| Advocacy |
Coalition of Citizens with Disabilities
300 Ea. Monroe, Suite 100
Springfield , IL 62701
V/TTY (800) 433-8848
(217) 522-7016
(217) 522-7024 (Fax)
http://www.ccdionline.org
email: ccdi@ccdionline.org |
Louisiana Citizens for Action Now
http://www.lacanadvocates.org
Provides a wealth of self advocacy information. Linda recommends individuals check out the "Legislative Activities" section for an outline of a sample letter to Legislators and a "How-To" testify before a legislative body. |
| Agencies/Assistance Programs - Government |
ALL KIDS - State of Illinois Health Care Program
1-866-255-5437
http://www.allkids.com/
* Apply on-line. |
Division of Developmental Disabilities
100 W. Randolph, Suite 6-400
Chicago, IL 60601
1-888-337-5267
TTY: 1-866-376-8446
http://www.dhs.state.il.us/mhdd/dd/
|
Division of Rehabilitation Services (DRS)
1-800-843-6154
TTY: 1-800-447-6404
http://www.dhs.state.il.us/ors/
Email: DRS@dhs.state.il.us |
Division of Specialized Care for Children (DSCC)
2815 West Washington, Suite 300
Springfield, IL 62794-9481
(217) 793-2350
http://www.uic.edu/hsc/dscc/
|
GovBenefits.Gov
http://www.govbenefits.gov
Provides information regarding government assistance programs nationwide. Includes a state-by-state program search. |
Illinois Department of Human Services
100 S. Grand Ave., E.
Springfield, IL 62762
(800) 843-6154
http://www.dhs.state.il.us/
|
The Children's Partnership ~ Expresslane Program
2000 P Street, NW, Suite 330
Washington, DC 20036
(202) 429-0033
(202) 429-0974 (Fax)
http://www.expresslaneinfo.org/AM/Template.cfm?...
E-mail:frontdoordc @childrenspartnership.org
*Click on "Program Examples" then "Program Location" for programs in your state. |
|
| Agencies/Assistance Programs - Private |
Cover the Uninsured ~ A Project of the Robert Wood Johnson Foundation
(202) 572-2928
http://covertheuninsured.org
E-mail: info@covertheuninsured.org
*State by state listings of various insurance programs for individuals and families who have difficulty obtaining medical insurance. |
Family Support Network of Illinois
5739 West Martindale Lane
Peoria, IL 61615
309-693-8981
309-693-0490 (Fax)
http://www.familysupportnetwork.org/
Email: fsn@familysupportnetwork.org
|
The ARC of Illinois
(708) 206-1930
http://www.thearcofil.org/
|
|
| Assistive Technologies |
Illinois Assistive Technology Program
1 West Old State Capitol Plaza, Suite 100
Springfield, IL 62701
800-852-5110 (In State)
TTY: (217) 522-9966
(217) 522-8067 (Fax)
http://www.iltech.org/
|
|
| Charities and Foundations |
Easter Seals National Headquarters
230 W. Monroe St., Suite 1800
Chicago, IL 60606
(800) 221-6827
TTY 312-726-4258
(312) 726-1494 (Fax)
http://www.easterseals.com
Check your local chapter for camps, grants, respite services and other services available in your area. |
Ronald McDonald House Charities
One Kroc Drive
Oak Brook, IL 60523
630-623-7048
http://www.rmhc.org/
E-mail: info@rmhc.org
*Click on RMHC Programs to find the facility nearest you. |
| Child Care Resource Listings |
Child Care Aware
3101 Wilson Blvd. Suite 350
Arlington, VA 22201
1-800-424-2246
TTY:1-866-278-9428
(703) 341-4101 (Fax)
http://www.childcareaware.org
Child Care Aware is a cooperative program of the National Association of Child Care Resource and Referral Agencies. Funded through the Office of Family Assistance, Administration for Children and Families, U.S. Department of Health and Human Services.
**SNRP does NOT endorse this site. Listed for reference only. Use responsible caution when investigating ALL care providers. |
|
| Disability Specific Organizations |
American Brain Tumor Association
2720 River Road
Des Plaines, IL 60018
(800) 886-2282
(847) 827-9910
(847) 827-9918 (Fax)
http://hope.abta.org
Email: info@abta.org
|
Angelman Syndrome Foundation
4255 Westbrook Drive, Ste. 216
Aurora, IL 60504
1-800-432-6435
(630) 978-4245
(630) 978-7408 (Fax)
http://www.angelman.org/angel/
Email: info@angelman.org |
Child & Adolescent Bipolar Foundation
820 Davis St., Ste. 520
Evanston, IL 60201
847-492-8519
847-492-8520 (Fax)
http://www.bpkids.org
|
IDEA League ~ International Dravet Syndrome Epilepsy Action League
P.O. Box 803338 #18880
Chicago, IL 60680
http://www.idea-league.org
E-mail: info@idea-league.org
Parent and professional organization promotes research and education for the early diagnosis, appropriate treatment, and cure of Dravet Syndrome, also known as SMEI (Severe Myoclonic Epilepsy of Infancy), and related genetic, febrile, sodium channel epilepsies. |
| Early Intervention |
Division of Early Childhood Education
100 N. First Street, C-428
Springfield, IL 62777-0001
(217) 524-4835
http://www.isbe.net/earlychi/html/birth_5.htm
|
Illinois Department of Human Services - Bureau of Early Intervention
222 S. College, 2nd Floor
Springfield, IL 62704
(217) 782-1981
http://www.dhs.state.il.us/ei/
|
Illinois Early Childhood Intervention Clearinghouse
830 S. Spring Street
Springfield, IL 62704
1-800-852-4302
(217) 522-4655
http://www.eiclearinghouse.org
|
Pathways Awareness Foundation
150 N. Michigan Ave. , Suite 2100
Chicago, IL 60601
1-800-955-2445
http://www.pathwaysawareness.org/
*Informational site regarding Early Childhood Development. Questions? Check here. |
| Education |
Great Lakes Area Regional Resource Center (GLARRC) OSU Center for Special Needs
700 Ackerman Road, Suite 440
Columbus, OH 43202
(614) 447-0844
TTY (614) 447-8776
http://www.rrfcnetwork.org/glarrc
E-mail: daniels.121@osu.edu |
Illinois State Board of Education
100 West Randolph, Suite 14-300
Chicago, IL 60601
(312) 841-2220
http://www.illinois.gov/learning
*Chicago offices. |
Illinois State Board of Education
100 N. 1st. Street
Springfield , IL 62777
(866) 262-6663
http://www.illinois.gov/learning
|
Illinois State Board of Education - Department of Special Education
100 N. 1st. Street, N-243
Springfield, IL 62777-0001
(217) 782-4870
http://www.isbe.net/sped-ed/
|
| Housing Programs - Government |
DisabilityInfo.gov ~ Housing
http://www.disabilityinfo.gov
*Provides a comprehensive listing of Federal and State housing programs and up to date program information. |
Illinois Fair Housing Network
http://www.state.il.us/dhr/housenet/index.html
|
Illinois Housing Development Authority
401 North Michigan Avenue
Chicago, IL 60611
(312) 836-5200
TDD: (312) 836-5222
http://www.ihda.org
|
Paralyzed Veterans of America
801 18th Street NW
Washington, DC 20006-3517
1-800-424-8200
http://www.pva.org
*Not just for paralyzed Veterans, not just for paralysis. Ask for their Architecture Program!
**SNRP recommends their publication "Accessible Home Design". |
| Housing Programs - Private |
Center For Universal Design North Carolina State University
P.O. Box 8613
Raleigh, NC 27695-8613
(800) 647-6777
V/TTY:(919) 515-3082
(919) 515-3023 (Fax)
http://www.design.ncsu.edu\cud
|
Institute for Human Centered Design (Adaptive Environments)
180-200 Portland Street, Suite 1
Boston, MA 02114
(617) 695-1225
(617) 482-8099 (Fax)
http://www.adaptenv.org
E-mail: info@HumanCenteredDesign.org |
| Independent Living Organizations |
Access Living of Metropolitan Chicago
624 West Roosevelt Road
Chicago, IL 60607
(312) 253-7000
(312) 253-7001 (Fax)
http://www.accessliving.org
email: generalinfo@accessliving.org
** See site for satellite offices in your area. |
Illinois Iowa Center for Independent Living (IICIL)
3708 11th St.
Rock Island, IL 61231
309-793-0090(V/TTY)
1-877-541-2505(V/TTY)
309-283-0097 (Fax)
http://www.iicil.com
E-mail: iicil@iicil.com
|
Regional Access and Mobilization Project
202 Market Street
Rockford, IL 61107
(815) 968-7467
(815) 968-7612 (Fax)
http://www.rampcil.org
*Check for satellite offices in your area.
**email: rampcil@rampcil.org |
Soyland Access to Independent Living
2449 Federal Drive
Decatur, IL 62526
(800) 358-8080
http://www.decatursail.com
*Check for satellite offices in your area |
| Indian Health Services |
Nashville Area Office Indian Health Services
711 Stewarts Ferry Pike
Nashville, TN 37214-2634
(615) 467-1500
(615) 467-1501 (Fax)
http://www.ihs.gov/FacilitiesServices/AreaOffic...
*Covers the Southern and Eastern United States. |
|
| Information |
Answers For Special Kids
1111 Forest
Evanston, IL 60202
(847) 733-1739
http://www.answersforspecialkids.org/
|
Beach Center on Disability/University of Kansas
1200 Sunnyside Ave. Room 3136 Haworth Hall
Lawrence , KS 66045-7534
(785) 864-7600
TTY (785) 864-3434
(785) 864-7605 (Fax)
http://www.beachcenter.org
email:beachcenter@ku.edu |
Disability Information.Gov
http://www.disabilityinfo.gov
*Large Federal database providing easy access to comprehensive information about disability programs, services, laws and benefits. To find disability resources in your state just click on the Find State and Local Resources map located in each of the subject areas listed in their menu. |
Girls Health.gov
8270 Willow Oaks Corporate Drive, Suite 301
Fairfax, VA 22031
http://4girls.gov
*See "Illness and Disability" tab. Excellent information resource. |
MedicareSolutions
http://www.medicaresolutions.com/disability-res...
*A comprehensive page on disabilities providing informative links in several areas of interest including Disability Rights, support groups, government resources and organizations and others. |
National Organization on Disability
910 Sixteenth Street, N.W., Suite 600
Washington, DC 20006
(202) 293-5960
TTY: (202) 293-5968
(202) 293-7999 (Fax)
http://www.nod.org
E-mail: ability@nod.org |
United Spinal Association
75-20 Astoria Boulevard
Jackson Heights, NY 11370
800-404-2898
(718) 803-3782
(718) 803-0414 (Fax)
http://www.unitedspinal.org/disability-publicat...
*Linda's favorite down-loadable informational resource. Linda recommends the following booklets: Disability Etiquette (PDF), Taking Action (PDF), Adaptive Automotive Equipment (PDF), The Americans with Disabilities Act (PDF),The Fair Housing Amendments Acts (PDF) and Accessing Local Government (PDF). Please see the menu page for other publications you may be interested in. |
|
| Legal Advocacy/Information |
American Bar Association/Legal Assistance for Military Personnel
321 N. Clark St.
Chicago, IL 60654-7598
800-285-2221
312-988-5522
http://www.abanet.org/legalservices/lamp/
*Click on "Contact ABA" for appropriate office contact. |
Illinois Guardianship & Advocacy Commission
http://gac.state.il.us
|
National Help Law Program (NHeLP) Washington, D.C. Office
1101 14th Street, NW Suite 405
Washington, DC 20005
(202) 289-7661
(202) 289-7724 (Fax)
http://www.healthlaw.org
Email: nhelpdc@healthlaw.org
* NHeLP serves legal services programs, community-based organizations, the private bar, providers and individuals who work to preserve a health care safety net for the millions of uninsured or underinsured low-income people. |
The Council for Disability Rights
30 Ea. Adams Suite 1130
Chicago, IL 60603
(312) 444-9484
TDD (312) 444-1967
(312) 444-1977 (Fax)
http://www.disabilityrights.org
|
Wright's Law
http://www.wrightslaw.com
|
|
| Medical Centers/Hospitals/Clinics |
Chicago Shriners Hospital
2211 N. Oak Park Ave.
Chicago, IL 60707
(773) 622-5400
http://www.shrinershq.org/Hospitals/Chicago
*Specialises in Orthopedic and Spinal Cord Injuries |
Children's Hospital of Illinois (At OSF Saint Francis Medical Center)
530 N.E. Glen Oak Avenue
Peoria, IL 61637
(309) 655-7171
http://www.childrenshospitalofil.org
|
Children's Memorial Hospital
2300 Children's Plaza
Chicago, IL 60614-3394
(773) 880-4000
http://www.childrensmemorial.org
|
Division of Specialized Care for Children/University of Illinois at Chicago
2815 West Washington, Suite 300
Springfield, IL 62794-9481
(217) 793-2340
http://www.uic.edu/hsc/dscc
|
Sinai Children's Hospital
1500 S. California Avenue
Chicago, IL 60608
1-888-287-4624
http://www.sinaichildrenshospital.org
|
|
| Medical Information/Research Organizations |
American Association of Pediatrics
141 Northwest Point Blvd.
Elk Grove Village, IL 60007
(847) 434-4000
http://www.aap.org
General information regarding diagnosis and treatment of pediatric disorders and diseases as well as some referral services. |
American Medical Association
515 No. State St.
Chicago , IL 60610
(800) 621-8335
http://www.ama-assn.org
General information regarding diagnosis,treatment and current research in the medical community. |
Early Childhood Research Institute on
61 Children's Research Center
Champaign, IL 61821
(877) 275-3227
(217) 333-4123
http://www.clas.uiuc.edu/aboutclas.html
|
Journal of the American Medical Association (JAMA)
http://www.jama.ama-assn.org
Published by the American Medical Association. Contains current research and archives. |
| Other |
Disability Studies, Temple University Blog
http://disstud.blogspot.com
*Based at Temple University but with nationwide contributors. Has a LARGE list of disability related blogs. |
|
| Parent Support Programs |
Designs for Change
29 E. Madison, Suite 950
Chicago, IL 60602
(312) 236-7252
(312) 236-7927 (Fax)
http://www.designsforchange.org
|
Family Matters (ARC Community Support System)
2502 S. Veterans Dr.
Effingham, IL 62401
(217) 347-5428
http://www.fmptic.org
|
Family Resource Center on Disabilities
20 E. Jackson Blvd., Room 300
Chicago, IL 60604
(800) 952-4199
(312) 939-3513
(312) 939-7297 (Fax)
http://www.frcd.org
|
Ohio Coalition for the Education of Children with Disabilities (OCECD)
165 West Center Street, Suite 302
Marion , OH 43302-3741
(800) 374-2806
(740) 382-5452
(740) 383-6421 (Fax)
http://www.ocecd.org
email: oced@gte.net
*Check for information in your state. |
Special Needs Network, NFP
103 Schelter Road
Lincolnshire, IL 60069
(847) 522-8080
http://www.tsnn.org/
E-mail: info@tsnn.org |
|
| Patient Assistance Programs |
American Dental Association ~ Give Kids A Smile Program
http://www.givekidsasmile.ada.org/findGKAS.asp
*This is a yearly clinic in most communities. Click on the Clinic locator to find a clinic in your area. |
Cover the Uninsured
http://covertheuninsured.org
Email: info@covertheuninsured.org
* Provides a State by State guide to finding healthcare insurance coverage in your state. |
Merck Patient Assistance Programs
P.O. Box 100
Whitehouse Station, NJ 08889-0100
908-423-1000
http://www.merck.com/responsibility/pap-informa...
Merck offers a family of programs providing free and discounted medicines to patients who cannot afford their prescribed medicines. |
NeedyMeds
P.O. Box 219
Gloucester, MA 01931
http://www.needymeds.org
NeedyMeds is a 501(c)(3) national non profit, has information on programs that help people who can't afford their medications and health care costs. Provides data regarding approximately 2400 programs and nearly 11,000 free/low-cost/sliding-scale clinics. |
Partnership for Prescription Assistance
1-888-477-2669
http://www.pparx.org
The Partnership for Prescription Assistance offers a single point of access to more than 475 public and private patient assistance programs, including more than 180 programs offered by pharmaceutical companies. More than 2,500 brand-name and generic medicines are covered. |
Partnership for Prescription Assistance Kids
1-877-369-1477
http://kids.pparx.org
The Partnership for Prescription Assistance offers a single point of access to more than 475 public and private patient assistance programs, including more than 180 programs offered by pharmaceutical companies. More than 2,500 brand-name and generic medicines are covered. |
Pfizer Helpful Answers
1-866-706-2400
http://www.pfizerhelpfulanswers.com
Pfizer Helpful Answers is a family of assistance programs for uninsured and underinsured patients who need help getting their Pfizer medicines.
These programs provide:
•Pfizer medicines for free or at a savings to patients who qualify
•Some programs also offer reimbursement support services
Call for more information. |
RxAssist
111 Brewster Street
Pawtucket, RI 02860
401-729-3284
401-729-2955 (Fax)
http://www.rxassist.org
Email: info@rxassist.org
Patient Assistance Program Center ~ Offers a comprehensive database of programs and information. |
| Recreation |
Ability Station
278 South 880 West
Spanish Fork, UT 84660
800-520-1222
http://www.abilitystation.com
Ability Station offers toys for special needs children needing sensory, fine motor and gross motor,and cognitive development. Toys are reviewed by an Occupational, Physical or Speech Therapist. |
Adaptive Adventures ~ Chicago
2616 Wilmette Avenue
Wilmette, IL 60091
(847) 251-8445
(866) 679-2770
http://www.adaptiveadventures.org
E-mail: info@adaptiveadventures.org
|
American Blind Skiing Foundation
2228 Grand Pointe Trail
Aurora, IL 60504
http://www.absf.org/
Email: ABSF@absf.org |
Best Buddies Illinois
350 north Orleans Street, Suite 678
Chicago, IL 60654
(877) 602-8339
(312) 828-9313
(312) 828-9421 (Fax)
http://www.bestbuddiesillinois.org
|
Dance Detour
1935 S. Archer Avenue Suite 413
Chicago, IL 60616
(312) 225-8824
http://www.dancedetour.org
Email: dancedetour@aol.com |
Illinois Association of Park Districts
(217) 523-4554
(217) 523-4273 (Fax)
http://www.recreationaccessillinois.org/
Email: iapd@ilparks.org
* Contact for recreation and special recreation agencies in your community. |
National Center on Physical Activity and Disability
1640 W. Roosevelt Road
Chicago, IL 60608-6904
1-800-900-8086
1-312-355-4058 (Fax)
http://www.ncpad.org/
Email: ncpad@uic.edu.
*Maintains a State-by-state listing of camps and recreational facilities. |
National Lekotek Center
3204 W. Armitage Avenue
Chicago, IL 60647
(800) 366-7529
(773) 276-5164
(773) 276-8644 (Fax)
http://www.lekotek.org/
email: ekotek@lekotek.org
*Specializes in adapted toys and play aids. |
National Parks Pass
http://www.nps.gov/fees_passes.htm
*Updated information regarding free access passes to National Parks for U.S. citizens or permanent residents with permanent disabilities. |
|
| Service Dogs/Canine Programs |
Canine Companions for Independence (CCI)/National Center
P.O. Box
Oceanside, CA 92052
(800) 572-2275
(760) 901-4300
(760) 901-4551 (Fax)
http://www.caninecompanions.org
*Contact for regional training centers and Veteran's Programs. |
Compassionate Paws, Inc.
W7064 Bighorn Lane
Wautoma, WI 54982
(920)787-1467
(920) 987-9098
http://www.compassionatepaws.com
*Specializes in working with families and individuals affected with Autism and Autism Spectrum Disorders. Will train anyone in the US but does focus primarily on states in the Mid-West. |
Dogs for Disabilities, Inc.
PO Box 537
Batavia, IL 60510
(630) 879-9561
(630) 406-6373 (Fax)
http://www.dogsfordisabilities.com/about-us.html
Email: info@dogsfordisabilities.com
|
|
| Transition/Post Secondary Schooling |
Virginia College Quest
George Mason University
, VA
http://www.vacollegequest.org/index.shtml
E-mail: info@vacollegequest.org
*An excellent Post-High School education resource. |
|
| Transportation Information |
Easter Seals - Vehicle Donation
http://www.vehicledonation.com
Accepts donations and applications for equipment. |
National Mobility Equipment Dealers Association
3327 W. Bearss Ave.
Tampa, FL 33618
(800) 833-0427
(813) 264-2697
(813) 962-8970 (Fax)
http://www.nmeda.org/
Email: nmeda@aol.com
*Provides a state-by-state listing of NMEDA QAP certified dealerships. Start here when looking for mobility equipment (lifts, vehicles, steering systems, etc.) information. |
School Transportation News
P.O. Box 789
Redondo Beach, CA 90277
(310) 792-2226
http://www.stnonline.com/stn/
*See Special Needs Transportation |
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