| Advocacy |
Alaska Youth and Family Network
401 E. Northern Lights Suite 100
Anchorage, AK 99523-3142
(888) 770-4979
(907) 770-4979
(907) 770-4997 (Fax)
http://www.ayfn.org
|
Louisiana Citizens for Action Now
http://www.lacanadvocates.org
Provides a wealth of self advocacy information. Linda recommends individuals check out the "Legislative Activities" section for an outline of a sample letter to Legislators and a "How-To" testify before a legislative body. |
| Agencies/Assistance Programs - Government |
Alaska Health Care Services
P.O. Box 110660
Juneau, AK 99811-0660
(907) 465-3555
http://www.hss.state.ak.us/dhcs
|
Alaska State Mental Health Agency
P.O. Box 110620
Juneau, AK 99811-0620
(907) 465-3370
TTY (907) 465-2225
http://www.hss.state.ak.us/commissioner/instep/
|
Alaskans With Disabilities
1231 Gambell St.
Anchorage, AK 99501-4627
(800) 478-2221
(907) 269-3465 (Fax)
http://www.hss.state.ak.us/dsds
|
Division of Mental Health and Developmental Disabilities - Central Office
350 Main Street, Suite 217
Juneau, AK 99811-0620
(907) 465-3370
http://www.hss.state.ak.us/gcdse
|
GovBenefits.Gov
http://www.govbenefits.gov
Provides information regarding government assistance programs nationwide. Includes a state-by-state program search. |
Governor's Council on Disabilities and Special Education
3601 C Street, Suite 740
Anchorage, AK 99524-0249
(888) 269-8990
(907) 269-8990 (Fax)
http://www.hss.state.ak.us/gcdse
|
Medicaid Office - Division of Medical Assistance
P.O. Box 110660
Juneau, AK 99811-0660
(907) 465-3555
http://www.hss.state.ak.us/dhcs/Medicaid/defaul...
|
Special Needs Services Unit/Programs for Children With Special Health Care Needs
1232 Gambell Street
Anchorage , AK 99501-4627
(907) 269-3460
http://www.hss.state.ak.us/dph/
|
The Chronic and Acute Medical Assistance Program (CAMA)
(800) 780-9972
http://hss.state.ak.us/dhcs/CAMA/
|
|
| Agencies/Assistance Programs - Private |
Cover the Uninsured ~ A Project of the Robert Wood Johnson Foundation
(202) 572-2928
http://covertheuninsured.org
E-mail: info@covertheuninsured.org
*State by state listings of various insurance programs for individuals and families who have difficulty obtaining medical insurance. |
|
| Assistive Technologies |
Assistive Technology of Alaska/ATLA
2217 East Tudor Road, Suite 4
Anchorage, AK 99507
(800) 723-2852
TTY: (907) 561-2592
(907) 563-0699 (Fax)
http://www.atla.biz/index.html
|
|
| Child Care Resource Listings |
Child Care Aware
3101 Wilson Blvd. Suite 350
Arlington, VA 22201
1-800-424-2246
TTY:1-866-278-9428
(703) 341-4101 (Fax)
http://www.childcareaware.org
Child Care Aware is a cooperative program of the National Association of Child Care Resource and Referral Agencies. Funded through the Office of Family Assistance, Administration for Children and Families, U.S. Department of Health and Human Services.
**SNRP does NOT endorse this site. Listed for reference only. Use responsible caution when investigating ALL care providers. |
|
| Disability Specific Organizations |
Alaska Center for the Blind and Visually Impaired
3903 Taft Drive
Anchorage, AK 99517
1-800-770-7517
(907) 248-7770
(907) 248-7517 (Fax)
http://www.alaskabvi.org
E-mail: info@alaskabvi.org |
Alaska Chapter of the National Down Syndrome Congress
http://www.alaskadownsyndrome.ak.org
|
Alaska Genetics Clinics
4701 Business Park Blvd, Building J, Suite 20
Anchorage, AK 99503-7123
(907) 269-3430
http://www.hss.state.ak.us/dph/wcfh/genetic.htm
|
Community Connections Developmental Disability Services
201 Deermount Street
Ketchikan, AK 99011
(800) 478-7825
(907) 225-7825
http://www.comconnections.org/index.html
|
| Early Intervention |
Office of Children's Services
3601 C Street, Suite 943
Anchorage , AK 99524
(800) 799-7570
http://hss.state.ak.us/ocs/InfantLearning/progr...
|
Programs for Children With Disabilities: Ages 3 through 5
801 West 10th Street, Suite 200
Juneau, AK 99801-1894
(907) 465-8702
http://www.eed.state.ak.us/tis/sped/
|
Programs for Infants and Children, Inc. (Birth through age 2)
440 Business Park Blvd., Suite 34
Anchorage, AK 99503
(907) 561-8060
http://www.picak.org
|
|
| Education |
Anchorage School District/Family Directory for Parents of Children with Special Needs
4600 DeBarr Road
Anchorage, AK 99519-6614
http://www.asdk12.org/AFD/
*Click the "Just Alaska" link for a list of community agencies and educational services. |
Office of Special Services and Supplemental Programs
801 W. 10th Street, Suite 200
Juneau, AK 99801-1894
(907) 465-2972
http://www.eed.state.ak.us/tis/sped/
|
Special Education Service Agency
3501 Denali Street, Suite 101
Anchorage, AK 99503
(907) 334-1300
TTY (907) 563-8284
(907) 562-0545 (Fax)
http://www.sesa.org
|
State Department of Special Education
801 W. 10th Street, Suite 200
Juneau, AK 99801-1894
(907) 465-2972
http://www.eed.state.ak.us/tis/sped/
|
Western Regional Resource Center (WRRC)
1268 University of Oregon
Eugene, OR 97403-1268
(541) 346-5641
TTY (541) 346-0367
http://www.rrfcnetwork.org/wrrc
E-mail: wrrc@oregon.uoregon.edu |
|
| Equipment |
Alaska Division of Vocational Rehabilitation/Assistive Technologies
801 West 10th Street, Suite A
Juneau, AK 99801
(800) 478-2815
(907) 465-6969
http://www.labor.state.ak.us/at/index.htm
|
|
| Housing Programs - Government |
Alaska Housing Finance Corporation
P.O. Box 101020
Anchorage, AK 99510-1020
907-338-6100
http://www.ahfc.state.ak.us
|
DisabilityInfo.gov ~ Housing
http://www.disabilityinfo.gov
*Provides a comprehensive listing of Federal and State housing programs and up to date program information. |
Paralyzed Veterans of America
801 18th Street NW
Washington, DC 20006-3517
1-800-424-8200
http://www.pva.org
*Not just for paralyzed Veterans, not just for paralysis. Ask for their Architecture Program!
**SNRP recommends their publication "Accessible Home Design". |
|
| Housing Programs - Private |
Association of Alaska Housing Authorities
4300 Boniface Parkway
Anchorage, AK 99504
(907) 338-3970
(907) 338-4904 (Fax)
http://www.aahaak.org
E-mail: aaha@alaska.net |
Center For Universal Design North Carolina State University
P.O. Box 8613
Raleigh, NC 27695-8613
(800) 647-6777
V/TTY:(919) 515-3082
(919) 515-3023 (Fax)
http://www.design.ncsu.edu\cud
|
Institute for Human Centered Design (Adaptive Environments)
180-200 Portland Street, Suite 1
Boston, MA 02114
(617) 695-1225
(617) 482-8099 (Fax)
http://www.adaptenv.org
E-mail: info@HumanCenteredDesign.org |
|
| Independent Living Organizations |
Access Alaska
121 West Fireweed Lane, Suite 105
Anchorage, AK 99503
(907) 248-4777
(907) 248-0639 (Fax)
http://www.accessalaska.org/
|
Hope Community Resources, Inc.
540 W. International Airport Rd.
Anchorage, AK 99518
(907) 561-5335
http://www.hopealaska.org/
|
| Indian Health Services |
Alaska Area Native Health Service
4141 Ambassador Drive, Suite 300
Anchorage, AK 99508-5928
(907) 729-3686
(907) 729-3689 (Fax)
http://www.ihs.gov/FacilitiesServices/AreaOffic...
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|
| Information |
Disability Information.Gov
http://www.disabilityinfo.gov
*Large Federal database providing easy access to comprehensive information about disability programs, services, laws and benefits. To find disability resources in your state just click on the Find State and Local Resources map located in each of the subject areas listed in their menu. |
Georgia Mental Health Consumer Network, Inc.
http://www.gmhcn.org/links.html
* An informational/Resource Links site with information regarding many state/private programs. Contains information links for several states. |
Girls Health.gov
8270 Willow Oaks Corporate Drive, Suite 301
Fairfax, VA 22031
http://4girls.gov
*See "Illness and Disability" tab. Excellent information resource. |
MedicareSolutions
http://www.medicaresolutions.com/disability-res...
*A comprehensive page on disabilities providing informative links in several areas of interest including Disability Rights, support groups, government resources and organizations and others. |
National Organization on Disability
910 Sixteenth Street, N.W., Suite 600
Washington, DC 20006
(202) 293-5960
TTY: (202) 293-5968
(202) 293-7999 (Fax)
http://www.nod.org
E-mail: ability@nod.org |
Social Security Online - American Indians and Alaska Natives
Federal Information Line 1-800-7
http://www.ssa.gov/aian
|
United Spinal Association
75-20 Astoria Boulevard
Jackson Heights, NY 11370
800-404-2898
(718) 803-3782
(718) 803-0414 (Fax)
http://www.unitedspinal.org/disability-publicat...
*Linda's favorite down-loadable informational resource. Linda recommends the following booklets: Disability Etiquette (PDF), Taking Action (PDF), Adaptive Automotive Equipment (PDF), The Americans with Disabilities Act (PDF),The Fair Housing Amendments Acts (PDF) and Accessing Local Government (PDF). Please see the menu page for other publications you may be interested in. |
University of Alaska Anchorage Center for Human Development
2702 Gambell Street, Suite 103
Anchorage, AK 99503
1-800-243-2199
TTY: (907) 264-6206
(907) 274-4802 (Fax)
http://www.alaskachd.org/
Email: info@alaskachd.org |
| Legal Advocacy/Information |
Disability Law Center of Alaska
3330 Arctic Blvd., Suite 103
Anchorage, AK 99503
(800) 478-1234
http://www.dlcak.org/
*See "Contact Us" page for offices in your Region. |
Family Guardian Program - Public Advocacy
900 W. 5th Avenue, Suite 525
Anchorage, AK 99501
(877) 957-3500
(907) 269-3500
(907) 269-3535 (Fax)
http://www.state.ak.us/guardianship/
|
Wright's Law
http://www.wrightslaw.com
|
|
| Medical Centers/Hospitals/Clinics |
Center for Children with Special Needs
2401 East 42nd. Avenue, Suite 306
Anchorage, AK 99508
(907) 562-9212
http://www.providence.org/alaska/tchap/neuro/de...
|
Children's Hospital At Providence
3200 Providence Drive
Anchorage, AK 99508
(907) 562-2211
http://www.providence.org/alaska/services/child...
|
Northern California Shriners Hospital
2425 Stockton Blvd.
Sacramento, CA 95817
(916) 453-2000
(916) 453-2352
(916) 453-2352 (Fax)
*Specialty facility. Specializes in burns, spinal cord injuries and orthopedics. |
Spokane Shriners Hospital
911 W. Fifth Ave.
Spokane, WA 99204-2901
(509) 455-7844
(509) 623-0474 (Fax)
http://www.shrinershq.org/Hospitals/Spokane/def...
Orthopaedic Services |
| Other |
Disability Studies, Temple University Blog
http://disstud.blogspot.com
*Based at Temple University but with nationwide contributors. Has a LARGE list of disability related blogs. |
|
| Parent Support Programs |
Access Alaska
121 W. Fireweed Lane, Suite 105
Anchorage, AK 99503
(800) 770-4488
(907) 248-4777
http://www.accessalaska.org
|
Matrix Parent Network and Resource Center Region 6
94 Galli Drive, Suite C
Novato, CA 94949
(800) 578-2592
(415) 884-3535
(415) 884-2592 (Fax)
http://www.matrixparents.org
email: region6@matrixparents.org |
Parent's, Inc.
4743 E. Northern Lights Blvd
Anchorage, AK 99508
(907) 337-7678
http://www.parentsinc.org
|
|
| Patient Assistance Programs |
American Dental Association ~ Give Kids A Smile Program
http://www.givekidsasmile.ada.org/findGKAS.asp
*This is a yearly clinic in most communities. Click on the Clinic locator to find a clinic in your area. |
Cover the Uninsured
http://covertheuninsured.org
Email: info@covertheuninsured.org
* Provides a State by State guide to finding healthcare insurance coverage in your state. |
Merck Patient Assistance Programs
P.O. Box 100
Whitehouse Station, NJ 08889-0100
908-423-1000
http://www.merck.com/responsibility/pap-informa...
Merck offers a family of programs providing free and discounted medicines to patients who cannot afford their prescribed medicines. |
NeedyMeds
P.O. Box 219
Gloucester, MA 01931
http://www.needymeds.org
NeedyMeds is a 501(c)(3) national non profit, has information on programs that help people who can't afford their medications and health care costs. Provides data regarding approximately 2400 programs and nearly 11,000 free/low-cost/sliding-scale clinics. |
Partnership for Prescription Assistance
1-888-477-2669
http://www.pparx.org
The Partnership for Prescription Assistance offers a single point of access to more than 475 public and private patient assistance programs, including more than 180 programs offered by pharmaceutical companies. More than 2,500 brand-name and generic medicines are covered. |
Partnership for Prescription Assistance Kids
1-877-369-1477
http://kids.pparx.org
The Partnership for Prescription Assistance offers a single point of access to more than 475 public and private patient assistance programs, including more than 180 programs offered by pharmaceutical companies. More than 2,500 brand-name and generic medicines are covered. |
Pfizer Helpful Answers
1-866-706-2400
http://www.pfizerhelpfulanswers.com
Pfizer Helpful Answers is a family of assistance programs for uninsured and underinsured patients who need help getting their Pfizer medicines.
These programs provide:
•Pfizer medicines for free or at a savings to patients who qualify
•Some programs also offer reimbursement support services
Call for more information. |
RxAssist
111 Brewster Street
Pawtucket, RI 02860
401-729-3284
401-729-2955 (Fax)
http://www.rxassist.org
Email: info@rxassist.org
Patient Assistance Program Center ~ Offers a comprehensive database of programs and information. |
| Recreation |
Ability Station
278 South 880 West
Spanish Fork, UT 84660
800-520-1222
http://www.abilitystation.com
Ability Station offers toys for special needs children needing sensory, fine motor and gross motor,and cognitive development. Toys are reviewed by an Occupational, Physical or Speech Therapist. |
Challenge Alaska
3350 Commercial Drive Suite 208
Anchorage, AK 99501
(888) 430-2738
(907) 344-7399
http://www.challengealaska.org/
email:info@challengealaska.org
*Adaptive Ski School: (907) 783-2925 |
National Center on Physical Activity and Disability
1640 W. Roosevelt Road
Chicago, IL 60608-6904
1-800-900-8086
1-312-355-4058 (Fax)
http://www.ncpad.org/
Email: ncpad@uic.edu.
*Maintains a State-by-state listing of camps and recreational facilities. |
National Parks Pass
http://www.nps.gov/fees_passes.htm
*Updated information regarding free access passes to National Parks for U.S. citizens or permanent residents with permanent disabilities. |
Rainbow Connection Therapeutic Riding Center/Anchorage
PO Box 240663
Anchorage, AK 99524
(907) 566-8768
http://therainbowconnection.org/
Email: ride@therainbowconnection.org |
|
| Service Dogs/Canine Programs |
Canine Companions for Independence (CCI)/National Center
P.O. Box
Oceanside, CA 92052
(800) 572-2275
(760) 901-4300
(760) 901-4551 (Fax)
http://www.caninecompanions.org
*Contact for regional training centers and Veteran's Programs. |
Positive Partners Assistance Dogs, Inc.
P.O. Box 2088
Hailey, ID 83333
(208) 721-1309
* Trains wheelchair assistance, hearing assistance, guide dogs and mobility assistance dogs. Will train dogs for anyone in the United States. |
| Transition/Post Secondary Schooling |
Virginia College Quest
George Mason University
, VA
http://www.vacollegequest.org/index.shtml
E-mail: info@vacollegequest.org
*An excellent Post-High School education resource. |
|
| Transportation Information |
National Mobility Equipment Dealers Association
3327 W. Bearss Ave.
Tampa, FL 33618
(800) 833-0427
(813) 264-2697
(813) 962-8970 (Fax)
http://www.nmeda.org/
Email: nmeda@aol.com
*Provides a state-by-state listing of NMEDA QAP certified dealerships. Start here when looking for mobility equipment (lifts, vehicles, steering systems, etc.) information. |
School Transportation News
P.O. Box 789
Redondo Beach, CA 90277
(310) 792-2226
http://www.stnonline.com/stn/
*See Special Needs Transportation |
