite #3310
Los Angeles, CA 90095-6967
(310) 794-1141
(310) 794-1143 (Fax)
http://nadc.ucla.edu/index.cfm
|
National Assembly of State Art Agencies
1029 Vermont Ave., NW 2nd Floor
Washington, DC 20005
(202) 347-6352
TDD: (202) 347-5948
(202) 737-0526 (Fax)
http://www.nasaa-arts.org/
Email: nasaa@nasaa-arts.org
|
National Beep Baseball Association
http://www.nbba.org/
NBBA General Information - Email: secretary@nbba.org
Contact to find a team near you. |
National Center on Accessibility
501 North Morton Street, #109
Bloomington, IL 47404-3732
(812) 856-4422
TTY(812) 856-4421
(812) 856-4480 (Fax)
http://www.indiana.edu/~nca/
|
National Center on Physical Activity and Disability
1640 W. Roosevelt Road
Chicago, IL 60608-6904
1-800-900-8086
1-312-355-4058 (Fax)
http://www.ncpad.org/
Email: ncpad@uic.edu.
*Maintains a State-by-state listing of camps and recreational facilities. |
National Endowment for the Arts/Children With Disabilities Resource List
1100 Pennsylvania Avenue NW
Washington, DC 20506
(202) 682-5532
TTY: (202) 682-5496
http://www.nea.gov/resources/Accessibility/rlis...
|
National Lekotek Center
3204 W. Armitage Avenue
Chicago, IL 60647
(800) 366-7529
(773) 276-5164
(773) 276-8644 (Fax)
http://www.lekotek.org/
email: ekotek@lekotek.org
*Specializes in adapted toys and play aids. |
National Parks Pass
http://www.nps.gov/fees_passes.htm
*Updated information regarding free access passes to National Parks for U.S. citizens or permanent residents with permanent disabilities. |
New England Handicapped Sports Association
PO Box 2135
Newbury, NH 03255-2135
(603) 763-2356
(603) 763-4400 (Fax)
http://www.nehsa.org/
Email: info@nehsa.org |
North American Riding for the Handicapped Association, Inc
7475 Dakin Street Suite #600
Denver, CO 80221
(800) 369-RIDE (7433)
Fax (303) 252-4610 (Fax)
http://www.narha.org/
*Find an NARHA certified Center in your state from the home page. |
Special Olympics Program Locator
1133 19th Street, N.W.
Washington, DC 20036
1-202-628-3630
http://www.specialolympics.org/Special+Olympics...
*Check here to find a program in your area. |
TFH Special Needs Toys
4537 Gibsonia Road
Gibsonia, PA 15044
(800) 467-6222
(724) 444-6411 (Fax)
http://www.specialneedstoys.com
|
The John F. Kennedy Center for the Performing Arts
2700 F. Street, NW
Washington, DC 20566-0001
(202) 416-8727
(202) 416-8728 (Fax)
http://www.kennedy-center.org/accessibility/
Email: access@kennedy-center.org |
The United States Association of Blind Athletes
33 N. Institute St.
Colorado Springs, CO 80903
(719) 630-0422
(719) 630-0616 (Fax)
http://www.usaba.org/
*See home page for Camp Information and Regional Offices in your area. |
Therapy/Respite Camps For Kids
http://wmoore.net/therapy.html
email: will.moore AT Buffaloes.com
**Contains a State-by-State listing of camps in the US, Canada, Central America and Greece. |
United States Blind Golf Association
http://www.blindgolf.com/
*Contact for state chapters. |
US Deaf Sports Federation
102 North Krohn Place
Sioux Falls, SD 57103-1800
TTY:(605) 367-5761
(605) 367-5760
(605) 977-6625 (Fax)
http://www.usdeafsports.org/
E-mail:HomeOffice@usdeafsports.org |
VSA arts
800 Connecticut Ave., NW Ste. 600
Washington, DC 20006
(800) 933-8721
(202) 628-2800
(202) 737-0725 (Fax)
http://www.vsarts.org/
*Check for VSA programs in your state. |
Wheelchair Sports, USA
1236 Jungermann Road, Suite A
St. Peters, MO 63376
(636) 614-6784
(636) 329-1090 (Fax)
http://www.wsusa.org/
Email: wsusa@aol.com |
Wheelchair Sports, USA
1236 Jungermann Road, Suite A
St. Peters, MO 63376
(636) 614-6784
(636) 329-1090 (Fax)
http://www.wsusa.org/
Email: wsusa@aol.com |
| Service Dogs/Canine Programs |
Assistance Dog Institute
1215 Sebastopol Road
Santa Rosa, CA 95407
(707) 545-3647
http://www.assistancedog.org/
Email: info@assistancedog.org |
Assistance Dogs International, Inc (ADI)
PO Box 5174
Santa Rosa, CA 95402
(707) 571-0427
http://www.adionline.org/
Email: info@adionline.org
|
Canine and Abled
(609) 213-7790
http://www.canineandabled.com/index.html
E-mail:canineandabled@aol.com
|
Canine Companions for Independence
P.O. Box 205
Farmingdale, NY 11735
(800) 572-2275 (TDD)
http://www.cci.org
Chapter Listings by Region |
Canine Companions for Independence (CCI)/National Center
P.O. Box
Oceanside, CA 92052
(800) 572-2275
(760) 901-4300
(760) 901-4551 (Fax)
http://www.caninecompanions.org
*Contact for regional training centers and Veteran's Programs. |
Compassionate Paws, Inc.
W7064 Bighorn Lane
Wautoma, WI 54982
(920)787-1467
(920) 987-9098
http://www.compassionatepaws.com
*Specializes in working with families and individuals affected with Autism and Autism Spectrum Disorders. Will train anyone in the US but does focus primarily on states in the Mid-West. |
Delta Society National Service Dog Center
875 124th Ave. NE Suite 101
Bellevue, WA 98005
(425) 226-7351
http://www.deltasociety.org
(Search for trainers and local training programs by state) |
Dogs 4 Diabetics
1647 Willow Pass Road, #157
Concord, CA 94520-2611
(925) 246-5785
http://www.dogs4diabetics.com
E-mail: info@dogs4diabetics.com |
Guiding Eyes for the Blind
611 Granite Springs Road
Yorktown Heights, NY 10598
800-942-0149
http://www.guidingeyes.org/site/PageServer
|
Heaven Scent Paws
(Mailing address) 108 HWY, PP
St. Elizabeth, MO 65075
(573) 493-2627
http://www.heavenscentpaws.com
E-Mail: info@heavenscentpaws.com
**Specializes in Diabetic Alert Dogs & Seizure Alert/Response Dogs |
International Association of Assistance Dog Partners
38691 Filly Drive
Sterling Heights, MI 48310
http://www.iaadp.org/
|
Land of Pure Gold Foundation
3731 Greenway Lane
Owings Mills, MD 21117
http://landofpuregold.com/service-groups.htm
* A Canine Cancer research group they also provide a nationwide assistance dog group and training program listing. |
Lost Acres Assistance Dogs
RR 4 Box 643
Marble Hill, MO 63764
http://lostacresassistancedogs.bravehost.com/
Email: LostAcresAssistanceDogs@hotmail.com
*Places Service Dogs nation wide. Contact for further information. |
Paws With a Cause
4646 South Division
Wayland, MI 49348
(800) 253-7297
http://www.pawswithacause.org/
|
Positive Partners Assistance Dogs, Inc.
P.O. Box 2088
Hailey, ID 83333
(208) 721-1309
* Trains wheelchair assistance, hearing assistance, guide dogs and mobility assistance dogs. Will train dogs for anyone in the United States. |
The Psychiatric Service Dog Society (PSDS)
P.O. Box 754
Arlington, VA 22216
(571) 216-1589
http://www.psychdog.org/index.html
|
| Tax Information |
Internal Revenue Service (IRS)
http://www.irs.gov
We recommend searching for "Commonly missed tax deductions". |
People's Financial Services
http://www.peoplestax.com
Information guide to commonly asked questions and missed deductions (search by state) |
| Transition/Post Secondary Schooling |
Going To College: A Resource For Teens With Disabilities
(804) 828-1851
TTY: (804) 828-2494
(804) 828-2193 (Fax)
http://www.going-to-college.org/index.html
*This web site is designed for college bound high school students with disabilities. |
Healthy & Ready to Work National Resource Center
5600 Fishers Lane
Rockville, MD 20857
http://www.hrtw.org
Provides a large resource database for Transitional teens/young adults. |
Virginia College Quest
George Mason University
, VA
http://www.vacollegequest.org/index.shtml
E-mail: info@vacollegequest.org
*An excellent Post-High School education resource. |
|
| Transportation Information |
Air Charity Network
National Headquarters 410 1st. Av. NW
Rochester, MN 55901
877-858-7788
http://aircharitynetwork.org/
Email:execdir@aircharitynetwork.org
*Air medical transportation services. Contact for office in your region to apply. |
Easter Seals - Vehicle Donation
http://www.vehicledonation.com
Accepts donations and applications for equipment. |
Freewheel Mobility
109 Iowa Avenue
Colorado Springs, CO 80909
(719) 635-7800
1-800-728-5313
(719) 636-2718 (Fax)
http://www.freewheelvans.com
E-mail: freewheel@freewheelvans.com
* Multiple locations in Colorado and Utah. Nationwide delivery. |
IMED Mobility (Funding Resource page)
200 East 1st Street
Tea, SD 57064
http://www.handicapvansdirect.com/fundingsource...
*This is a vendor page NOT SUPPORTED by SNRP. A partial state-by-state listing of transportation and grant programs is listed. |
Miracle Flights for Kids
2764 N. Green Valley Pkwy, #115
Green Valley, NV 89014-2120
(800) FLY-1711
(702) 261-0494
(702) 261-0497 (Fax)
http://www.miracleflights.org
|
National Mobility Equipment Dealers Association
3327 W. Bearss Ave.
Tampa, FL 33618
(800) 833-0427
(813) 264-2697
(813) 962-8970 (Fax)
http://www.nmeda.org/
Email: nmeda@aol.com
*Provides a state-by-state listing of NMEDA QAP certified dealerships. Start here when looking for mobility equipment (lifts, vehicles, steering systems, etc.) information. |
School Transportation News
P.O. Box 789
Redondo Beach, CA 90277
(310) 792-2226
http://www.stnonline.com/stn/
*See Special Needs Transportation |
The Air Care Alliance
1515 East 71st Street, Suite 312
Tulsa, OK 74136
888-260-9707
http://www.aircareall.org
Email:inquiries@aircareall.org
*Large National/International listing of agencies, groups and organizations providing air transportation for medical patients. Start here first. |
The Mobility Resource
1-866-771-7770
http://www.themobilityresource.com
*Provides nationwide dealer contact information as well as a limited number of Financial Assistance programs. |
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