| Advocacy |
Disability Rights North Carolina
2626 Glenwood Avenue, Suite 550
Raleigh, NC 27608
(888) 268-5535
(919) 856-2195
(919) 856-2244 (Fax)
http://www.disabilityrightsnc.org/
|
Louisiana Citizens for Action Now
http://www.lacanadvocates.org
Provides a wealth of self advocacy information. Linda recommends individuals check out the "Legislative Activities" section for an outline of a sample letter to Legislators and a "How-To" testify before a legislative body. |
| Agencies/Assistance Programs - Government |
GovBenefits.Gov
http://www.govbenefits.gov
Provides information regarding government assistance programs nationwide. Includes a state-by-state program search. |
North Carolina Department of Health and Human Services
http://www.ncdhhs.gov
*Click on Divisions and Contacts |
North Carolina Developmental Disabilities (Dept. Health and Human Services)
325 No. Salisbury St.
Raleigh, NC 27603
V/TDD (800) 852-0042
(919) 733-3654
(919) 733-9455 (Fax)
http://www.dhhs.state.nc.us/MHDDSAS/
|
North Carolina Division of Medical Assistance
http://www.dhhs.state.nc.us/dma/
*Specific Contact Information by county |
North carolina Governor's Advocacy Council for Persons with Disabilities
1314 Mail Service Center
Raleigh, NC 27699-1314
(800) 821-6922
(919) 733-9173 (Fax)
http://www.gacpd.com
email: gacpd@ncmail.net |
|
| Agencies/Assistance Programs - Private |
Cover the Uninsured ~ A Project of the Robert Wood Johnson Foundation
(202) 572-2928
http://covertheuninsured.org
E-mail: info@covertheuninsured.org
*State by state listings of various insurance programs for individuals and families who have difficulty obtaining medical insurance. |
|
| Assistive Technologies |
Inclusive TLC (Technology Learning Communication)
2206 Legacy Oak Drive
Waxhaw, NC 28173
(704) 243-3622
1-800-462-0930
(704) 243-3623 (Fax)
http://www.inclusivetlc.com/
E-mail: info@inclusiveTLC.com |
Partnerships in Assistive Technology
1110 Navaho Drive, Suite 100
Raleigh, NC 27609
(919) 872-2298
(919) 872-2294 (Fax)
http://www.pat.org/
|
| Child Care Resource Listings |
Child Care Aware
3101 Wilson Blvd. Suite 350
Arlington, VA 22201
1-800-424-2246
TTY:1-866-278-9428
(703) 341-4101 (Fax)
http://www.childcareaware.org
Child Care Aware is a cooperative program of the National Association of Child Care Resource and Referral Agencies. Funded through the Office of Family Assistance, Administration for Children and Families, U.S. Department of Health and Human Services.
**SNRP does NOT endorse this site. Listed for reference only. Use responsible caution when investigating ALL care providers. |
|
| Disability Specific Organizations |
Chronic Fatigue & Immune Dysfunction Syndrome Association
PO Box 220398
Charlotte, NC 28222-0398
(704) 365-2343
http://www.cfids.org/
|
Learning Disabilities Association of North Carolina
9650 Strickland Rd. Suite 103-224
Raleigh, NC 27615-1937
(919) 493-5362
(919) 489-0788 (Fax)
http://www.ldanc.org
Email: idanc@mindspring.com |
| Early Intervention |
National Early Childhood Technical Assistance System (NEC*TAS)
517 South Greensboro Street
Carrboro, NC 27510
(919) 962-2001
TDD (919) 843-3269
(919) 966-7463 (Fax)
http://www.nectas.unc.edu
email: nectac@unc.edu |
North Carolina Dept. Of Health and Human Services/Early Intervention - Children and Youth
2302 Mail Service Center
Raleigh, NC 27699-2302
(919) 715-7500
http://wch.dhhs.state.nc.us
|
Orlena Hawks Puckett Institute
18A Regent Park Boulevard
Asheville, NC 28806
1-800-824-1182
(828) 255-0470
(828) 255-9035 (Fax)
http://www.puckett.org
email: dunst@puckett.org |
Orlena Hawks Puckett Institute
P.O. Box 2277
Morgantown, NC 28655
1-800-824-1174
(828) 432-0065
(828) 432-0068 (Fax)
http://www.puckett.org
email: trivette@puckett.org |
Southern Early Childhood Association
P.O. Box 55930
Little Rock, AR 5930
(800) 305-7322
(501) 227-5297 (Fax)
http://www.southernearlychildhood.org/
*Contacts listed by state. |
University of North Carolina Chapel Hill/ Dept. of Disabilities Services
RM 5, Steele Bldg, CB 5100
Chapel Hill, NC 27599-5100
(919) 962-8300
(919) 962-4748 (Fax)
|
| Education |
Association on Higher Education and Disability (AHEAD)
107 Commerce Center Drive, Suite 204
Huntsville, NC 28078
(704) 947-7779
(704) 948-7779 (Fax)
http://www.ahead.org/index.htm
email: ahead@ahead.org |
Mid-South Regional Resource Center (MSRRC) University of Kentucky
Human Development Institute 126 Mineral Industries Building
Lexington, KY 40506-0051
(859) 257-4921
TTY (859) 257-2903
http://www.rrfcnetwork.org/msrrc
E-mail: msrrc@ihdi.uky.edu |
North Carolina Dept. of Public Instruction/Exceptional Children Division
301 N. Wilmington St.
Raleigh, NC 27601
(919) 807-3300
http://www.ncpublicschools.org/ec/
|
|
| Housing Programs - Government |
DisabilityInfo.gov ~ Housing
http://www.disabilityinfo.gov
*Provides a comprehensive listing of Federal and State housing programs and up to date program information. |
North Carolina Housing Finance Agency
3508 Bush Street
Raleigh, NC 27609
919-877-5700
800-393-0988
http://www.nchfa.com
|
Paralyzed Veterans of America
801 18th Street NW
Washington, DC 20006-3517
1-800-424-8200
http://www.pva.org
*Not just for paralyzed Veterans, not just for paralysis. Ask for their Architecture Program!
**SNRP recommends their publication "Accessible Home Design". |
SocialServe.com
P.O. Box 35305
Charlotte, NC 28235
1-877-428-8844
(704) 334-8722
(704) 334-0779 (Fax)
http://www.socialserve.com/index.html
email: info@socialserve.com
Provides private and Government housing location assistance. |
| Housing Programs - Private |
Center For Universal Design North Carolina State University
P.O. Box 8613
Raleigh, NC 27695-8613
(800) 647-6777
V/TTY:(919) 515-3082
(919) 515-3023 (Fax)
http://www.design.ncsu.edu\cud
|
Institute for Human Centered Design (Adaptive Environments)
180-200 Portland Street, Suite 1
Boston, MA 02114
(617) 695-1225
(617) 482-8099 (Fax)
http://www.adaptenv.org
E-mail: info@HumanCenteredDesign.org |
| Independent Living Organizations |
Programs for Accessible Living
5801 Executive Center Drive, Suite 101
Charlotte, NC 28212
(800) 755-5749
(704) 537-0550
(704) 566-0507 (Fax)
http://www.paladvocates.org
|
|
| Indian Health Services |
Nashville Area Office Indian Health Services
711 Stewarts Ferry Pike
Nashville, TN 37214-2634
(615) 467-1500
(615) 467-1501 (Fax)
http://www.ihs.gov/FacilitiesServices/AreaOffic...
*Covers the Southern and Eastern United States. |
|
| Information |
Disability Information.Gov
http://www.disabilityinfo.gov
*Large Federal database providing easy access to comprehensive information about disability programs, services, laws and benefits. To find disability resources in your state just click on the Find State and Local Resources map located in each of the subject areas listed in their menu. |
Girls Health.gov
8270 Willow Oaks Corporate Drive, Suite 301
Fairfax, VA 22031
http://4girls.gov
*See "Illness and Disability" tab. Excellent information resource. |
MedicareSolutions
http://www.medicaresolutions.com/disability-res...
*A comprehensive page on disabilities providing informative links in several areas of interest including Disability Rights, support groups, government resources and organizations and others. |
National Organization on Disability
910 Sixteenth Street, N.W., Suite 600
Washington, DC 20006
(202) 293-5960
TTY: (202) 293-5968
(202) 293-7999 (Fax)
http://www.nod.org
E-mail: ability@nod.org |
National Respite Locator Service
800 Easttowne Drive, Suite 105
Chapel Hill, NC 27514
(800) 473-1727 ext. 222
http://www.respitelocator.org/index.htm
List of Reapite provider links nationwide. Focuses on respite care for families of special needs children. |
United Spinal Association
75-20 Astoria Boulevard
Jackson Heights, NY 11370
800-404-2898
(718) 803-3782
(718) 803-0414 (Fax)
http://www.unitedspinal.org/disability-publicat...
*Linda's favorite down-loadable informational resource. Linda recommends the following booklets: Disability Etiquette (PDF), Taking Action (PDF), Adaptive Automotive Equipment (PDF), The Americans with Disabilities Act (PDF),The Fair Housing Amendments Acts (PDF) and Accessing Local Government (PDF). Please see the menu page for other publications you may be interested in. |
| Legal Advocacy/Information |
National Help Law Program (NHeLP) North Carolina Office
211 North Columbia Street, 2nd Floor
Chapel Hill, NC 27514-3503
(919) 968-6308
(919) 968-8855 (Fax)
http://www.healthlaw.org
Email: nhelp@healthlaw.org
* NHeLP serves legal services programs, community-based organizations, the private bar, providers and individuals who work to preserve a health care safety net for the millions of uninsured or underinsured low-income people. |
Wright's Law
http://www.wrightslaw.com
|
| Medical Centers/Hospitals/Clinics |
Brenner Children's Hospital (Wake Forest Unniversity Baptist Medical Center)
Medical Center Boulevard
Winston-Salem, NC 27157
(800) 446-2255
(336) 713-0000
http://www.brennerchildrens.org
|
Children's Hospital - University Health Systems of Eastern Carolina
2100 Statonsburg Road
Greenville, NC 27835
(252) 847-5712
http://www.uhseast.com
Note: Main entrance to Children's is on the south side of Pitt County Memorial Hospital |
Duke Children's Hospital and Health Center
Erwin Road
Durham, NC 27710
(800) 275-3853
(919) 416-3853
http://www.dukechildrens.org
|
Mission Children's Hospital
509 Biltmore Ave.
Ashville, NC 28801
(828) 213-1111
http://www.missionhospitals.org/childrens.htm
|
North Carolina Children's Hospital (UNC Healthcare)
101 Manning Dr.
Chapel Hill, NC 27514
(919) 966-4131
http://www.unchealthcare.org/site/NCChildrensHo...
|
|
| Other |
Disability Studies, Temple University Blog
http://disstud.blogspot.com
*Based at Temple University but with nationwide contributors. Has a LARGE list of disability related blogs. |
|
| Parent Support Programs |
Exceptional Children's Assistance Center
907 Barra Row, Suite 102/103
Davidson, NC 28036
(704) 892-1321
Parent Info Line: 1-800-962-6817
http://www.ecac-parentcenter.org
email:information@ecac-parentcenter.org |
Exceptional Children's Assistance Center (ECAC) Region 2 & 3
907 Barra Row, Suite 102/103
Davidson , NC 28036
(800) 962-6817
(704) 892-1321
http://www.ecac-parentcenter.org/
email: ecacta@ecacmail.org |
Families' Information, Resources, Support & Technology (FIRST)
P.O. Box 802
Asheville, NC 28802
(828) 277-1315
http://www.firstwnc.org
|
|
| Patient Assistance Programs |
American Dental Association ~ Give Kids A Smile Program
http://www.givekidsasmile.ada.org/findGKAS.asp
*This is a yearly clinic in most communities. Click on the Clinic locator to find a clinic in your area. |
Cover the Uninsured
http://covertheuninsured.org
Email: info@covertheuninsured.org
* Provides a State by State guide to finding healthcare insurance coverage in your state. |
Merck Patient Assistance Programs
P.O. Box 100
Whitehouse Station, NJ 08889-0100
908-423-1000
http://www.merck.com/responsibility/pap-informa...
Merck offers a family of programs providing free and discounted medicines to patients who cannot afford their prescribed medicines. |
NeedyMeds
P.O. Box 219
Gloucester, MA 01931
http://www.needymeds.org
NeedyMeds is a 501(c)(3) national non profit, has information on programs that help people who can't afford their medications and health care costs. Provides data regarding approximately 2400 programs and nearly 11,000 free/low-cost/sliding-scale clinics. |
Partnership for Prescription Assistance
1-888-477-2669
http://www.pparx.org
The Partnership for Prescription Assistance offers a single point of access to more than 475 public and private patient assistance programs, including more than 180 programs offered by pharmaceutical companies. More than 2,500 brand-name and generic medicines are covered. |
Partnership for Prescription Assistance Kids
1-877-369-1477
http://kids.pparx.org
The Partnership for Prescription Assistance offers a single point of access to more than 475 public and private patient assistance programs, including more than 180 programs offered by pharmaceutical companies. More than 2,500 brand-name and generic medicines are covered. |
Pfizer Helpful Answers
1-866-706-2400
http://www.pfizerhelpfulanswers.com
Pfizer Helpful Answers is a family of assistance programs for uninsured and underinsured patients who need help getting their Pfizer medicines.
These programs provide:
•Pfizer medicines for free or at a savings to patients who qualify
•Some programs also offer reimbursement support services
Call for more information. |
RxAssist
111 Brewster Street
Pawtucket, RI 02860
401-729-3284
401-729-2955 (Fax)
http://www.rxassist.org
Email: info@rxassist.org
Patient Assistance Program Center ~ Offers a comprehensive database of programs and information. |
| Recreation |
Ability Station
278 South 880 West
Spanish Fork, UT 84660
800-520-1222
http://www.abilitystation.com
Ability Station offers toys for special needs children needing sensory, fine motor and gross motor,and cognitive development. Toys are reviewed by an Occupational, Physical or Speech Therapist. |
Arts Access, Inc.
P.O. Box 25044
Raleigh, NC 27611-5044
(919) 833-9919
http://www.artsaccessinc.org/
Email: info@artsaccessinc.org |
National Center on Physical Activity and Disability
1640 W. Roosevelt Road
Chicago, IL 60608-6904
1-800-900-8086
1-312-355-4058 (Fax)
http://www.ncpad.org/
Email: ncpad@uic.edu.
*Maintains a State-by-state listing of camps and recreational facilities. |
National Parks Pass
http://www.nps.gov/fees_passes.htm
*Updated information regarding free access passes to National Parks for U.S. citizens or permanent residents with permanent disabilities. |
Structured Athletics for Challenged Children of Iredell County (SACC)
P.O. Box 1668
Mooresville, NC 28115-1668
(704) 664-7663
(704) 881-0759
http://www.sacciredell.org
email: info@sacciredell.org
*Contact for other chapters in N. Carolina and Tennessee |
Victory Junction Gang Camp
4500 Adam's Way
Randleman, NC 27317
1-877-254-2267
(336) 498-9055
http://www.victoryjunction.org
*Contact the camp office for more information. |
| Service Dogs/Canine Programs |
Canine Companions for Independence (CCI)/National Center
P.O. Box
Oceanside, CA 92052
(800) 572-2275
(760) 901-4300
(760) 901-4551 (Fax)
http://www.caninecompanions.org
*Contact for regional training centers and Veteran's Programs. |
Carolina Canines For Service
PO Box 12643
Wilmington, NC 28405
866-910-3647
(910) 362-8181
(910) 362-8184 (Fax)
http://www.carolinacanines.org/
Email: info@carolinacanines.org |
National Education of Assistance Dog Services, Inc/N.E.A.D.S.
P.O. Box 213
West Boylston, MA 01583
(978) 422-9064 V/TDD
(978) 422-3255 (Fax)
http://www.neads.org/index.shtml
E-Mail: info@neads.org
*Contact for Regional contact information |
Southeastern Guidedogs, Inc.
4210 77th Street E.
Palmetto, FL 34221
(800) 944-3647
1-941-729-5665
(941) 729-6646 (Fax)
http://www.guidedogs.org/
|
| Transition/Post Secondary Schooling |
Virginia College Quest
George Mason University
, VA
http://www.vacollegequest.org/index.shtml
E-mail: info@vacollegequest.org
*An excellent Post-High School education resource. |
|
| Transportation Information |
National Mobility Equipment Dealers Association
3327 W. Bearss Ave.
Tampa, FL 33618
(800) 833-0427
(813) 264-2697
(813) 962-8970 (Fax)
http://www.nmeda.org/
Email: nmeda@aol.com
*Provides a state-by-state listing of NMEDA QAP certified dealerships. Start here when looking for mobility equipment (lifts, vehicles, steering systems, etc.) information. |
School Transportation News
P.O. Box 789
Redondo Beach, CA 90277
(310) 792-2226
http://www.stnonline.com/stn/
*See Special Needs Transportation |
