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Getting Started
Get Diagnosed
Gathering Important Information
Organizing Your Information
The Educated Parent
Early Intervention
What To Do First
What is Early Intervention?
Research
Introduction
Keeping an IEP Notebook
Preparing for an IEP Meeting
Conducting an IEP Meeting
Individuals With Disabilities Act
IDEA ACT - A Quick Reference
IDEA Legal Text
Family Finances
Recommended Resources
Housing
Introduction to Universal Housing Design
Housing options
Building a New House ~ That Works!
Introduction to Universal Housing Design
Entrances and Thresholds
Single Family Home Resources
Remodeled Bathroom
Ceiling Lifts
Problem Spaces
Adding a Ramp
Good Restroom
Not So Good Restrooms
Great Space Adaptions
Not So Great Adaptations
Ramp Design
Ramp Design (Part 2)
Commercial Ramps
Public Access Ramps
Adding a Ramp
Retrofit Door Sill Ramp
Insurance
Medical Bills
Filing an Appeal
Medical Expenses and Income Taxes
Finding Help for the Uninsured or Underinsured
Free or Discounted Prescription Programs
Medicaid Waivers
Legal Adults - Introduction
Guardianship and Declaration of Incapacitation
Establishing Guardianship and Obtaining a Declaration of Incapacitation
Dependency Determination (Military)
When to Start the Transition Process
Begin Transition - Age 14-16
Exploring Possibilities and Guardianship Issues - Age 17
Age 18
After High School Graduation - Age 19-22
Post High School Education Options
Future Housing Options
Specialized Medical Equipment
Wheelchair Evaluation
Wheelchair Safety
Introduction: Special Needs and the Military Family
DEERS & ID Cards
Dependency Determination
TriCare Introduction
TriCare Program Options
Exceptional Family Member Program (EFMP)
Individual Case Management
TriCare Extended Care Health Option (ECHO)
Early Intervention
Housing Options
Family Support Services
Community Contacts
Letters of Medical Sufficiency
Wheelchair Accessible Vans
Van Conversion: A good Example
Fund Raising - The Flamingo Air Project
Utah DSPD Complaint List Winter 2011
 

New Mexico

Military Quick Links (National Guard, Reserve, Active Duty)
ABA Military Pro Bono Project
321 N. Clark St.
Chicago, IL 60654
312-988-5783
http://www.militaryprobono.org
*The ABA Military Pro Bono Project accepts case referrals from military attorneys on behalf of junior-enlisted, active-duty military personnel and their families with civil legal problems, and it places these cases with pro bono attorneys where the legal assistance is needed. The Project is also the platform for Operation Stand-By, through which military attorneys may seek attorney-to-attorney advice to further assist their service member clients.
Easter Seals National Headquarters
230 W. Monroe St., Suite 1800
Chicago, IL 60606
(800) 221-6827
TTY 312-726-4258
(312) 726-1494 (Fax)
http://www.easterseals.com
*Contact for the chapter closest to you. Ask your local chapter for camps, grants, respite services and other services available in your area.
Exceptional Family Member Program/All Branches/Mobile
http://apps.militaryonesource.mil/pls/psgprod/f...
Contains contact information, Base program locators and enrollment/justification forms for ALL Branches of service.
Kids' Waivers/Medicaid Waiver Programs
http://www.kidswaivers.org
Medicaid waivers for children are unfortunately quite confusing. Not only that, but it is impossible to find information about them. This project State-by-State is intended to simplify the process as much as possible.
Medicaid Waiver dot Org
http://medicaidwaiver.org
*A state-by-state Medicaid Waiver program listing. Please note: Medicaid programs do not transfer. If you're planning a move you'll want to do some homework. Start here then go to the official page of the state you are considering.
Military Home Front/Exceptional Family Member Program (EFMP)
http://www.militaryhomefront.dod.mil/tf/efmp
*Over 100,000 military families have members with special needs. These include spouses, children, or dependent parents who require special medical or educational services. These family members have a diagnosed physical, intellectual, or emotional condition. The Exceptional Family Member Program (EFMP) works with these families to address their unique needs.The materials within this section of Military HOMEFRONT are designed to give service members and their families critical information and resources related to the EFMP program.
National Military Family Association/Legal
2500 North Van Dorn St., Suite 102
Alexandria, VA 22302-1601
http://www.militaryfamily.org/your-benefits/legal/
*The U.S. Armed Forces Legal Assistance website is a joint initiative of the Armed Forces that aims to provide general legal information to the military community.
New Mexico Medicaid/Medical Assistance Division
P.O. Box 2348
Santa Fe, NM 87504-2348
(888) 997-2583
(505) 827-3185 (Fax)
http://www.hsd.state.nm.us/mad/index.html
Social Security Administration Information for Parents
National Info. 1-800-772-1213
http://www.ssa.gov/pgm/links_ssi.htm
*Benefits information and local office addresses with contact information available by state and city.
State & Local Government on the Net
http://statelocalgov.net/50states-military-vete...
*State listings for Military and Veterans sites within the 50 United States.
StateLocalGov Dot com Bar Association Locator
http://attorneys.statelocalgov.net/#state-military
*Scroll down the home page for Military and Veteran Bar Association listings.
The Medicaid Reference Desk (The ARC)
1825 K Street NW, Suite 1200
Washington, DC 20006
800-433-5255
http://www.thearc.org/page.aspx?pid=2462
E-mail: contact@thedesk.info (**This site is currently being upgraded to reflect the recent changes made in Medicaid policy in many states. Please check back for new information.)The site offers state by state information on Medicaid programs and waivers, and includes a list of what types of services fall under each program/waivers jurisdiction. The website offers information on common questions and concerns regarding Medicaid. It includes a Medicaid terms and definitions section, defining words commonly used on Medicaid forms and correspondence as well as other useful information.
The National Resource Directory
http://www.nationalresourcedirectory.gov
The National Resource Directory (NRD) provides access to services and resources at the national, state and local levels that support recovery, rehabilitation and community reintegration.
The Special Needs Alliance
http://www.specialneedsalliance.org
*Provides a national list of lawyers specializing in special needs trusts and other resources by state. Check here for help with Guardianship, incapacitation, trusts and other pertinent topics.
United Cerebral Palsy (UCP)
1660 L Street, NW, Suite 700
Washington, DC 20036
(800) 872-5827
TTY (202) 973-7197
(202) 776-0414 (Fax)
http://www.ucp.org
*Contact for your local chapter. Excellent state-by-state resource guide.
United Way
701 N. Fairfax St.
Alexandria, VA 22314
http://national.unitedway.org
*Non-profit charitable organization offering a variety of services including camps, respite, grants, etc. Find your local chapter here.
Advocacy
ADAPT
201 S. Cherokee
Denver, CO 80223
303-733-9324
http://www.adapt.org
E-mail: adapt@adapt.org *See Contact List for a chapter in your state.
Broad ReachTraining & Resources
http://www.normemma.com/index.htm
E-mail: webmail01@broadreachtraining.com *See the large Resource Library for advocacy resources and general reading information.
Family Voices, Inc.
2340 Alamo SE, Suite 102
Albuquerque, NM 87106
(888) 835-5669
(505) 872-4774
(505) 872-4780 (Fax)
http://www.familyvoices.org
Information on how to contact state senators and find Family Voices chapters in your state.
Louisiana Citizens for Action Now
http://www.lacanadvocates.org
Provides a wealth of self advocacy information. Linda recommends individuals check out the "Legislative Activities" section for an outline of a sample letter to Legislators and a "How-To" testify before a legislative body.
National Gateway to Self-Determination Web Portal
http://www.aucd.org/ngsd
*This site provides a single access for self-advocates, professionals, policy-makers and the general public on the current best practices and evidence-based activities in enhancing self-determination in the lives of people with developmental and intellectual disabilities, as well as any individual.
Native American Protection and Advocacy Project
P.O. Box 3539
Tuba City, AZ 86045
(928) 283-3208
Toll Free: (877) 283-3208
http://www.dnalegalservices.org
Intake at the Shiprock New Mexico office
Native American Protection and Advocacy Project
P.O. Box 392
Shiprock, NM 87420
(800) 862-7271
(505) 368-3216
http://www.dnalegalservices.org
Patient Advocate Foundation
421 Butler Farm Road
Hampton, VA 23666
(800) 532-5274
(757) 873-8999 (Fax)
http://patientadvocate.org
E-Mail: help@patientadvocate.org *Provides patients with arbitration, mediation and negotiation to settle issues with access to care, medical debt, and job retention related to their illness.
Protection & Advocacy; Inc.
1720 Louisiana Blvd., N.E., Suite 204
Albuquerque, NM 87110
(800) 432-4682 (in-state only)
(505) 256-3100
(505) 256-3184 (Fax)
http://www.nmpanda.org
 
Agencies/Assistance Programs - Government
GovBenefits.Gov
http://www.Benefits.gov
Provides information regarding government assistance programs nationwide. Includes a state-by-state program search.
Kids' Waivers/Medicaid Waiver Programs
http://www.kidswaivers.org
Medicaid waivers for children are unfortunately quite confusing. Not only that, but it is impossible to find information about them. This project State-by-State is intended to simplify the process as much as possible.
Medicaid Waiver dot Org
http://medicaidwaiver.org
*A state-by-state Medicaid Waiver program listing. Please note: Medicaid programs do not transfer. If you're planning a move you'll want to do some homework. Start here then go to the official page of the state you are considering.
New Mexico Developmental Disability Planning Council
810 W. San Mateo, Suite C
Santa Fe, NM 87505
(800) 311-2229 Toll Free
(505) 476-7320 (Fax)
http://www.nmddpc.com/DDPC/Index/Index.aspx
New Mexico Medicaid/Medical Assistance Division
P.O. Box 2348
Santa Fe, NM 87504-2348
Toll Free (888) 997-2583
(505) 827-3185 (Fax)
http://www.hsd.state.nm.us/mad/index.html
The Medicaid Reference Desk (The ARC)
1825 K Street NW, Suite 1200
Washington, DC 20006
800-433-5255
http://www.thearc.org/page.aspx?pid=2462
E-mail: contact@thedesk.info (**This site is currently being upgraded to reflect the recent changes made in Medicaid policy in many states. Please check back for new information.)The site offers state by state information on Medicaid programs and waivers, and includes a list of what types of services fall under each program/waivers jurisdiction. The website offers information on common questions and concerns regarding Medicaid. It includes a Medicaid terms and definitions section, defining words commonly used on Medicaid forms and correspondence as well as other useful information.
Utah Department of Health/MEDICAID
Customer Information Line:
1-800-662-9651
http://health.utah.gov/medicaid/provhtml/contac...
*Customer Information Line also serves Idaho, Wyoming, Colorado, New Mexico, Arizona and Nevada. **General Medicaid information. A listing of free health care clinics as well as programs to apply for in your area. You MUST contact them in person by phone. Under FAQ's click "Where can I find out about Medical Assistance Programs" for local information and additional web links.
 
Agencies/Assistance Programs - Private
National School Foundation Association
2130 Grand Ave.
Des Moines, IA 50312
(515) 971-2324
(515) 965-5481 (Fax)
http://www.schoolfoundations.org
* Provides a Listing of Foundations by State (click on menu in left-hand menu). Excellent resource for those needing foundation information in each state.
New Mexico Indian Children's Program (UNM Center for Development & Disability)
2300 Menaul NE
Albuquerque, NM 87107
Toll Free 1-866-427-8661
(505) 272-3000
(505) 272-9014 (Fax)
http://www.icpservices.org
*Serving the Four Corners Area
Assistive Technologies
AbleData
8630 Fenton Street, Suite 930
Silver Spring, MD 20910
1-800-227-0216
301-608-8998
301-608-8958 (Fax)
http://www.abledata.com
E-mail: abledata@macrointernational.com *AbleData provides objective information about assistive technology products and rehabilitation equipment nationwide. Does have a state by state directory.
Ablenet
2625 Patton Road
Roseville, MN 55113
800-322-0956
http://www.ablenetinc.com
E-mail: customerservice@ablenetinc.com *Creating assistive technology products that transform lives in simple, tangible, and powerful ways. We believe that all people deserve the tools to help them learn about, interact with, and participate in the world around them. Whether that's a child in the classroom, an adult recovering from an injury, a veteran with a permanent disability, or a senior who wants to remain at home, AbleNet is there to provide an "easy tech, easy value" approach to helping people improve their lives.
First Hand Foundation
2800 Rockcreek Parkway
Kansas City, MO 64117
816-201-1569
https://applications.cerner.com/firsthand/First...
E-mail: Firsthandfoundation@cerner.com *A funding resource for Assistive Technology. First Hand accepts applications from anywhere in the world. If you or someone you know would like to apply for assistance on behalf of a child, please review the financial guidelines and the criteria listed on the site. If your child's case meets all criteria, we are happy to consider your application.
National Library Service for the Blind and Physically Handicapped (NLS)
1291 Taylor Street, NW
Washington, DC 20011
(202) 707-5100
TDD: (202) 707-0744
(202) 707-0712 (Fax)
http://www.loc.gov/nls
E-mail/General Info: nls@loc.gov *Through a national network of cooperating libraries, NLS administers a free library program of braille and audio materials circulated to eligible borrowers in the United States by postage-free mail.
Pass It On Center ~ The National AT Reuse Center
1700 Century Circle, Suite 300
Atlanta, GA 30345
1-800-497-8665
1-866-373-7778 TDD
http://www.passitoncenter.org
E-mail: info@passitoncenter.org *The Pass It On Center is creating national and state by state resource lists to foster the appropriate reuse of AT so that people with disabilities can get the affordable AT they need in order to live, learn, work and play more independently.
RESNA~Rehabilitation Engineering and Assistive Technology Society of North America
1700 N. Moore Street, Suite 1540
Arlington, VA 22209
(703)-524-6686
http://www.resna.org
RESNA maintains a large data base of assistive technology resources, funding sources and other programs.
Section 508.gov (IT Accessibility & Workforce Division (ITAW))
Office of Government wide Policy 1800 F Street NW, Room G211
Washington, DC 20405
(Help) 202-208-7420
202-501-2010 (TTY)
202-501-6269 (Fax)
http://www.section508.gov/
GSA’s IT Accessibility and Workforce (ITAW) provides assistive technology solutions to eliminate barriers for people with disabilities. ITAW is the government's principal advocate and coordinator for Section 508 implementation that requires agencies to make information technology accessible for people with disabilities.
 
Charities and Foundations
Christopher & Dana Reeve Foundation
636 Morris Turnpike, Suite 3A
Short Hills, NJ 07078
1-800-225-0292
http://www.christopherreeve.org
*Spinal Cord injuries and paralysis. Specific military treatment program available.
The Lindsay Foundation
P.O. Box 1073
Huffman, TX 77336
281-399-2937
http://www.lindsayfoundation.org
E-mail: helpforachild@lindsayfoundation.org We assist families who have children with long-term catastrophic special-needs to obtain medical necessities for their children. We assist with physical, speech, aquatic and equestrian therapies. As well, we provide medical equipment and supplies when the insurance company denies or when there is no medical insurance.
The United Way of the Navajo Nation
P.O. Box 309
Window Rock, AZ 86515
(928) 871-6661
(928) 871-6663 (Fax)
http://www.navajounitedway.org
 
Child Care Resource Listings
Family Caregiver Alliance
785 Market Street, Suite 750
San Francisco, CA 94103
(800) 445-8106
(415) 434-3388
http://www.caregiver.org
E-mail: info@caregiver.org *Check out the Family Care Navigator for services in your state. http://www.caregiver.org/caregiver/jsp/fcn_content_node.jsp?nodeid=2083
Child Care Aware
3101 Wilson Blvd. Suite 350
Arlington, VA 22201
1-800-424-2246
TTY:1-866-278-9428
(703) 341-4101 (Fax)
http://www.childcareaware.org
Child Care Aware is a cooperative program of the National Association of Child Care Resource and Referral Agencies. Funded through the Office of Family Assistance, Administration for Children and Families, U.S. Department of Health and Human Services. **SNRP does NOT endorse this site. Listed for reference only. Use responsible caution when investigating ALL care providers.
National Association of Child Care Resource and Referral Agencies
http://www.naccrra.net
*Find Child Care CCR&R centers by State.
National Respite Locator Service
800 Easttowne Drive, Suite 105
Chapel Hill, NC 27514
(800) 473-1727 ext. 222
http://archrespite.org/home
List of Respite provider links nationwide. Focuses on respite care for families of special needs children.
Disability Specific Organizations
(Autism) Temple Grandin PhD.
http://www.templegrandin.com/templehome.html
*Great informational resource.
Administration on Developmental Disabilities
370 L'Enfant Promenade, S.W
Washington, DC 20447
http://www.acf.hhs.gov/programs/add/
ADD programs are at work in every state and U.S. territory. ADD does not provide direct consumer support or financial assistance. ADD provides funding, monitoring, and policy guidance to it's programs Nationwide. Check the State Program Listing for program information in your state.
American Diabetes Association
1701 North Beauregard Street
Alexandria, VA 22311
(1-800-342-2383).
http://www.diabetes.org
Email: AskADA@diabetes.org. *See registry for local chapter near you.
Amputee Coalition
900 East Hill Avenue, Suite 205
Knoxville, TN 37915-2566
888-267-5669
TTY:865-525-4512
http://www.amputee-coalition.org
Attention Deficit Disorders Association - Southern Region
12345 Jones Rd. Suite 287-7
Houston, TX 77070
(281) 897-0982
(281) 894-6883 (Fax)
http://www.adda-sr.org/
Autism Program at Yale (Yale Child Study Center)
230 South Frontage Rd.
New Haven, CT 06519
(203) 785-3420
(203) 764-4373 (Fax)
http://medicine.yale.edu/childstudy/autism/inde...
E-mail: betty.litto@yale.edu Our program involves infants, toddlers, pre-school, and school-age children, as well as young adults (18-21 years) with autism and related disorders and integrates highly experienced professionals from the fields of clinical psychology, neuropsychology and neuroimaging, child psychiatry, speech-language pathology, social work, genetics and the biological sciences, as well as psychopharmacology and psychiatric nursing. Our clinical and research activities are located in the Child Study Center at Yale University, School of Medicine in New Haven, Connecticut.
Autism Speaks
5455 Wilshire Boulevard, Suite 2250
Los Angeles, CA 90036
(323) 549-0500
(323) 549-0547 (Fax)
http://www.autismspeaks.org
E-Mail: contactus@autismspeaks.org *For an Autism Speaks office in your area visit our Community Pages.
Center for Autism and Related Disabilities, University of Florida, Gainesville
2124 NE Waldo Road, Suite 3200
Gainesville, FL 32609
1 (800) 928-8476
(352) 273-0581
(352) 846-3703 (Fax)
http://card.ufl.edu
Email: card-info@ufl.edu *The Center for Autism and Related Disabilities (CARD) provides support and assistance with the goal of optimizing the potential of people with autism and related disabilities.
Cerebral Palsy Family Network
http://www.cpfamilynetwork.org
Children With Diabetes
5689 Chancery Place
Hamilton, OH 45011
http://www.childrenwithdiabetes.com
*Diabetes education and information
Epilepsy Foundation of America
8301 Professional Place
Landover, MD 20785
(800) 332-1000
http://www.epilepsyfoundation.org/
FAS (Fetal Alcohol Syndrome) Community Resource Center
4710 East 29th. Street, Suite 7
Tucson, AZ 85711
(520) 296-9172
http://www.come-over.to/FASCRC/
Five P Minus Society (Cru-du-chat)
1-888-970-0777
http://www.fivepminus.org
*To encourage and facilitate communication among families having a child with 5p- Syndrome and to spread awareness and education of the syndrome to these families and their service providers.Call for referral to the Family Support Coordinator covering your area.
International Dyslexia Association
40 York Rd., 4th Floor
Baltimore, MD 21204-5202
(800) 222-3123
(410) 296-0232
http://www.interdys.org/
Email: info@interdys.org
Learning Disabilities Association of America
4156 Library Road
Pittsburgh, PA 15234
(412) 341-1515
(412) 344-0224 (Fax)
http://www.ldanatl.org
* See menu for chapter listings by state.
Muscular Dystrophy Association-USA
3300 E. Sunrise Drive
Tucson, AZ 85718
1-800-572-1717
http://www.mda.org
* Click on Find Your Local MDA Office to locate an office and clinic near you.
National Center for Learning Disabilities (NCLD)
381 Park Avenue South Suite 1401
New York, NY 10016
(888) 575-7373
(212) 545-7510
(212) 545-9665 (Fax)
http://www.ncld.org
National Consortium On Deaf-Blindness
345 N. Monmouth Ave.
Monmouth, OR 97361
800-438-9376
800-854-7013(TTY)
503-838-8150 (Fax)
http://www.nationaldb.org
E-mail: info@nationaldb.org
National Family Association For Deaf-Blind
141 Middle Neck Road
Sands Point, NY 11050
800-255-0411
516-883-9060 (Fax)
http://www.nfadb.org/home.html
email: NFADB@aol.com *National State-by-State listing
The Brain Trauma Foundation
7 World Trade Center 34th Floor
New York, NY 10007
212-772-0608
https://www.braintrauma.org/links/educational-r...
United Cerebral Palsy (UCP)
1660 L Street, NW, Suite 700
Washington, DC 20036
(800) 872-5827
TTY (202) 973-7197
(202) 776-0414 (Fax)
http://www.ucp.org
*Excellent state-by-state resource guide. E-mail your local chapter for more information.
Williams Syndrome Changing Lives Foundation
727-557-7177
http://www.wschanginglives.org
E-mail: info@wschanginglives.org The Williams Syndrome Changing Lives Foundation is a non-profit organization centered on increasing awareness, increasing education for families, the community, physicians and therapists. We provide needed financial assistance with medical, therapeutic, recreational and other developmental resources.
Williams Syndrome Family of Hope, Inc.
P.O. Box 2144
Tifton, GA 31793
727-557-7177
http://www.wsfamilyofhope.org
E-mail: info@wsfamilyofhope.org *The Hope Family Assistance Project provides financial assistance in getting necessary medical treatment/testing, recreational and education therapies, support resources and travel assistance for individuals with Williams syndrome.
 
Early Intervention
National Association for the Education of Young Children
1313 L. Street, NW, Suite 500
Washington, DC 20005
(800) 424-2460
(202) 232-8777
(202) 328-1846 (Fax)
http://www.naeyc.org
National Early Childhood Technical Assistance System (NEC*TAS)
517 South Greensboro Street
Carrboro, NC 27510
(919) 962-2001
TDD (919) 843-3269
(919) 966-7463 (Fax)
http://www.nectac.org
E-mail: nectac@unc.edu NECTAC is the national early childhood technical assistance center supported by the U.S. Department of Education's Office of Special Education Programs (OSEP) under the provisions of the Individuals with Disabilities Education Act (IDEA). NECTAC serves Part C-Infant and Toddlers with Disabilities Programs and Part B-Section 619 Preschool Programs for Children with Disabilities in all 50 states and 10 jurisdictions to improve service systems and outcomes for children and families.
New Mexico Early Intervention & Children's Services/Family Infant Toddler Program
1-877-696-1472
(505) 827-2578
http://www.health.state.nm.us/ddsd/fit/index.html
Office of Head Start-US Administration for Children & Families
370 L'Enfants Promenade, SW
Washington, DC 20447
http://www.acf.hhs.gov/programs/ohs
Provides a State by State program finder.
Education
Mountain Plains Regional Resource Center (Utah State University)
1780 N. Research Parkway, Suite 112
Logan, UT 84341
(435) 752-0238
http://www.rrcprogram.org/cms2/index.php/center...
The MPRRC serves Arizona, the Bureau of Indian Affairs, Colorado, Kansas, Montana, Nebraska, New Mexico, North Dakota, South Dakota, Utah and Wyoming. Click on your state from this home page for events and information in your area.
National Center on Accessible Instructional Materials at CAST, Inc.
40 Harvard Mills Square, Suite 3
Wakefield, MA 01880
(781) 245-2212
http://aim.cast.org
*Provides a wide variety of information and resources, including training events Nationwide, regarding Accessible Instructional Materials. A state-by-state listing of programs and services is also available from the home page.
New Mexico Public Education Department
http://www.sde.state.nm.us/
New Mexico State Department of Education/Special Education
300 Don Gaspar Avenue - Education Building
Santa Fe, NM 87501-2786
(505) 827-1457
(505) 954-0001
http://www.ped.state.nm.us/seo/parents/index.htm
*Especially for Parents Program email: sped.contact@state.nm.us
Special Education Advisor
9909 Topanga Canyon Blvd. #169
Chatsworth, CA 91311
(818) 993-3011
http://www.specialeducationadvisor.com
* An online Special Education & IEP Advisor covering a wide base of special education and IEP/504 topics.
Speech Therapy Ideas and Speech Therapy Activities
http://www.speechtherapyideas.com
*Provides speech therapy ideas and activities developed by a licensed Speech Language Pathologist for parents and professionals.
Think Inclusion
http://www.thinkinclusive.us
E-mail: timvillegas@thinkinclusive.us * An informational blog with wide ranging information and experience in educational inclusion. A Recommended Read.
We Connect Now
McIlhenny Drive
Baton Rouge, LA 70809
http://weconnectnow.wordpress.com
E-mail: weconnectnow2008@gmail.com *We Connect Now is dedicated to uniting people on issues which affect people with disabilities, with emphasis on college students higher education & employment.
Employment
We Connect Now
McIlhenny Drive
Baton Rouge, LA 70809
http://weconnectnow.wordpress.com
E-mail: weconnectnow2008@gmail.com *We Connect Now is dedicated to uniting people on issues which affect people with disabilities, with emphasis on college students higher education & employment.
 
Equipment
Adaptech 4 Kids
1111 Menaul Blvd NE
Albuquerque, NM 87017
(505) 255-5501
(505) 255-9971
http://www.adaptech4kids.org
email: administrator@adaptech4kids.org
New Mexico Technology Assistance Program (NMTAP).
435 St. Michael's Dr. Bldg. D
Santa Fe, NM 87505
1-800-866-2253
(505) 954-8608 (Fax)
http://www.nmtap.com/
Tadpole Adaptive
3940 7th Avenue, Suite 103
San Diego, CA 92103
(877) 698-2376
619-881-0044 (Fax)
http://www.tadpoleadaptive.com
Email: sales@tadpoleadaptve.com *Tadpole Adaptive is a website that specializes in pediatric special needs equipment. It was co-founded by a physical therapist and a wheelchair user. There is a physical therapist on staff that can help individuals make sound choices for their equipment needs. Also, Tadpole Adaptive has a registry, where families can register for their adaptive equipment. This gives individuals the opportunity to do their own fundraising. For example, families can say, "In lieu of Christmas presents this year, please make a donation to our registry at Tadpole Adaptive."
University of New Mexico Center for Developmental Disability Assistive Technology Program
(505) 272-3000
http://cdd.unm.edu/at/resources/index.htm
*Statewide listing of Assistive Technology Programs.
UsersFirst ~ Mobility Map | A Program of United Spinal Association
75-20 Astoria Blvd
Jackson Heights, NY 11370
718-803-3782
http://www.usersfirst.org
E-mail: usersfirst@unitedspinal.org *The Mobility Map provides people with disabilities guidance in getting wheelchairs and other mobility equipment that meets their unique needs. It offers tips on identifying your wheelchair team such as physicians and medical equipment suppliers, how to obtain a wheelchair evaluation, and where to find funding.
Wheelchair
http://www.newdisability.com
* A european website with many useful wheelchair related articles and interesting video. Click on "Articles" in the left hand menu.
Housing Programs - Government
Disability.gov ~ Housing
http://www.disability.gov
*Click on "Housing" in the upper menu for all pages. Provides a comprehensive listing of Federal and State housing programs and up to date program information.
Paralyzed Veterans of America
801 18th Street NW
Washington, DC 20006-3517
1-800-424-8200
http://www.pva.org
*Not just for paralyzed Veterans, not just for paralysis. Ask for their Architecture Program! **SNRP recommends their publication "Accessible Home Design".
Housing Programs - Private
ABILITY Awareness
1440 E. 1st St., Suite 107
Santa Anna, CA 92710
(714) 277-4330
(949) 943-4496 (military/ Los Al
(714) 277-3743 (Fax)
http://www.abilityawareness.org/index.htm
Email: Info@ABILITYawareness.org *Builds accessible low income homes. **Provides outpatient rehabilitation housing for wounded military members and their families. To contact ABILITY House at Los Al, please Email LosAl@ABILITYawareness.org
Accessible Space, Inc. (ASI)
2550 University Avenue, Suite 330N
St. Paul, MN 55114
1-800-466-7722
(651) 645-7271
(651) 645-0541 (Fax)
http://www.accessiblespace.org/Pages/Home.aspx
E-mail: info@accessiblespace.org *Currently providing housing in 26 states, provides accessible, affordable, assisted/supportive and independent living opportunities for persons with physical disabilities and brain injuries, as well as seniors. This mission is accomplished through the development and cost-effective management of accessible, affordable housing, as well as the provision of assisted/supportive living and rehabilitation services.
Center For Universal Design North Carolina State University
P.O. Box 8613
Raleigh, NC 27695-8613
(800) 647-6777
V/TTY:(919) 515-3082
(919) 515-3023 (Fax)
http://www.ncsu.edu/ncsu/design/cud/index.htm
*Please check the publications listings for detailed information.
Concrete Change
600 Dancing Fox Road
Decatur, GA 30032
404-378-7455
http://concretechange.org
*Concrete Change is an international network whose goal is making ALL new homes visitable, not just specialť homes. We focus on three essentials that must become the default in home construction practice: One zero-step entrance, at the front, back or side of the house. All main floor doors, including bathrooms, with at least 32 inches of clear passage space. At least a half bath, preferably a full bath, on the main floor.
Greater Albuquerque Housing Partnership
320 Gold SW, Suite 918
Albuquerque, NM 87102
(505) 244-1614
http://www.abqgahp.org
Habitat for Humanity
121 Habitat Street
Americus, GA 31709-3498
1-800-422-4828
1-229-924-6935
http://www.habitat.org
*For information on eligibility,locations, projects and supported communities in your state click on "Contact Us" and then search for location.
IDeA ~ Center for Inclusive Design and Environmental Access
3435 Main Street, 114 Diefendorf Hall
Buffalo, NY 14214-3087
(716) 829-5902
(716) 829-3861 (Fax)
http://www.ap.buffalo.edu/idea/Home/index.asp
E-mail: ap-idea@buffalo.edu *The IDeA Center is dedicated to making environments and products more usable, safer and healthier in response to the needs of an increasingly diverse population. The IDeA Centers activities are based on the philosophy of Inclusive Design, often called Universal Design or Design for All.ť It is a way of thinking that can be applied in any design activity, business practice, program or service involving interaction of people with the physical, social or virtual worlds.
Institute for Human Centered Design (Adaptive Environments)
180-200 Portland Street, Suite 1
Boston, MA 02114
(617) 695-1225
(617) 482-8099 (Fax)
http://humancentereddesign.org
E-mail: info@HumanCenteredDesign.org
New Mexico Mortgage Finance Authority
344 4th Street SW
Albuquerque, NM 87102
(800) 444-6880 (In State Only)
(505) 843-6880
(505) 243-3289 (Fax)
http://www.housingnm.org
Ramps dot Org ~Free Ramp Program list
(877)312-6989
http://www.ramps.org/free-ramps.htm
E-mail: questions@ramps.org *Ramps.org is here to help you decide what type of wheelchair ramp is right for your specific situation. Need assistance programs? Click on FREE RAMP PROGRAMS at the bottom of the left-hand menu for a listing of programs in your state.
Rebuilding Together/National Headquarters
1536 16th Street, N.W.
Washington, DC 20036
1-800-473-4229
http://www.rebuildingtogether.org
*Currently has 225 affiliates, nationwide. Click on "Affiliates" for the Affiliate office nearest you.
 
Independent Living Organizations
Alta Mira Specialized Family Service, Inc.
1605 Carlisle, NE
Albuquerque, NM 87110
(505) 262-0801
(505) 262-0845 (Fax)
http://www.altamiranm.org
email: agency@altamiranm.org
New Vistas
1205 Parkway Drive, Suite A
Santa Fe, NM 87505
(505) 471-1001
(505) 471-4427 (Fax)
http://www.newvistas.org
San Jaun Center for Independence
3535 Ea. 30th Street, suite 101
Farmington, NM 87402
(505) 566-5827
(505) 566-5847 (Fax)
http://www.sjci.org
email: sjci@fisi.net
 
Indian Health Services
Navajo Area Indian Health Service (NAIHS))
P.O. Box 9020
Window Rock, AZ 86515
(928) 87105811
http://www.ihs.gov/FacilitiesServices/AreaOffic...
 
Information
ADA Document Portal
http://adata.org/ada-document-portal
*The ADA Web Search Portal is a focused search of important websites that contain information about the ADA. The purpose of the Portal is to connect individuals with high quality information about the Americans with Disabilities Act and to assist individuals in answering ADA questions.
ADA Information and Technical Assistance
U.S. Department of Justice,950 Pennsylvania Avenue, NW,Disability Rights Section - NYA
Washington, DC 20530
800-514-0301
800-514-0383 (TTY)
http://www.ada.gov
*For information and assistance call the information line listed above.
Beach Center on Disability/University of Kansas
1200 Sunnyside Ave. Room 3136 Haworth Hall
Lawrence , KS 66045-7534
(785) 864-7600
TTY (785) 864-3434
(785) 864-7605 (Fax)
http://www.beachcenter.org
email:beachcenter@ku.edu
Disability Information.Gov
http://www.disability.gov
*Large Federal database providing easy access to comprehensive information about disability programs, services, laws and benefits. To find disability resources in your state just click on the Find State and Local Resources map located in each of the subject areas listed in their menu.
Drugwatch.com
800-452-0949
http://www.drugwatch.com
Email: webmaster@drugwatch.com Drugwatch.com provides information on a wide range of prescription and over-the-counter medications, including details on side effects, uses, and interactions, as well as the latest drug news and FDA alerts.
Enabled Kids
(416) 250-1904
http://enabledkids.ca
E-mail: natan@enabledkids.ca *"Enabling children to function independently"
Foundation for Health Coverage Education® (FHCE)
800-234-1317
http://www.coverageforall.org
Email: fhceinfo@coverageforall.org * Assists individuals and families find health care coverage in their area.
Girls Health.gov
8270 Willow Oaks Corporate Drive, Suite 301
Fairfax, VA 22031
http://www.girlshealth.gov/
*See "Illness and Disability" tab. Excellent information resource.
Great Lakes ADA Center
MC 728 - 1640 W. Roosevelt Road, Room 405
Chicago, IL 60608
312-413-1407 (V/TTY)
877-232-1990 (V/TTY)
312-413-1856 (Fax)
http://www.accessibilityonline.org
* The ADA National Network provides a comprehensive set of services for up-to-date information, consultation, referrals, resources, and training on the Americans with Disabilities Act for businesses, employers, governmental entities, service providers and individuals with disabilities.
Health Care dot Gov
http://www.healthcare.gov/index.html
*Provides current and up to date information regarding health care legislation and a state-by-state guide to insurance programs available in every state.
IMPACT on Health and Wellness (Family Voices)
3701 San Mateo Blvd. NE, Suite 103
Albuquerque, NM 87110
(505) 872-4774
(888) 835-5669
(505) 872-4780 (Fax)
http://www.familyvoices.org/projects?id=0001
*IMPACT is a project of national Family Voices. Our goal is to promote a holistic, culturally relevant approach to health and wellness for all families and children including those with special healthcare needs and disabilities.
MedicareSolutions
http://www.medicaresolutions.com/disability-res...
*A comprehensive page on disabilities providing informative links in several areas of interest including Disability Rights, support groups, government resources and organizations and others.
National Organization on Disability
910 Sixteenth Street, N.W., Suite 600
Washington, DC 20006
(202) 293-5960
TTY: (202) 293-5968
(202) 293-7999 (Fax)
http://www.nod.org
E-mail: ability@nod.org
New Mexico Health Link
http://www.healthlinknm.org/
New Mexico Web Resource Listings
Parents Training and Information Center
1920 B. Columbia S.E.
Albuquerque, NM 87106
(800) 524-5176 (in NM)
(505) 247-0192
http://www.parentsreachingout.org
email:info@parentsreachingout.org
The Georgetown University Center for Child and Human Development University Center for Excellence in Developmental Disabilities (UCEDD)
http://www.gucchdgeorgetown.net/ucedd/links.html
* An excellent Links list regarding a wide variety of topics is provided here.
United Spinal Association
75-20 Astoria Boulevard
Jackson Heights, NY 11370
800-404-2898
(718) 803-3782
(718) 803-0414 (Fax)
http://www.unitedspinal.org/disability-publicat...
*Linda's favorite down-loadable informational resource. Linda recommends the following booklets: Disability Etiquette (PDF), Taking Action (PDF), Adaptive Automotive Equipment (PDF), The Americans with Disabilities Act (PDF),The Fair Housing Amendments Acts (PDF) and Accessing Local Government (PDF). Please see the menu page for other publications you may be interested in.
 
Insurance Assistance Programs
Good Rx dot com
501 Santa Monica Blvd.Suite 403
Santa Monica, CA 90401
1-888-799-2553
http://www.goodrx.com
*Comparison shop for over 6000 FDA approved medications at 70,000 pharmacies nationwide. With or without insurance this site can save you money.
Healthcare Dot Gov
200 Independence Avenue, S.W.
Washington, DC 20201
http://www.healthcare.gov
*Provides a wide variety of current health care information. State-by-State listings will help consumers compare programs and services in their communities.
Insure Kids Now dot gov
1-877-543-7669
http://www.insurekidsnow.gov
E-mail: CMSOCHIPRAQuestions@cms.hhs.gov *InsureKidsNow.gov provides information about Medicaid and CHIP services for families who need health insurance coverage. These programs are designed to be affordable for families who are not able to afford health insurance coverage in the private market or do not have coverage available to them. Even if you've been turned down in the past, you may be able to get health coverage for your child now. Learn more about health coverage programs in your state. How to Contact Us: If you have specific questions about health insurance for your children, please contact the programs in your state or make a free call to 1-877-543-7669, our free and confidential hotline, where you'll be connected directly to someone from your state who will help you apply.
Patient Advocate Foundation
421 Butler Farm Road
Hampton, VA 23666
(800) 532-5274
(757) 873-8999 (Fax)
http://patientadvocate.org
*Provides effective mediation and arbitration services to patients to remove obstacles to healthcare including medical debt crisis, insurance access issues and employment issues for patients with chronic, debilitating and life-threatening illnesses.
Legal Advocacy/Information
LawHelp.org
151 West 30th Street, 10th Fl.
New York, NY 10001
http://www.lawhelp.org
E-mail: info@lawhelp.org *LawHelp helps low and moderate income people find free legal aid programs in their communities, answers to questions about their legal rights, and find forms to help with their legal problems. State-by-state listing.
National Health Law Program (NHelp) Main Office
2639 South La Cienega Blvd
Los Angeles, CA 90034-2675
(310) 204-6010
(310) 204-0891 (Fax)
http://www.healthlaw.org
Email: nhelp@healthlaw.org * NHeLP serves legal services programs, community-based organizations, the private bar, providers and individuals who work to preserve a health care safety net for the millions of uninsured or underinsured low-income people.
The Special Needs Alliance
http://www.specialneedsalliance.org
*Provides a national list of lawyers specializing in special needs trusts and other resources by state.
Utah State Courts Guardianships and Conservatorships
http://www.utcourts.gov/howto/family/gc/
*A large "How To" database full of information required to go through the process for minors and adults. Geared for Utah this site is still useful for other states.
Wright's Law
http://www.wrightslaw.com
 
Medical Centers/Hospitals/Clinics
Presbyterian hospital CHildren's Program
2501 Buena Vista SE
Albuquerque, NM 87125
(800) 672-8880
http://www.phs.org/healthinfo/hichildprog.shtml
email:info@phs.org
The National Association of Free & Charitable Clinics
1800 Diagonal Road, Suite 600
Alexandria, VA 22314
703-647-7427
866-875-3827 (Fax)
http://nafcclinics.org
Email: Info@nafcclinics.org * The National Association of Free and Charitable Clinics (NAFC) is the only nonprofit 501c(3) organization whose mission is solely focused on the issues and needs of the more than 1,200 Free and Charitable Clinics and the people they serve in the United States.
University of New Mexico Carrie Tingley Hospital
1127 University Blvd., NE
Albequerque, NM 87102-1715
(505) 272-5200
http://hospitals.unm.edu/unmcth/
University of New Mexico Children's Hospital
2211 Lomas Blvd N.E. 3rd Floor of UNM Hospital
Albuquerque, NM 87131
(505) 272-2111
http://hospitals.unm.edu/UNMCH/
Medical Information/Research Organizations
American Academy of Pediatrics/Childhood Immunization Support Program
141 Northwest Point Blvd.
Elk Grove Village, IL 60007
http://www.cispimmunize.org/
*Information regarding childhood immunizations.
American Association of Pediatrics
141 Northwest Point Blvd.
Elk Grove Village, IL 60007
(847) 434-4000
http://www.aap.org
General information regarding diagnosis and treatment of pediatric disorders and diseases as well as some referral services.
American Medical Association
515 No. State St.
Chicago , IL 60610
(800) 621-8335
http://www.ama-assn.org
General information regarding diagnosis,treatment and current research in the medical community.
American Occupational Therapy Association, Inc.
4720 Montgomery Lane
Bethesda, MD 20824-1220
(301) 652-2682
TDD: 1-800-377-8555
(301) 652-7711 (Fax)
http://www.aota.org/
American Speech-Language-Hearing Association
10801 Rockville Pike
Rockville, MD 20852
(800) 638-8255
http://www.asha.org
* Has an extensive database of Audiologists and Speech-Language Pathologists. Click on "Find a Professional".
Annette and Irwin Eskind Biomedical Library (at Vanderbilt University)
2209 Garland Avenue
Nashville, TN 37232-8340
(615) 936-1410
(615) 936-1384 (Fax)
http://www.mc.vanderbilt.edu/biolib/index.html
Birth Defects Research for Children, Inc.
800 Celebration Avenue, Suite 225
Celebration, FL 34747
(407) 566-8304
(407) 566-8341 (Fax)
http://www.birthdefects.org/
Children's Neurobiological Solutions Foundation
1223 Wilshire Blvd., #937
Santa Monica, CA 90403
866-267-5580
310-889-8611
http://www.cnsfoundation.org/site/PageServer
E-Mail: info@cnsfoundation.org *CNS is a nonprofit research foundation improving the lives of children disabled by neurological disorders through research focused on brain repair and regeneration.
Columbus Children's Research Institute
700 Children's Drive
Columbus, OH 43205
(614) 722-2000
(614) 722-2716 (Fax)
http://columbuschildrens.com/GD/Templates/Pages...
Consumer Reports Medical Guide
http://www.consumerreports.org/mg/home.htm
Medical reports on a wide variety of topics. *ALWAYS consider the source when reviewing medical information
FDA New Pediatric Labeling Information Database
10903 New Hampshire Avenue
Silver Springs, MD 20993
1-888-463-6332
http://www.accessdata.fda.gov/scripts/sda/sdNav...
The Pediatric Labeling Information Database is a one-stop resource. You can search for information by the products commercial or chemical name, or by the condition for which it was studied. FDA's Office of Pediatric Therapeutics (OPT), which focuses on safety, scientific, and ethical issues that arise in pediatric clinical trials or after products are approved for use in children, developed the tool in collaboration with another branch of the agency, the Center for Drug Evaluation and Research.
Safe Medication/American Society of Health-System Pharmacists
7272 Wisconsin Avenue
Bethesda, MD 20814
301-657-3000
http://www.safemedication.com/
*Contains links to Patient Assistance Programs for pharmaceutical services (Drugs/Medications).
Speech Therapy Ideas and Speech Therapy Activities
http://www.speechtherapyideas.com
*Provides speech therapy ideas and activities developed by a licensed Speech Language Pathologist for parents and professionals.
The Early Childhood Research Institute on Culturally and Linguistically Appropriate Services (CLAS)
61 Children's Research Center
Champaign, IL 61821
(877) 275-3227
(217) 333-4123
http://www.clas.uiuc.edu/aboutclas.html
*Dear Visitors: Federal funding for this website ended in 2003, therefore few materials have been added since that time. Fortunately, there is continued interest in culturally and appropriate materials, curriculum, and programs. Because of this, we have allowed this site to remain as an archive. Please feel free to use this site, but recognize that it is no longer current.
Military Family Support Organizations
Child Care Aware - Military Programs
3101 Wilson Blvd. Suite 350
Arlington, VA 22201
1-800-424-2246
TTY:1-866-278-9428
(703) 341-4101 (Fax)
http://www.naccrra.org/node/3090
Child Care Aware is a cooperative program of the National Association of Child Care Resource and Referral Agencies. Funded through the Office of Family Assistance, Administration for Children and Families, U.S. Department of Health and Human Services. **SNRP does NOT endorse this site. Listed for reference only. Use responsible caution when investigating ALL care providers.
 
Military Quick Links (National Guard, Reserve, Active Duty)
ABA Military Pro Bono Project
321 N. Clark St.
Chicago, IL 60654
312-988-5783
http://www.militaryprobono.org
*The ABA Military Pro Bono Project accepts case referrals from military attorneys on behalf of junior-enlisted, active-duty military personnel and their families with civil legal problems, and it places these cases with pro bono attorneys where the legal assistance is needed. The Project is also the platform for Operation Stand-By, through which military attorneys may seek attorney-to-attorney advice to further assist their service member clients.
Easter Seals National Headquarters
230 W. Monroe St., Suite 1800
Chicago, IL 60606
(800) 221-6827
TTY 312-726-4258
(312) 726-1494 (Fax)
http://www.easterseals.com
*Contact for the chapter closest to you. Ask your local chapter for camps, grants, respite services and other services available in your area.
Exceptional Family Member Program/All Branches/Mobile
http://apps.militaryonesource.mil/pls/psgprod/f...
Contains contact information, Base program locators and enrollment/justification forms for ALL Branches of service.
Kids' Waivers/Medicaid Waiver Programs
http://www.kidswaivers.org
Medicaid waivers for children are unfortunately quite confusing. Not only that, but it is impossible to find information about them. This project State-by-State is intended to simplify the process as much as possible.
Medicaid Waiver dot Org
http://medicaidwaiver.org
*A state-by-state Medicaid Waiver program listing. Please note: Medicaid programs do not transfer. If you're planning a move you'll want to do some homework. Start here then go to the official page of the state you are considering.
Military Home Front/Exceptional Family Member Program (EFMP)
http://www.militaryhomefront.dod.mil/tf/efmp
*Over 100,000 military families have members with special needs. These include spouses, children, or dependent parents who require special medical or educational services. These family members have a diagnosed physical, intellectual, or emotional condition. The Exceptional Family Member Program (EFMP) works with these families to address their unique needs.The materials within this section of Military HOMEFRONT are designed to give service members and their families critical information and resources related to the EFMP program.
National Military Family Association/Legal
2500 North Van Dorn St., Suite 102
Alexandria, VA 22302-1601
http://www.militaryfamily.org/your-benefits/legal/
*The U.S. Armed Forces Legal Assistance website is a joint initiative of the Armed Forces that aims to provide general legal information to the military community.
New Mexico Medicaid/Medical Assistance Division
P.O. Box 2348
Santa Fe, NM 87504-2348
(888) 997-2583
(505) 827-3185 (Fax)
http://www.hsd.state.nm.us/mad/index.html
Social Security Administration Information for Parents
National Info. 1-800-772-1213
http://www.ssa.gov/pgm/links_ssi.htm
*Benefits information and local office addresses with contact information available by state and city.
State & Local Government on the Net
http://statelocalgov.net/50states-military-vete...
*State listings for Military and Veterans sites within the 50 United States.
StateLocalGov Dot com Bar Association Locator
http://attorneys.statelocalgov.net/#state-military
*Scroll down the home page for Military and Veteran Bar Association listings.
The Medicaid Reference Desk (The ARC)
1825 K Street NW, Suite 1200
Washington, DC 20006
800-433-5255
http://www.thearc.org/page.aspx?pid=2462
E-mail: contact@thedesk.info (**This site is currently being upgraded to reflect the recent changes made in Medicaid policy in many states. Please check back for new information.)The site offers state by state information on Medicaid programs and waivers, and includes a list of what types of services fall under each program/waivers jurisdiction. The website offers information on common questions and concerns regarding Medicaid. It includes a Medicaid terms and definitions section, defining words commonly used on Medicaid forms and correspondence as well as other useful information.
The National Resource Directory
http://www.nationalresourcedirectory.gov
The National Resource Directory (NRD) provides access to services and resources at the national, state and local levels that support recovery, rehabilitation and community reintegration.
The Special Needs Alliance
http://www.specialneedsalliance.org
*Provides a national list of lawyers specializing in special needs trusts and other resources by state. Check here for help with Guardianship, incapacitation, trusts and other pertinent topics.
United Cerebral Palsy (UCP)
1660 L Street, NW, Suite 700
Washington, DC 20036
(800) 872-5827
TTY (202) 973-7197
(202) 776-0414 (Fax)
http://www.ucp.org
*Contact for your local chapter. Excellent state-by-state resource guide.
United Way
701 N. Fairfax St.
Alexandria, VA 22314
http://national.unitedway.org
*Non-profit charitable organization offering a variety of services including camps, respite, grants, etc. Find your local chapter here.
Native American Tribal Contacts
Education for Parents of Indian Children with Special Needs
1600 San Pedro Drive, NE
Albuquerque, NM 87110
(505) 767-6630
(505) 767-6631 (Fax)
http://www.epicsproject.org
*EPICS is a 501 (c)(3) non-profit community parent resource center for families who live in New Mexico, Arizona, Utah and Colorado who have American Indian children with disabilities and/or special healthcare needs from birth to age 26 years old.
 
Other
Disability Studies, Temple University Blog
http://disstud.blogspot.com
*Based at Temple University but with nationwide contributors. Has a LARGE list of disability related blogs.
 
Parent Support Programs
Abrazos Family Support Services
P.O. Box 788
Bernalillo, NM 87004
(505) 867-3396
(505) 867-3398 (Fax)
http://www.brazosnm.org
email: info@abrazosnm.org
Compassion Fatigue Awareness Project
http://compassionfatigue.org
The Compassion Fatigue Awareness Project© is dedicated to educating caregivers about authentic, sustainable self-care and aiding organizations in their goal of providing healthy, compassionate care to those whom they serve. E-mail: patricia@compassionfatigue.org
Dads 4 Special Kids, Inc.
P.O. Box 73182
Phoenix, AZ 85050
602-909-5463
602-441-3248 (Fax)
http://dads4specialkids.org
E-mail: ray@dads4specialkids.org *To improve the lives of men and their families who care for children with special needs. We desire to provide an atmosphere where men can share and learn from others. To accomplish this we host monthly meetings, offer workshops that provide knowledge and practical skills for cultivating healthy communication within the marriage and family, and provide information on resources within the valley of the sun.
DadsMOVE (Mentoring Others Withe Voices of Experience)
6315 South 19th Street
Tacoma, WA 98466
http://www.dadsmove.org
*Dads MOVE serves all parents and the families of children with special needs - mental health, behavioral, or emotional concerns, across Washington State and soon, the nation. We are a family-focused, dads driven peer support model, providing education, support, and advocacy to the families of special needs children. CHECK OUT THEIR BLOG!
Family Voices
3701 San Mateo Blvd. NE, Suite 103
Albuquerque, NM 87110
(888) 835-5669
(505) 872-4774
(505) 872-4780 (Fax)
http://www.familyvoices.org
Family Voices aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities. Through our national network, we provide families tools to make informed decisions, advocate for improved public and private policies, build partnerships among professionals and families, and serve as a trusted resource on health care. *Click on your state for local chapter information.
Hands and Voices
PO Box 3093
Boulder, CO 80307
(866) 422-0422
http://www.handsandvoices.org/index.htm
E-mail: parentadvocate@handsandvoices.org *Dedicated to supporting families with children who are Deaf or Hard of Hearing without a bias around communication modes or methodology. We're a parent-driven, non-profit organization providing families with the resources, networks, and information they need to improve communication access and educational outcomes for their children, nationwide. Click on the Map to find the chapter in your state.
Mommies of Miracles
http://www.mommiesofmiracles.com
*Mommies of Miracles is a growing international peer-driven support group of mothers who have children of any age (infant-adult) with complex medical issues, rare or undiagnosed conditions, and/or developmental disabilities.
National Native American Families Together Parent Center (NAPTAC)
1600 San Pedro Drive, NE
Albuquerque, NM 87110
(888) 499-2070
(505) 767-6631 (Fax)
http://naptac.org
email: naft@moscow.com *The Native American Parent Technical Assistance Center (NAPTAC) is a project within EPICS to provide training and technical assistance to Parent Training & Information Centers (PTI’s) and Community Parent Resource Centers (CPRC’s) nationwide on providing effective, culturally responsive services to Native American families of children with disabilities, as well as youth with disabilities.
Parent 2 Parent (P2P)
http://www.p2pusa.org/p2pusa/SitePages/p2p-supp...
*Click on our Looking for Support map icon to find a statewide Parent to Parent program. If you don't presently have a program in your state, click on a neighboring state; they will happily help you find a match.
Parent Technical Assistance Center Network
888-248-0822
http://www.parentcenternetwork.org
*Parent Centers provide training, information and assistance to families of children with all disabilities ages birth to 26 years and the professionals who work with them. Click on the Regional Map to find the program/programs in your state.
Parents Reaching Out
1920 B Columbia Drive SE
Albuquerque, NM 87106
(505) 247-0192
http://www.parentsreachingout.org
PEAK Parent Center, Inc Region 5
611 North Weber, Suite 200
Colorado Springs, CO 80903
(800) 284-0251
(719) 531-9400
http://www.peakparent.org
email: region5ptac@peakparent.org
Sibling Support Project/A Kindering Center Program
6512 23rd Ave NW, #213
Seattle, WA 98117
(206) 297-6368
(509) 752-6789 (Fax)
http://www.siblingsupport.org
E-mail: info@siblingsupport.org *The Sibling Support Project is a national effort dedicated to the life-long concerns of brothers and sisters of people who have special health, developmental, or mental health concerns.
The Caregiver's Space
http://www.thecaregiverspace.org
*The Caregiver Space is designed to be a free social network, dedicated solely to the welfare of caregivers­: The Invisible Patients. Our goal is to become the premier center for finding resources, sharing experiences, developing personal networks and learning ways to minimize and cope with caregiver stress. Our code is to provide services that transcend disease, age, length of illness and income.
Patient Assistance Programs
American Dental Association ~ Give Kids A Smile Program
http://www.givekidsasmile.ada.org/findGKAS.asp
*This is a yearly clinic in most communities. Click on the Clinic locator to find a clinic in your area.
Merck Patient Assistance Programs
P.O. Box 100
Whitehouse Station, NJ 08889-0100
908-423-1000
http://www.merck.com/merckhelps/patientassistance/
Merck offers a family of programs providing free and discounted medicines to patients who cannot afford their prescribed medicines.
National Council on Patient Information and Education
200-A Monroe Street, Suite 212
Rockville, MD 20850
(301) 340-3940
(301) 340-3944 (Fax)
http://www.talkaboutrx.org
Email: ncpie@ncpie.info
NeedyMeds
P.O. Box 219
Gloucester, MA 01931
http://www.needymeds.org
NeedyMeds is a 501(c)(3) national non profit, has information on programs that help people who can't afford their medications and health care costs. Provides data regarding approximately 2400 programs and nearly 11,000 free/low-cost/sliding-scale clinics.
Partnership for Prescription Assistance
1-888-477-2669
http://www.pparx.org
The Partnership for Prescription Assistance offers a single point of access to more than 475 public and private patient assistance programs, including more than 180 programs offered by pharmaceutical companies. More than 2,500 brand-name and generic medicines are covered.
Partnership for Prescription Assistance Kids
1-877-369-1477
http://kids.pparx.org
The Partnership for Prescription Assistance offers a single point of access to more than 475 public and private patient assistance programs, including more than 180 programs offered by pharmaceutical companies. More than 2,500 brand-name and generic medicines are covered.
Pfizer Helpful Answers
1-866-706-2400
http://www.pfizerhelpfulanswers.com
Pfizer Helpful Answers is a family of assistance programs for uninsured and underinsured patients who need help getting their Pfizer medicines. These programs provide: •Pfizer medicines for free or at a savings to patients who qualify •Some programs also offer reimbursement support services Call for more information.
RxAssist
111 Brewster Street
Pawtucket, RI 02860
401-729-3284
401-729-2955 (Fax)
http://www.rxassist.org
Email: info@rxassist.org Patient Assistance Program Center ~ Offers a comprehensive database of programs and information.
Recreation
Ability Station
278 South 880 West
Spanish Fork, UT 84660
800-520-1222
http://www.abilitystation.com
Ability Station offers toys for special needs children needing sensory, fine motor and gross motor,and cognitive development. Toys are reviewed by an Occupational, Physical or Speech Therapist.
Accessible Playground dot Net
1463 Greystone Dr.
Pittsburgh, PA 15206
(412) 334-2652
http://www.accessibleplayground.net
E-mail: mara@letkidsplay.com *Excellent web based center for information re: Accessible playgrounds. Provides a nationwide state-by-state playground directory and playground resources.
American Amputee Hockey Association and Standing Amputee
http://www.usahockey.com/page/show/902518-stand...
E-Mail: DisabledHockey@USAHockey.org *The AAHA invites all players with limb loss/ birth defects/ and other disabilities to play upright ice hockey.
American Camp Association
5000 State Road 67 North
Martinsville, IN 46151-7902
800-428-2267
765-342-8456
765-342-2065 (Fax)
http://www.campparents.org
*24 Regional Offices nationwide. Check listings for camps near you.
American Wheelchair Bowling Association
P.O. Box 69
Clover, VA 24534
http://www.awba.org
E-mail: info@awba.org *The AWBA provides a competitive, challenging, and informative environment for those individuals with disabilities requiring the use of a wheelchair while bowling to participate in bowling events no matter their individual skill level.
Amputee Coalition
900 East Hill Avenue, Suite 205
Knoxville, TN 37915
888-267-5669
http://www.amputee-coalition.org/fact_sheets/Ki...
E-Mail: amputee-coalition.org *See for amputee camps listed by state.
Art Shop Therapuetic Art Lessons for Children and Adults with Disabilities
1043 Grand Ave.
St. Paul, MN 55105
612-254-5013
http://artshoptherapy.com
*ArtShop provides opportunities for children and adults with cognitive, developmental, emotional and physical disabilities to participate in the creative process and develop as artists. Through therapeutic art lessons and projects adapted for individuals with disabilities, ArtShop utilizes the process of creating art to promote and develop self expression and empowerment.
Best Buddies - Global Headquarters
100 Southeast Second Street, Suite 2200
Miami , FL 33131
(800) 892-8339
(305) 374-2233
(305) 374-5305 (Fax)
http://www.bestbuddies.org
*Contact for a chapter in your area.
C.A.S.T. for Kids Foundation (Western Region)
227 S.W. 41st Street
Renton, WA 98057
(425) 251-3214
(425) 251-3272 (Fax)
http://www.castforkids.org/
Email:jim@castforkids.org *Contact for a fishing program in your state
CampResource.com/Online Summer Camp Directory
http://www.campresource.com
*Special needs camps for boys and girls that focus on the challenges of ADHD, Autism, physical disabilities, weight loss, diabetes, and many other special needs that children face. Listed alphabetically. Can search by camp type and state.
Challenge Air
7363 Cedar Springs Road
Dallas, TX 75235
(214) 351-3353
1-877-FLY-KIDS
http://www.challengeair.com
Challenge Air has enriched the lives of children and youth with special needs through its unique aviation programs since 1993. Programs can be set up in various communities that qualify. Contact for details!
Dreams Fulfilled Through Music
P.O. Box 40548
San Antonio, TX 78229
210-771-5809
210-247-9681 (Fax)
http://dreamsfulfilledthroughmusic.org/index.ph...
E-mail: info@dftm.org *National Music Teacher Directory for teachers specializing/also teaching children with special needs. Click on Resources then Teacher Directory.
FlagHouse Inc.
601 FlagHouse Drive
Hasbrouck Heights , NJ 07604-3116
http://www.flaghouse.com
*Need a grant? Click on "Grant Writing Center" in the bottom menu for more information. *Supplier of Special Needs equipment and resources for physical education, sports, fitness, and recreation and for health, special needs, special education, sensory integration, and multisensory environments.
Freedom's Wings International, Inc.
324 Charles Street, Apt #25
Coopersburg, PA 18036
(800) 382-1197
http://www.freedomswings.org
Freedom's Wings International (FWI) is a non-profit organization run by and for people with physical disabilities. We provide the opportunity for those who are physically challenged to fly in specially adapted sailplanes, either as a passenger or as a member of the flight training program.
Fun and Function
PO Box 11
Merion Station, PA 19066
(800) 231-6329
(215) 876-8500
(866) 343-6863 (Fax)
http://funandfunction.com
E-mail: Sales@FunandFunction.com *We design sensory toys and therapy equipment for special needs to help children learn adaptive responses for what they may lack or crave.
International Wheelchair Aviators
P.O. Box 279
Kemah, TX 77565
281-703-7450
http://wheelchairaviators.org
E-mail: IWAviators@aol.com A worldwide group of disabled and able bodied pilots interested in aviation and flying. Members have many different disabilities including paraplegia,quadriplegia, amputee, multiple sclerosis, spina bifida, polio and other problems.
Let Kids Play!
1463 Greystone Dr.
Pittsburgh, PA 15206
(412) 334-2652
http://www.letkidsplay.com
E-mail: mara@letkidsplay.com *Let Kids Play is a consulting firm that works with manufacturers, communities, non-profits, park districts, retail stores, and parents on projects and strategies that ensure that all children have the best play opportunities possible
Liberty Swing
http://www.libertyswing.com.au
For information E-mail: Australia office at diane@libertyswing.com.au *Playground swing equipment for people with disabilities which enable children in wheelchairs to enjoy the fun and recreation of swinging.
Life Rolls On
400 Corporate Pointe, Suite 525
Culver City, CA 90230
866-We Will Walk
(Ph) (310) 807-5488 (Fax)
http://www.liferollson.org
Email: Contact@LifeRollsOn.org *Life Rolls On is a non-profit organization that inspires others to see the boundless possibilities beyond paralysis. Established in 2002, LRO’s signature adaptive surfing program, They Will Surf Again, has grown into a catalyst of hope for thousands of individuals throughout the world.
Morgans™ Wonderland (Fully Accessible Theme Park)
5223 David Edwards Drive
San Antonio, TX 78233
(210) 495-5888
(877) 495-5888 (toll free)
http://www.morganswonderland.com
E-mail: info@morganswonderland.com *Provides a safe, clean and beautiful environment free of economic barriers that all individuals, regardless of age, special need or disability, can come to and enjoy.
MySummerCamps.Com
909 Sepulveda Blvd.
El Segundo, CA 90245
310-280-4105
877-777-7738
310-280-4921 (Fax)
http://www.mysummercamps.com/camps/Special_Need...
*Large resource listing of a wide variety of Special Needs summer camps in the US and Canada.
National Amputee Golf Association
11 Walnut Hill Rd
Amherst, NH 03031
http://nagagolf.org
E-mail:info@nagagolf.org See "Related Links" for regional and international organization contact information.
National Center on Physical Activity and Disability
1640 W. Roosevelt Road
Chicago, IL 60608-6904
1-800-900-8086
1-312-355-4058 (Fax)
http://www.ncpad.org/
Email: ncpad@uic.edu. *Maintains a State-by-state listing of Summer Camps and recreational facilities.
National Park Service/Accessible Opportunities in National Parks
http://www.nps.gov/pub_aff/access/opportunities...
*Contact information is available by Park. Check out the left-hand menu for more National Park accessibility information.
National Parks Pass
http://www.nps.gov/fees_passes.htm
*Updated information regarding free access passes to National Parks for U.S. citizens or permanent residents with permanent disabilities.
National Sports Center for the Disabled
P.O. Box 1290
Winterpark , CO 80482
(970) 726-1540
(303) 316-1540
(970) 726-4112 (Fax)
http://www.nscd.org
*National Sports Center for the Disabled's mission is to positively impact the lives of people with any physical or mental challenge through quality adaptive recreation programs in over 20 sports.
National Wheelchair Basketball Association
1130 Elkton St., Suite C
Colorado Springs, CO 80907
(719) 266-4082
(719) 266-4876 (Fax)
http://www.nwba.org
E-mail: info@nwba.org
Sensafloat
http://www.reboundtherapy.org/hydrotherapy
E-Mail: Hydro@reboundtherapy.org Original Floatsation is a unique water support aid, designed to facilitate relaxation and movement in water. It has applications for children and adults across the whole spectrum of special needs. Winner of the 1993 Toshiba / CBI Invention of the Year award.
SportsAbilities
9249 South Broadway #200-156
Highlands Ranch, CO 80129
http://sportsabilities.com
*We are the premier resource for people with disabilities to find recreational, advocacy, support, and sporting activities in the nation. We have calendars for every state and 27 different activities ranging from Team Sports to Social Gatherings.
The Center for Courageous Kids
1501 Burnley Road
Scottsville, KY 42164
270-618-2900
http://www.thecenterforcourageouskids.org
E-mail info@courageouskids.org *The Center for Courageous Kids, also known as CCK, is a world class medical camp located in Scottsville, KY, serving children and families from across the country who are living with a variety of medical challenges. We are open year round and can host 120 kids at a time.
The Miracle League Association
1506 Klondike Road, Suite 105
Conyers, GA 30094
770 760-1933
770 483-1223 (Fax)
http://www.miracleleague.com
E-mail: Johnny@miracleleague.com *The Miracle League focuses on removing barriers which keep mentally and physically disabled children off the baseball field and lets them experience the joy of America's favorite pastime.Click on "Find a League" to find a league in your community.
The National Alliance for Accessible Golf
1733 King Street
Alexandria, VA 22314
(703) 299-4296
(703) 739-0124 (Fax)
http://www.accessgolf.org
E-mail: info@accessgolf.org
The United States Association of Blind Athletes
33 N. Institute St.
Colorado Springs, CO 80903
(719) 630-0422
(719) 630-0616 (Fax)
http://www.usaba.org/
*See home page for Camp Information and Regional Offices in your area and state.
United States Quad Rugby Association
(561) 969-1970
(561) 642-4444 (Fax)
http://usqra.org
*The United States Quad Rugby Association provides opportunities, support, and structure for competitive wheelchair rugby to people with disabilities.
US Electric Wheelchair Hockey Association
7216 39th Avenue North
Minneapolis, MN 55427
763-535-4736
208-279-1368 (Fax)
http://www.powerhockey.com
PowerHockey™ is based on basic hockey rules with a few adaptations to allow everyone in a power wheelchair the ability to participate.
US Youth Soccer TOPSoccer (The Outreach Program for Soccer
9220 World Cup Way
Frisco, TX 75034
800-4SOCCER
(972) 334-9960 (Fax)
http://www.usyouthsoccer.org/programs/topsoccer/
E-mail: mmoran@usyouthsoccer.org *A community-based training and team placement program for young athletes with disabilities, organized by youth soccer association volunteers. The program is designed to bring the opportunity of learning and playing soccer to any boy or girl, ages 4-19, who has a mental or physical disability. *Contact for a program in your area.
USA Disabled Hockey
1775 Bob Johnson Dr
Colorado Springs , CO 80906-4090
(719) 576-USAH (8724)
(719) 538-1160 (Fax)
http://www.usahockey.com/page/show/887219-disab...
E-mail: usah@usahockey.org *Contains a listing of teams and disciplines all over the US. See Team Listings for a team near you.
VerySpecialCamps.Com
http://www.veryspecialcamps.com
An online camp directory for individuals with one or more of a wide range of special needs. Listings are by state.
Service Dogs/Canine Programs
Assistance Dog Institute/Bergin University of Canine Studies
1215 Sebastopol Road
Santa Rosa, CA 95407
(707) 545-3647
http://www.berginu.edu
Email: info@berginu.edu
Autism Service Dogs of America
4248 Galewood St.
Lake Oswego, OR 97035
http://autismservicedogsofamerica.com
Canine Companions for Independence (CCI)/National Center
P.O. Box
Oceanside, CA 92052
(800) 572-2275
(760) 901-4300
(760) 901-4551 (Fax)
http://www.caninecompanions.org
*Contact for regional training centers and Veteran's Programs.
Canine Companions for Independence/Southwest Region
124 Rancho del Oro Drive
Oceanside, CA 92057
(800) 572-2275
(760) 901-4300
(760) 901-4350 (Fax)
http://www.cci.org/southwest/index.html
Eye Dog Foundation for the Blind
8252 S. 15th Ave
Phoenix, AZ 85041
(602) 276-0051
1-800-393-3641
http://www.eyedogfoundation.org
Paws and Stripes
P.O. Box 46253
Rio Rancho, NM 87174
http://www.pawsandstripes.org
E-mail: VeteranDogs@pawsandstripes.org *Provides service dogs for veterans with Post Traumatic Stress Disorder (PTSD) and Traumatic Brain Injuries (TBI)free of charge for the veteran. Please contact for full program information.
Power Paws Assistance Dogs, Inc.
P.O. Box 1163
Scottsdale, AZ 85252
(480) 945-0754
(480) 945-0525 (Fax)
http://www.azpowerpaws.org
 
Transition/Post Secondary Schooling
Association on Higher Education And Disability (AHEAD)
107 Commerce Center Drive, Suite 204
Huntersville, NC 28078
(704) 947-7779
(704) 948-7779 (Fax)
http://www.ahead.org/students-parents/transitions
*AHEAD is actively involved in all facets of promoting full and equal participation by individuals with disabilities in higher education; and supporting the systems, institutions, professions, and professionals who attend to the fulfillment of this important mission.
HEATH Resource Center/ George Washington University
2134 G Street, N.W.
Washington, DC 20052
http://www.heath.gwu.edu
E-mail: AskHEATH@gwu.edu *The HEATH Resource Center gathers and disseminates information to help people with disabilities reach their full potential through postsecondary education and training. Contains a wealth of information and resources on a wide variety of subjects related to education.
National Collaborative on Workforce and Disability for Youth (NCWD)
4455 Connecticut Avenue NW, Suite 310
Washington, DC 20008
877-871-0744
TTY: 877-871-0665
http://www.ncwd-youth.info
*Federal informational program site. Excellent resource. Click on "Content By State" for programs in your area.
National Gateway to Self-Determination
http://www.ngsd.org
*This site provides a single access for self-advocates, professionals, policy-makers and the general public on the current best practices and evidence-based activities in enhancing self-determination in the lives of people with developmental and intellectual disabilities, as well as any individual.
We Connect Now
McIlhenny Drive
Baton Rouge, LA 70809
http://weconnectnow.wordpress.com
E-mail: weconnectnow2008@gmail.com *We Connect Now is dedicated to uniting people on issues which affect people with disabilities, with emphasis on college students higher education & employment.
 
Transportation Information
National Mobility Equipment Dealers Association
3327 W. Bearss Ave.
Tampa, FL 33618
(800) 833-0427
(813) 264-2697
(813) 962-8970 (Fax)
http://www.nmeda.com
Email: nmeda@aol.com *Provides a state-by-state listing of NMEDA QAP certified dealerships. Start here when looking for mobility equipment (lifts, vehicles, steering systems, etc.) information.
School Transportation News
P.O. Box 789
Redondo Beach, CA 90277
(310) 792-2226
http://www.stnonline.com/stn/
*See Special Needs Transportation