| Advocacy |
Louisiana Citizens for Action Now
http://www.lacanadvocates.org
Provides a wealth of self advocacy information. Linda recommends individuals check out the "Legislative Activities" section for an outline of a sample letter to Legislators and a "How-To" testify before a legislative body. |
|
| Agencies/Assistance Programs - Government |
GovBenefits.Gov
http://www.govbenefits.gov
Provides information regarding government assistance programs nationwide. Includes a state-by-state program search. |
Michigan Department of Community Health
400 S. P.O. Box 30479
Lansing , MI 48909-7979
(517) 335-5008
http://www.michigan.gov/cshcs
|
Michigan Department of Community Health - Trust Fund for Children with Special Health Care Needs
Capitol View Building 201 Townsend Street
Lansing, MI 48933
(517) 241-7420
http://www.michigan.gov/mdch/
Children's Special Health Care Services Plan (CSHCS) Family Phone Line 1-800-359-3722 |
|
| Agencies/Assistance Programs - Private |
Cover the Uninsured ~ A Project of the Robert Wood Johnson Foundation
(202) 572-2928
http://covertheuninsured.org
E-mail: info@covertheuninsured.org
*State by state listings of various insurance programs for individuals and families who have difficulty obtaining medical insurance. |
|
| Assistive Technologies |
Michigan Disability Rights Coalition
780 West Lake Lansing Road, Suite 200
East Lansing, MI 48823
(517) 333-2477
1(800) 760-4600 (In Michigan)
(517) 333-2677 (Fax)
http://www.copower.org/AT/index.htm
|
|
| Child Care Resource Listings |
Child Care Aware
3101 Wilson Blvd. Suite 350
Arlington, VA 22201
1-800-424-2246
TTY:1-866-278-9428
(703) 341-4101 (Fax)
http://www.childcareaware.org
Child Care Aware is a cooperative program of the National Association of Child Care Resource and Referral Agencies. Funded through the Office of Family Assistance, Administration for Children and Families, U.S. Department of Health and Human Services.
**SNRP does NOT endorse this site. Listed for reference only. Use responsible caution when investigating ALL care providers. |
|
| Disability Specific Organizations |
Association for Children's Mental Health
6900 McGraw
Detroit, MI 48210
(313) 895-2860
http://www.acmh-mi.org
|
Williams Syndrome Association, Inc.
PO Box 297
Clawson, MI 48017-0297
1-800-806-1871
(248) 244-2229
1-248-244-2230 (Fax)
http://www.williams-syndrome.org/
Email:info@williams-syndrome.org |
| Early Intervention |
Bridges4Kids/Early Childhood Intervention
3520 Okemos Road, Suite 6 -150
Okemos, MI 48864
http://www.earlychildhoodmichigan.org/
Email Us: info@bridges4kids.org |
CCRESA Early On (R)
13109 Schavey Road, Suite 4
DeWitt, MI 48829
(866) 334-5437
(517) 668-0185
http://www.cenmi.org/pair/
|
Program for Infants and Toddlers with Disabilities Birth through 2
P.O. Box 30008
Lansing, MI 48909-7508
(517)335-4865
http://www.earlyonmichigan.org
|
Programs for Children with Disabilities Ages 3 through 5
P.O. Box 30008
Lansing, MI 48909
(517) 373-6325
http://www.earlyonmichigan.org
|
| Education |
Great Lakes Area Regional Resource Center (GLARRC) OSU Center for Special Needs
700 Ackerman Road, Suite 440
Columbus, OH 43202
(614) 447-0844
TTY (614) 447-8776
http://www.rrfcnetwork.org/glarrc
E-mail: daniels.121@osu.edu |
Michigan Department of Education
608 W. Allegan Street
Lansing , MI 48909
(517) 373-0923
http://www.michigan.gov/mde/
|
Michigan Office of Special Education
P.O. Box 30008
Lansing, MI 48909-7508
(517)373-0923
http://www.michigan.gov/mde/0,1607,7-140-6525_6...
|
|
| Equipment |
Michigan Disability Rights Coalition
780 West Lake Lansing Road, Suite 200
East Lansing, MI 48823
(517) 333-2477
1(800) 760-4600 (In Michigan)
(517) 333-2677 (Fax)
http://www.copower.org/AT/index.htm
|
|
| Housing Programs - Government |
DisabilityInfo.gov ~ Housing
http://www.disabilityinfo.gov
*Provides a comprehensive listing of Federal and State housing programs and up to date program information. |
Michigan State Housing Development Authority
735 E. Michigan Ave
Lansing, MI 48909
(517) 373-8370
TTY: 1-800-382-4568
(517) 335-4797 (Fax)
http://www.michigan.gov/mshda
|
Paralyzed Veterans of America
801 18th Street NW
Washington, DC 20006-3517
1-800-424-8200
http://www.pva.org
*Not just for paralyzed Veterans, not just for paralysis. Ask for their Architecture Program!
**SNRP recommends their publication "Accessible Home Design". |
|
| Housing Programs - Private |
Center For Universal Design North Carolina State University
P.O. Box 8613
Raleigh, NC 27695-8613
(800) 647-6777
V/TTY:(919) 515-3082
(919) 515-3023 (Fax)
http://www.design.ncsu.edu\cud
|
Institute for Human Centered Design (Adaptive Environments)
180-200 Portland Street, Suite 1
Boston, MA 02114
(617) 695-1225
(617) 482-8099 (Fax)
http://www.adaptenv.org
E-mail: info@HumanCenteredDesign.org |
| Independent Living Organizations |
Ann Arbor Center for Independent Living
2568 Packard Road
Ann Arbor, MI 48104
(734) 971-0277
TTY: (313) 971-0310
(313) 971-0826 (Fax)
http://www.aacil.org
*See Home page for nearest satellite office |
Blue Water Center for Independent Living
310 Water Street
Port Huron, MI 48060
(810) 987-9337
(810) 987-9548 (Fax)
http://www.bwcil.org
*See Home page for satellite offices. |
Michigan Statewide Independent Living Council
417 N. Seymour, Suite 10
Lansing, MI 48933
(800) 808-7452
(517) 371-4872
(517) 371-4875 (Fax)
http://www.misilc.org
|
|
| Indian Health Services |
Bemidji Area Indian Health Service
522 Minnesota Ave. NW, Romm 119
Bemidji, MN 56601
(218) 444-0458
(218) 444-0461 (Fax)
http://www.ihs.gov/FacilitiesServices/AreaOffic...
|
|
| Information |
Bridges 4 Kids
3520 Okemos Road, Suite 6 -150
Okemos, MI 48864
http://www.bridges4kids.org
E-mail: info@bridges4kids.org
*A nationwide data base providing parents, educators, and others the information they need to help children who might be at-risk or have special needs. Includes information on child development, education issues and opportunities, and extensive disability, gifted, at-risk, parenting, and teaching resources. |
Disability Information.Gov
http://www.disabilityinfo.gov
*Large Federal database providing easy access to comprehensive information about disability programs, services, laws and benefits. To find disability resources in your state just click on the Find State and Local Resources map located in each of the subject areas listed in their menu. |
Girls Health.gov
8270 Willow Oaks Corporate Drive, Suite 301
Fairfax, VA 22031
http://4girls.gov
*See "Illness and Disability" tab. Excellent information resource. |
MedicareSolutions
http://www.medicaresolutions.com/disability-res...
*A comprehensive page on disabilities providing informative links in several areas of interest including Disability Rights, support groups, government resources and organizations and others. |
National Organization on Disability
910 Sixteenth Street, N.W., Suite 600
Washington, DC 20006
(202) 293-5960
TTY: (202) 293-5968
(202) 293-7999 (Fax)
http://www.nod.org
E-mail: ability@nod.org |
United Spinal Association
75-20 Astoria Boulevard
Jackson Heights, NY 11370
800-404-2898
(718) 803-3782
(718) 803-0414 (Fax)
http://www.unitedspinal.org/disability-publicat...
*Linda's favorite down-loadable informational resource. Linda recommends the following booklets: Disability Etiquette (PDF), Taking Action (PDF), Adaptive Automotive Equipment (PDF), The Americans with Disabilities Act (PDF),The Fair Housing Amendments Acts (PDF) and Accessing Local Government (PDF). Please see the menu page for other publications you may be interested in. |
| Legal Advocacy/Information |
Education Law Center PLLC
(810) 227-9850
(810) 227-7996
http://www.michedlawcenter.com
email: information@michedlawcenter.com |
Michigan Indian Legal Services
814 A S. Garfield Ave.
Traverse City, MI 49686-3430
(877) 968-6877
(231)947-3956 (Fax)
http://www.mils.org
|
Michigan Legal Aid
http://www.michiganlegalaid.org
*Click on "list all organizations" to find offices in your area. |
National Help Law Program (NHeLP) Washington, D.C. Office
1101 14th Street, NW Suite 405
Washington, DC 20005
(202) 289-7661
(202) 289-7724 (Fax)
http://www.healthlaw.org
Email: nhelpdc@healthlaw.org
* NHeLP serves legal services programs, community-based organizations, the private bar, providers and individuals who work to preserve a health care safety net for the millions of uninsured or underinsured low-income people. |
Wright's Law
http://www.wrightslaw.com
|
|
| Medical Centers/Hospitals/Clinics |
Bronson Methodist Children's Health
601 John Street
Kalamazoo, MI 49007
(269) 341-7654
http://www.bronsonhealth.com/overview.asp?menu=C
|
Children's Hosptial of Michigan
3901 Beaubien
Detroit, MI 48201
(313) 745-5437
http://www.chmkids.org/chm/
|
DeVos Children's Hospital
100 Michigan Street NE
Grand Rapids, MI 49503
(616) 391-9000
http://www.devoschildren's.org
|
UM C.S. Mott Children's Hospital
1500 East. Medical Center Drive
Ann Arbor, MI 48109-0253
(734) 936-4000
http://www.med.umich.edu/mott/
|
| Other |
Disability Studies, Temple University Blog
http://disstud.blogspot.com
*Based at Temple University but with nationwide contributors. Has a LARGE list of disability related blogs. |
|
| Parent Support Programs |
Bridges 4 Kids
3520 Okemos Road, Ste. 6 -150
Okemos, MI 48864
1-877-435-7454
http://www.bridges4kids.org
Email:info@bridges4kids.org |
Citizens Alliance to Uphold Special Education (CAUSE)
6412 Centurion Drive, Suite 130
Lansing, MI 48971
(517)866-9167
http://www.causeonline.org
|
Detroit Parent Network
7375 Woodward, Suite 1100
Detroit, MI 48202
(313) 832-0617
http://www.bridges4kids.org/dpn/index.htm
E-mail: emailus@detroitparentnetwork.org |
Ohio Coalition for the Education of Children with Disabilities (OCECD)
165 West Center Street, Suite 302
Marion , OH 43302-3741
(800) 374-2806
(740) 382-5452
(740) 383-6421 (Fax)
http://www.ocecd.org
email: oced@gte.net
*Check for information in your state. |
Parent to Parent Family Support Network of Michigan
3056 West Grand Blvd., Suite 3350 Cadillac Place
Detroit, MI 48202
(800) 359-3722 (Toll Free Family
(313) 456-4381
http://www.michigan.gov
|
Parent to Parent of South West Michigan
406 E. Michigan
Kalamazoo, MI 49007
(269) 345-8950
http://www.p2pswmi.org
|
| Patient Assistance Programs |
American Dental Association ~ Give Kids A Smile Program
http://www.givekidsasmile.ada.org/findGKAS.asp
*This is a yearly clinic in most communities. Click on the Clinic locator to find a clinic in your area. |
Cover the Uninsured
http://covertheuninsured.org
Email: info@covertheuninsured.org
* Provides a State by State guide to finding healthcare insurance coverage in your state. |
Merck Patient Assistance Programs
P.O. Box 100
Whitehouse Station, NJ 08889-0100
908-423-1000
http://www.merck.com/responsibility/pap-informa...
Merck offers a family of programs providing free and discounted medicines to patients who cannot afford their prescribed medicines. |
NeedyMeds
P.O. Box 219
Gloucester, MA 01931
http://www.needymeds.org
NeedyMeds is a 501(c)(3) national non profit, has information on programs that help people who can't afford their medications and health care costs. Provides data regarding approximately 2400 programs and nearly 11,000 free/low-cost/sliding-scale clinics. |
Partnership for Prescription Assistance
1-888-477-2669
http://www.pparx.org
The Partnership for Prescription Assistance offers a single point of access to more than 475 public and private patient assistance programs, including more than 180 programs offered by pharmaceutical companies. More than 2,500 brand-name and generic medicines are covered. |
Partnership for Prescription Assistance Kids
1-877-369-1477
http://kids.pparx.org
The Partnership for Prescription Assistance offers a single point of access to more than 475 public and private patient assistance programs, including more than 180 programs offered by pharmaceutical companies. More than 2,500 brand-name and generic medicines are covered. |
Pfizer Helpful Answers
1-866-706-2400
http://www.pfizerhelpfulanswers.com
Pfizer Helpful Answers is a family of assistance programs for uninsured and underinsured patients who need help getting their Pfizer medicines.
These programs provide:
•Pfizer medicines for free or at a savings to patients who qualify
•Some programs also offer reimbursement support services
Call for more information. |
RxAssist
111 Brewster Street
Pawtucket, RI 02860
401-729-3284
401-729-2955 (Fax)
http://www.rxassist.org
Email: info@rxassist.org
Patient Assistance Program Center ~ Offers a comprehensive database of programs and information. |
| Recreation |
Ability Station
278 South 880 West
Spanish Fork, UT 84660
800-520-1222
http://www.abilitystation.com
Ability Station offers toys for special needs children needing sensory, fine motor and gross motor,and cognitive development. Toys are reviewed by an Occupational, Physical or Speech Therapist. |
Adaptive Adventures ~ Chicago
2616 Wilmette Avenue
Wilmette, IL 60091
(847) 251-8445
(866) 679-2770
http://www.adaptiveadventures.org
E-mail: info@adaptiveadventures.org
|
Bay Cliff Health Camp
P.O. Box 310
Big Bay, MI 49808
(906) 345-9314
http://www.baycliff.org
|
National Center on Physical Activity and Disability
1640 W. Roosevelt Road
Chicago, IL 60608-6904
1-800-900-8086
1-312-355-4058 (Fax)
http://www.ncpad.org/
Email: ncpad@uic.edu.
*Maintains a State-by-state listing of camps and recreational facilities. |
National Parks Pass
http://www.nps.gov/fees_passes.htm
*Updated information regarding free access passes to National Parks for U.S. citizens or permanent residents with permanent disabilities. |
|
| Service Dogs/Canine Programs |
Canine Companions for Independence (CCI)/National Center
P.O. Box
Oceanside, CA 92052
(800) 572-2275
(760) 901-4300
(760) 901-4551 (Fax)
http://www.caninecompanions.org
*Contact for regional training centers and Veteran's Programs. |
Compassionate Paws, Inc.
W7064 Bighorn Lane
Wautoma, WI 54982
(920)787-1467
(920) 987-9098
http://www.compassionatepaws.com
*Specializes in working with families and individuals affected with Autism and Autism Spectrum Disorders. Will train anyone in the US but does focus primarily on states in the Mid-West. |
International Association of Assistance Dog Partners
38691 Filly Drive
Sterling Heights, MI 48310
http://www.iaadp.org/
|
Paws With a Cause
4646 South Division
Wayland, MI 49348
(800) 253-7297
http://www.pawswithacause.org/
|
| Transition/Post Secondary Schooling |
Virginia College Quest
George Mason University
, VA
http://www.vacollegequest.org/index.shtml
E-mail: info@vacollegequest.org
*An excellent Post-High School education resource. |
|
| Transportation Information |
National Mobility Equipment Dealers Association
3327 W. Bearss Ave.
Tampa, FL 33618
(800) 833-0427
(813) 264-2697
(813) 962-8970 (Fax)
http://www.nmeda.org/
Email: nmeda@aol.com
*Provides a state-by-state listing of NMEDA QAP certified dealerships. Start here when looking for mobility equipment (lifts, vehicles, steering systems, etc.) information. |
School Transportation News
P.O. Box 789
Redondo Beach, CA 90277
(310) 792-2226
http://www.stnonline.com/stn/
*See Special Needs Transportation |
| Tribal Contacts |
Native American Family Empowerment Great Lakes-Inter-Tribal Council, Inc.
2932 Highway 47 North, P.O. Box 9
Lac du Falmbeau, WI 54538
Toll Free: (800) 472-7207
(715) 588-3324 (Fax)
http://www.glitc.org/
email:glitc@glitc.org
*Serves Native Americans in Wisconsin, Michigan and Minnesota. |
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