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Getting Started
Get Diagnosed
Gathering Important Information
Organizing Your Information
The Educated Parent
Early Intervention
What To Do First
What is Early Intervention?
Research
Introduction
Keeping an IEP Notebook
Preparing for an IEP Meeting
Conducting an IEP Meeting
Individuals With Disabilities Act
IDEA ACT - A Quick Reference
IDEA Legal Text
Family Finances
Recommended Resources
Housing
Introduction to Universal Housing Design
Housing options
Building a New House ~ That Works!
Introduction to Universal Housing Design
Entrances and Thresholds
Single Family Home Resources
Remodeled Bathroom
Ceiling Lifts
Problem Spaces
Adding a Ramp
Good Restroom
Not So Good Restrooms
Great Space Adaptions
Not So Great Adaptations
Ramp Design
Ramp Design (Part 2)
Commercial Ramps
Public Access Ramps
Adding a Ramp
Retrofit Door Sill Ramp
Insurance
Medical Bills
Filing an Appeal
Medical Expenses and Income Taxes
Finding Help for the Uninsured or Underinsured
Free or Discounted Prescription Programs
Medicaid Waivers
Legal Adults - Introduction
Guardianship and Declaration of Incapacitation
Establishing Guardianship and Obtaining a Declaration of Incapacitation
Dependency Determination (Military)
When to Start the Transition Process
Begin Transition - Age 14-16
Exploring Possibilities and Guardianship Issues - Age 17
Age 18
After High School Graduation - Age 19-22
Post High School Education Options
Future Housing Options
Specialized Medical Equipment
Wheelchair Evaluation
Wheelchair Safety
Introduction: Special Needs and the Military Family
DEERS & ID Cards
Dependency Determination
TriCare Introduction
TriCare Program Options
Exceptional Family Member Program (EFMP)
Individual Case Management
TriCare Extended Care Health Option (ECHO)
Early Intervention
Housing Options
Family Support Services
Community Contacts
Letters of Medical Sufficiency
Wheelchair Accessible Vans
Van Conversion: A good Example
Fund Raising - The Flamingo Air Project
Utah DSPD Complaint List Winter 2011
 

CALIFORNIA

Military Quick Links (National Guard, Reserve, Active Duty)
ABA Military Pro Bono Project
321 N. Clark St.
Chicago, IL 60654
312-988-5783
http://www.militaryprobono.org
*The ABA Military Pro Bono Project accepts case referrals from military attorneys on behalf of junior-enlisted, active-duty military personnel and their families with civil legal problems, and it places these cases with pro bono attorneys where the legal assistance is needed. The Project is also the platform for Operation Stand-By, through which military attorneys may seek attorney-to-attorney advice to further assist their service member clients.
American Bar Association/Military Lawyers
http://www.americanbar.org/portals/military_law...
*Scroll down the home page to the very bottom for Military and Veteran Bar Association listings.
Children's Medical Services/California Department of Social Services
9616 Micron Ave. Suite 640
Sacramento, CA 95827
(916) 875-9900
http://www.dhcs.ca.gov/services/Pages/CMS.aspx
DoD Forms Management Program
http://www.esd.whs.mil/Directives/forms/dd0001_...
*Find Dependency Determination Forms here. Scroll down to the DD 137-5 Dependency Statement - Incapacitated Child Over Age 21 and click on the form number. This form can be filled out on line.
Easter Seals National Headquarters
230 W. Monroe St., Suite 1800
Chicago, IL 60606
(800) 221-6827
TTY 312-726-4258
(312) 726-1494 (Fax)
http://www.easterseals.com
*Contact for the chapter closest to you. Ask your local chapter for camps, grants, respite services and other services available in your area.
Exceptional Family Member Program/All Branches/Mobile
http://apps.militaryonesource.mil/pls/psgprod/f...
Contains contact information, Base program locators and enrollment/justification forms for ALL Branches of service.
Kids' Waivers/Medicaid Waiver Programs
http://www.kidswaivers.org
Medicaid waivers for children are unfortunately quite confusing. Not only that, but it is impossible to find information about them. This project State-by-State is intended to simplify the process as much as possible.
Medicaid Waiver dot Org
http://medicaidwaiver.org
*A state-by-state Medicaid Waiver program listing. Please note: Medicaid programs do not transfer. If you're planning a move you'll want to do some homework. Start here then go to the official page of the state you are considering.
Military Home Front/Exceptional Family Member Program (EFMP)
http://www.militaryonesource.mil/-/the-exceptio...
*Over 100,000 military families have members with special needs. These include spouses, children, or dependent parents who require special medical or educational services. These family members have a diagnosed physical, intellectual, or emotional condition. The Exceptional Family Member Program (EFMP) works with these families to address their unique needs.The materials within this section of Military HOMEFRONT are designed to give service members and their families critical information and resources related to the EFMP program.
Military One Source
800-342-9647
http://www.militaryonesource.mil
* A DoD supported site. Military OneSource has policy and programmatic information, helpful resources, products, articles and tips on numerous topics related to military life. Confidential services are available 24 hours a day by telephone and online. In addition to the website support, Military OneSource offers confidential call center and online support for consultations on a number of issues such as spouse education and career opportunities, issues specific to families with a member with special needs, health coaching, financial support, and resources.
Military Parent Technical Assistance Center
6316 S 12th St
Tacoma, WA 98465
(253) 565-2266
(800) 572-7368
https://branchta.org
E-mail: thebranch@wapave.org * Provides Base EFMP and Special Needs contact information for all regions, all branches of service.
National Military Family Association
3601 Eisenhower Avenue, Suite 425
Alexandria, VA 22304
http://www.militaryfamily.org
E-mail: infor@militaryfamily.org *Click on Info & Resources links for EFMP=Special Needs information.
Social Security Administration Information for Parents
National Info. 1-800-772-1213
http://www.ssa.gov/pgm/links_ssi.htm
*Benefits information and local office addresses with contact information available by state and city.
State & Local Government on the Net
http://statelocalgov.net/50states-military-vete...
*State listings for Military and Veterans sites within the 50 United States.
The National Guard Family Program
https://www.jointservicessupport.org/fp/
*Click on Contacts & Resources to find your state program.
The National Resource Directory
http://www.nationalresourcedirectory.gov
The National Resource Directory (NRD) provides access to services and resources at the national, state and local levels that support recovery, rehabilitation and community reintegration.
The Special Needs Alliance
http://www.specialneedsalliance.org
*Provides a national list of lawyers specializing in special needs trusts and other resources by state. Check here for help with Guardianship, incapacitation, trusts and other pertinent topics.
United Cerebral Palsy (UCP)
1660 L Street, NW, Suite 700
Washington, DC 20036
(800) 872-5827
TTY (202) 973-7197
(202) 776-0414 (Fax)
http://www.ucp.org
*Contact for your local chapter. Excellent state-by-state resource guide.
United Way
701 N. Fairfax St.
Alexandria, VA 22314
https://www.unitedway.org/local/united-states
*Non-profit charitable organization offering a variety of services including camps, respite, grants, etc. Find your local chapter here.
 
Advocacy
ADAPT
201 S. Cherokee
Denver, CO 80223
303-733-9324
http://www.adapt.org
E-mail: adapt@adapt.org *See Contact List for a chapter in your state.
Disability Rights California
1831 K Street
Sacramento, CA 95811
916-504-5800
1-800-719-5798 TTY
916-504-5802 (Fax)
http://www.disabilityrightsca.org
*Advocate, Educate, Investigate and Litigate to advance and protect the rights of Californians with disabilities. Please click on "Contact Us" for the branch in your region.
Kids Included Together (KIT)
2820 Roosevelt Road, Suite 202
San Diego, CA 92106
(858) 225-5680
(619) 758-0949 (Fax)
http://www.kitonline.org/
Email: info@KITonline.org *Kids Included Together (KIT) specializes in providing best practices training for community–based organizations committed to including children with and without disabilities into their recreational, child development and youth development programs.
Louisiana Developmental Disabilitites Council
626 Main Street, Suite A
Baton Rouge, LA 70821-3455
(225) 342-6804
(800) 450-8108
(225) 342-1970 (Fax)
https://laddc.org
Provides a wealth of self advocacy information. Linda recommends individuals check out the "Advocacy 101" section under "Policy and Advocacy" for an outline of a sample letter to Legislators and a "How-To" testify before a legislative body and other great legislative advocacy information.
National Gateway to Self-Determination Web Portal
http://www.aucd.org/ngsd
*This site provides a single access for self-advocates, professionals, policy-makers and the general public on the current best practices and evidence-based activities in enhancing self-determination in the lives of people with developmental and intellectual disabilities, as well as any individual.
Patient Advocate Foundation
421 Butler Farm Road
Hampton, VA 23666
(800) 532-5274
(757) 873-8999 (Fax)
http://patientadvocate.org
E-Mail: help@patientadvocate.org *Provides patients with arbitration, mediation and negotiation to settle issues with access to care, medical debt, and job retention related to their illness.
The American Association of People with Disabilities (AAPD)
2013 H Street, NW, 5th Floor
Washington, DC 20006
800-840-8844 (V/TTY)
202-457-0046 (V/TTY)
866-536-4461 (Fax)
http://www.aapd.com
*The American Association of People with Disabilities is the nation's largest disability rights organization. We promote equal opportunity, economic power, independent living, and political participation for people with disabilities. Our members, including people with disabilities and our family, friends, and supporters, represent a powerful force for change.
United Advocates For Children and Families
2035 Hurley Way, Suite 290
Sacramento, CA 95825
(916) 643-1530
1-877-275-8223
(916) 643-1592 (Fax)
http://www.uacf4hope.org
*UACF’s Heroes for Hope Community Chapters were developed to engage California families on a grassroots level. Chapters offer community based support groups, education and training, and resources to parents and families to help reduce the stigma of mental health issues, promote systems change, and build a network of diverse community members passionate about representing the family voice for the needs of children and youth.
World Institute on Disability
510 16th Street, Suite 100
Oakland, CA 94612
(510) 763-4100
http://www.wid.org
 
Agencies/Assistance Programs - Government
California Department of Developmental Services
1600 9th Street, Room 330 MS3-8
Sacramento, CA 95814
(916) 654-2773
http://www.dds.ca.gov
California Health and Human Services Agency
1600 9th Street, Room 460
Sacramento, CA 95814
(916) 654-3454
http://www.chhs.ca.gov
California State Council on Developmental Disabilities
1507 21st Street, Suite 210
Sacramento, CA 95814
(866) 802-0514
(916) 443-4957 (Fax)
http://www.scdd.ca.gov
Children's Medical Services/California Department of Social Services
9616 Micron Ave. Suite 640
Sacramento, CA 95827
(916) 875-9900
http://www.dhcs.ca.gov/services/Pages/CMS.aspx
GovBenefits.Gov
http://www.Benefits.gov
Provides information regarding government assistance programs nationwide. Includes a state-by-state program search.
Kids' Waivers/Medicaid Waiver Programs
http://www.kidswaivers.org
Medicaid waivers for children are unfortunately quite confusing. Not only that, but it is impossible to find information about them. This project State-by-State is intended to simplify the process as much as possible.
Medicaid Waiver dot Org Disability Services & Waivers all 50 States
http://medicaidwaiver.org
*A state-by-state Medicaid Waiver program listing. Please note: Medicaid programs do not transfer. If you're planning a move you'll want to do some homework. Start here then go to the official page of the state you are considering.
US Department of Indian Health Services
801 Thompson Avenue, Ste. 400
Rockville, MD 20852-1627
(See Contact Listing)
http://www.ihs.gov
* Complete program and regional office listings for IHS Services
Agencies/Assistance Programs - Private
ABILITY Corps
http://www.abilityawareness.org/index.htm
*Our purpose is to create a world of inclusion and awareness for people with disabilities – through art, media, housing, employment, and volunteer opportunities.
Kiwanis International
3636 Woodview Trace
Indianapolis, IN 46268-3196
1-800-549-2647
Cell 1-317-875-8755
http://www.kiwanis.org
*Service is at the heart of every Kiwanis club, no matter where in the world it’s located. Members stage nearly 150,000 service projects and raise nearly US$100 million every year for communities, families and projects. By working together, members achieve what one person cannot accomplish alone. Click on Clubs to find a community club near you.
National School Foundation Association
509 Aurora Ave, Ste 406
Naperville, IL 60540
(866) 824-8513
http://www.schoolfoundations.org
* Provides a Listing of Foundations by State (click on menu in left-hand menu). Excellent resource for those needing foundation information in each state. Click on Foundations at the top of the page.
Single Mothers Grants dot Org
http://helpwithpayingbills.org
*Lists of companies and organizations that will help individuals pay the essentials of basic needs, such as rent or energy bills. Click on your state and review the list of companies and agencies available.
The Ability Experience
PO Box 241368
Charlotte, NC 28224
(980) 318-5385
(704) 504-2400 ext. 5385
(980) 318-5296 (Fax)
http://www.abilityexperience.org
E-mail: chapterservices@abiltyexperience.org *Members of Pi Kappa Phi support their local communities through the construction of wheelchair ramps for families and individuals that would not otherwise be able to afford it.If you are an individual or family in need of a wheelchair ramp or know of someone who is in need of one to help provide better access to your home, we will gladly get a local chapter organized to assist with the construction.
The California Consortium of Education Foundations (CCEF)
PO Box 19290
Stanford, CA 94309
650-324-1653
650-326-7751 (Fax)
http://www.cceflink.org
E-mail: ccef@cceflink.org *Maintains a list of 600+ local education foundations (LEFs) statewide. Please see individual organizations for programs and services each provides.
UnitedHealthcare Children's Foundation
PO Box 41
Minneapolis, MN 55440-0041
1-855-698-4223
http://www.uhccf.org
*UHCCF grants provide financial help/assistance for families with children that have medical needs not covered or not fully covered by their commercial health insurance plan. The Foundation aims to fill the gap between what medical services/items a child needs and what their commercial health benefit plan will pay for.
 
Army National Guard/Reserve
The National Guard Family Program
https://www.jointservicessupport.org/fp/
*Click on Contacts & Resources to find your state program.
 
Assistive Technologies
AbleData
8630 Fenton Street, Suite 930
Silver Spring, MD 20910
1-800-227-0216
301-608-8998
301-608-8958 (Fax)
http://www.abledata.com
E-mail: abledata@macrointernational.com *AbleData provides objective information about assistive technology products and rehabilitation equipment nationwide. Does have a state by state directory.
Ablenet
2625 Patton Road
Roseville, MN 55113
800-322-0956
http://www.ablenetinc.com
E-mail: customerservice@ablenetinc.com *Creating assistive technology products that transform lives in simple, tangible, and powerful ways. We believe that all people deserve the tools to help them learn about, interact with, and participate in the world around them. Whether that's a child in the classroom, an adult recovering from an injury, a veteran with a permanent disability, or a senior who wants to remain at home, AbleNet is there to provide an "easy tech, easy value" approach to helping people improve their lives.
First Hand Foundation
2800 Rockcreek Parkway
Kansas City, MO 64117
816-201-1569
https://www.firsthandfoundation.org
E-mail: Firsthandfoundation@cerner.com *A funding resource for Assistive Technology. First Hand accepts applications from anywhere in the world. If you or someone you know would like to apply for assistance on behalf of a child, please review the financial guidelines and the criteria listed on the site. If your child's case meets all criteria, we are happy to consider your application.
If I Need Help
PO Box 803356
Santa Clarita, CA 91380
661-524-6732
https://ifineedhelp.org
E-mail: Erin@IfiNeedHelp.org *Personal wearable scan codes that link to a live profile. The profile can be updated in real time and can be emailed to others when a search is needed. Our free members include people with Autism, Epilepsy, Alzheimer's, Down Syndrome, medical conditions, Intellectual Disability and service dogs.
National Library Service for the Blind and Physically Handicapped (NLS)
1291 Taylor Street, NW
Washington, DC 20011
(202) 707-5100
TDD: (202) 707-0744
(202) 707-0712 (Fax)
http://www.loc.gov/nls
E-mail/General Info: nls@loc.gov *Through a national network of cooperating libraries, NLS administers a free library program of braille and audio materials circulated to eligible borrowers in the United States by postage-free mail.
Section 508.gov (IT Accessibility & Workforce Division (ITAW))
Office of Government wide Policy 1800 F Street NW, Room G211
Washington, DC 20405
(Help) 202-208-7420
202-501-2010 (TTY)
202-501-6269 (Fax)
http://www.section508.gov/
GSA’s IT Accessibility and Workforce (ITAW) provides assistive technology solutions to eliminate barriers for people with disabilities. ITAW is the government's principal advocate and coordinator for Section 508 implementation that requires agencies to make information technology accessible for people with disabilities.
Charities and Foundations
Chive Charities
https://chivecharities.org
*An on-line fundraising/grant program, Chive Charities is dedicated to championing the underdogs. Among the causes we focus on are: individuals with rare medical conditions, disabled veterans and first responders in need of quality of life enhancements, underfunded special needs education initiatives, and organizations that provide emergency assistance / disaster relief. Currently, we can only help causes in the United States.
Christopher & Dana Reeve Foundation
636 Morris Turnpike, Suite 3A
Short Hills, NJ 07078
1-800-225-0292
http://www.christopherreeve.org
*Spinal Cord injuries and paralysis. Specific military treatment program available.
First Hand Foundation
2800 Rockcreek Parkway
Kansa City, MO 64117
816-201-1569
https://www.firsthandfoundation.org
E-mail: Firsthandfoundation@cerner.com *A funding resource for Assistive Technology. First Hand accepts applications from anywhere in the world. If you or someone you know would like to apply for assistance on behalf of a child, please review the financial guidelines and the criteria listed on the site. If your child's case meets all criteria, we are happy to consider your application.
Food Pantries dot Org
http://www.foodpantries.org
*A state-by-state directory of Food Banks, Soup Kitchens, and non-profit organizations committed to fighting hunger.
Lions Clubs International
300 W. 22nd Street
Oak Brook, IL 60523-8842
http://www.lionsclubs.org/EN/index.php
*A national service organization with clubs in all 50 states. Eye glasses, ramp programs, other services which vary by location. Click on their Club Locator to find a club near you.
National School Foundation Association
509 Aurora Ave, Ste 406
Naperville, IL 60540
(866) 824-8513
http://www.schoolfoundations.org
* Provides a Listing of Foundations by State Excellent resource for those needing foundation information in each state. Click on Foundations at the top of the page.
United Way
701 N. Fairfax St.
Alexandria, VA 22314
http://national.unitedway.org
*Non-profit charitable organization offering a variety of services including camps, respite, grants, home modification assistance, etc. Find your local chapter here.
Variety Children's Charity
582 Market Street, Suite 101
San Francisco, CA 94104
415-781-3894
415-781-4226 (Fax)
http://www.varietync.org/
E-mail: info@varietync.org *Providing access to medical care, rehabilitation, housing assistance, community aid, and more, to tens of thousands of Northern California’s children.
Child Care Resource Listings
Family Caregiver Alliance
785 Market Street, Suite 750
San Francisco, CA 94103
(800) 445-8106
(415) 434-3388
http://www.caregiver.org
E-mail: info@caregiver.org *Check out the Family Care Navigator for services in your state. http://www.caregiver.org/caregiver/jsp/fcn_content_node.jsp?nodeid=2083
Child Care Aware
3101 Wilson Blvd. Suite 350
Arlington, VA 22201
1-800-424-2246
TTY:1-866-278-9428
(703) 341-4101 (Fax)
http://www.childcareaware.org
Child Care Aware is a cooperative program of the National Association of Child Care Resource and Referral Agencies. Funded through the Office of Family Assistance, Administration for Children and Families, U.S. Department of Health and Human Services. **SNRP does NOT endorse this site. Listed for reference only. Use responsible caution when investigating ALL care providers.
National Respite Locator Service
800 Easttowne Drive, Suite 105
Chapel Hill, NC 27514
(800) 473-1727 ext. 222
http://archrespite.org
List of Respite provider links nationwide. Focuses on respite care for families of special needs children.
The Child Care Resource Center (CCRC)
20001 Prairie Street
Chatsworth, CA 91311
818-717-1000
http://www.ccrcca.org
*4 locations. The Child Care Resource Center (CCRC)manages programs to assist with issues such as finding and selecting child care and child care financial assistance to families.
Disability Specific Organizations
ADHD News (Attention Deficit Hyperactivity Disorder)
http://www.adhdnews.com/
*Features message boards, a monthly newsletter, information on medication and treatments, links to relevant Blogs, etc.
Administration for Community Living
330 C St SW
Washington, DC 20201
(202) 401-4634
https://www.acl.gov
Email: Requests for information about ACL programs and comments and technical issues related to the ACL website can be sent to: aclinfo@acl.hhs.gov ADD programs are at work in every state and U.S. territory. ADD does not provide direct consumer support or financial assistance. ADD provides funding, monitoring, and policy guidance to it's programs Nationwide. Check the State Program Listing for program information in your state. Eldercare Locator (to find local resources):(800) 677-1116
American Diabetes Association
1701 North Beauregard Street
Alexandria, VA 22311
(1-800-342-2383).
http://www.diabetes.org
Email: AskADA@diabetes.org. *See registry for local chapter near you.
Amputee Coalition
900 East Hill Avenue, Suite 205
Knoxville, TN 37915-2566
888-267-5669
TTY:865-525-4512
http://www.amputee-coalition.org
Autism and PDD Support Network
14271 Jeffrey #3
Irvine, CA 92620
http://www.autism-pdd.net
On-line information and support for families with children with Autism and Spectrum Disorders. Has a state-by-state Autism resource list.
Autism Program at Yale (Yale Child Study Center)
230 South Frontage Rd.
New Haven, CT 06519
(203) 785-3420
(203) 764-4373 (Fax)
http://medicine.yale.edu/childstudy/autism/inde...
E-mail: betty.litto@yale.edu Our program involves infants, toddlers, pre-school, and school-age children, as well as young adults (18-21 years) with autism and related disorders and integrates highly experienced professionals from the fields of clinical psychology, neuropsychology and neuroimaging, child psychiatry, speech-language pathology, social work, genetics and the biological sciences, as well as psychopharmacology and psychiatric nursing. Our clinical and research activities are located in the Child Study Center at Yale University, School of Medicine in New Haven, Connecticut.
Autism Speaks
5455 Wilshire Boulevard, Suite 2250
Los Angeles, CA 90036
(323) 549-0500
(323) 549-0547 (Fax)
http://www.autismspeaks.org
E-Mail: contactus@autismspeaks.org *For an Autism Speaks office in your area visit our Community Pages.
Bohring-Opitz Syndrome Foundation, Inc.
1703 Nw 42 Pl
Gainesville
, FL 32605
http://bohring-opitz.org
E-mail bohringopitz@gmail.com *Bohring-Opitz Syndrome Foundation, Inc. is dedicated to improving the lives of people affected by BOS through the establishment of a Medical Advisory Board, awareness initiatives, and parent/patient advocacy.
Center for Autism and Related Disabilities, University of Florida, Gainesville
2124 NE Waldo Road, Suite 3200
Gainesville, FL 32609
1 (800) 928-8476
(352) 273-0581
(352) 846-3703 (Fax)
http://card.ufl.edu
Email: card-info@ufl.edu *The Center for Autism and Related Disabilities (CARD) provides support and assistance with the goal of optimizing the potential of people with autism and related disabilities.
Children With Diabetes
5689 Chancery Place
Hamilton, OH 45011
http://www.childrenwithdiabetes.com
*Diabetes education and information
Dravet Syndrome Foundation, Inc.
PO Box 16536
West Haven, CT 06516
203-392-1950
203-907-1940 (Fax)
http://www.dravetfoundation.org
E-mail:info@dravetfoundation.org Parent and professional organization promotes research and education for the early diagnosis, appropriate treatment, and cure of Dravet Syndrome, also known as SMEI (Severe Myoclonic Epilepsy of Infancy), and related genetic, febrile, sodium channel epilepsies.
Dup15q Alliance
P.O. Box 674
Fayetteville, NY 13066
855-387-1572
http://www.dup15q.org
Email: info@dup15q.org *See web site for Dup15q clinics in the US.
Epilepsy Foundation of America
8301 Professional Place
Landover, MD 20785
(800) 332-1000
http://www.epilepsyfoundation.org/
Families For Early Autism Treatment (FEAT)
P.O. Box 255722
Sacramento, CA 95865-5722
(916) 843-1536
http://www.feat.org
Email: webmaster@feat.org *State-by-State listing available.
Five P Minus Society (Cru-du-chat)
1-888-970-0777
http://www.fivepminus.org
*To encourage and facilitate communication among families having a child with 5p- Syndrome and to spread awareness and education of the syndrome to these families and their service providers.Call for referral to the Family Support Coordinator covering your area.
International Dyslexia Association
40 York Rd., 4th Floor
Baltimore, MD 21204-5202
(800) 222-3123
(410) 296-0232
https://dyslexiaida.org
Email: info@dyslexiaida.org
Learning Disabilities Association of America
4156 Library Road
Pittsburgh, PA 15234
(412) 341-1515
(412) 344-0224 (Fax)
http://www.ldanatl.org
* See menu for chapter listings by state.
Muscular Dystrophy Association-USA
3300 E. Sunrise Drive
Tucson, AZ 85718
1-800-572-1717
http://www.mda.org
* Click on Find Your Local MDA Office to locate an office and clinic near you.
National Brain Tumor Foundation
22 Battery Street, Suite 612
San Fransisco, CA 94111-5520
1-800-934-2873
415.834.9970
http://www.braintumor.org/
Email:nbtf@braintumor.org
National Center for Learning Disabilities (NCLD)
381 Park Avenue South Suite 1401
New York, NY 10016
(888) 575-7373
(212) 545-7510
(212) 545-9665 (Fax)
http://www.ncld.org
National Consortium On Deaf-Blindness
345 N. Monmouth Ave.
Monmouth, OR 97361
800-438-9376
800-854-7013(TTY)
503-838-8150 (Fax)
http://www.nationaldb.org
E-mail: info@nationaldb.org
National Family Association For Deaf-Blind
141 Middle Neck Road
Sands Point, NY 11050
800-255-0411
516-883-9060 (Fax)
http://nfadb.org
email: NFADB@aol.com *National State-by-State listing
National Fragile X Foundation
1615 Bonanza St. Suite 202
Walnut Creek, CA 95456
(800) 688-8765
(925) 938-9315 (Fax)
http://www.fragilex.org
Email: natlfx@fragilex.org
National Fragile X Foundation
PO Box 190488
San Francisco, CA 94119
800-688-8765
925-938-9300
925-938-9315 (Fax)
http://www.fragilex.org
email:NATLFX@FragileX.org
National Institute on Developmental Delays
1900 West MacArthur
Shawnee, OK 75801
(405) 878-5301
(405) 878-5114 (Fax)
http://nidd.us
*Large number of programs, services and information sources available.
Sesame Street and Autism:See Amazing in All Children
http://autism.sesamestreet.org
*Aimed at communities with children ages 2 to 5. Developed with input from parents, people who serve the autism community, and people with autism, See Amazing in All Children offers families ways to overcome common challenges and simplify everyday activities.A terrific Autism Resource page for parents and everybody else.
The Hydrocephalus Association
870 Market Street, Suite 705
San Francisco, CA 94102.
888-598-3789.
(415) 732-7040
(415) 732-7044 (Fax)
http://www.hydroassoc.org/
Email: info@hydroassoc.org
The Temple University Collaborative on Community Inclusion
1700 N. Broad Street, Suite 313
Philadelphia, PA 19122
215-204-6779
http://tucollaborative.org
E-mail: tucollab@temple.edu *We provide evidence-based resources that consumers, agencies, and policy makers can use to increase community participation across varied life domains.
United Cerebral Palsy (UCP)
1660 L Street, NW, Suite 700
Washington, DC 20036
(800) 872-5827
TTY (202) 973-7197
(202) 776-0414 (Fax)
http://www.ucp.org
*Excellent state-by-state resource guide. E-mail your local chapter for more information.
University of California, Los Angeles/Neuropsychiatric Institute and Hospital
300 UCLA Medical Plaza, Suite 3302
Los Angeles, CA 90095-6967
http://tarjancenter.ucla.edu/
Williams Syndrome Changing Lives Foundation
727-557-7177
https://globalgenes.org/raredaily/williams-synd...
E-mail: info@wschanginglives.org The Williams Syndrome Changing Lives Foundation is a non-profit organization centered on increasing awareness, increasing education for families, the community, physicians and therapists. We provide needed financial assistance with medical, therapeutic, recreational and other developmental resources.
 
Early Intervention
Association for Comprehensive NeuroTherapy
PO Box 159
Grosse Ile, MI 48138-0159
561-798-0472
https://latitudes.org/behavior-charts
* A nonprofit that focuses on providing complementary and alternative treatments for neurological and behavioral disorders. Our community primarily consists of families with special needs kids.
Behavior Change Institute
Corporate Office
Oakland , CA
1-866-273-2451
(866) 273-2451
http://www.behaviorchangeinstitute.com
E-mail: info@behaviorchangeinstitute.com *Behavior Change Institute is committed to improving the lives of children and families affected by autism and other developmental disabilities through provision of individualized treatment based on the principles of Applied Behavior Analysis (ABA). We partner with our families to develop high quality treatment options that are unique to the individual needs of each child. All of our treatment options target functional skill acquisition across multiple domains and are offered in numerous settings, including home, school, and the community.
Early Childhood Technical Assistance Center (ECTA Center)
517 South Greensboro Street
Carrboro, NC 27510
(919) 962-2001
TDD (919) 843-3269
(919) 966-7463 (Fax)
http://ectacenter.org
E-mail: nectac@unc.edu NECTAC is the national early childhood technical assistance center supported by the U.S. Department of Education's Office of Special Education Programs (OSEP) under the provisions of the Individuals with Disabilities Education Act (IDEA). NECTAC serves Part C-Infant and Toddlers with Disabilities Programs and Part B-Section 619 Preschool Programs for Children with Disabilities in all 50 states and 10 jurisdictions to improve service systems and outcomes for children and families.
Early Start/Department of Developmental Services
1600 9th Street
Sacramento, CA 95814
1-800-515-2229
http://www.dds.ca.gov/EarlyStart/home.cfm
First 5 of California
2389 Gateway Oaks Drive, Suite 260
Sacramento, CA 95833
(916) 263-1050
(916) 263-1360 (Fax)
http://www.ccfc.ca.gov
E-mail: info@ccfc.ca.gov
National Association for the Education of Young Children
1313 L. Street, NW, Suite 500
Washington, DC 20005
(800) 424-2460
(202) 232-8777
(202) 328-1846 (Fax)
http://www.naeyc.org
National Center for Infants, Toddlers and Families (Zero to Three)
2000 M Street, NW, Suite 200
Washington, DC 20036
(202) 638-1144
http://www.zerotothree.org
Western Office: 350 South Bixel, suite 150 Los Angeles, California 90017 (213) 481-7279
Office of Head Start-US Administration for Children & Families
370 L'Enfants Promenade, SW
Washington, DC 20447
http://www.acf.hhs.gov/programs/ohs
Provides a State by State program finder.
Zero To Three
1255 23rd Street, NW, Suite 350
Washington, DC 20037
(202) 638-1144
(202) 638-0851 (Fax)
http://www.zerotothree.org
*ZERO TO THREE is a national nonprofit organization that provides parents, professionals and policymakers the knowledge and the know-how to nurture early development.
 
Education
California Department of Education
1430 N Street
Sacramento, CA 95814
(916) 319-0800
http://www.cde.ca.gov
California Department of Special Education
1430 N Street
Sacramento, CA 95814
(916) 319-0800
http://www.cde.ca.gov/sp/se/
Childswork/Childsplay
1-800-962-1141
https://childswork.com
*Provides products for the teaching and counseling of special needs and emotionally troubled kids and teens. For over 25 years our children’s learning toys, therapeutic activities for kids, and tools for social skills training (individual and/or in groups) have been used by special education professionals, parents, counselors, and therapists worldwide. The full product line includes games, books, and multimedia tools.
Education Resources Information Center
655 15th Street, NW Suite 500
Washington, DC 20005
(800) 538-3742
https://ies.ed.gov/ncee/projects/eric.asp
*Large clearinghouse of information.
IDEA 2004/U.S. Department of Education
https://sites.ed.gov/idea
*Updated IDEA Act information for all age groups.
National Center on Accessible Instructional Materials at CAST, Inc.
40 Harvard Mills Square, Suite 3
Wakefield, MA 01880
(781) 245-2212
http://aem.cast.org
*Provides a wide variety of information and resources, including training events Nationwide, regarding Accessible Instructional Materials. A state-by-state listing of programs and services is also available from the home page.
Special Education Advisor
9909 Topanga Canyon Blvd. #169
Chatsworth, CA 91311
(818) 993-3011
http://www.specialeducationadvisor.com
* An online Special Education & IEP Advisor covering a wide base of special education and IEP/504 topics.
Speech Therapy Ideas and Speech Therapy Activities
http://www.speechtherapyideas.com
*Provides speech therapy ideas and activities developed by a licensed Speech Language Pathologist for parents and professionals.
The Council for Exceptional Children
2900 Crystal Drive, Suite 1000
Arlington, VA 22202
(888) 232-7733
TTY: (866) 915-5000
(703) 264-9494 (Fax)
http://www.cec.sped.org
*The Council for Exceptional Children is an international community of professionals who are the voice and vision of special and gifted education. CEC's mission is to improve, through excellence and advocacy, the education and quality of life for children and youth with exceptionalities and to enhance engagement of their families.
Think Inclusion
http://www.thinkinclusive.us
E-mail: timvillegas@thinkinclusive.us * An informational blog with wide ranging information and experience in educational inclusion. A Recommended Read.
U.S. Department of Education//My Child's Special Needs
400 Maryland Avenue, SW
Washington, DC 20202
1-800-872-5327
http://www2.ed.gov/parents/needs/speced/edpicks...
*Contains a large data base of information regarding programs, legislation, resources, parent helps, etc.
We Connect Now
McIlhenny Drive
Baton Rouge, LA 70809
http://weconnectnow.wordpress.com
E-mail: weconnectnow2008@gmail.com *We Connect Now is dedicated to uniting people on issues which affect people with disabilities, with emphasis on college students higher education & employment.
Employment
The Employer Assistance and Resource Network on Disability Inclusion (EARN)
https://www.askearn.org
Email: askearn@viscardicenter.org *A free resource that helps employers tap the benefits of disability diversity. We educate public- and private-sector organizations on ways to build inclusive workplace cultures, and we empower them to become leaders in the employment and advancement of people with disabilities.
We Connect Now
McIlhenny Drive
Baton Rouge, LA 70809
http://weconnectnow.wordpress.com
E-mail: weconnectnow2008@gmail.com *We Connect Now is dedicated to uniting people on issues which affect people with disabilities, with emphasis on college students higher education & employment.
Your Ticket To Work
1-866-968-7842
https://www.ssa.gov/work/
*Ticket to Work is a free and voluntary program that can help Social Security beneficiaries go to work, get a good job that may lead to a career, and become financially independent, all while they keep their Medicare or Medicaid. Individuals who receive Social Security benefits because of a disability and are age 18 through 64 probably already qualify for the program.
 
Equipment
Tadpole Adaptive
3940 7th Avenue, Suite 103
San Diego, CA 92103
(877) 698-2376
619-881-0044 (Fax)
http://www.tadpoleadaptive.com
Email: sales@tadpoleadaptve.com *Tadpole Adaptive is a website that specializes in pediatric special needs equipment. It was co-founded by a physical therapist and a wheelchair user. There is a physical therapist on staff that can help individuals make sound choices for their equipment needs. Also, Tadpole Adaptive has a registry, where families can register for their adaptive equipment. This gives individuals the opportunity to do their own fundraising. For example, families can say, "In lieu of Christmas presents this year, please make a donation to our registry at Tadpole Adaptive."
USA TechGuide
75-20 Astoria Blvd
Jackson Heights, NY 11370
718-803-3782
http://www.usatechguide.org
E-mail: usersfirst@unitedspinal.org *USA TechGuide is a web guide to wheelchairs, mobility scooters, and assistive technology choices. You can read and submit wheelchair reviews, mobility scooter reviews, wheelchair cushion reviews, standing device reviews, and search The TechGuide for all types of assistive equipment.
Wheelchair
http://www.newdisability.com/articles.htm
* A european website with many useful wheelchair related articles and interesting video. Click on "Articles" in the left hand menu.
 
Housing Programs - Government
Paralyzed Veterans of America
801 18th Street NW
Washington, DC 20006-3517
1-800-424-8200
http://www.pva.org
*Not just for paralyzed Veterans, not just for paralysis. Ask for their Architecture Program! **SNRP recommends their publication "Accessible Home Design".
Public Housing Authorities Directors Association/Local Housing Authority Sites
http://www.phada.org/ha_list.php
*Site lists for city/community Housing Authorities (listed by state).
Housing Programs - Private
California Housing Partnership Corporation
369 Pine Street, Suite 300 (Main Office)
San Francisco, CA 94104
(415) 433-6804
(415) 433-6805 (Fax)
http://www.chpc.net
E-mail: info@chpc.net
Center For Universal Design North Carolina State University
P.O. Box 8613
Raleigh, NC 27695-8613
(800) 647-6777
V/TTY:(919) 515-3082
(919) 515-3023 (Fax)
http://www.ncsu.edu/ncsu/design/cud/index.htm
*Please check the publications listings for detailed information.
Habitat for Humanity
121 Habitat Street
Americus, GA 31709-3498
1-800-422-4828
1-229-924-6935
http://www.habitat.org
*For information on eligibility,locations, projects and supported communities in your state click on "Contact Us" and then search for location.
Habitat for Humanity/United States
121 Habitat Street
Americus, GA 31709
1-800-422-4828
https://www.habitat.org/where-we-build
E-mail: publicinfo@habitat.org *Find local programs in your community.
IDeA ~ Center for Inclusive Design and Environmental Access
3435 Main Street, 114 Diefendorf Hall
Buffalo, NY 14214-3087
(716) 829-5902
(716) 829-3861 (Fax)
http://www.ap.buffalo.edu/idea/Home/index.asp
E-mail: ap-idea@buffalo.edu *The IDeA Center is dedicated to making environments and products more usable, safer and healthier in response to the needs of an increasingly diverse population. The IDeA Centers activities are based on the philosophy of Inclusive Design, often called Universal Design or Design for All.ť It is a way of thinking that can be applied in any design activity, business practice, program or service involving interaction of people with the physical, social or virtual worlds.
Institute for Human Centered Design (Adaptive Environments)
180-200 Portland Street, Suite 1
Boston, MA 02114
(617) 695-1225
(617) 482-8099 (Fax)
http://humancentereddesign.org
E-mail: info@HumanCenteredDesign.org
National Resource Center on Supportive Housing and Home Modification/University of Southern California
3715 McClintock Avenue
Los Angeles, CA 90089-0191
(213) 740-1364
(213) 740-7069 (Fax)
https://www.homemods.org/directory/nrcshhm/inde...
email: homemods@usc.edu
Ramps dot Org ~Free Ramp Program list
(877)312-6989
http://www.ramps.org/free-ramps.htm
E-mail: questions@ramps.org *Ramps.org is here to help you decide what type of wheelchair ramp is right for your specific situation. Need assistance programs? Click on FREE RAMP PROGRAMS at the bottom of the left-hand menu for a listing of programs in your state.
Rebuilding Together/National Headquarters
1536 16th Street, N.W.
Washington, DC 20036
1-800-473-4229
http://www.rebuildingtogether.org
*Currently has 225 affiliates, nationwide. Click on "Affiliates" for the Affiliate office nearest you.
The National Resource Center on Supportive Housing and Home Modification (NRCSHHM)
3715 McClintock Avenue
Los Angeles, CA 90089
(213) 740-1364
(213) 740-7069 (Fax)
https://www.homemods.org/directory/nrcshhm/inde...
*Contains a State-by-state resource registry of home modification resources.
Independent Living Organizations
California State Independent Living Council (SILC)
1600 K Street, Suite 100
Sacramento, CA 95814
(916) 445-0142
http://www.calsilc.org
*Contact for the branch office in your area.
Center for Independent Living (CIL)
2539 Telegraph Avenue
Berkeley, CA 94704
(510) 841-4776
TTY (510) 848-3101
http://www.cilberkeley.org/
*See site for regional and Spanish Speaking offices.
Independent Living Research Utilization Project/The Institute for Rehabilitation and Research
2323 So. Sheppard, Suite 1000
Houston, TX 77019
(713) 520-0232
TTY: (713) 520-5136
http://www.ilru.org/projects/cil-net/cil-center...
email: ilru@ilru.org Contact information for Statewide Independent Living Councils listed by state.
Tierra del Sol Foundation
9919 Sunland Blvd.
Sunland, CA
(818) 352-1419
http://tierradelsol.org
Indian Health Services
California Area Indian Health Service
650 Capitol Mall Suite 7-100
Sacremento, CA 95814
(916) 930-3927
(916) 930-3952 (Fax)
http://www.ihs.gov/california/
*The vision of the California Area Indian Health Service (CAIHS) is to raise the health status of American Indians to the highest possible level by supporting Tribal governments and urban Indian communities in the development and administration of comprehensive health care delivery systems that meet the needs of Indian people.
National Council of Urban Indian Health
924 Pennsylvania Ave., SE
Washington , DC 20003
202-544-0344
http://www.ncuih.org
US Department of Indian Health Services
801 Thompson Avenue, Ste. 400
Rockville, MD 20852-1627
(See Contact Listing)
http://www.ihs.gov
* Complete program and regional office listings for IHS Services
 
Information
ADA Document Portal
http://adata.org/ada-document-portal
*The ADA Web Search Portal is a focused search of important websites that contain information about the ADA. The purpose of the Portal is to connect individuals with high quality information about the Americans with Disabilities Act and to assist individuals in answering ADA questions.
ADA National Network
U.S. Department of Justice,950 Pennsylvania Avenue, NW,Disability Rights Section - NYA
Washington, DC 20530
1-800-949-4232
800-514-0383 (TTY)
http://adata.org
*Contact Your Regional Office using the map on the home page. For information and assistance call the information line listed above.
American Association on Health and Disability
110 N. Washington Street, Suite 328-J
Rockville, MD 20850
(301) 545-6140
(301) 545-6144 (Fax)
http://www.aahd.us
E-mail: contact@aahd.us * A large data base of current studies and information regarding disabilities.
Center for Parent Information and Resources (formerly NICHCY)
35 Halsey St., Fourth Floor
Newark, NJ 07102
(973) 642-8100
http://www.parentcenterhub.org
*The Center for Parent Information and Resources (CPIR) serves as a central resource of information and products to the community of Parent Training Information (PTI) Centers and the Community Parent Resource Centers (CPRCs), so that they can focus their efforts on serving families of children with disabilities.
Child Development Institute
1442 E Lincoln Avenue Suite 121
Orange, CA 92865
https://childdevelopmentinfo.com
*The “go to” site for parents for information, products and services related to child development, psychology, health, parenting, learning, media, entertainment, family activities as well as to connect with other parents, professional experts organizations and other useful websites. The goal of our website is to promote healthy development to enable children to reach their true potential for a successful and rewarding life.
Complex Child- Online Magazine
http://complexchild.org
Email: info@complexchild.org *Complex Child is a monthly online magazine written by parents of children with special healthcare needs and disabilities. It is intended to provide medical information, along with personal experiences, in simple language that other parents can understand.
Disability History Museum
(413)369-4372
(413)369-4784 (Fax)
http://www.disabilitymuseum.org
E-mail:info@straightaheadpictures.org *The Disability History Museum hosts a Library of virtual artifacts, Education curricula, and Museum exhibits. These programs are designed to foster research and study about the historical experiences of people with disabilities and their communities.
Disability Information.Gov
https://webarchive.library.unt.edu/eot2008/2008...
*This site is archived but still contains a large database of useful links. Please be aware some links may no longer work.* Large Federal database providing easy access to comprehensive information about disability programs, services, laws and benefits. To find disability resources in your state just click on the Find State and Local Resources map located in each of the subject areas listed in their menu.
Enabled Kids
(416) 250-1904
http://enabledkids.ca
E-mail: natan@enabledkids.ca *"Enabling children to function independently"
Foundation for Health Coverage Education® (FHCE)
800-234-1317
http://www.coverageforall.org
Email: fhceinfo@coverageforall.org * Assists individuals and families find health care coverage in their area.
Georgia Mental Health Consumer Network, Inc.
http://www.gmhcn.org/links.html
* An informational/Resource Links site with information regarding many state/private programs. Contains information links for several states.
Girls Health.gov
8270 Willow Oaks Corporate Drive, Suite 301
Fairfax, VA 22031
http://www.girlshealth.gov/
*See "Illness and Disability" tab. Excellent information resource.
Great Lakes ADA Center
MC 728 - 1640 W. Roosevelt Road, Room 405
Chicago, IL 60608
312-413-1407 (V/TTY)
877-232-1990 (V/TTY)
312-413-1856 (Fax)
http://www.accessibilityonline.org
* The ADA National Network provides a comprehensive set of services for up-to-date information, consultation, referrals, resources, and training on the Americans with Disabilities Act for businesses, employers, governmental entities, service providers and individuals with disabilities.
Health Care dot Gov
http://www.healthcare.gov/index.html
*Provides current and up to date information regarding health care legislation and a state-by-state guide to insurance programs available in every state.
IMPACT on Health and Wellness (Family Voices)
3701 San Mateo Blvd. NE, Suite 103
Albuquerque, NM 87110
(505) 872-4774
(888) 835-5669
(505) 872-4780 (Fax)
http://www.familyvoices.org/projects?id=0001
*IMPACT is a project of national Family Voices. Our goal is to promote a holistic, culturally relevant approach to health and wellness for all families and children including those with special healthcare needs and disabilities.
National Organization on Disability
910 Sixteenth Street, N.W., Suite 600
Washington, DC 20006
(202) 293-5960
TTY: (202) 293-5968
(202) 293-7999 (Fax)
https://www.nod.org
E-mail: ability@nod.org
Safe Kids Worldwide
1255 23rd Street, NW, Suite 400
Washington, DC 20037
202-662-0600
202-393-2072 (Fax)
https://www.safekids.org
*Safe Kids Worldwide is a global organization dedicated to preventing injuries in children, the number one killer of kids in the United States.
Special Needs Resource Group
1823 12th Street Suite #5
Santa Monica, CA 90404
310-392-0835
http://www.specialneedsrg.com
E-mail: barbara@specialneedsrg.com Our goal is to help children, ages zero through the teen years, grow at their optimal levels of development and learning by helping parents find the very best professionals in greater Los Angeles who will work together as a special needs management team.
United Spinal Association
75-20 Astoria Boulevard
Jackson Heights, NY 11370
800-404-2898
(718) 803-3782
(718) 803-0414 (Fax)
http://www.unitedspinal.org/disability-publicat...
*Linda's favorite down-loadable informational resource. Linda recommends the following booklets: Disability Etiquette (PDF), Taking Action (PDF), Adaptive Automotive Equipment (PDF), The Americans with Disabilities Act (PDF),The Fair Housing Amendments Acts (PDF) and Accessing Local Government (PDF). Please see the menu page for other publications you may be interested in.
 
Insurance Assistance Programs
Good Rx dot com
501 Santa Monica Blvd.Suite 403
Santa Monica, CA 90401
1-888-799-2553
http://www.goodrx.com
*Comparison shop for over 6000 FDA approved medications at 70,000 pharmacies nationwide. With or without insurance this site can save you money.
Healthcare Dot Gov
200 Independence Avenue, S.W.
Washington, DC 20201
http://www.healthcare.gov
*Provides a wide variety of current health care information. State-by-State listings will help consumers compare programs and services in their communities.
Insure Kids Now dot gov
1-877-543-7669
http://www.insurekidsnow.gov
E-mail: CMSOCHIPRAQuestions@cms.hhs.gov *InsureKidsNow.gov provides information about Medicaid and CHIP services for families who need health insurance coverage. These programs are designed to be affordable for families who are not able to afford health insurance coverage in the private market or do not have coverage available to them. Even if you've been turned down in the past, you may be able to get health coverage for your child now. Learn more about health coverage programs in your state. How to Contact Us: If you have specific questions about health insurance for your children, please contact the programs in your state or make a free call to 1-877-543-7669, our free and confidential hotline, where you'll be connected directly to someone from your state who will help you apply.
Patient Access Network (PAN) Foundation
PO Box 221858
Charlotte, NC 28222
1-866-316-7263
1-866-316-7261 (Fax)
https://www.panfoundation.org
E-mail: contact@panfoundation.org *The Patient Access Network Foundation is an independent, national 501 (c)(3) organization dedicated to providing underinsured patients with financial assistance through more than 50 disease-specific funds that provide access to progressive therapies.
Patient Advocate Foundation
421 Butler Farm Road
Hampton, VA 23666
(800) 532-5274
(757) 873-8999 (Fax)
http://patientadvocate.org
*Provides effective mediation and arbitration services to patients to remove obstacles to healthcare including medical debt crisis, insurance access issues and employment issues for patients with chronic, debilitating and life-threatening illnesses.
 
Legal Advocacy/Information
ADA Dot Gov/US Department of Justice Civil RIghts Division
950 Pennsylvania Avenue, NW Civil Rights Division, Disability Rights Section - NYA
Washington, DC 20530
800 - 514 - 0301
800 - 514 - 0383 (TTY)
http://www.ada.gov
*The U.S. Department of Justice provides information about the Americans with Disabilities Act (ADA) through a toll-free ADA Information Line.
American Bar Association
http://apps.americanbar.org/legalservices/findl...
*Consumer's Guide to Legal Help - Contains a state-by-state listing.
Council of Parent Attorneys and Advocates
P.O. Box 6767
Towson, MD 21285
(443) 451-5270
(443) 451-2680 (Fax)
http://www.copaa.org
*COPAA’s mission is to protect and enforce the legal and civil rights of students with disabilities and their families. Our primary goal is to secure high quality educational services and to promote excellence in advocacy. Has a MILITARY resource Section under "Parents".
Disability Rights Advocates
2001 Center Street, Third Floor
Berkeley, CA 94704-1204
(510) 665-8644
http://www.dralegal.org/
email: general@dralegal
Disability Rights California
1831 K Street
Sacramento, CA 95811
916-504-5800
1-800-719-5798 TTY
916-504-5802 (Fax)
http://www.disabilityrightsca.org
*Advocate, Educate, Investigate and Litigate to advance and protect the rights of Californians with disabilities. Please click on "Contact Us" for the branch in your region.
Disability Rights Education & Defense Fund
2212 Sixth Street
Berkeley, CA 94710
Toll Free: (800) 348-4232
(510) 841-8645 (Fax)
http://www.dredf.org/
email: info@dredf.org
Disability Rights Education and Defense Fund (DREDF)
2212 Sixth Street
Berkley, CA 94710
(510) 644-2555
http://www.dredf.org
National Association of Indian Legal Services
300 Third Street, Suite 210
Wausau, WI 54403
1-800-472-1638
(715) 842-1681
(715) 848-1885 (Fax)
http://www.judicare.org/Content/National_Indian...
E-mail: info@judicare.org *See home page for state by state listing of service centers.
National Health Law Program (NHelp) Main Office
2639 South La Cienega Blvd
Los Angeles, CA 90034-2675
(310) 204-6010
(310) 204-0891 (Fax)
http://www.healthlaw.org
Email: nhelp@healthlaw.org * NHeLP serves legal services programs, community-based organizations, the private bar, providers and individuals who work to preserve a health care safety net for the millions of uninsured or underinsured low-income people.
National Resource Center for Supported Decision-Making
202-448-1448
http://www.supporteddecisionmaking.org
E-mail: JHJP@dcqualitytrust.org *Information about the Right to Make Choices – the right we all have to make our own decisions and direct our own lives. See state map for your state. Can connect you with people and organizations that may be able to help you, and answer your questions.
The Special Needs Alliance
http://www.specialneedsalliance.org
*Provides a national list of lawyers specializing in special needs trusts and other resources by state.
Utah State Courts Guardianships and Conservatorships
http://www.utcourts.gov/howto/family/gc/
*A large "How To" database full of information required to go through the process for minors and adults. Geared for Utah this site is still useful for other states.
Wright's Law
http://www.wrightslaw.com
 
Legislative
Children's Defense Fund
2201 Broadway Suite 705
Oakland, CA 94612
(510) 663-3224
(510) 663-1783 (Fax)
http://www.cdfca.org
Children's Defense Fund
3655 S. Grand Avenue, Suite 270
Los Angeles, CA 90007
(213) 749-8787
(213) 749-4119 (Fax)
http://www.cdfca.org/
Medical Centers/Hospitals/Clinics
California Pacific Medical Center
3700 California Street
San Francisco, CA 94118
(415) 600-6000
http://www.cpmc.org
*Regional Referral Center.
Children's Hospital and Research Center Oakland
747 52nd Street
Oakland, CA 94609
(510) 428-3000
http://www.childrenshospitaloakland.org
Children's Hospital Central California
9300 Valley Children's Place
Madera, CA 93638
(559) 353-3000
http://www.childrenscentralcal.org
Children's Hospital Los Angeles
4650 Sunset Blvd.
Los Angeles, CA 90027
(323) 660-2450
http://www.childrenshospitalla.org
Loma Linda University Children's Hospital
11234 Anderson Street
Loma Linda, CA 92354
(909) 558-8000
http://www.llu.edu/lluch
Los Angeles Shriners Hospital (Orthopedic)
3160 Geneva St.
Los Angeles, CA 90020
(213) 388-3151
(213) 387-7528 (Fax)
http://www.shrinershq.org/Hospitals/Los_Angeles
Lucile Packard Children's Hospital
725 Welch Road
Palo Alto, CA 94304
(650) 497-8000
http://www.lpch.org
*Operates 3 satellite facilities in the Bay Area. See website for details.
Mattel Children's Hospital at UCLA
10833 Le Conte Ave.
Los Angeles, CA 90095
(310) 825-8518
http://www.healthcare.ucla.edu/mattel/
Northern California Shriners Hospital
2425 Stockton Blvd.
Sacramento, CA 95817
(916) 453-2000
(916) 453-2352
(916) 453-2352 (Fax)
http://www.shrinershospitalsforchildren.org/en/...
*Specialty facility. Specializes in burns, spinal cord injuries and orthopedics.
Rady Children's Hospital
3020 Children's Way
San Diego, CA 92123
(858) 576-1700
http://www.chsd.org
Shriner's of North America (International)
2900 Rocky Point Dr.
Tampa, FL 33607-1460
(800) 237-5055
http://www.shrinersinternational.org
Charitable children's hospitals specializing in burn and orthopedic treatment. Check for the hospital nearest your area.
Speech 2 You LLC
770-880-7935
702-802-9704
http://www.speech2you.org
E-mail: info@speech2you.org *Provides online speech and language services through Telepractice.
The National Association of Free & Charitable Clinics
1800 Diagonal Road, Suite 600
Alexandria, VA 22314
703-647-7427
866-875-3827 (Fax)
http://nafcclinics.org
Email: Info@nafcclinics.org * The National Association of Free and Charitable Clinics (NAFC) is the only nonprofit 501c(3) organization whose mission is solely focused on the issues and needs of the more than 1,200 Free and Charitable Clinics and the people they serve in the United States.
UC Davis Children's Hospital
2315 Stockton Blvd.
Sacramento, CA 95817
(800) 824-5437
(916) 734-2011
http://www.ucdmc.ucdavis.edu/children/
Medical Information/Research Organizations
American Academy of Pediatrics/Childhood Immunization Support Program
141 Northwest Point Blvd.
Elk Grove Village, IL 60007
http://www.cispimmunize.org/
*Information regarding childhood immunizations.
American Association of Pediatrics
141 Northwest Point Blvd.
Elk Grove Village, IL 60007
(847) 434-4000
http://www.aap.org
General information regarding diagnosis and treatment of pediatric disorders and diseases as well as some referral services.
American Medical Association
515 No. State St.
Chicago , IL 60610
(800) 621-8335
http://www.ama-assn.org
General information regarding diagnosis,treatment and current research in the medical community.
American Occupational Therapy Association, Inc.
4720 Montgomery Lane
Bethesda, MD 20824-1220
(301) 652-2682
TDD: 1-800-377-8555
(301) 652-7711 (Fax)
http://www.aota.org/
American Speech-Language-Hearing Association
10801 Rockville Pike
Rockville, MD 20852
(800) 638-8255
http://www.asha.org
* Has an extensive database of Audiologists and Speech-Language Pathologists. Click on "Find a Professional".
Annette and Irwin Eskind Biomedical Library (at Vanderbilt University)
2209 Garland Avenue
Nashville, TN 37232-8340
(615) 936-1410
(615) 936-1384 (Fax)
http://www.mc.vanderbilt.edu/biolib/index.html
Birth Defects Research for Children, Inc.
800 Celebration Avenue, Suite 225
Celebration, FL 34747
(407) 566-8304
(407) 566-8341 (Fax)
http://www.birthdefects.org/
Columbus Children's Research Institute
700 Children's Drive
Columbus, OH 43205
(614) 722-2000
(614) 722-2716 (Fax)
http://columbuschildrens.com/GD/Templates/Pages...
Consumer Reports Medical Guide
http://www.consumerreports.org/cro/health/index...
Medical reports on a wide variety of topics. *ALWAYS consider the source when reviewing medical information
FDA New Pediatric Labeling Information Database
10903 New Hampshire Avenue
Silver Springs, MD 20993
1-888-463-6332
http://www.accessdata.fda.gov/scripts/sda/sdNav...
The Pediatric Labeling Information Database is a one-stop resource. You can search for information by the products commercial or chemical name, or by the condition for which it was studied. FDA's Office of Pediatric Therapeutics (OPT), which focuses on safety, scientific, and ethical issues that arise in pediatric clinical trials or after products are approved for use in children, developed the tool in collaboration with another branch of the agency, the Center for Drug Evaluation and Research.
National Network of Libraries of Medicine (NNLM)
8600 Rockville Pike,Bldg. 38, Room B1-E03
Bethesda, MD 20894
https://nnlm.gov
*The mission of NNLM is to advance the progress of medicine and improve the public health by providing all U.S. health professionals with equal access to biomedical information and improving the public's access to information to enable them to make informed decisions about their health. The Program is coordinated by the National Library of Medicine and carried out through a nationwide network of health science libraries and information centers.
Speech Therapy Ideas and Speech Therapy Activities
http://www.speechtherapyideas.com
*Provides speech therapy ideas and activities developed by a licensed Speech Language Pathologist for parents and professionals.
The Early Childhood Research Institute on Culturally and Linguistically Appropriate Services (CLAS)
61 Children's Research Center
Champaign, IL 61821
(877) 275-3227
(217) 333-4123
http://www.clas.uiuc.edu/aboutclas.html
*Dear Visitors: Federal funding for this website ended in 2003, therefore few materials have been added since that time. Fortunately, there is continued interest in culturally and appropriate materials, curriculum, and programs. Because of this, we have allowed this site to remain as an archive. Please feel free to use this site, but recognize that it is no longer current.
 
Military Family Support Organizations
Child Care Aware - Military Programs
3101 Wilson Blvd. Suite 350
Arlington, VA 22201
1-800-424-2246
TTY:1-866-278-9428
(703) 341-4101 (Fax)
http://usa.childcareaware.org
Child Care Aware is a cooperative program of the National Association of Child Care Resource and Referral Agencies. Funded through the Office of Family Assistance, Administration for Children and Families, U.S. Department of Health and Human Services. **SNRP does NOT endorse this site. Listed for reference only. Use responsible caution when investigating ALL care providers.
 
Military Quick Links (National Guard, Reserve, Active Duty)
ABA Military Pro Bono Project
321 N. Clark St.
Chicago, IL 60654
312-988-5783
http://www.militaryprobono.org
*The ABA Military Pro Bono Project accepts case referrals from military attorneys on behalf of junior-enlisted, active-duty military personnel and their families with civil legal problems, and it places these cases with pro bono attorneys where the legal assistance is needed. The Project is also the platform for Operation Stand-By, through which military attorneys may seek attorney-to-attorney advice to further assist their service member clients.
American Bar Association/Military Lawyers
http://www.americanbar.org/portals/military_law...
*Scroll down the home page to the very bottom for Military and Veteran Bar Association listings.
Children's Medical Services/California Department of Social Services
9616 Micron Ave. Suite 640
Sacramento, CA 95827
(916) 875-9900
http://www.dhcs.ca.gov/services/Pages/CMS.aspx
DoD Forms Management Program
http://www.esd.whs.mil/Directives/forms/dd0001_...
*Find Dependency Determination Forms here. Scroll down to the DD 137-5 Dependency Statement - Incapacitated Child Over Age 21 and click on the form number. This form can be filled out on line.
Easter Seals National Headquarters
230 W. Monroe St., Suite 1800
Chicago, IL 60606
(800) 221-6827
TTY 312-726-4258
(312) 726-1494 (Fax)
http://www.easterseals.com
*Contact for the chapter closest to you. Ask your local chapter for camps, grants, respite services and other services available in your area.
Exceptional Family Member Program/All Branches/Mobile
http://apps.militaryonesource.mil/pls/psgprod/f...
Contains contact information, Base program locators and enrollment/justification forms for ALL Branches of service.
Kids' Waivers/Medicaid Waiver Programs
http://www.kidswaivers.org
Medicaid waivers for children are unfortunately quite confusing. Not only that, but it is impossible to find information about them. This project State-by-State is intended to simplify the process as much as possible.
Medicaid Waiver dot Org
http://medicaidwaiver.org
*A state-by-state Medicaid Waiver program listing. Please note: Medicaid programs do not transfer. If you're planning a move you'll want to do some homework. Start here then go to the official page of the state you are considering.
Military Home Front/Exceptional Family Member Program (EFMP)
http://www.militaryonesource.mil/-/the-exceptio...
*Over 100,000 military families have members with special needs. These include spouses, children, or dependent parents who require special medical or educational services. These family members have a diagnosed physical, intellectual, or emotional condition. The Exceptional Family Member Program (EFMP) works with these families to address their unique needs.The materials within this section of Military HOMEFRONT are designed to give service members and their families critical information and resources related to the EFMP program.
Military One Source
800-342-9647
http://www.militaryonesource.mil
* A DoD supported site. Military OneSource has policy and programmatic information, helpful resources, products, articles and tips on numerous topics related to military life. Confidential services are available 24 hours a day by telephone and online. In addition to the website support, Military OneSource offers confidential call center and online support for consultations on a number of issues such as spouse education and career opportunities, issues specific to families with a member with special needs, health coaching, financial support, and resources.
Military Parent Technical Assistance Center
6316 S 12th St
Tacoma, WA 98465
(253) 565-2266
(800) 572-7368
https://branchta.org
E-mail: thebranch@wapave.org * Provides Base EFMP and Special Needs contact information for all regions, all branches of service.
National Military Family Association
3601 Eisenhower Avenue, Suite 425
Alexandria, VA 22304
http://www.militaryfamily.org
E-mail: infor@militaryfamily.org *Click on Info & Resources links for EFMP=Special Needs information.
Social Security Administration Information for Parents
National Info. 1-800-772-1213
http://www.ssa.gov/pgm/links_ssi.htm
*Benefits information and local office addresses with contact information available by state and city.
State & Local Government on the Net
http://statelocalgov.net/50states-military-vete...
*State listings for Military and Veterans sites within the 50 United States.
The National Guard Family Program
https://www.jointservicessupport.org/fp/
*Click on Contacts & Resources to find your state program.
The National Resource Directory
http://www.nationalresourcedirectory.gov
The National Resource Directory (NRD) provides access to services and resources at the national, state and local levels that support recovery, rehabilitation and community reintegration.
The Special Needs Alliance
http://www.specialneedsalliance.org
*Provides a national list of lawyers specializing in special needs trusts and other resources by state. Check here for help with Guardianship, incapacitation, trusts and other pertinent topics.
United Cerebral Palsy (UCP)
1660 L Street, NW, Suite 700
Washington, DC 20036
(800) 872-5827
TTY (202) 973-7197
(202) 776-0414 (Fax)
http://www.ucp.org
*Contact for your local chapter. Excellent state-by-state resource guide.
United Way
701 N. Fairfax St.
Alexandria, VA 22314
https://www.unitedway.org/local/united-states
*Non-profit charitable organization offering a variety of services including camps, respite, grants, etc. Find your local chapter here.
 
Other
Adaptions By Adrian
P.O. Box 7
San Marcos, CA 92079-0007
1-877- 623 - 7426
http://www.adaptationsbyadrian.com/
Email: adrians1@sbcglobal.net *Clothing adaptions.
Disability Studies, Temple University Blog
http://disstud.blogspot.com
*Based at Temple University but with nationwide contributors. Has a LARGE list of disability related blogs.
Parent Support Programs
A Mother's Rest Charitable Respite Foundation
P.O. Box 131
Monrovia, MD 21770
https://www.amothersrest.org
Email: innkeeper@amothersrest.org *Non-profit AMR coordinates affordable, 3-night respite retreats with our national network of bed and breakfast inn partners. Proactive health initiative. Exclusively for parents and caregivers of children or adults with ANY extra need. Serving bio & adoptive parents. Moms, Dads, Couples, Grandparents, Special Educators, Mommy & Me, Daddy & Me, Families. Funding for child care and summer camp grants, financial planning, employment
Autism Support Network
P.O. Box 1525
Fairfield, CT 06824
(203) 404-4929
(203) 404-4969 (Fax)
http://www.autismsupportnetwork.com
E-mail: info@AutismSupportNetwork.com *The mission of Autism Support Network is: connect, guide and unite. Our goal is to short-cut the uphill battle individuals and families undertake when faced with autism – whether that means the initial diagnosis, the day-to-day living and coping needed, relationship and therapeutic strategies and the latest information. **Use the search engine on the Home Page to find resources in your state areas.
Center for Parent Information and Resources
35 Halsey St., Fourth Floor
Newark, NJ 07102
(800) 654-7726
(973) 642-8100
http://www.parentcenterhub.org/find-your-center/
**Each state has at least one parent center. These should be listed on your state resource links page. If not, click here and find your state on the map.
Compassion Fatigue Awareness Project
http://compassionfatigue.org
The Compassion Fatigue Awareness Project© is dedicated to educating caregivers about authentic, sustainable self-care and aiding organizations in their goal of providing healthy, compassionate care to those whom they serve. E-mail: patricia@compassionfatigue.org
Dads 4 Special Kids, Inc.
P.O. Box 73182
Phoenix, AZ 85050
602-909-5463
602-441-3248 (Fax)
http://dads4specialkids.org
E-mail: ray@dads4specialkids.org *To improve the lives of men and their families who care for children with special needs. We desire to provide an atmosphere where men can share and learn from others. To accomplish this we host monthly meetings, offer workshops that provide knowledge and practical skills for cultivating healthy communication within the marriage and family, and provide information on resources within the valley of the sun.
DadsMOVE (Mentoring Others Withe Voices of Experience)
6315 South 19th Street
Tacoma, WA 98466
http://www.dadsmove.org
*Dads MOVE serves all parents and the families of children with special needs - mental health, behavioral, or emotional concerns, across Washington State and soon, the nation. We are a family-focused, dads driven peer support model, providing education, support, and advocacy to the families of special needs children. CHECK OUT THEIR BLOG!
Disabled Parenting Project (DPP)
http://www.disabledparenting.com
*An online organization, the Disabled Parenting Project is on a mission to leverage technology in order to create opportunities for parents and prospective parents with disabilities to connect and interact, and serve as an information clearinghouse for relevant information about adaptive parenting.
Exceptional Parents Unlimited
4440 N. First Street
Fresno, CA 93726
(559) 229-2000
http://www.exceptionalparents.org
Family Resource Centers Network of California
2601 Mission St., Suite 606
San Francisco, CA 94110
http://www.frcnca.org
*See site for listing of centers statewide.
Family Voices
3701 San Mateo Blvd. NE, Suite 103
Albuquerque, NM 87110
(888) 835-5669
(505) 872-4774
(505) 872-4780 (Fax)
http://www.familyvoices.org
Family Voices aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities. Through our national network, we provide families tools to make informed decisions, advocate for improved public and private policies, build partnerships among professionals and families, and serve as a trusted resource on health care. *Click on your state for local chapter information.
Fiesta Educativa
3839 Selig Place
Los Angeles, CA 90031
(323) 221-6696
Http://www.fiestaeducativa.org
*Regional Chapter listings are available on the home page.
Fiesta Educativa, Inc.
163 So. Avenue 24, Suite 201
Los Angeles, CA 90031
(323) 221-6696
(323) 221-6699 (Fax)
http://fiestaeducativa.org
email: info@fiestaeducativa.org *Latin American Services
Hands and Voices
PO Box 3093
Boulder, CO 80307
(866) 422-0422
http://www.handsandvoices.org/index.htm
E-mail: parentadvocate@handsandvoices.org *Dedicated to supporting families with children who are Deaf or Hard of Hearing without a bias around communication modes or methodology. We're a parent-driven, non-profit organization providing families with the resources, networks, and information they need to improve communication access and educational outcomes for their children, nationwide. Click on the Map to find the chapter in your state.
Matrix Parent Network and Resource Center
94 Galli Drive, Suite C
Novato, CA 94949
(415) 884-3535
http://www.matrixparents.org
Matrix Parent Network and Resource Center Region 6
94 Galli Drive, Suite C
Novato, CA 94949
(800) 578-2592
(415) 884-3535
(415) 884-2592 (Fax)
http://www.matrixparents.org
email: region6@matrixparents.org
Mommies of Miracles
http://www.mommiesofmiracles.com
*Mommies of Miracles is a growing international peer-driven support group of mothers who have children of any age (infant-adult) with complex medical issues, rare or undiagnosed conditions, and/or developmental disabilities.
Parent Technical Assistance Center Network
35 Halsey St., 4th Floor
Newark, NJ 07102
(973) 642-8100
http://www.parentcenterhub.org/rptacs/
*Parent Centers provide training, information and assistance to families of children with all disabilities ages birth to 26 years and the professionals who work with them. Click on the Regional Map to find the program/programs in your state.
Parent to Parent USA (P2PUSA)
2030 M St. NW, Suite 350
Washington, DC 20036
http://www.p2pusa.org/p2pusa/sitepages/p2p-home...
E-mail: memberinfo@p2pusa.org *The site is now closed but still has some archived information.
Parents Helping Parents of Santa Clara
3041 Olcott St.
Santa Clara , CA 95054-3222
(408) 727-5775
http://www.php.com
Rowell Family Empowerment of Northern California
1244 B Hartnell Ave.
Redding , CA 96002
(530) 226-5129
http://www.rfenc.org
Sesame Street & Autism - Resources for Parents
http://autism.sesamestreet.org
*Sesame Workshop created Sesame Street and Autism: See Amazing in All Children, a nationwide initiative aimed at communities with children ages 2 to 5. Developed with input from parents, people who serve the autism community, and people with autism, See Amazing in All Children offers families ways to manage common challenges, to simplify everyday activities, and to grow connections and support from family, friends, and community.
Sibling Support Project/A Kindering Center Program
6512 23rd Ave NW, #213
Seattle, WA 98117
(206) 297-6368
(509) 752-6789 (Fax)
http://www.siblingsupport.org
E-mail: info@siblingsupport.org *The Sibling Support Project is a national effort dedicated to the life-long concerns of brothers and sisters of people who have special health, developmental, or mental health concerns.
Support for Families of Children With Disabilities
2601 Mission street #606
San Francisco , CA 94110-3111
(415) 282-7494
http://www.supportforfamilies.org
The Caregiver's Space
http://www.thecaregiverspace.org
*The Caregiver Space is designed to be a free social network, dedicated solely to the welfare of caregivers­: The Invisible Patients. Our goal is to become the premier center for finding resources, sharing experiences, developing personal networks and learning ways to minimize and cope with caregiver stress. Our code is to provide services that transcend disease, age, length of illness and income.
The Temple University Collaborative on Community Inclusion
1700 N. Broad Street, Suite 313
Philadelphia, PA 19122
215-204-6779
http://tucollaborative.org/community-inclusion-...
E-mail: abilger@temple.edu *Contains an excellent list of available educational, and other, resources.
Through The Looking Glass
2198 Sixth Street, Suite 100
Berkeley, CA 94710-2204
1-800-644-2666
TTY: 1-800-804-1616
(510) 848-4445 (Fax)
http://lookingglass.org/index.php
Patient Assistance Programs
American Dental Association ~ Give Kids A Smile Program
http://www.givekidsasmile.ada.org/findGKAS.asp
*This is a yearly clinic in most communities. Click on the Clinic locator to find a clinic in your area.
Merck Patient Assistance Programs
P.O. Box 100
Whitehouse Station, NJ 08889-0100
908-423-1000
http://www.merck.com/merckhelps/patientassistance/
Merck offers a family of programs providing free and discounted medicines to patients who cannot afford their prescribed medicines.
National Council on Patient Information and Education
200-A Monroe Street, Suite 212
Rockville, MD 20850
(301) 340-3940
(301) 340-3944 (Fax)
http://www.talkaboutrx.org
Email: ncpie@ncpie.info
NeedyMeds
P.O. Box 219
Gloucester, MA 01931
http://www.needymeds.org
NeedyMeds is a 501(c)(3) national non profit, has information on programs that help people who can't afford their medications and health care costs. Provides data regarding approximately 2400 programs and nearly 11,000 free/low-cost/sliding-scale clinics.
Partnership for Prescription Assistance
1-888-477-2669
http://www.pparx.org
The Partnership for Prescription Assistance offers a single point of access to more than 475 public and private patient assistance programs, including more than 180 programs offered by pharmaceutical companies. More than 2,500 brand-name and generic medicines are covered.
Partnership for Prescription Assistance Kids
1-877-369-1477
http://kids.pparx.org
The Partnership for Prescription Assistance offers a single point of access to more than 475 public and private patient assistance programs, including more than 180 programs offered by pharmaceutical companies. More than 2,500 brand-name and generic medicines are covered.
Pfizer Helpful Answers
1-866-706-2400
http://www.pfizerhelpfulanswers.com
Pfizer Helpful Answers is a family of assistance programs for uninsured and underinsured patients who need help getting their Pfizer medicines. These programs provide: •Pfizer medicines for free or at a savings to patients who qualify •Some programs also offer reimbursement support services Call for more information.
RxAssist
111 Brewster Street
Pawtucket, RI 02860
401-729-3284
401-729-2955 (Fax)
http://www.rxassist.org
Email: info@rxassist.org Patient Assistance Program Center ~ Offers a comprehensive database of programs and information.
Recreation
U.S. Adaptive Recreation Center
43101 Goldmine Drive
Big Bear Lake, CA 92351
909-584-0269
TTY/1-800-735-2929
909-585-6805 (Fax)
http://www.usarc.org
E-mail: mail@usarc.org * Offers a variety of programs for all ages and abilities year round. Contact for more information.
United States Tennis Association/Wheelchair Tennis
70 West Red Oak Lane
White Plains, NY 10604
HQ (914) 696-7000
https://www.usta.com/en/home/play/lots-of-ways-...
*Provides regulation and paralympic play information nation wide.Contact for full program information.
Access Northern California
http://www.accessnca.com
*The ultimate disability resource for finding fun places to experience in Northern California.
Accessible Playground dot Net
1463 Greystone Dr.
Pittsburgh, PA 15206
(412) 334-2652
http://www.accessibleplayground.net
E-mail: mara@letkidsplay.com *Excellent web based center for information re: Accessible playgrounds. Provides a nationwide state-by-state playground directory and playground resources.
Adaptive Action Sports
PO box 16558
South Lake Tahoe, CA 96151
http://adacs.org
General Information E-mail: info@adacs.org Check out their blog at http://adaptiveactionsports.blogspot.com
American Amputee Hockey Association and Standing Amputee
http://www.usahockey.com/page/show/902518-stand...
E-Mail: DisabledHockey@USAHockey.org *The AAHA invites all players with limb loss/ birth defects/ and other disabilities to play upright ice hockey.
American Camp Association
5000 State Road 67 North
Martinsville, IN 46151-7902
800-428-2267
765-342-8456
765-342-2065 (Fax)
https://www.acacamps.org
*24 Regional Offices nationwide. Check listings for camps near you.
American Wheelchair Bowling Association
P.O. Box 69
Clover, VA 24534
http://www.awba.org
E-mail: info@awba.org *The AWBA provides a competitive, challenging, and informative environment for those individuals with disabilities requiring the use of a wheelchair while bowling to participate in bowling events no matter their individual skill level.
Amputee Coalition
900 East Hill Avenue, Suite 205
Knoxville, TN 37915
888-267-5669
http://www.amputee-coalition.org
E-Mail: amputee-coalition.org *See for amputee camps listed by state.
Art Shop Therapuetic Art Lessons for Children and Adults with Disabilities
1043 Grand Ave.
St. Paul, MN 55105
612-254-5013
http://artshoptherapy.com
*ArtShop provides opportunities for children and adults with cognitive, developmental, emotional and physical disabilities to participate in the creative process and develop as artists. Through therapeutic art lessons and projects adapted for individuals with disabilities, ArtShop utilizes the process of creating art to promote and develop self expression and empowerment.
Artistic Realization Technologies, Inc.
11 Whippoorwill Way
Belle Meade, NJ 08502
908-359-3098
http://www.artrealization.org
E-mail: info@artrealization.org *Created technologies, studio programming, and training that empowers those who lack the articulate use of their hands to gain perfect individual control of the art-making process.
AXIS Dance Company
1428 Alice Street, Suite 200
Oakland, CA 94612
(510) 625-0110
TTD:(510) 261-7050
(510) 625-0321 (Fax)
http://www.axisdance.org
Email: info@axisdance.org
B.O.K. Ranch Adaptive Horseback Riding Program
880 Runnymede Road
Woodside, CA 94062
(650) 366-2265
http://www.bokranch.com/
Back Bay Therapeutic Riding Club
20262 Cypress Ave.
Newport Beach, CA 92660
(949) 474-7329
http://www.backbaytrc.org/
Email: backbayridingclub@yahoo.com
Bay Area Outreach & Recreation Program
600 Bancroft Way
Berkeley, CA 94710
(510) 849-4663
http://www.borp.org/
Best Buddies - Global Headquarters
100 Southeast Second Street, Suite 2200
Miami , FL 33131
(800) 892-8339
(305) 374-2233
(305) 374-5305 (Fax)
http://www.bestbuddies.org
*Currently has 177 chapters across the United States. Contact for a chapter in your area.
Best Buddies California
5711 West Slauson Avenue, Suite 170
Culver City, CA 90230
(888) 682-8339
(310) 642- 2620
9310) 642-2630 (Fax)
http://www.bestbuddiescalifornia.org
Bethune Theatre Dance/Dance Outreach
8033 W. Sunset Blvd. Suite 211
Los Angeles, CA 90046
(323) 874-0481
(323) 851-2078 (Fax)
http://www.bethunetheatredanse.org
Email: ida@bethunedance.org
Bonita Equestrian Therapy for the Heros
2974 Equitation Lane
Bonita, CA 91902
(619) 475-9056
http://bonitaequestriantherapy.org
C.A.S.T. for Kids Foundation (Western Region)
227 S.W. 41st Street
Renton, WA 98057
(425) 251-3214
(425) 251-3272 (Fax)
http://www.castforkids.org/
Email:jim@castforkids.org *Contact for a fishing program in your state
California Adaptive Rowing Programs
3350 East 7th Street #231
Long Beach, CA 90804
562-434-8334
http://www.carplb.net
E-mail: msparasurfer@aol.com
California Arts Council (CAC)
1300 I Street #930
Sacramento, CA 95814
(916) 322-6344
http://www.cac.ca.gov
Email: wcook@caartscouncil.com
California State Parks - Access for Visitors with Disabilities
(916) 445-8949
http://parks.ca.gov/default.asp?page_id=21944
CampResource.com/Online Summer Camp Directory
http://www.campresource.com
*Special needs camps for boys and girls that focus on the challenges of ADHD, Autism, physical disabilities, weight loss, diabetes, and many other special needs that children face. Listed alphabetically. Can search by camp type and state.
Challenge Air
7363 Cedar Springs Road
Dallas, TX 75235
(214) 351-3353
1-877-FLY-KIDS
http://www.challengeair.com
Challenge Air has enriched the lives of children and youth with special needs through its unique aviation programs since 1993. Programs can be set up in various communities that qualify. Contact for details!
Christine Marie's Star Riders
2115 N Fremont St. Suite B
Monterey, CA
(831) 646-1941
http://cmstarriders.com
Culture! Disability! Talent
P.O. Box 1107
Berkeley, CA 94701
(510) 845-5576
http://www.culturedisabilitytalent.org
Email: cdtinfo@aol.com
Diabetic Youth Foundation
5167 Clayton Rd, Suite F
Concord, CA 94521
(925) 680-4994
(925) 680-4863 (Fax)
http://www.dyf.org
E-mail: info@dyf.org *Provides education and recreation opportunities for children and teens with Diabetes.
DreamPower Horsemanship
12425 Foothill Ave #8
San Martin, CA
(408) 686-0535
http://dreampowerhorsemanship.com
Dreams Fulfilled Through Music
P.O. Box 40548
San Antonio, TX 78229
210-771-5809
210-247-9681 (Fax)
http://dreamsfulfilledthroughmusic.org/index.ph...
E-mail: info@dftm.org *National Music Teacher Directory for teachers specializing/also teaching children with special needs. Click on Resources then Teacher Directory.
FlagHouse Inc.
601 FlagHouse Drive
Hasbrouck Heights , NJ 07604-3116
http://www.flaghouse.com
*Need a grant? Click on "Grant Writing Center" in the bottom menu for more information. *Supplier of Special Needs equipment and resources for physical education, sports, fitness, and recreation and for health, special needs, special education, sensory integration, and multisensory environments.
Freedom's Wings International, Inc.
324 Charles Street, Apt #25
Coopersburg, PA 18036
(800) 382-1197
http://www.freedomswings.org
Freedom's Wings International (FWI) is a non-profit organization run by and for people with physical disabilities. We provide the opportunity for those who are physically challenged to fly in specially adapted sailplanes, either as a passenger or as a member of the flight training program.
Fun and Function
PO Box 11
Merion Station, PA 19066
(800) 231-6329
(215) 876-8500
(866) 343-6863 (Fax)
http://funandfunction.com
E-mail: Sales@FunandFunction.com *We design sensory toys and therapy equipment for special needs to help children learn adaptive responses for what they may lack or crave.
Giant Steps Therapeutic Equestrian Center
595 Deer Creek Lane
petaluma, CA
(707) 769-8900
http://www.giantstepsriding.org
Handicapped Scuba Association International
1104 El Prado
San Clemente, CA 92672-4637
(949) 498-4540
(949) 498-6128 (Fax)
http://www.hsascuba.com
E-mail: hsa@hsascuba.com The HSA was founded in 1981 and is now the world's leading authority on recreational diving for people with disabilities. Headquartered in California, HSA INTERNATIONAL extends its underwater educational programs worldwide. Contact for program information.
High Spirits Dance Program
P.O. Box 40631
Pasadena , CA 91114
(626) 399-5789
http://www.ymcala.org
Email: jymmlynn@altrionet.com
Horsplay Therapeutic Riding Center
712 Oak Hollow Avenue Rd
Vacaville, CA
(707) 447-8733
http://horseplayriding.org
International Wheelchair Aviators
P.O. Box 279
Kemah, TX 77565
281-703-7450
http://wheelchairaviators.org
E-mail: IWAviators@aol.com A worldwide group of disabled and able bodied pilots interested in aviation and flying. Members have many different disabilities including paraplegia,quadriplegia, amputee, multiple sclerosis, spina bifida, polio and other problems.
Kids Included Together
2820 Roosevelt Road, Suite 202
San Diego, CA 92106
(858) 225-5680
(858) 225-5690 (Fax)
http://www.kitonline.org
Email: info@kitonline.org
Let Kids Play!
1463 Greystone Dr.
Pittsburgh, PA 15206
(412) 334-2652
http://www.letkidsplay.com
E-mail: mara@letkidsplay.com *Let Kids Play is a consulting firm that works with manufacturers, communities, non-profits, park districts, retail stores, and parents on projects and strategies that ensure that all children have the best play opportunities possible
Liberty Swing
http://www.libertyswing.com.au
For information E-mail: Australia office at diane@libertyswing.com.au *Playground swing equipment for people with disabilities which enable children in wheelchairs to enjoy the fun and recreation of swinging.
Life Rolls On
400 Corporate Pointe, Suite 525
Culver City, CA 90230
866-We Will Walk
(Ph) (310) 807-5488 (Fax)
http://www.liferollson.org
Email: Contact@LifeRollsOn.org *Life Rolls On is a non-profit organization that inspires others to see the boundless possibilities beyond paralysis. Established in 2002, LRO’s signature adaptive surfing program, They Will Surf Again, has grown into a catalyst of hope for thousands of individuals throughout the world.
M.A.R.E. Therapeutic Riding Center
18200 Johnson Rd
Bakersfield, CA
(661) 589-1877
http://mareridingcenter.com
Morgans™ Wonderland (Fully Accessible Theme Park)
5223 David Edwards Drive
San Antonio, TX 78233
(210) 495-5888
(877) 495-5888 (toll free)
http://www.morganswonderland.com
E-mail: info@morganswonderland.com *Provides a safe, clean and beautiful environment free of economic barriers that all individuals, regardless of age, special need or disability, can come to and enjoy.
Move A Child Higher/MACH 1
1430 Topeka St.
Pasadena, CA
(626) 798-1222
http://moveachildhigher.org
MySummerCamps.Com
909 Sepulveda Blvd.
El Segundo, CA 90245
310-280-4105
877-777-7738
310-280-4921 (Fax)
http://www.mysummercamps.com/camps/Special_Need...
*Large resource listing of a wide variety of Special Needs summer camps in the US and Canada.
National 4-H Council
7100 Connecticut Ave.
Chevy Chase, MD 28015
301-961-2800
https://4-h.org/about/leadership/national-4-h-c...
*Click on "Contact Us" to find your local chapter.
National Amputee Golf Association
11 Walnut Hill Rd
Amherst, NH 03031
http://nagagolf.org
E-mail:info@nagagolf.org See "Related Links" for regional and international organization contact information.
National Arts and Disability Center Tarjan Center for Developmental Disabilities
300 UCLA Medical Plaza Suite #3310
Los Angeles, CA 90095-6967
(310) 794-1141
(310) 794-1143 (Fax)
http://nadc.ucla.edu/index.cfm
National Center for Equine Facilitated Therapy
880 Runnymede Rd.
Woodside, CA
(650) 851-2271
http://nceft.org
National Center on Accessibility
501 North Morton Street, #109
Bloomington, IL 47404-3732
(812) 856-4422
TTY(812) 856-4421
(812) 856-4480 (Fax)
http://www.ncaonline.org
*NCA was established through a cooperative agreement between Indiana University and the National Park Service. Over the last two decades, NCA has emerged as a leading authority on access issues unique to park and recreation programs and facilities.
National Center on Physical Activity and Disability
1640 W. Roosevelt Road
Chicago, IL 60608-6904
1-800-900-8086
1-312-355-4058 (Fax)
http://www.ncpad.org/
Email: ncpad@uic.edu. *Maintains a State-by-state listing of Summer Camps and recreational facilities.
National Inclusion Project - Let's ALL Play Resources
800 Park Office Dr Suite 3314
RTP, NC 27709
919-314-5540
919-314-5541 (Fax)
https://www.inclusionproject.org/lets-all-play/...
Email: contactus@inclusionproject.org *Let’s ALL Play provides training, resources, and partnerships for recreational programs that are currently serving children with special needs and wish to do it better or programs seeking to open doors currently shut to children with special needs in their community. We strive to meet programs where they are.
National Park Service/Accessible Opportunities in National Parks
http://www.nps.gov/pub_aff/access/opportunities...
*Contact information is available by Park. Check out the left-hand menu for more National Park accessibility information.
National Parks InteragencyAmerica the Beautiful Passes
http://www.nps.gov/fees_passes.htm
*Updated information regarding free access passes to National Parks for U.S. citizens or permanent residents with permanent disabilities.
National Sports Center for the Disabled
P.O. Box 1290
Winterpark , CO 80482
(970) 726-1540
(303) 316-1540
(970) 726-4112 (Fax)
http://www.nscd.org
*National Sports Center for the Disabled's mission is to positively impact the lives of people with any physical or mental challenge through quality adaptive recreation programs in over 20 sports.
National Wheelchair Basketball Association
1130 Elkton St., Suite C
Colorado Springs, CO 80907
(719) 266-4082
(719) 266-4876 (Fax)
http://www.nwba.org
E-mail: info@nwba.org
One Step Closer Therapeutic Riding, Inc
P.O. Box 41161
San jose, CA
(407) 997-7264
http://osctr.org
Paradox Dance
2100 8th Street
Berkeley, CA 94710
(510) 898-1698
Project R.ID.E. Inc.
8840 Southside Ave.
Elk Grove,, CA
(916) 685-7433
http://www.projectride.org
REINS
4461 S. Mission Rd.
Fallbrook, CA 92028
760-731-9168
760-731-3949 (Fax)
http://www.reinsprogram.org
E-mail: staff@reinsprogram.org Therapeutic riding program.
Ride and Shine Adaptive Horseback Riding, Inc
P.O. Box 1864
Shingle Springs, CA
(530) 676-1920
http://rideandshine.net
RIDE ON LA
21126 Chatsworth St
Chatsworth, CA
(805) 375-9078
http://rideon.org
Saddle Up
41455 20th St west
Palmdale, CA
(661) 267-2730
http://fp3.antelecom.net/saddleup/Index.htm
Sensafloat
http://www.reboundtherapy.org/hydrotherapy
E-Mail: Hydro@reboundtherapy.org Original Floatsation is a unique water support aid, designed to facilitate relaxation and movement in water. It has applications for children and adults across the whole spectrum of special needs. Winner of the 1993 Toshiba / CBI Invention of the Year award.
Special Equestrian Riding Therapy
P.O. Box 4116
Chatsworth, CA
(818) 776-6476
http://sert.org
Special Olympics Program Locator
1133 19th Street, N.W.
Washington, DC 20036
1-202-628-3630
http://resources.specialolympics.org/RegionsPag...
*Check here to find a program in your area.
SportsAbilities
9249 South Broadway #200-156
Highlands Ranch, CO 80129
http://sportsabilities.com
*We are the premier resource for people with disabilities to find recreational, advocacy, support, and sporting activities in the nation. We have calendars for every state and 27 different activities ranging from Team Sports to Social Gatherings.
Stable Hands
P.O. Box 1852
Yreka, CA
(530) 842-3082
http://www.stablehands.org
*At Stable Hands, our program consists of two 8-week sessions in the Spring and Fall, and one 4-week session with two-hour lessons in the Summer. We serve 40 — 60 clients with private and group lessons.
State Council on Adapted Physical Education (SCAPE)
http://statecouncilAPE.org
Includes useful information about Adapted Physical Education and resource links to other sites on recreation, fitness, and sports for individuals with special needs.
Surfers Healing
P.O. Box 1267
San Juan Capistrano, CA 92693
(866) 647-4325
(949) 728-1200 (Fax)
http://surfershealing.com
*Provides summer surf camps in various locations. Contact for details.
T.H.E. Center, Inc
P.O. Box 5337
Hemet, CA
(951) 658-7790
http://t-h-e-center.org
The Bay Area Equestrian Network
http://www.bayequest.info
*Regional Directory of Equine Programs and Services.
The Center for Courageous Kids
1501 Burnley Road
Scottsville, KY 42164
270-618-2900
http://www.thecenterforcourageouskids.org
E-mail info@courageouskids.org *The Center for Courageous Kids, also known as CCK, is a world class medical camp located in Scottsville, KY, serving children and families from across the country who are living with a variety of medical challenges. We are open year round and can host 120 kids at a time.
The Miracle League Association
1506 Klondike Road, Suite 105
Conyers, GA 30094
770 760-1933
770 483-1223 (Fax)
http://www.miracleleague.com
E-mail: Johnny@miracleleague.com *The Miracle League focuses on removing barriers which keep mentally and physically disabled children off the baseball field and lets them experience the joy of America's favorite pastime.Click on "Find a League" to find a league in your community.
The National Alliance for Accessible Golf
1733 King Street
Alexandria, VA 22314
(703) 299-4296
(703) 739-0124 (Fax)
http://www.accessgolf.org
E-mail: info@accessgolf.org
The United States Association of Blind Athletes
33 N. Institute St.
Colorado Springs, CO 80903
(719) 630-0422
(719) 630-0616 (Fax)
http://www.usaba.org/
*See home page for Camp Information and Regional Offices in your area and state.
Therapeutic Recreation Resources
http://www.recreationtherapy.com/index.htm
*This is an independent recreation therapy web site with information and resources supplied by its users. Check out the Fun and Games and Activity and TX sections.
Tot Cycle
http://totcycle.com
*Great information resource on family bicycling with kids.
Triple Creek Ranch, Inc.
P.O. Box 493369
Redding, CA
(530) 524-8426
http://tcri.org
UCP of Greater Sacramento Saddle Pals
191 Lathrop Way Ste N
Sacramento, CA
(916) 988-7734
http://www.ucpsacto.org
United States Quad Rugby Association
4000 Ridgeway Drive
Birmingham, AL 35209
(205) 313-7431
http://usqra.org
E-mail:president@quadrugby.com *The United States Quad Rugby Association provides opportunities, support, and structure for competitive wheelchair rugby to people with disabilities.
US Deaf Sports Federation
PO Box 22011
Santa Fe, NM 87502-2011
TTY:(605) 367-5761
(605) 367-5760
(605) 977-6625 (Fax)
https://usdeafsports.org
Email: support@usdeafsports.org
US Electric Wheelchair Hockey Association
7216 39th Avenue North
Minneapolis, MN 55427
763-535-4736
208-279-1368 (Fax)
http://www.powerhockey.com
PowerHockey™ is based on basic hockey rules with a few adaptations to allow everyone in a power wheelchair the ability to participate.
US Youth Soccer TOPSoccer (The Outreach Program for Soccer
9220 World Cup Way
Frisco, TX 75034
800-4SOCCER
(972) 334-9960 (Fax)
http://www.usyouthsoccer.org/programs/topsoccer/
E-mail: mmoran@usyouthsoccer.org *A community-based training and team placement program for young athletes with disabilities, organized by youth soccer association volunteers. The program is designed to bring the opportunity of learning and playing soccer to any boy or girl, ages 4-19, who has a mental or physical disability. *Contact for a program in your area.
USA Disabled Hockey
1775 Bob Johnson Dr
Colorado Springs , CO 80906-4090
(719) 576-USAH (8724)
(719) 538-1160 (Fax)
http://www.usahockey.com/page/show/887219-disab...
E-mail: usah@usahockey.org *Contains a listing of teams and disciplines all over the US. See Team Listings for a team near you.
VerySpecialCamps.Com
http://www.veryspecialcamps.com
An online camp directory for individuals with one or more of a wide range of special needs. Listings are by state.
VSA arts
2700 F Street, NW
Washington, DC 20566
(800) 933-8721
(202) 628-2800
(202) 737-0725 (Fax)
http://education.kennedy-center.org/education/vsa/
*With 52 international affiliates and a network of nationwide affiliates, VSA is providing arts and education programming for youth and adults with disabilities around the world. Check for VSA programs in your state.
Service Dogs/Canine Programs
Assistance Dog Institute/Bergin University of Canine Studies
1215 Sebastopol Road
Santa Rosa, CA 95407
(707) 545-3647
http://www.berginu.edu
Email: info@berginu.edu
Assistance Dogs International, Inc (ADI)
PO Box 5174
Santa Rosa, CA 95402
(707) 571-0427
http://www.assistancedogsinternational.org
Email: info@adionline.org
Autism Service Dogs of America
4248 Galewood St.
Lake Oswego, OR 97035
http://autismservicedogsofamerica.com
Canine Companions for Independence (CCI)/National Center
P.O. Box
Oceanside, CA 92052
(800) 572-2275
(760) 901-4300
(760) 901-4551 (Fax)
http://www.caninecompanions.org
*Contact for regional training centers and Veteran's Programs.
Canine Companions for Independence/Southwest Region
124 Rancho del Oro Drive
Oceanside, CA 92057
(800) 572-2275
(760) 901-4300
(760) 901-4350 (Fax)
http://www.cci.org/southwest/index.html
Dogs 4 Diabetics
1647 Willow Pass Road, #157
Concord, CA 94520-2611
(925) 246-5785
http://www.dogs4diabetics.com
E-mail: info@dogs4diabetics.com
Guide Dogs for the Blind
350 Los Ranchitos Road
San Rafael, CA 94903
1-800-295-4050
http://www.guidedogs.com
Guide Dogs of America
13445 Glenoaks Boulevard
Sylmar, CA 91342
(818) 362-5834
http://www.guidedogsofamerica.org/
E-mail: mail@guidedogsofamerica.org
National Education of Assistance Dog Services, Inc/N.E.A.D.S.
P.O. Box 213
West Boylston, MA 01583
(978) 422-9064 V/TDD
(978) 422-3255 (Fax)
http://www.neads.org
E-Mail: info@neads.org *Contact for Regional contact information
Paws As Loving Support Assistance Dogs
7580 Covey Road
Forestville, CA 95436
(707) 887-7257
http://pawsaslovingsupport.org
E-mail: info@PawsAsLovingSupport.org Our specially trained dogs are placed with children with autism and their families as service dog PALS, in schools with teachers or any professional working with children in special education as facility dog PALS.
Positive Partners Assistance Dogs, Inc.
P.O. Box 2088
Hailey, ID 83333
(208) 721-1309
* Trains wheelchair assistance, hearing assistance, guide dogs and mobility assistance dogs. Will train dogs for anyone in the United States.
The Sam Simon Foundation (Hearing Dogs)
30765 Pacific Coast Hwy #113
Malibu, CA 90265
V/TTY: (310) 457-5898
http://www.samsimonfoundation.com
Email: info@samsimonfoundation.org
Transition/Post Secondary Schooling
Got Transition
1615 M Street NW, Suite 290
Washington, DC 20036
202-223-1500
202-429-3957 (Fax)
http://www.gottransition.org
E-mail: info@GotTransition.org *Our aim is to improve transition from pediatric to adult health care through the use of new and innovative strategies for health professionals and youth and families. Serves as a clearinghouse for current transition information, tools, and resources.
Applied Self Direction
1089 Commonwealth Avenue, #371
Boston, MA 02215
http://www.appliedselfdirection.com
E-mail: info@appliedselfdirection.com *Applied Self Direction provides practical expertise intended to create and operate self direction programs that run effectively and efficiently for individuals, states, managed care entities, Financial Management Services providers, and other stakeholders. The mission of Applied Self Direction is to promote self direction so individuals have the choice and control to live the lives they want.
Association on Higher Education And Disability (AHEAD)
107 Commerce Center Drive, Suite 204
Huntersville, NC 28078
(704) 947-7779
(704) 948-7779 (Fax)
https://www.ahead.org/home
*AHEAD is actively involved in all facets of promoting full and equal participation by individuals with disabilities in higher education; and supporting the systems, institutions, professions, and professionals who attend to the fulfillment of this important mission.
HEATH Resource Center/ George Washington University
2134 G Street, N.W.
Washington, DC 20052
http://www.heath.gwu.edu
E-mail: AskHEATH@gwu.edu *The HEATH Resource Center gathers and disseminates information to help people with disabilities reach their full potential through postsecondary education and training. Contains a wealth of information and resources on a wide variety of subjects related to education.
National Collaborative on Workforce and Disability for Youth (NCWD)
4455 Connecticut Avenue NW, Suite 310
Washington, DC 20008
877-871-0744
TTY: 877-871-0665
http://www.ncwd-youth.info
*Federal informational program site. Excellent resource. Click on "Content By State" for programs in your area.
National Gateway to Self-Determination
http://www.ngsd.org
*This site provides a single access for self-advocates, professionals, policy-makers and the general public on the current best practices and evidence-based activities in enhancing self-determination in the lives of people with developmental and intellectual disabilities, as well as any individual.
We Connect Now
McIlhenny Drive
Baton Rouge, LA 70809
http://weconnectnow.wordpress.com
E-mail: weconnectnow2008@gmail.com *We Connect Now is dedicated to uniting people on issues which affect people with disabilities, with emphasis on college students higher education & employment.
 
Transportation Information
Mercy Medical Angels
4620 Haygood Road suite 1
Virginia Beach, VA 23455
757-318-9174
757-464-1284 (Fax)
http://mercymedical.org
E-mail: info@MercyMedical.org *Our mission is to ensure that no financially stressed patient is denied access to distant specialized medical evaluation, diagnosis or treatment for lack of a means of long-distance medically related transportation; further to ensure the provision of urgent transportation in situations of compelling human need and homeland security (disaster response) emergencies.
National Mobility Equipment Dealers Association
3327 W. Bearss Ave.
Tampa, FL 33618
(800) 833-0427
(813) 264-2697
(813) 962-8970 (Fax)
http://www.nmeda.com
Email: nmeda@aol.com *Provides a state-by-state listing of NMEDA QAP certified dealerships. Start here when looking for mobility equipment (lifts, vehicles, steering systems, etc.) information.
National Mobility Equipment Dealers Association (NMEDA) Special Kids Fund (SKF)
732-397-5056
http://www.nmeda.com/special-kids-fund/
E-mail: dg@specialkidsfund.org *This program is designed to collect donated accessible vans and transfer them to families of individuals with disabilities. SKF also works to provide funding for families to purchase a handicap van conversion and have dealerships refurbish older and higher mileage vans for the needy.
School Transportation News
P.O. Box 789
Redondo Beach, CA 90277
(310) 792-2226
310-792-2231 (Fax)
https://www.stnonline.com
*See Special Needs Transportation news, equipment, resources, etc.