| Military Quick Links (National Guard, Reserve, Active Duty) |
Children and Youth with Special Health Care Needs
1000 SW Jackson, Suite 220
Topeka, KS 66612-1274
(785) 296-1313
http://www.kdheks.gov/cyshcn/index.html
|
Easter Seals National Headquarters
230 W. Monroe St., Suite 1800
Chicago, IL 60606
(800) 221-6827
TTY 312-726-4258
(312) 726-1494 (Fax)
http://www.easterseals.com
*Contact for the chapter closest to you. Ask your local chapter for camps, grants, respite services and other services available in your area. |
Exceptional Family Member Program/All Branches/Mobile
http://apps.mhf.dod.mil/pls/psgprod/f?p=EFMPMOB...
Contains contact information, Base program locators and enrollment/justification forms for ALL Branches of service. |
Social Security Administration Information for Parents
National Info. 1-800-772-1213
http://www.ssa.gov/pgm/links_ssi.htm
*Benefits information and local office addresses with contact information available by state and city. |
The Medicaid Reference Desk (The ARC)
1825 K Street NW, Suite 1200
Washington, DC 20006
800-433-5255
http://www.thedesk.info
E-mail: contact@thedesk.info The site offers state by state information on Medicaid programs and waivers, and includes a list of what types of services fall under each program/waivers jurisdiction. The website offers information on common questions and concerns regarding Medicaid. It includes a Medicaid terms and definitions section, defining words commonly used on Medicaid forms and correspondence as well as other useful information. |
The National Resource Directory
http://www.nationalresourcedirectory.gov
The National Resource Directory (NRD) provides access to services and resources at the national, state and local levels that support recovery, rehabilitation and community reintegration. |
The Special Needs Alliance
http://specialneedsalliance.com
*Provides a national list of lawyers specializing in special needs trusts and other resources by state. Check here for help with Guardianship, incapacitation, trusts and other pertinent topics. |
United Cerebral Palsy (UCP)
1660 L Street, NW, Suite 700
Washington, DC 20036
(800) 872-5827
TTY (202) 973-7197
(202) 776-0414 (Fax)
http://www.ucp.org
*Contact for your local chapter. Excellent state-by-state resource guide. |
United Way
701 N. Fairfax St.
Alexandria, VA 22314
http://national.unitedway.org
*Non-profit charitable organization offering a variety of services including camps, respite, grants, etc. Find your local chapter here. |
|
| Advocacy |
ADAPT
201 S. Cherokee
Denver, CO 80223
303-733-9324
http://www.adapt.org
E-mail: adapt@adapt.org
*See Contact List for a chapter in your state.
|
Broadreach Training & Resources
http://www.normemma.com/index.htm
E-mail: webmail01@broadreachtraining.com
*See the large Resource Library for advocacy resources and general reading information. |
Louisiana Citizens for Action Now
http://www.lacanadvocates.org
Provides a wealth of self advocacy information. Linda recommends individuals check out the "Legislative Activities" section for an outline of a sample letter to Legislators and a "How-To" testify before a legislative body. |
Patient Advocate Foundation
421 Butler Farm Road
Hampton, VA 23666
(800) 532-5274
(757) 873-8999 (Fax)
http://patientadvocate.org
E-Mail: help@patientadvocate.org
*Provides patients with arbitration, mediation and negotiation to settle issues with access to care, medical debt, and job retention related to their illness. |
| Agencies/Assistance Programs - Government |
Children and Youth with Special Health Care Needs
1000 SW Jackson, Suite 220
Topeka, KS 66612-1274
(785) 296-1313
http://www.kdheks.gov/cyshcn/index.html
|
GovBenefits.Gov
http://www.Benefits.gov
Provides information regarding government assistance programs nationwide. Includes a state-by-state program search. |
Kansas Children's Developmental Services
1000 SW Jackson, Suite 220
Topeka, KS 66612-1274
(785) 291-3368
http://www.kdheks.gov/cds/index.html
|
Kansas Department of Health and Environment
Curtis State Office Building 1000 SW Jackson
Topeka, KS 66612-1290
785-296-1500
http://www.kdhe.state.ks.us/
|
Kansas Department of Social and Rehabilitation Services
915 SW Harrison St.
Topeka , KS 66612
(785) 296-3561
http://www.srskansas.org/hcp/cssindex.htm
|
Medical Assistance - Children
http://www.srskansas.org/services/HCP-children.htm
* Service locations listed by county. |
The Medicaid Reference Desk (The ARC)
1825 K Street NW, Suite 1200
Washington, DC 20006
800-433-5255
http://www.thedesk.info
E-mail: contact@thedesk.info
The site offers state by state information on Medicaid programs and waivers, and includes a list of what types of services fall under each program/waivers jurisdiction.
The website offers information on common questions and concerns regarding Medicaid. It includes a Medicaid terms and definitions section, defining words commonly used on Medicaid forms and correspondence as well as other useful information.
|
|
| Agencies/Assistance Programs - Private |
Cover the Uninsured ~ A Project of the Robert Wood Johnson Foundation
(202) 572-2928
http://covertheuninsured.org
E-mail: info@covertheuninsured.org
*State by state listings of various insurance programs for individuals and families who have difficulty obtaining medical insurance. |
Kansas Housing Resources Corporation
611 S. Kansas Avenue, Suite 300
Topeka, KS 66603-3803
(785) 296-5865
http://www.kshousingcorp.org
Email: info@kshousingcorp.org
*See bottom of the home page for a link to the current Housing Resources Directory for available programs. |
National School Foundation Association
2130 Grand Ave.
Des Moines, IA 50312
(515) 971-2324
(515) 965-5481 (Fax)
http://www.schoolfoundations.org
* Provides a Listing of Foundations by State (click on menu in left-hand menu). Excellent resource for those needing foundation information in each state. |
|
| Assistive Technologies |
AbleData
8630 Fenton Street, Suite 930
Silver Spring, MD 20910
1-800-227-0216
301-608-8998
301-608-8958 (Fax)
http://www.abledata.com
E-mail: abledata@macrointernational.com
*AbleData provides objective information about assistive technology products and rehabilitation equipment nationwide. Does have a state by state directory. |
Assistive Technology for Kansans Northeast Kansas Access Site
2001 Haskell Avenue
Lawrence, KS 66406
(785) 841-1067
TDD: (785) 841-1046
http://www.independenceinc.org/at.html
|
Assistive Technology Services
1710 W. Schilling Road
Salina, KS 67401
(758) 827-9383
TTY: (758) 827-7051
(758) 823-2015 (Fax)
http://www.occk.com/atsweb/site/home.htm
|
Kansas Assistive Technologies Cooperative
625 Merchant, Suite 205
Emporia, KS 66801
(866) 465-2826
V/TT: (620) 341-9002
(620) 342-6400 (Fax)
http://www.katco.net/
|
RESNA~Rehabilitation Engineering and Assistive Technology Society of North America
1700 N. Moore Street, Suite 1540
Arlington, VA 22209
(703)-524-6686
http://www.resna.org
RESNA maintains a large data base of assistive technology resources, funding sources and other programs. |
Section 508.gov (IT Accessibility & Workforce Division (ITAW))
Office of Governmentwide Policy 1800 F Street NW, Room G211
Washington, DC 20405
(Help) 202-208-7420
202-501-2010 (TTY)
202-501-6269 (Fax)
http://www.section508.gov/index.cfm
GSA’s IT Accessibility and Workforce (ITAW) provides assistive technology solutions to eliminate barriers for people with disabilities.ITAW is the governments principal advocate and coordinator for Section 508 implementation that requires agencies to make information technology accessible for people with disabilities.
|
| Charities and Foundations |
Christopher & Dana Reeve Foundation
636 Morris Turnpike, Suite 3A
Short Hills, NJ 07078
1-800-225-0292
http://www.christopherreeve.org
*Spinal Cord injuries and paralysis. Specific military treatment program available. |
The Lindsay Foundation
P.O. Box 1073
Huffman, TX 77336
281-399-2937
http://www.lindsayfoundation.org
E-mail: helpforachild@lindsayfoundation.org
We assist families who have children with long-term catastropic special-needs to obtain medical necessities for their children. We assist with physical, speech, aquatic and equestrian therapies. As well, we provide medical equipment and supplies when the insurance company Denies or when there is no medical insurance. |
| Child Care Resource Listings |
Child Care Aware
3101 Wilson Blvd. Suite 350
Arlington, VA 22201
1-800-424-2246
TTY:1-866-278-9428
(703) 341-4101 (Fax)
http://www.childcareaware.org
Child Care Aware is a cooperative program of the National Association of Child Care Resource and Referral Agencies. Funded through the Office of Family Assistance, Administration for Children and Families, U.S. Department of Health and Human Services.
**SNRP does NOT endorse this site. Listed for reference only. Use responsible caution when investigating ALL care providers. |
National Association of Child Care Resource and Referral Agencies
http://www.naccrra.net
*Find Child Care CCR&R centers by State.
|
National Respite Locator Service
800 Easttowne Drive, Suite 105
Chapel Hill, NC 27514
(800) 473-1727 ext. 222
http://www.respitelocator.org/index.htm
List of Respite provider links nationwide. Focuses on respite care for families of special needs children. |
ZiggyBug
92 Corporate Park, Suite C-262
Irvine, CA 92606
http://www.ziggybug.com
*"World's largest child care directory". SNRP does NOT endorse this site. Listed for reference only. Use responsible caution when investigating ALL care providers. |
| Disability Specific Organizations |
(Autism) Temple Grandin PhD.
http://www.templegrandin.com/templehome.html
*Great informational resource. |
Administration on Developmental Disabilities
370 L'Enfant Promenade, S.W
Washington, DC 20447
http://www.acf.hhs.gov/programs/add/
ADD programs are at work in every state and U.S. territory. ADD does not provide direct consumer support or financial assistance. ADD provides funding, monitoring, and policy guidance to it's programs Nationwide. Check the State Program Listing for program information in your state. |
Amputee Coalition
900 East Hill Avenue, Suite 205
Knoxville, TN 37915-2566
888-267-5669
TTY:865-525-4512
http://www.amputee-coalition.org
|
Autism Speaks
5455 Wilshire Boulevard, Suite 2250
Los Angeles, CA 90036
(323) 549-0500
(323) 549-0547 (Fax)
http://www.autismspeaks.org
E-Mail: contactus@autismspeaks.org
*For an Autism Speaks office in your area visit our Community Pages. |
Center for Autism and Related Disabilities, University of Florida, Gainesville
2124 NE Waldo Road, Suite 3200
Gainesville, FL 32609
1 (800) 928-8476
(352) 273-0581
(352) 846-3703 (Fax)
http://card.ufl.edu
Email: card-info@ufl.edu
*The Center for Autism and Related Disabilities (CARD) provides support and assistance with the goal of optimizing the potential of people with autism and related disabilities. |
Cerebral Palsy Family Network
http://www.cpfamilynetwork.org
|
Epilepsy Foundation of America
8301 Professional Place
Landover, MD 20785
(800) 332-1000
http://www.epilepsyfoundation.org/
|
Five P Minus Society (Cru-du-chat)
1-888-970-0777
http://www.fivepminus.org
*To encourage and facilitate communication among families having a child with 5p- Syndrome and to spread awareness and education of the syndrome to these families and their service providers.Call for referral to the Family Support Coordinator covering your area. |
International Dyslexia Association
40 York Rd., 4th Floor
Baltimore, MD 21204-5202
(800) 222-3123
(410) 296-0232
http://www.interdys.org/
Email: info@interdys.org |
Learning Disabilities Association of America
4156 Library Road
Pittsburgh, PA 15234
(412) 341-1515
(412) 344-0224 (Fax)
http://www.ldanatl.org
* See menu for chapter listings by state. |
Muscular Dystrophy Association-USA
3300 E. Sunrise Drive
Tucson, AZ 85718
1-800-572-1717
http://www.mda.org
* Click on Find Your Local MDA Office to locate an office and clinic near you. |
National Consortium On Deaf-Blindness
345 N. Monmouth Ave.
Monmouth, OR 97361
800-438-9376
800-854-7013(TTY)
503-838-8150 (Fax)
http://www.nationaldb.org
E-mail: info@nationaldb.org |
National Family Association For Deaf-Blind
141 Middle Neck Road
Sands Point, NY 11050
800-255-0411
516-883-9060 (Fax)
http://www.nfadb.org/home.html
email: NFADB@aol.com
*National State-by-State listing |
United Cerebral Palsy (UCP)
1660 L Street, NW, Suite 700
Washington, DC 20036
(800) 872-5827
TTY (202) 973-7197
(202) 776-0414 (Fax)
http://www.ucp.org
*Excellent state-by-state resource guide. E-mail your local chapter for more information. |
Williams Syndrome Family of Hope, Inc.
P.O. Box 2144
Tifton, GA 31793
727-557-7177
http://www.wsfamilyofhope.org
E-mail: info@wsfamilyofhope.org
*The Hope Family Assistance Project provides financial assistance in getting necessary medical treatment/testing, recreational and education therapies, support resources and travel assistance for individuals with Williams syndrome.
|
|
| Early Intervention |
Programs for Infants and Toddlers:Ages Birth through 2
1000 SW Jackson St., Suite 220
Topeka, KS 66612-6262
(800) 332-6262
http://www.kdhe.state.ks.us
|
|
| Education |
Kansas Department of Education - Student Support Services
120 E. 10th St.
Topeka, KS 66612-1182
(785) 296-7454
http://www.kansped.org/
|
Mountain Plains Regional Resource Center (Utah State University)
1780 N. Research Parkway, Suite 112
Logan, UT 84341
(435) 752-0238
http://www.rrfcnetwork.org/mprrc
The MPRRC serves Arizona, the Bureau of Indian Affairs, Colorado, Kansas, Montana, Nebraska, New Mexico, North Dakota, South Dakota, Utah and Wyoming. Click on your state from this home page for events and information in your area. |
Special Education Advisor
9909 Topanga Canyon Blvd. #169
Chatsworth, CA 91311
(818) 993-3011
http://www.specialeducationadvisor.com
* An online Special Education & IEP Advisor covering a wide base of special education and IEP/504 topics.
|
Speech Therapy Ideas and Speech Therapy Activities
http://www.speechtherapyideas.com
*Provides speech therapy ideas and activities developed by a licensed Speech Language Pathologist for parents and professionals. |
We Connect Now
McIlhenny Drive
Baton Rouge, LA 70809
http://weconnectnow.wordpress.com
E-mail: weconnectnow2008@gmail.com
*We Connect Now is dedicated to uniting people on issues which affect people with disabilities, with emphasis on college students higher education & employment. |
|
| Employment |
We Connect Now
McIlhenny Drive
Baton Rouge, LA 70809
http://weconnectnow.wordpress.com
E-mail: weconnectnow2008@gmail.com
*We Connect Now is dedicated to uniting people on issues which affect people with disabilities, with emphasis on college students higher education & employment. |
|
| Equipment |
UsersFirst ~ Mobility Map | A Program of United Spinal Association
75-20 Astoria Blvd
Jackson Heights, NY 11370
718-803-3782
http://www.usersfirst.org
E-mail: usersfirst@unitedspinal.org
*The Mobility Map provides people with disabilities guidance in getting wheelchairs and other mobility equipment that meets their unique needs. It offers tips on identifying your “wheelchair team” such as physicians and medical equipment suppliers, how to obtain a wheelchair evaluation, and where to find funding. |
Wheelchair
http://www.newdisability.com
* A european website with many useful wheelchair related articles and interesting video. Click on "Articles" in the left hand menu. |
| Housing Programs - Government |
DisabilityInfo.gov ~ Housing
http://www.disabilityinfo.gov
*Provides a comprehensive listing of Federal and State housing programs and up to date program information. |
Kansas Housing Resources Corporation
611 S. Kansas Avenue, Suite 300
Topeka, KS 66603
(785) 296-5865
http://www.kshousingcorp.org
E-mail: info@kshousingcorp.org
|
Paralyzed Veterans of America
801 18th Street NW
Washington, DC 20006-3517
1-800-424-8200
http://www.pva.org
*Not just for paralyzed Veterans, not just for paralysis. Ask for their Architecture Program!
**SNRP recommends their publication "Accessible Home Design". |
SocialServe.com
P.O. Box 35305
Charlotte, NC 28235
1-877-428-8844
(704) 334-8722
(704) 334-0779 (Fax)
http://www.socialserve.com/index.html
email: info@socialserve.com
Provides private and Government housing location assistance. |
| Housing Programs - Private |
ABILITY Awareness
1440 E. 1st St., Suite 107
Santa Anna, CA 92710
(714) 277-4330
(949) 943-4496 (military/ Los Al
(714) 277-3743 (Fax)
http://www.abilityawareness.org/index.htm
Email: Info@ABILITYawareness.org
*Builds accessible low income homes.
**Provides outpatient reahbilitiation housing for wounded military members and their families.
To contact ABILITY House at Los Al, please Email LosAl@ABILITYawareness.org |
Center For Universal Design North Carolina State University
P.O. Box 8613
Raleigh, NC 27695-8613
(800) 647-6777
V/TTY:(919) 515-3082
(919) 515-3023 (Fax)
http://www.design.ncsu.edu\cud
|
Institute for Human Centered Design (Adaptive Environments)
180-200 Portland Street, Suite 1
Boston, MA 02114
(617) 695-1225
(617) 482-8099 (Fax)
http://www.adaptenv.org
E-mail: info@HumanCenteredDesign.org |
Rebuilding Together/National Headquarters
1536 16th Street, N.W.
Washington, DC 20036
1-800-473-4229
http://www.rebuildingtogether.org
*Currently has 225 affiliates, nationwide. Click on "Affiliates" for the Affiliate office nearest you. |
| Independent Living Organizations |
The Whole Person, Inc.
7301 Mission Rd.
Prarie Village, KS 66208
(877) 767-8896
TTY: (913) 262-1294
(913) 262-2392 (Fax)
http://www.thewholeperson.org
email: Info@thewholeperson.org |
The Whole Person, Inc.
114 W. Gregory Blvd
Kansas City, MO 61114
(800) 878-3037
(816) 561-0304
(816) 753-8163 (Fax)
http://www.thewholeperson.org
email: Info@thewholeperson.org |
| Indian Health Services |
Oklahoma City Area Indian Health Services
Five Corporate Plaza 3625 NW 56th Street
Oklahoma City, OK 73112
(405)951-3768
(405) 951-3780 (Fax)
http://www.ihs.gov/FacilitiesServices/AreaOffic...
|
|
| Information |
ADA Information and Technical Assistance
U.S. Department of Justice,950 Pennsylvania Avenue, NW,Disability Rights Section - NYA
Washington, DC 20530
800-514-0301
800-514-0383 (TTY)
http://www.ada.gov
*For information and assistance call the information line listed above. |
Beach Center on Disability/University of Kansas
1200 Sunnyside Ave. Room 3136 Haworth Hall
Lawrence , KS 66045-7534
(785) 864-7600
TTY (785) 864-3434
(785) 864-7605 (Fax)
http://www.beachcenter.org
email:beachcenter@ku.edu |
Cover The Uninsured (Robert Wood Johnson Foundation)
1 (800) 234-1317
http://covertheuninsured.org
*This site is dedicated to providing information regarding Medicaid, state insurance programs, High-Risk Pools and other programs provided in every state. |
Disability Information.Gov
http://www.disabilityinfo.gov
*Large Federal database providing easy access to comprehensive information about disability programs, services, laws and benefits. To find disability resources in your state just click on the Find State and Local Resources map located in each of the subject areas listed in their menu. |
DisAbility.gov
http://www.disability.gov
|
Drugwatch.com
800-452-0949
http://www.drugwatch.com
Email: webmaster@drugwatch.com
Drugwatch.com provides information on a wide range of prescription and over-the-counter medications, including details on side effects, uses, and interactions, as well as the latest drug news and FDA alerts.
|
Enabled Kids
(416) 250-1904
http://enabledkids.ca
E-mail: natan@enabledkids.ca
*"Enabling children to function independently" |
Foundation for Health Coverage Education® (FHCE)
800-234-1317
http://www.coverageforall.org
Email: fhceinfo@coverageforall.org
* Assists individuals and families find health care coverage in their area. |
Girls Health.gov
8270 Willow Oaks Corporate Drive, Suite 301
Fairfax, VA 22031
http://4girls.gov
*See "Illness and Disability" tab. Excellent information resource. |
Health Care dot Gov
http://www.healthcare.gov/index.html
*Provides current and up to date information regarding health care legislation and a state-by-state guide to insurance programs available in every state. |
Information Network of Kansas
632 SW Van Buren, Suite 100
Topeka, KS 66603-3434
(785) 296-4277
http://accesskansas.org
|
MedicareSolutions
http://www.medicaresolutions.com/disability-res...
*A comprehensive page on disabilities providing informative links in several areas of interest including Disability Rights, support groups, government resources and organizations and others. |
National Organization on Disability
910 Sixteenth Street, N.W., Suite 600
Washington, DC 20006
(202) 293-5960
TTY: (202) 293-5968
(202) 293-7999 (Fax)
http://www.nod.org
E-mail: ability@nod.org |
United Spinal Association
75-20 Astoria Boulevard
Jackson Heights, NY 11370
800-404-2898
(718) 803-3782
(718) 803-0414 (Fax)
http://www.unitedspinal.org/disability-publicat...
*Linda's favorite down-loadable informational resource. Linda recommends the following booklets: Disability Etiquette (PDF), Taking Action (PDF), Adaptive Automotive Equipment (PDF), The Americans with Disabilities Act (PDF),The Fair Housing Amendments Acts (PDF) and Accessing Local Government (PDF). Please see the menu page for other publications you may be interested in. |
| Insurance Assistance Programs |
Cover the Uninsured
http://covertheuninsured.org
Email: info@covertheuninsured.org
* Provides a State by State guide to finding healthcare insurance coverage in your state. |
Healthcare Dot Gov
200 Independence Avenue, S.W.
Washington, DC 20201
http://www.healthcare.gov
*Provides a wide variety of current health care information. State-by-State listings will help consumers compare programs and services in their communities. |
Insure Kids Now dot gov
1-877-543-7669
http://www.insurekidsnow.gov
E-mail: CMSOCHIPRAQuestions@cms.hhs.gov
*InsureKidsNow.gov provides information about Medicaid and CHIP services for families who need health insurance coverage. These programs are designed to be affordable for families who are not able to afford health insurance coverage in the private market or do not have coverage available to them. Even if you’ve been turned down in the past, you may be able to get health coverage for your child now. Learn more about health coverage programs in your state.
How to Contact Us
If you have specific questions about health insurance for your children, please contact the programs in your state or make a free call to 1-877-543-7669, our free and confidential hotline, where you’ll be connected directly to someone from your state who will help you apply.
|
Patient Advocate Foundation
421 Butler Farm Road
Hampton, VA 23666
(800) 532-5274
(757) 873-8999 (Fax)
http://patientadvocate.org
*Provides effective mediation and arbitration services to patients to remove obstacles to healthcare including medical debt crisis, insurance access issues and employment issues for patients with chronic, debilitating and life-threatening illnesses.
|
| Legal Advocacy/Information |
Kansas Legal Services
712 South Kansas Ave. Suite 200
Topeka, KS 66603-3808
(800) 723-6953
http://www.kansaslegalservices.org
|
National Help Law Program (NHeLP) Washington, D.C. Office
1101 14th Street, NW Suite 405
Washington, DC 20005
(202) 289-7661
(202) 289-7724 (Fax)
http://www.healthlaw.org
Email: nhelpdc@healthlaw.org
* NHeLP serves legal services programs, community-based organizations, the private bar, providers and individuals who work to preserve a health care safety net for the millions of uninsured or underinsured low-income people. |
The Special Needs Alliance
http://specialneedsalliance.com
*Provides a national list of lawyers specializing in special needs trusts and other resources by state. |
Wright's Law
http://www.wrightslaw.com
|
| Medical Centers/Hospitals/Clinics |
Children's Mercy Hospitals and Clinics
2401 Gillham Road
Kansas City, MO 64108
(816) 234-3000
http://www.childrens-mercy.org
|
Medical Home Portal - Home
(800) 829-8200
(801) 584-8584
http://www.medicalhomeportal.org
*Choose services listed by state. Reliable information and resources to help physicians and parents care for children and youth with special health care needs (CYSHCN). |
| Medical Information/Research Organizations |
Speech Therapy Ideas and Speech Therapy Activities
http://www.speechtherapyideas.com
*Provides speech therapy ideas and activities developed by a licensed Speech Language Pathologist for parents and professionals. |
|
| Military Quick Links (National Guard, Reserve, Active Duty) |
Children and Youth with Special Health Care Needs
1000 SW Jackson, Suite 220
Topeka, KS 66612-1274
(785) 296-1313
http://www.kdheks.gov/cyshcn/index.html
|
Easter Seals National Headquarters
230 W. Monroe St., Suite 1800
Chicago, IL 60606
(800) 221-6827
TTY 312-726-4258
(312) 726-1494 (Fax)
http://www.easterseals.com
*Contact for the chapter closest to you. Ask your local chapter for camps, grants, respite services and other services available in your area. |
Exceptional Family Member Program/All Branches/Mobile
http://apps.mhf.dod.mil/pls/psgprod/f?p=EFMPMOB...
Contains contact information, Base program locators and enrollment/justification forms for ALL Branches of service. |
Social Security Administration Information for Parents
National Info. 1-800-772-1213
http://www.ssa.gov/pgm/links_ssi.htm
*Benefits information and local office addresses with contact information available by state and city. |
The Medicaid Reference Desk (The ARC)
1825 K Street NW, Suite 1200
Washington, DC 20006
800-433-5255
http://www.thedesk.info
E-mail: contact@thedesk.info The site offers state by state information on Medicaid programs and waivers, and includes a list of what types of services fall under each program/waivers jurisdiction. The website offers information on common questions and concerns regarding Medicaid. It includes a Medicaid terms and definitions section, defining words commonly used on Medicaid forms and correspondence as well as other useful information. |
The National Resource Directory
http://www.nationalresourcedirectory.gov
The National Resource Directory (NRD) provides access to services and resources at the national, state and local levels that support recovery, rehabilitation and community reintegration. |
The Special Needs Alliance
http://specialneedsalliance.com
*Provides a national list of lawyers specializing in special needs trusts and other resources by state. Check here for help with Guardianship, incapacitation, trusts and other pertinent topics. |
United Cerebral Palsy (UCP)
1660 L Street, NW, Suite 700
Washington, DC 20036
(800) 872-5827
TTY (202) 973-7197
(202) 776-0414 (Fax)
http://www.ucp.org
*Contact for your local chapter. Excellent state-by-state resource guide. |
United Way
701 N. Fairfax St.
Alexandria, VA 22314
http://national.unitedway.org
*Non-profit charitable organization offering a variety of services including camps, respite, grants, etc. Find your local chapter here. |
|
| Other |
Disability Studies, Temple University Blog
http://disstud.blogspot.com
*Based at Temple University but with nationwide contributors. Has a LARGE list of disability related blogs. |
|
| Parent Support Programs |
Compassion Fatigue Awareness Project
http://compassionfatigue.org
The Compassion Fatigue Awareness Project© is dedicated to educating caregivers about authentic, sustainable self-care and aiding organizations in their goal of providing healthy, compassionate care to those whom they serve.
E-mail: patricia@compassionfatigue.org |
Families Together, Inc.
3033 W. Second, Suite 106
Wichita, KS 67203
(316) 945-7747
http://www.familiestogetherinc.org
|
Family Voices
3701 San Mateo Blvd. NE, Suite 103
Albuquerque, NM 87110
(888) 835-5669
(505) 872-4774
(505) 872-4780 (Fax)
http://www.familyvoices.org
Family Voices aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities. Through our national network, we provide families tools to make informed decisions, advocate for improved public and private policies, build partnerships among professionals and families, and serve as a trusted resource on health care.
*Click on your state for local chapter information. |
Hands and Voices
PO Box 3093
Boulder, CO 80307
(866) 422-0422
http://www.handsandvoices.org/index.htm
E-mail: parentadvocate@handsandvoices.org
*Dedicated to supporting families with children who are Deaf or Hard of Hearing without a bias around communication modes or methodology. We're a parent-driven, non-profit organization providing families with the resources, networks, and information they need to improve communication access and educational outcomes for their children, nationwide. Click on the Map to find the chapter in your state. |
Keys For Networking
1301 SW Topeka Blvd
Topeka, KS 66612-1816
(785) 233-8732
http://www.keys.org
|
Parent Technical Assistance Center Network
888-248-0822
http://www.parentcenternetwork.org
*Parent Centers provide training, information and assistance to families of children with all disabilities ages birth to 26 years and the professionals who work with them. Click on the Regional Map to find the program/programs in your state. |
PEAK Parent Center, Inc Region 5
611 North Weber, Suite 200
Colorado Springs, CO 80903
(800) 284-0251
(719) 531-9400
http://www.peakparent.org
email: region5ptac@peakparent.org |
Respite Outreach Care for Kansans Organization, Inc.
2250 N. Rock Rd., Suite 118-181
Wichita, KS 67226
(316) 687- 5700
http://www.rockoinc.org
Provides short term skilled respite care for children ages 3-22. Currently serving Sedgwick and Butler counties. |
| Patient Assistance Programs |
American Dental Association ~ Give Kids A Smile Program
http://www.givekidsasmile.ada.org/findGKAS.asp
*This is a yearly clinic in most communities. Click on the Clinic locator to find a clinic in your area. |
Merck Patient Assistance Programs
P.O. Box 100
Whitehouse Station, NJ 08889-0100
908-423-1000
http://www.merck.com/responsibility/pap-informa...
Merck offers a family of programs providing free and discounted medicines to patients who cannot afford their prescribed medicines. |
NeedyMeds
P.O. Box 219
Gloucester, MA 01931
http://www.needymeds.org
NeedyMeds is a 501(c)(3) national non profit, has information on programs that help people who can't afford their medications and health care costs. Provides data regarding approximately 2400 programs and nearly 11,000 free/low-cost/sliding-scale clinics. |
Partnership for Prescription Assistance
1-888-477-2669
http://www.pparx.org
The Partnership for Prescription Assistance offers a single point of access to more than 475 public and private patient assistance programs, including more than 180 programs offered by pharmaceutical companies. More than 2,500 brand-name and generic medicines are covered. |
Partnership for Prescription Assistance Kids
1-877-369-1477
http://kids.pparx.org
The Partnership for Prescription Assistance offers a single point of access to more than 475 public and private patient assistance programs, including more than 180 programs offered by pharmaceutical companies. More than 2,500 brand-name and generic medicines are covered. |
Pfizer Helpful Answers
1-866-706-2400
http://www.pfizerhelpfulanswers.com
Pfizer Helpful Answers is a family of assistance programs for uninsured and underinsured patients who need help getting their Pfizer medicines.
These programs provide:
•Pfizer medicines for free or at a savings to patients who qualify
•Some programs also offer reimbursement support services
Call for more information. |
RxAssist
111 Brewster Street
Pawtucket, RI 02860
401-729-3284
401-729-2955 (Fax)
http://www.rxassist.org
Email: info@rxassist.org
Patient Assistance Program Center ~ Offers a comprehensive database of programs and information. |
|
| Recreation |
Ability Station
278 South 880 West
Spanish Fork, UT 84660
800-520-1222
http://www.abilitystation.com
Ability Station offers toys for special needs children needing sensory, fine motor and gross motor,and cognitive development. Toys are reviewed by an Occupational, Physical or Speech Therapist. |
Accessible Arts, Inc.
1100 State Ave
Kansas City, KS 66102
(913) 281-1133
(913) 281-1515 (Fax)
http://www.accessiblearts.org
Email: accarts@accessiblearts.org
|
Accessible Playground dot Net
1463 Greystone Dr.
Pittsburgh, PA 15206
(412) 334-2652
http://www.accessibleplayground.net
E-mail: mara@letkidsplay.com
*Excellent web based center for information re: Accessible playgrounds. Provides a nationwide playground directory and playground resources.
|
American Amputee Hockey Association
http://www.usahockey.com/aaha/
E-Mail:clw_man@hotmail.com
*The AAHA invites all players with limb loss/ birth defects/ and other disabilities to play upright ice hockey. |
American Camp Association
5000 State Road 67 North
Martinsville, IN 46151-7902
800-428-2267
765-342-8456
765-342-2065 (Fax)
http://www.campparents.org
*24 Regional Offices nationwide. Check listings for camps near you. |
American Wheelchair Bowling Association
P.O. Box 69
Clover, VA 24534
http://www.awba.org
E-mail: info@awba.org
*The AWBA provides a competitive, challenging, and informative environment for those individuals with disabilities requiring the use of a wheelchair while bowling to participate in bowling events no matter their individual skill level. |
Amputee Coalition
900 East Hill Avenue, Suite 205
Knoxville, TN 37915
888-267-5669
http://www.amputee-coalition.org/fact_sheets/Ki...
E-Mail: amputee-coalition.org
*See for amputee camps listed by state.
|
Best Buddies - Global Headquarters
100 Southeast Second Street, Suite 2200
Miami , FL 33131
(800) 892-8339
(305) 374-2233
(305) 374-5305 (Fax)
http://www.bestbuddies.org
*Contact for a chapter in your area. |
C.A.S.T. for Kids Foundation (Western Region)
227 S.W. 41st Street
Renton, WA 98057
(425) 251-3214
(425) 251-3272 (Fax)
http://www.castforkids.org/
Email:jim@castforkids.org
*Contact for a fishing program in your state |
CampResource.com/Online Summer Camp Directory
http://www.campresource.com
*Special needs camps for boys and girls that focus on the challenges of ADHD, Autism, physical disabilities, weight loss, diabetes, and many other special needs that children face. Listed alphabetically. Can search by camp type and state.
|
Dreams Fulfilled Through Music
P.O. Box 40548
San Antonio, TX 78229
210-771-5809
210-247-9681 (Fax)
http://dreamsfulfilledthroughmusic.org/index.ph...
E-mail: info@dftm.org
*National Music Teacher Directory for teachers specializing/also teaching children with special needs. Click on Resources then Teacher Directory. |
Fishing Has No Boundaries, Inc.
15453 County Hwy B, P.O. Box 175
Hayward, WI 54843
800-243-3462
715-634-3185
http://fhnbinc.org
*Check Chapter Listing for a chapter in your state. |
FlagHouse Inc.
601 FlagHouse Drive
Hasbrouck Heights , NJ 07604-3116
http://www.flaghouse.com
*Need a grant? Click on "Grant Writing Center" in the bottom menu for more information.
*Supplier of Special Needs equipment and resources for physical education, sports, fitness, and recreation and for health, special needs, special education, sensory integration, and multisensory environments. |
Freedom's Wings International, Inc.
324 Charles Street, Apt #25
Coopersburg, PA 18036
(800) 382-1197
http://www.freedomswings.org
Freedom's Wings International (FWI) is a non-profit organization run by and for people with physical disabilities. We provide the opportunity for those who are physically challenged to fly in specially adapted sailplanes, either as a passenger or as a member of the flight training program.
|
International Wheelchair Aviators
P.O. Box 279
Kemah, TX 77565
281-703-7450
http://wheelchairaviators.org
E-mail: IWAviators@aol.com
A worldwide group of disabled and able bodied
pilots interested in aviation and flying. Members have many different disabilities including paraplegia,quadriplegia, amputee, multiple sclerosis, spina bifida, polio and other problems. |
KC Kids Fun
P.O. Box 27224
Overland Park, KS 66213
http://www.kckidsfun.com
E-mail: kate@kckidsfun.com
*LOTS of outstanding Kansas City-area theatre, dance, vocal music, instrumental music and other performing arts camps listed. In every part of town, there are great offerings for your child, no matter his or her age. Be sure to check your parks & recreation department as well as listings here. |
Let Kids Play!
1463 Greystone Dr.
Pittsburgh, PA 15206
(412) 334-2652
http://www.letkidsplay.com
E-mail: mara@letkidsplay.com
*Let Kids Play is a consulting firm that works with manufacturers,
communities, non-profits, park districts, retail stores, and parents on projects and strategies that ensure that all
children have the best play opportunities possible |
Liberty Swing
http://www.libertyswing.com.au
For information E-mail: Australia office at diane@libertyswing.com.au
*Playground swing equipment for people with disabilities which enable children in wheelchairs to enjoy the fun and recreation of swinging. |
MySummerCamps.Com
909 Sepulveda Blvd.
El Segundo, CA 90245
310-280-4105
877-777-7738
310-280-4921 (Fax)
http://www.mysummercamps.com/camps/Special_Need...
*Large resource listing of a wide variety of Special Needs summer camps in the US and Canada. |
National Amputee Golf Association
11 Walnut Hill Rd
Amherst, NH 03031
http://nagagolf.org
E-mail:info@nagagolf.org
See "Related Links" for regional and international organization contact information. |
National Center on Physical Activity and Disability
1640 W. Roosevelt Road
Chicago, IL 60608-6904
1-800-900-8086
1-312-355-4058 (Fax)
http://www.ncpad.org/
Email: ncpad@uic.edu.
*Maintains a State-by-state listing of Summer Camps and recreational facilities. |
National Park Service/Accessible Opportunities in National Parks
http://www.nps.gov/pub_aff/access/opportunities...
*Contact information is available by Park. Check out the left-hand menu for more National Park accessibility information. |
National Parks Pass
http://www.nps.gov/fees_passes.htm
*Updated information regarding free access passes to National Parks for U.S. citizens or permanent residents with permanent disabilities. |
National Sports Center for the Disabled
P.O. Box 1290
Winterpark , CO 80482
(970) 726-1540
(303) 316-1540
(970) 726-4112 (Fax)
http://www.nscd.org
*National Sports Center for the Disabled's mission is to positively impact the lives of people with any physical or mental challenge through quality adaptive recreation programs in over 20 sports. |
National Wheelchair Basketball Association
1130 Elkton St., Suite C
Colorado Springs, CO 80907
(719) 266-4082
(719) 266-4876 (Fax)
http://www.nwba.org
E-mail: info@nwba.org |
Sensafloat
www.reboundtherapy.org/hydrotherapy
E-Mail: Hydro@reboundtherapy.org
Original Floatsation is a unique water support aid, designed to facilitate relaxation and movement in water. It has applications for children and adults across the whole spectrum of special needs. Winner of the 1993 Toshiba / CBI Invention of the Year award.
|
The Miracle League Association
1506 Klondike Road, Suite 105
Conyers, GA 30094
770 760-1933
770 483-1223 (Fax)
http://www.miracleleague.com
E-mail: Johnny@miracleleague.com
*The Miracle League focuses on removing barriers which keep mentally and physically disabled children off the baseball field and lets them experience the joy of America's favorite pastime.Click on "Find a League" to find a league in your community. |
The National Alliance for Accessible Golf
1733 King Street
Alexandria, VA 22314
(703) 299-4296
(703) 739-0124 (Fax)
http://resourcecenter.usga.org
E-mail: info@accessgolf.org
|
The United States Association of Blind Athletes
33 N. Institute St.
Colorado Springs, CO 80903
(719) 630-0422
(719) 630-0616 (Fax)
http://www.usaba.org/
*See home page for Camp Information and Regional Offices in your area and state. |
United States Quad Rugby Association
(561) 969-1970
(561) 642-4444 (Fax)
http://www.quadrugby.com
*The United States Quad Rugby Association provides opportunities, support, and structure for competitive wheelchair rugby to people with disabilities. |
US Electric Wheelchair Hockey Association
7216 39th Avenue North
Minneapolis, MN 55427
763-535-4736
208-279-1368 (Fax)
http://www.powerhockey.com
PowerHockey™ is based on basic hockey rules with a few adaptations to allow everyone in a power wheelchair the ability to participate. |
US Youth Soccer TOPSoccer (The Outreach Program for Soccer
9220 World Cup Way
Frisco, TX 75034
800-4SOCCER
(972) 334-9960 (Fax)
http://www.usyouthsoccer.org/programs/topsoccer...
E-mail: mmoran@usyouthsoccer.org
*A community-based training and team placement program for young athletes with disabilities, organized by youth soccer association volunteers. The program is designed to bring the opportunity of learning and playing soccer to any boy or girl, ages 4-19, who has a mental or physical disability.
*Contact for a program in your area. |
USA Disabled Hockey
http://www.usahockey.com//disable_hockey/defaul...
*Contains a listing of teams and disciplines all over the US. See Team Listings for a team near you. |
VerySpecialCamps.Com
http://www.veryspecialcamps.com
An online camp directory for individuals with one or more of a wide range of special needs. Listings are by state. |
| Service Dogs/Canine Programs |
Assistance Dog Institute/Bergin University of Canine Studies
1215 Sebastopol Road
Santa Rosa, CA 95407
(707) 545-3647
http://www.assistancedog.org/
Email: info@berginu.edu |
Autism Service Dogs of America
4248 Galewood St.
Lake Oswego, OR 97035
http://autismservicedogsofamerica.com
|
Canine Companions for Independence (CCI)/National Center
P.O. Box
Oceanside, CA 92052
(800) 572-2275
(760) 901-4300
(760) 901-4551 (Fax)
http://www.caninecompanions.org
*Contact for regional training centers and Veteran's Programs. |
Kansas Specialty Dog Service
124 W. 7th Street
Washington, KS 66968
(785) 325-2256
(785) 325-2258 (Fax)
http://www.ksds.org/
E-Mail: ksds@washingtonks.net
|
| Transition/Post Secondary Schooling |
HEATH Resource Center/ George Washington University
2134 G Street, N.W.
Washington, DC 20052
http://www.heath.gwu.edu
E-mail: AskHEATH@gwu.edu
*The HEATH Resource Center gathers and disseminates information to help people with disabilities reach their full potential through postsecondary education and training. Contains a wealth of information and resources on a wide variety of subjects related to education. |
National Collaborative on Workforce and Disability for Youth (NCWD)
4455 Connecticut Avenue NW, Suite 310
Washington, DC 20008
877-871-0744
TTY: 877-871-0665
http://www.ncwd-youth.info
*Federal informational program site. Excellent resource. Click on "Content By State" for programs in your area. |
Virginia College Quest
George Mason University
, VA
http://www.vacollegequest.org/index.shtml
E-mail: info@vacollegequest.org
*An excellent Post-High School education resource. |
We Connect Now
McIlhenny Drive
Baton Rouge, LA 70809
http://weconnectnow.wordpress.com
E-mail: weconnectnow2008@gmail.com
*We Connect Now is dedicated to uniting people on issues which affect people with disabilities, with emphasis on college students higher education & employment. |
| Transportation Information |
Autoweek
1155 Gratiot Avenue
Detroit, MI
http://www.shopautoweek.com/topics/mobility.html
E-mail: customerservice@shopautoweek.com
ShopAutoweek.com, from the editors of Autoweek, offers a large database of articles on mobility and assistive driving technology, in addition to reviews and recommendations to help guide new and used car buying decisions.
|
Freewheel Mobility
109 Iowa Avenue
Colorado Springs, CO 80909
(719) 635-7800
1-800-728-5313
(719) 636-2718 (Fax)
http://www.freewheelvans.com
E-mail: freewheel@freewheelvans.com
* Multiple locations in Colorado and Utah. Nationwide delivery. |
National Mobility Equipment Dealers Association
3327 W. Bearss Ave.
Tampa, FL 33618
(800) 833-0427
(813) 264-2697
(813) 962-8970 (Fax)
http://www.nmeda.org/
Email: nmeda@aol.com
*Provides a state-by-state listing of NMEDA QAP certified dealerships. Start here when looking for mobility equipment (lifts, vehicles, steering systems, etc.) information. |
School Transportation News
P.O. Box 789
Redondo Beach, CA 90277
(310) 792-2226
http://www.stnonline.com/stn/
*See Special Needs Transportation |
